Development and testing of a multidimensional iphone pain assessment application for adolescents with cancer

Journal of Medical Internet Research

Volumn 15, Issue 3, 2013, Pages

  Stinson, Jennifer N ^a,b   Jibb, Lindsay A ^a,b   Nguyen, Cynthia ^a   Nathan, Paul C ^a,b   Maloney, Anne Marie ^a,b   Dupuis, L Lee ^a,b   Gerstle, J Ted ^a,b   Alman, Benjamin ^a,b   Hopyan, Sevan ^a,b   Strahlendorf, Caron ^c   Portwine, Carol ^d   Johnston, Donna L ^e,f   Orr, Mike ^g  

^a HOSPITAL FOR SICK CHILDREN   (Canada)

^b UNIVERSITY OF TORONTO   (Canada)

^c BC CHILDREN S HOSPITAL   (Canada)

^d MCMASTER UNIVERSITY   (Canada)

^e CHILDREN S HOSPITAL OF EASTERN ONTARIO   (Canada)

^f UNIVERSITY OF OTTAWA   (Canada)

^g Cundari Group Limited   (Canada)

Author keywords

Adolescent; Cellular phone; Child; Game; Neoplasms; Pain; Youth

Indexed keywords

ADOLESCENT; ARTICLE; FEASIBILITY STUDY; FEMALE; HUMAN; MALE; METHODOLOGY; MICROCOMPUTER; MOBILE PHONE; NEOPLASM; PAIN; PAIN ASSESSMENT; PATHOPHYSIOLOGY; PATIENT COMPLIANCE; PATIENT SATISFACTION;

ADOLESCENT; CELLULAR PHONE; FEASIBILITY STUDIES; FEMALE; HUMANS; MALE; MICROCOMPUTERS; NEOPLASMS; PAIN; PAIN MEASUREMENT; PATIENT COMPLIANCE; PATIENT SATISFACTION;

EID: 84877250608     PISSN: None     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.2350     Document Type: Article

References (42)

