Getting ready for user involvement in a systematic review

Health Expectations

Volumn 12, Issue 2, 2009, Pages 197-208

  Smith, Elizabeth ^a   Donovan, Sheila ^b   Beresford, Peter ^c   Manthorpe, Jill ^a   Brearley, Sally ^a   Sitzia, John ^d   Ross, Fiona ^b  

^a KING'S COLLEGE LONDON   (United Kingdom)

^b ST GEORGE'S UNIVERSITY OF LONDON   (United Kingdom)

^c BRUNEL UNIVERSITY   (United Kingdom)

^d UNIVERSITY OF LONDON   (United Kingdom)

Author keywords

Patient and public involvement; Representation; Systematic review methods; User involvement in research

Indexed keywords

ARTICLE; CONCEPTUAL FRAMEWORK; CONSUMER; LEARNING; MEDICAL INFORMATION; MEDICAL RESEARCH; OUTCOME ASSESSMENT; PRIORITY JOURNAL; SYSTEMATIC REVIEW; UNITED KINGDOM;

ENGLAND; HEALTH PLANNING; HUMANS; PATIENT PARTICIPATION; STATE MEDICINE;

EID: 65949105951     PISSN: 13696513     EISSN: 13697625     Source Type: Journal    
DOI: 10.1111/j.1369-7625.2009.00535.x     Document Type: Article

References (36)

1. Department of Health. Patient and Public Involvement in Health: The Evidence for Policy Implementation. London : Department of Health, 2004.
2. Department of Health. Research Governance Framework for Health and Social Care. London : Department of Health, 2001.
3. Trivedi P, Wykes T. From passive subjects to equal partners: qualitative review of user involvement in research. British Journal of Psychiatry, 2002 181 : 468 472. (Pubitemid 35440670)
4. Boote J, Telford R, Cooper C. Consumer involvement in health research: a review and research agenda. Health Policy, 2002 61 : 213 236. (Pubitemid 34669916)
5. Beresford P. User involvement in research: exploring the challenges. Nursing Times Research, 2003 8 : 36 46.
6. Smith E, Ross F, Donovan S et al. Service user involvement in nursing, midwifery and health visiting research: a review of evidence and practice. International Journal of Nursing Studies, 2008 45 : 298 315.
7. Braye S, Preston-Shoot M. Emerging from out of the shadows? Service user involvement in systematic reviews Evidence & Policy, 2005 1 : 173 193.
8. Murphy E, Dingwall R, Greatbatch D, Parker S, Watson P. Qualitative Research Methods in Health Technology Assessment: A Review of the Literature, Vol. 2, No. 16. London : Health Technology Assessment, 1998.
9. Petticrew M, Roberts H. Systematic Reviews in the Social Sciences: A Practical Guide. Oxford : Blackwell, 2005.
10. Reason P. Evidence based policy: the promise of realist synthesis. Evaluation, 2002 8 : 340 358.
11. Pawson R, Boaz A. Evidence-based Policy, Theory-based Synthesis, User-led Review: An ESRC Research Methods Programme Project. London : ESRC UK Centre for Evidence Based Policy and Practice, 2004.
12. Pawson R, Boaz A, Grayson L, Long A, Barnes C. Types and Quality of Knowledge in Social Care, Knowledge Review 3. London : Social Care Institute for Excellence, 2003.
13. Glasby J, Beresford P. Who knows best? Evidence-based practice and the service user contribution. Critical Social Policy, 2006 26 : 268 284.
14. Smith E, Ross F, Donovan S et al. User involvement in the design and undertaking of nursing, midwifery and health visiting research. A Report to the National Co-ordinating Centre for NHS Service Delivery and Organisation Research and Development. London : National Nursing Research Unit, King's College London, 2005.
15. Crawford M, Rutter D, Manley C et al. Systematic review of involving patients in the planning and development of health care. British Medical Journal, 2002 325 : 1263 1265. (Pubitemid 35430579)
16. Entwistle V, Renfrew M, Yearly S, Forrester J, Lamont T. Lay perspectives: advantages for health research. British Medical Journal, 1998 316 : 463 466. (Pubitemid 28121309)
17. Staniszewska S, Jones N, Newburn M, Marshall S. User involvement in the development of a research bid: barriers, enablers and impacts. Health Expectations, 2007 10 : 173 183. (Pubitemid 46808893)
18. Rose D, Fleischmann P, Wykes T. Consumers' perspectives on ECT: a qualitative analysis. Journal of Mental Health, 2004 13 : 285 294.
19. Oakley A, Oliver S, Peersman G. Review of Effectiveness of Health Promotion Interventions for Men Who have Sex with Men. London : Evidence in Policy and Practice Information and Coordination Centre, Social Science Research Unit, Institute of Education, University of London, 1996.
20. Boaz A, Ashby D. Fit for Purpose? Assessing Research Quality for Evidence Based Policy and Practice, Working Paper 11. London : ESRC UK Centre for Evidence Based Policy and Practice, 2003.
21. Arnstein S. A ladder of citizen participation. Journal of the American Institute of Planners (AIP Journal), 1969 35 : 216 224.
22. Hanley B, Bradburn J, Gorin S et al. Involving Consumers in Research and Development in the NHS: Briefing Notes for Researchers. Winchester : Consumers in NHS Research Support Unit, 2000.
23. Ghersi D. Making it happen: approaches to involving consumers in Cochrane reviews. Evaluation & the Health Professions, 2002 25 : 270 283.
24. Oliver S, Buchanan P. Examples of Lay Involvement in R&D. London : Social Science Research Unit, Institute of Education, University of London, 1997.
25. Social Care Institute for Excellence. Research Resource 02: Collection of Examples of Service User and Carer Participation in Systematic Reviews. London : Social Care Institute for Excellence, 2007.
26. National Institute for Clinical Excellence. Setting Standards for ECT use in England and Wales 2003/12. London : National Institute for Clinical Excellence, 2003.
27. Stewart R, Hargreaves K, Oliver S. Evidence informed policy making for health communication. Health Education Journal, 2005 64 : 120 128. (Pubitemid 40904980)
28. Wickham J, Collins G. Involving users in social science research-A new European paradigm? European Journal of Education, 2006 41 : 269 280.
29. Beresford P. User involvement, research and health inequalities: developing new directions. Health & Social Care in the Community, 2007 15 : 306 312.
30. Williamson C. 'How do we find the right patients to consult?' Quality in Primary Care, 2007 15 : 195 199. (Pubitemid 47322265)
31. Jones K, Baggott R, Allsop J. Influencing the national policy process: the role of health consumer groups. Health Expectations, 2004 7 : 18 28. (Pubitemid 38220405)
32. Rhodes P, Nocon A, Wright J, Harrison S. Involving patients in research. Setting up a service users' advisory group. Journal of Management in Medicine, 2001 15 : 167 171.
33. Telford R, Boote J, Cooper C. What does it mean to involve consumers successfully in NHS research? A consensus study Health Expectations, 2004 7 : 209 220. (Pubitemid 39166370)
34. Department of Health. The New NHS, Modern Dependable. London : Department of Health, 1997.
35. Department of Health. Reward and Recognition. London : Department of Health, 2006.
36. Turner P, Beresford P. User Controlled Research: Its Meanings and Potential. London : Shaping Our Lives & Brunel University, 2005.