Parent Pain Responses as Predictors of Daily Activities and Mood in Children with Juvenile Idiopathic Arthritis: The Utility of Electronic Diaries

Journal of Pain and Symptom Management

Volumn 39, Issue 3, 2010, Pages 579-590

  Connelly, Mark ^a   Anthony, Kelly K ^b   Sarniak, Rebecca ^c   Bromberg, Maggie H ^b   Gil, Karen M ^c   Schanberg, Laura E ^b  

^a CHILDREN S MERCY HOSPITAL   (United States)

^b DUKE UNIVERSITY MEDICAL CENTER   (United States)

^c UNIVERSITY OF NORTH CAROLINA   (United States)

Author keywords

Children; electronic diary; juvenile arthritis; pain; parent

Indexed keywords

METHOTREXATE; NONSTEROID ANTIINFLAMMATORY AGENT; TUMOR NECROSIS FACTOR INHIBITOR;

ACADEMIC ACHIEVEMENT; ADJUSTMENT; ADOLESCENT; ARTHRALGIA; ARTICLE; CHILD; CHILD PARENT RELATION; CLINICAL ARTICLE; DAILY LIFE ACTIVITY; DISEASE SEVERITY; ELECTRONIC DIARY; FEMALE; HUMAN; JUVENILE RHEUMATOID ARTHRITIS; MALE; MICROCOMPUTER; MOOD; PARENTAL BEHAVIOR; PATIENT ASSESSMENT; PATIENT PARTICIPATION; PHYSICAL ACTIVITY; PREDICTOR VARIABLE; PROTECTION; SCHOOL CHILD; SOCIAL BEHAVIOR; STATISTICAL ANALYSIS;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; AFFECT; ARTHRITIS, JUVENILE RHEUMATOID; CAREGIVERS; CHILD; FEMALE; HUMANS; MALE; MEDICAL RECORDS; PAIN; PARENTS; PREDICTIVE VALUE OF TESTS; PROGNOSIS; SOCIAL BEHAVIOR;

EID: 77949483911     PISSN: 08853924     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2009.07.013     Document Type: Article

References (37)