1. Collins JJ, Stevens MM, Berde CB. Pediatric cancer pain. In: Clinical pain management. London: Hodder Arnold; 2008.
2. Cheng KK, Lee V, Li CH, Yuen HL, Epstein JB. Oral mucositis in pediatric and adolescent patients undergoing chemotherapy: The impact of symptoms on quality of life. Support Care Cancer 2012 Oct;20(10):2335-2342. [doi: 10.1007/s00520-011-1343-1] [Medline: 22167295]
3. Jacob E, Hesselgrave J, Sambuco G, Hockenberry M. Variations in pain, sleep, and activity during hospitalization in children with cancer. J Pediatr Oncol Nurs 2007;24(4):208-219. [doi: 10.1177/1043454207299875] [Medline: 17588893]
4. Landolt MA, Vollrath M, Niggli FK, Gnehm HE, Sennhauser FH. Health-related quality of life in children with newly diagnosed cancer: a one year follow-up study. Health Qual Life Outcomes 2006;4:63 [FREE Full text] [doi: 10.1186/1477-7525-4-63] [Medline: 16987419]
5. Ljungman G, Gordh T, Sörensen S, Kreuger A. Pain variations during cancer treatment in children: a descriptive survey. Pediatr Hematol Oncol 2000;17(3):211-221. [doi: 10.1080/088800100276389] [Medline: 10779987]
6. Special Interest Group on Pain in Childhood, International Association for the Study of Pain. Cancer pain relief and palliative care in children. Geneva: World Health Organization; 1998.
7. Collins JJ, Byrnes ME, Dunkel IJ, Lapin J, Nadel T, Thaler HT, et al. The measurement of symptoms in children with cancer. J Pain Symptom Manage 2000 May;19(5):363-377. [Medline: 10869877]
8. Moody K, Meyer M, Mancuso CA, Charlson M, Robbins L. Exploring concerns of children with cancer. Support Care Cancer 2006 Sep;14(9):960-966. [doi: 10.1007/s00520-006-0024-y] [Medline: 16639553]
9. Chen E, Zeltzer LK, Craske MG, Katz ER. Children's memories for painful cancer treatment procedures: implications for distress. Child Dev 2000;71(4):933-947. [Medline: 11016557]
10. von Baeyer CL, Marche TA, Rocha EM, Salmon K. Children's memory for pain: overview and implications for practice. J Pain 2004 Jun;5(5):241-249. [doi: 10.1016/j.jpain.2004.05.001] [Medline: 15219255]
11. Anderson KO. Assessment tools for the evaluation of pain in the oncology patient. Curr Pain Headache Rep 2007 Aug;11(4):259-264. [Medline: 17686388]
12. Palermo TM. Assessment of chronic pain in children: current status and emerging topics. Pain Res Manag 2009;14(1):21-26 [FREE Full text] [Medline: 19262912]
13. Stinson JN, Kavanagh T, Yamada J, Gill N, Stevens B. Systematic review of the psychometric properties, interpretability and feasibility of self-report pain intensity measures for use in clinical trials in children and adolescents. Pain 2006 Nov;125(1-2):143-157. [doi: 10.1016/j.pain.2006.05.006] [Medline: 16777328]
14. Stone AA, Shiffman S, Schwartz JE, Broderick JE, Hufford MR. Patient compliance with paper and electronic diaries. Control Clin Trials 2003 Apr;24(2):182-199. [Medline: 12689739]
15. Stone AA, Broderick JE. Real-time data collection for pain: appraisal and current status. Pain Med 2007 Oct;8 Suppl 3:S85-S93. [doi: 10.1111/j.1526-4637. 2007.00372.x] [Medline: 17877531]
16. Jan RL, Wang JY, Huang MC, Tseng SM, Su HJ, Liu LF. An Internet-based interactive telemonitoring system for improving childhood asthma outcomes in Taiwan. Telemed J E Health 2007 Jun;13(3):257-268. [doi: 10.1089/tmj.2006.0053] [Medline: 17603828]
17. Hanauer DA, Wentzell K, Laffel N, Laffel LM. Computerized Automated Reminder Diabetes System (CARDS): e-mail and SMS cell phone text messaging reminders to support diabetes management. Diabetes Technol Ther 2009 Feb;11(2):99-106. [doi: 10.1089/dia.2008.0022] [Medline: 19848576]
18. Mulvaney SA, Anders S, Smith AK, Pittel EJ, Johnson KB. A pilot test of a tailored mobile and Web-based diabetes messaging system for adolescents. J Telemed Telecare 2012 Mar;18(2):115-118. [doi: 10.1258/jtt.2011.111006] [Medline: 22383802]
19. Heinonen R, Luoto R, Lindfors P, Nygård CH. Usability and feasibility of mobile phone diaries in an experimental physical exercise study. Telemed J E Health 2012 Mar;18(2):115-119. [doi: 10.1089/tmj.2011.0087] [Medline: 22283356]
20. Lenhart A, Ling R, Campbell S, Purcell K. Teens and mobile phones. Washington, DC: Pew Internet & American Life Project; 2010. URL: http://pewinternet.org/~/media//Files/Reports/2010/PIP-Teens-And-Mobile-2010- with-topline.pdf [accessed 2013-02-25] [WebCite Cache ID 6EhcGFi8t]
21. Skinner H, Biscope S, Poland B, Goldberg E. How adolescents use technology for health information: implications for health professionals from focus group studies. J Med Internet Res 2003 Dec 18;5(4):e32 [FREE Full text] [doi: 10.2196/jmir.5.4.e32] [Medline: 14713660]
