e-Ouch: Usability testing of an electronic chronic pain diary for adolescents with arthritis

Clinical Journal of Pain

Volumn 22, Issue 3, 2006, Pages 295-305

  Stinson, Jennifer N ^a,b   Petroz, Guy C ^a,b   Tait, Gordon ^b   Feldman, Brian M ^a,b,c   Streiner, David ^a,d   McGrath, Patrick J ^e,f   Stevens, Bonnie J ^a,b  

^a UNIVERSITY OF TORONTO   (Canada)

^b HOSPITAL FOR SICK CHILDREN   (Canada)

^c HOLLAND BLOORVIEW KIDS REHABILITATION HOSPITAL   (Canada)

^d BAYCREST CENTRE FOR GERIATRIC CARE   (Canada)

^e DALHOUSIE UNIVERSITY   (Canada)

^f IWK HEALTH CENTRE   (Canada)

Author keywords

Adolescents; Electronic diary; Juvenile idiopathic arthritis; Pain; Usability testing

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHRONIC PAIN; CLINICAL ARTICLE; CONTROLLED STUDY; DEMOGRAPHY; ELECTRONIC DATA INTERCHANGE; FEMALE; HOSPITAL DEPARTMENT; HUMAN; JUVENILE RHEUMATOID ARTHRITIS; MALE; OPEN ENDED QUESTIONNAIRE; PAIN THRESHOLD; PATIENT SATISFACTION; PRIORITY JOURNAL; SAMPLING; SCHOOL CHILD; SEMI STRUCTURED INTERVIEW; TERTIARY HEALTH CARE; UNIVERSITY HOSPITAL; ARTHRITIS; CHRONIC DISEASE; CLINICAL TRIAL; COMPUTER INTERFACE; COMPUTER PROGRAM; DOCUMENTATION; INSTRUMENTATION; MEDICAL RECORD; METHODOLOGY; MICROCOMPUTER; PAIN; PAIN ASSESSMENT; PATIENT COMPLIANCE; SELF EVALUATION;

ADOLESCENT; ARTHRITIS; CHRONIC DISEASE; COMPUTERS, HANDHELD; DOCUMENTATION; FEMALE; HUMANS; MALE; MEDICAL RECORDS SYSTEMS, COMPUTERIZED; PAIN; PAIN MEASUREMENT; PATIENT COMPLIANCE; PATIENT SATISFACTION; SELF ASSESSMENT (PSYCHOLOGY); SOFTWARE; USER-COMPUTER INTERFACE;

EID: 33645739809     PISSN: 07498047     EISSN: None     Source Type: Journal    
DOI: 10.1097/01.ajp.0000173371.54579.31     Document Type: Article

References (39)