1. Schanberg L., Anthony K., Gil K., and Maurin E. Daily pain and symptoms in children with polyarticular arthritis. Arthritis Rheum 48 (2003) 1390-1397
2. Gutiérrez-Suárez R., Pistorio A., Cespedes C., et al. Health-related quality of life of patients with juvenile idiopathic arthritis coming from 3 different geographic areas. The PRINTO multinational quality of life cohort study. Rheumatology 46 (2007) 314-320
3. Malleson P., Oen K., Cabral D., et al. Predictors of pain in children with established juvenile rheumatoid arthritis. Arthritis Rheum 51 (2004) 222-227
4. Rapoff M., and Lindsley C. The pain puzzle: a visual and conceptual metaphor for understanding and treating pain in pediatric rheumatic disease. J Rheumatol 58 (2000) 29-33
5. Claar R., Simons L., and Logan D. Parental response to children's pain: the moderating impact of children's emotional distress on symptoms and disability. Pain 138 (2008) 172-179
6. Peterson C., and Palermo T. Parental reinforcement of recurrent pain: the moderating impact of child depression and anxiety on functional disability. J Pediatr Psychol 29 (2004) 331-341
7. Simons L., Claar R., and Logan D. Chronic pain in adolescence: parental responses, adolescent coping, and their impact on adolescent's pain behaviors. J Pediatr Psychol 33 (2008) 894-904
8. Walker L., Claar R., and Garber J. Social consequences of children's pain: when do they encourage symptom maintenance?. J Pediatr Psychol 27 (2002) 689-698
9. Walker L., Levy R., and Whitehead W. Validation of a measure of protective parent responses to children's pain. Clin J Pain 22 (2006) 712-716
10. Wall B., Holden E., and Gladstein J. Parent responses to pediatric headache. Headache 37 (1997) 65-70
11. Craig K. Modeling and social learning factors in chronic pain. In: Bonica J. (Ed). Advances in pain research (1978), Raven Press, New York 813-827
12. Fordyce W. The cognitive/behavioral perspective on clinical pain. In: Loeser J., and Egan K. (Eds). Managing the chronic pain patient (1989), Raven Press, New York 51-64
13. Anthony K., Gil K., and Schanberg L. Brief report: parental perceptions of child vulnerability in children with chronic illness. J Pediatr Psychol 28 (2003) 185-190
14. Frank R., Hagglund K., Schopp L., et al. Disease and family contributors to adaptation in juvenile rheumatoid arthritis and juvenile diabetes. Arthritis Care Res 11 (1998) 166-176
15. Schanberg L., Anthony K., Gil K., et al. Parental pain history predicts child health status in children with chronic rheumatic disease. Pediatrics 108 (2001) e47
16. Wagner J., Chaney J., Hommel K., et al. The influence of parental distress on child depressive symptoms in juvenile rheumatic disease: the moderating effect of illness intrusiveness. J Pediatr Psychol 28 (2003) 453-462
17. Power J., Dahlquist L., Thompson S., and Warren R. Interactions between children with juvenile rheumatoid arthritis and their mothers. J Pediatr Psychol 28 (2003) 213-221
18. Broderick J., Schwartz J., Vikingstad G., et al. The accuracy of pain and fatigue items across different reporting periods. Pain 139 (2008) 146-157
19. Stone A., Broderick J., Shiffman S., and Schwartz J. Understanding recall of weekly pain from a momentary assessment perspective: absolute agreement, between- and within-person consistency, and judged change in weekly pain. Pain 107 (2004) 61-69
20. Shiffman S. Real-time self-report of momentary states in the natural environment: computerized ecological momentary assessment. In: Turkkan J., and Stone A. (Eds). The science of self-report: implications for research and practice (2000), Lawrence Erlbaum Associates, Mahwah, NJ 277-296
21. Duffy C., Colbert R., Laxer R., Schanberg L., and Bowyer S. Nomenclature and classification in chronic childhood arthritis: time for a change?. Arthritis Rheum 52 (2005) 382-385
22. Palermo T., Valenzuela D., and Stork P. A randomized trial of electronic versus paper pain diaries in children: impact on compliance, accuracy, and acceptability. Pain 107 (2004) 213-219
23. Stinson J., Stevens B., Feldman B., et al. Construct validity of a multidimensional electronic pain diary for adolescents with arthritis. Pain 163 (2008) 281-292
24. Laurent J., Catanzaro S., Rudolph K., et al. A measure of positive and negative affect for children: scale development and preliminary validation. Psychol Assess 11 (1999) 326-338
25. Hainsworth K., Davies W., Khan K., and Weisman S. Development and preliminary validation of the child activity limitations questionnaire: flexible and efficient assessment of pain-related functional disability. J Pain 8 (2007) 746-752
26. Palermo T., Lewandowski A., Long A., and Burant C. Validation of a self-report questionnaire version of the Child Activity Limitations Interview (CALI): the CALI-21. Pain 139 (2008) 644-652
27. Schanberg L., Gil K., Anthony K., Yow E., and Rochon J. Pain, stiffness, and fatigue in juvenile polyarticular arthritis: contemporaneous stressful events and mood as predictors. Arthritis Rheum 48 (2005) 1390-1397
28. Watson D., Clark L., and Tellegen A. Development and validation of brief measures of positive and negative affect: the PANAS scales. J Pers Soc Psychol 54 (1988) 1063-1070
29. Connelly M., Keefe F., Affleck G., et al. Effects of day-to-day affect regulation on the pain experience of patients with rheumatoid arthritis. Pain 131 (2007) 162-170
30. Van Slyke D., and Walker L. Mothers' responses to children's pain. Clin J Pain 22 (2006) 387-391
31. Giannini E., and Brewer Jr. E. Standard methodology for segment I, II, and II Pediatric Rheumatology Collaborative Study Group studies. II. Analysis and presentation of data. J Rheumatol 9 (1982) 114-122
32. Affleck G., Zautra A., Tennen H., and Armeli S. Multilevel daily process designs for consulting and clinical psychology: a preface for the perplexed. J Consult Clin Psychol 67 (1999) 746-754
33. Nezlek J. Multilevel random coefficient analyses of event- and interval-contingent data in social and personality psychology research. Pers Soc Psychol Bull 27 (2001) 771-785
34. Raudenbush S., and Bryk A.S. Hierarchical linear models, applications and data analysis methods. 2nd ed. (2002), Sage Publications, Thousand Oaks, CA
35. Snijders T.A.B. Fixed and random effects. In: Everitt B.S., and Howell D.C. (Eds). Encyclopedia of statistics in behavioral science Vol. 2 (2005), Wiley, Chichester, UK 664-665
36. Raudenbush S., Bryk A., Cheong Y., Congdon R., and du Toit M. HLM 6: hierarchical linear and nonlinear modeling (2004), Scientific Software International Inc., Lincolnwood, IL
37. Piasecki T.M., Hufford M.R., Solhan M., and Trull T.J. Assessing clients in their natural environments with electronic diaries: rationale, benefits, limitations, and barriers. Psychol Assess 19 (2007) 25-43