22. Munster G. Device ownership among teens. A Piper Jaffray and Company Report 2012.
23. Stinson JN, Petroz GC, Tait G, Feldman BM, Streiner D, McGrath PJ, et al. e-Ouch: usability testing of an electronic chronic pain diary for adolescents with arthritis. Clin J Pain 2006;22(3):295-305. [doi: 10.1097/01.ajp.0000173371. 54579.31] [Medline: 16514331]
24. Stinson JN, Petroz GC, Stevens BJ, Feldman BM, Streiner D, McGrath PJ, et al. Working out the kinks: testing the feasibility of an electronic pain diary for adolescents with arthritis. Pain Res Manag 2008;13(5):375-382 [FREE Full text] [Medline: 18958308]
25. Stinson JN, Stevens BJ, Feldman BM, Streiner D, McGrath PJ, Dupuis A, et al. Construct validity of a multidimensional electronic pain diary for adolescents with arthritis. Pain 2008 Jun;136(3):281-292. [doi: 10.1016/j.pain.2007.07.002] [Medline: 17723279]
26. SAS Institute I. SAS Version 9.1.3. Cary NC: SAS Institute Inc; 2006.
27. QRS International. QSR NVivo8. In: QRS NVivo 8. Australia: QRS International Pty Limited; 2008.
28. Roberts CH. A matter of definition. In: Text analysis for the social sciences: methods for drawing statistical inferences from texts and transcripts. Mahwah NJ: Lawrence Erlbaum; 1997.
29. Gibson F, Aldiss S, Taylor RM, Maguire R, McCann L, Sage M, et al. Utilization of the Medical Research Council evaluation framework in the development of technology for symptom management: The ASyMS-YG Study. Cancer Nurs 2010;33(5):343-352. [doi: 10.1097/NCC.0b013e3181cb4bad] [Medline: 20495448]
30. Morren M, van Dulmen S, Ouwerkerk J, Bensing J. Compliance with momentary pain measurement using electronic diaries: a systematic review. Eur J Pain 2009 Apr;13(4):354-365. [doi: 10.1016/j.ejpain.2008.05.010] [Medline: 18603458]
31. Erickson JM. Fatigue in adolescents with cancer: a review of the literature. Clin J Oncol Nurs 2004 Apr;8(2):139-145. [doi: 10.1188/04.CJON.139- 145] [Medline: 15108414]
32. Gibson F, Mulhall AB, Richardson A, Edwards JL, Ream E, Sepion BJ. A phenomenologic study of fatigue in adolescents receiving treatment for cancer. Oncol Nurs Forum 2005 May;32(3):651-660. [doi: 10.1188/05.ONF.651-660] [Medline: 15897939]
33. Cafazzo JA, Casselman M, Hamming N, Katzman DK, Palmert MR. Design of an mHealth app for the self-management of adolescent type 1 diabetes: a pilot study. J Med Internet Res 2012;14(3):e70 [FREE Full text] [doi: 10.2196/jmir.2058] [Medline: 22564332]
34. Connelly M, Anthony KK, Sarniak R, Bromberg MH, Gil KM, Schanberg LE. Parent pain responses as predictors of daily activities and mood in children with juvenile idiopathic arthritis: The utility of electronic diaries. J Pain Symptom Manage 2010 Mar;39(3):579-590. [doi: 10.1016/j.jpainsymman.2009.07.013] [Medline: 20303032]
35. Connelly M, Bickel J. An electronic daily diary process study of stress and health behavior triggers of primary headaches in children. J Pediatr Psychol 2011 Sep;36(8):852-862 [FREE Full text] [doi: 10.1093/jpepsy/jsr017] [Medline: 21441572]
36. Palermo TM, Valenzuela D, Stork PP. A randomized trial of electronic versus paper pain diaries in children: impact on compliance, accuracy, and acceptability. Pain 2004 Feb;107(3):213-219. [Medline: 14736583]
37. Deterding S, Sicart M, Nacke L, O'Hara KDixon D. Gamification: using game-design elements in non-gaming context. 2011 May Presented at: 2011 annual conference extended actracts on human factors in computing systems; 2011; Vancouver, British Columbia p. 7-12.
38. Ameringer S. Barriers to pain management among adolescents with cancer. Pain Manag Nurs 2010 Dec;11(4):224-233 [FREE Full text] [doi: 10.1016/j.pmn.2009.05.006] [Medline: 21095597]
39. Collins JJ, Devine TD, Dick GS, Johnson EA, Kilham HA, Pinkerton CR, et al. The measurement of symptoms in young children with cancer: The validation of the Memorial Symptom Assessment Scale in children aged 7-12. J Pain Symptom Manage 2002 Jan;23(1):10-16. [Medline: 11779663]
40. Mercadante S. Cancer pain management in children. Palliat Med 2004 Oct;18(7):654-662. [Medline: 15540676]
41. Woodgate RL, Degner LF, Yanofsky R. A different perspective to approaching cancer symptoms in children. J Pain Symptom Manage 2003 Sep;26(3):800-817. [Medline: 12967729]
42. Kushniruk AW, Patel VL. Cognitive and usability engineering methods for the evaluation of clinical information systems. J Biomed Inform 2004 Feb;37(1):56-76. [doi: 10.1016/j.jbi.2004.01.003] [Medline: 15016386]