1. Perquin CW, Hazenbroek-Kampschreur AAJM, Hunfeld JAM, et al. Pain in children and adolescents: a common experience. Pain. 2000;87:51-58.
2. Hunfeld JAM, Perquin CW, Duivenvoorden HJ, et al. Chronic pain and its impact on quality of life in adolescents and their families. J Pediatr Psychol. 2001;26:145-153.
3. van der Brink M, Bandell-Hoekstra ENG, Abu-Saad HH. The occurrence of recall bias in pediatric headache: a comparison of questionnaire and diary data. Headache. 2001;41:11-20.
4. Maikler VE, Broome ME, Bailey P, et al. Children's and adolescents' use of diaries for sickle cell pain. J Soc Pediatr Nurs. 2001;6:161-169.
5. Schanberg LE, Sandstrom MJ, Starr K, et al. The relationship of daily mood and stressful events to symptoms in juvenile rheumatic disease. Arthritis Care Res. 2000;13:33-41.
6. Williams DA, Gendreau M, Hufford MR, et al. Pain assessment in patients with fibromyalgia syndrome: a consideration of methods for clinical trials. Clin J Pain. 2004;20:348-356.
7. Stone AA, Shiffman S, Schwartz JE, et al. Patient non-compliance with paper diaries. Br Med J. 2002;324:1193-1194.
8. Stone AA, Shiffman S, Schwartz JE, et al. Patient compliance with paper and electronic diaries. Control Clin Trials. 2003;25:182-199.
9. Jamison RN, Raymond SA, Levine JG, et al. Electronic diaries for monitoring chronic pain: 1-year validation study. Pain. 2001;91:277-285.
10. Peters ML, Sorbi MJ, Kruise DA, et al. Electronic diary assessment of pain, disability, and psychological adaptation in patients differing in duration of pain. Pain. 2000;84:181-192.
11. Jamison RN, Gracely RH, Raymond SA, et al. Comparative study of electronic vs. paper VAS ratings: a randomized crossover trial using healthy volunteers. Pain. 2002;99:341-347.
12. Hufford MR, Shiffman S, Paty J, et al. Ecological momentary assessment: Real-world, real-time measurement of patient experience. In Fahrenberg J, Myrtek M, eds. Progress in Ambulatory Assessment: Computer-Assisted Psychological and Psychophysiological Methods in Monitoring and Field Studies. Seattle: Hogrefe & Huber; 2001:69-92.
13. Stone AA, Shiffman S. Ecological momentary assessment: measuring real world processes in behavioral medicine. Ann Behav Med. 1994;16:199-202.
14. Calam RM, Jimmieson P, Cox AD, et al. Can computer-based assessment help us understand children's pain. Eur J Anaesthesiol. 2000;17:284-288.
15. Palermo TM, Valenzuela D. Use of pain diaries to assess recurrent and chronic pain in children. The Suffering Child. 2003;3:1-14.
16. Walker LS, Sorrells SC. Assessment of children's gastrointestinal symptoms for clinical trials. J Pediatr Psychol. 2002;27:303-307.
17. Whalen CK, Jamner LD, Henker B, et al. Smoking and moods in adolescents with depressive and aggressive dispositions: evidence from surveys and electronic diaries. Health Psychol. 2001;20:99-111.
18. Palermo TM, Stork PP, Valenzuela D. A randomized controlled trial of electronic versus paper pain diaries in children: impact on compliance, accuracy, and acceptability. J Pain. 2003;4(Supp 1):23.
19. Berney JW. Human factors & usability in user interface design [http://www.usability.com/umi_amfm.htm]. 1999. Available at http://www. usability.com. Accessed Aug. 18, 2004.
20. Farzanfar R, Finkelstein J, Friedman RH. Testing the usability of two automated home-based patient-management systems. J Med Syst. 2004;28:143-153.
21. Kaufman DR, Patel VL, Hilliman C, et al. Usability in the real world: assessing medical information technologies in patients' homes. J Biomed Inform. 2003;36:45-60.
22. Davis D. User Testing: A Practical Guide. Unpublished manuscript. 2001:1-36.
23. Kushniruk A. Evaluation in the design of health information systems: application of approaches emerging from usability engineering. Comput Biol Med. 2002;32:141-149.
24. Wichansky AM. Usability testing in 2000 and beyond. Ergonomics. 2000;43:998-1006.
25. Murrary G, Costanz T. Usability and the Web: An Overview [http://www.nlcbnc.ca/9/1/pl260e.html]. 1999. Accessed Aug. 18, 2004.
26. National Cancer Institute. Usability Basics [http://usability.gov/basics/ index.html]. Accessed Aug. 18, 2004.
27. Singh G, Athreya B, Fries J, et al. Measurement of functional status in juvenile rheumatoid arthritis. Arthritis Rheum. 1990;33(Suppl.9):S15.
28. Martin K, Woo P. Juvenile idiopathic arthritides. In: Isenberg DA, Miller JJ, eds. Adolescent Rheumatology. London: Martin Dunitz Ltd, 1999:71-94.
29. Snodgrass A, Coyne R. Models, metaphors and the hermeneuticals of designing. Des Issues. 1992;9:56-74.
30. Petroz G, Stinson JN. GraalPad. © 2004. The Hospital for Sick Children, Toronto, Ontario, Canada.
31. Daut RL, Cleeland CS, Flanery RC. Development of the Wisconsin Brief Pain Questionnaire to assess pain in cancer and other diseases. Pain. 1983;17:197-201.
32. Stinson JN, Stevens BJ. e-Ouch Electronic Pain Diary. © 2004. The Hospital for Sick Children, Toronto, Ontario, Canada.
33. SPSS Inc. Statistical Package for the Social Sciences version 11.0. Chicago, 2001.
34. Bazely P, Richards L. The NVivo Qualitative Research Book. London: Sage Publications, 2000.
35. Neuendorf K. The Content Analysis Guidebook. Thousand Oaks: Sage Publications, 2002.
36. Bassiere P, Gluszynski T. Impact of computer use on reading achievement of 15-year-olds. Learning Policy Directorate, Strategic Policy and Planning Branch, Human Resources and Skills Development, Government of Canada, May 2004 (pp. 1-59). Gatineau, Quebec, Canada: Publications Centre.
37. Champion GD, Goodenough B, von Baeyer CL, et al. Measurement of pain in infants and children. In: Finley GA, McGrath PJ, eds. Progress in Pain Research and Management. Seattle: IASP Press, 1998:123-160.
38. Goodenough B, Thomas W, Champion GD, et al. Unravelling the age effects and sex differences in needle pain: ratings of sensory intensity and unpleasantness of venipuncture pain in children and their parents. Pain. 1999;80:179-190.
39. Nielsen J, Landauer TK. A mathematical model of the finding of usability problems. Proceedings of ACM INTERCHI'93 Conference, 1993. Amsterdam, The Netherlands, pp. 206-213.