Internet health information seeking is a team sport: Analysis of the Pew Internet Survey

International Journal of Medical Informatics

Volumn 82, Issue 3, 2013, Pages 193-200

  Sadasivam, Rajani S ^a,b   Kinney, Rebecca L ^a   Lemon, Stephenie C ^a   Shimada, Stephanie L ^b,c   Allison, Jeroan J ^a   Houston, Thomas K ^a,b  

^a UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL   (United States)

^b VETERANS AFFAIRS MEDICAL CENTER   (United States)

^c BOSTON UNIVERSITY   (United States)

Author keywords

Caregiving; Communication; Context sensitive informatics; Information seeking; Internet; Online interventions; Patient education

Indexed keywords

CAREGIVING; INFORMATICS; INFORMATION SEEKING; ONLINE INTERVENTIONS; PATIENT EDUCATION;

COMMUNICATION; INFORMATION USE; LOGISTICS; PATIENT TREATMENT; SURVEYS;

INTERNET;

ADULT; AGE; ARTICLE; CAREGIVER; CHRONIC DISEASE; CROSS-SECTIONAL STUDY; DATA ANALYSIS; DEMOGRAPHY; EDUCATION; FEMALE; HEALTH STATUS; HEALTH SURVEY; HUMAN; INFORMATION SEEKING; INTERNET; MALE; MEDICAL INFORMATION; NORMAL HUMAN; PRIORITY JOURNAL; QUALITY OF LIFE; RACE; SELF REPORT; SOCIAL NETWORK; SOCIAL STATUS; TEAM SPORT; TELECONSULTATION;

ADOLESCENT; ADULT; FEMALE; HUMANS; INFORMATION SERVICES; INTERNET; MALE; MIDDLE AGED; MULTIVARIATE ANALYSIS; SPORTS; UNITED STATES; YOUNG ADULT;

EID: 84874306333     PISSN: 13865056     EISSN: 18728243     Source Type: Journal    
DOI: 10.1016/j.ijmedinf.2012.09.008     Document Type: Article

References (49)

1. Cohen J., Cohen P. Applied Multiple Regression/Correlation Analysis for the Behavioral Sciences 1983, L. Erlbaum Associates, Hillsdale, NJ. 2nd ed.
2. Kreuter M. Tailoring Health Messages: Customizing Communication with Computer Technology 2000, L. Erlbaum, Mahwah, NJ.
3. Bernhardt J.M. Health education and the digital divide: building bridges and filling chasms. Health Educ. Res. 2000, 15(October (5)):527-531.
4. Houston T.K., Allison J.J. Users of Internet health information: differences by health status. J. Med. Internet Res. 2002, 4(April-November (2)):E7.
5. Baker L., Wagner T.H., Singer S., Bundorf M.K. Use of the Internet and e-mail for health care information: results from a national survey. JAMA 2003, 289(May (18)):2400-2406.
6. Fox S. Health Information Online 2003 2004, Available from: http://www.pewinternet.org/PPF/r/156/report_display.asp (cited 06.06.11).
7. Slattum P.W., Johnson M.A. Caregiver burden in Alzheimer's disease. Consult. Pharm. 2004, 19(April (4)):352-362.
8. Anderson J.G. Consumers of e-Health. Soc. Sci. Comput. Rev. 2004, 22(May (2)):242-248.
9. Dickerson S., Reinhart A.M., Feeley T.H., Bidani R., Rich E., Garg V.K., Hershey C.O. Patient Internet use for health information at three urban primary care clinics. J. Am. Med. Inform. Assoc. 2004, 11(November-December (6)):499-504.
10. Fox S. Health Information Online 2005 2005, Available from: http://www.pewinternet.org/Reports/2005/Health-Information-Online.aspx (cited 06.06.11).
11. Berner E.S., Kasiraman R.K., Yu F., Ray M.N., Houston T.K. Data quality in the outpatient setting: impact on clinical decision support systems. AMIA Annu. Symp. Proc. 2005, 41-45.
12. Shen X., Tan B., Zhai C. Context-sensitive information retrieval using implicit feedback. Proceedings of the 28th annual international ACM SIGIR conference on Research and development in information retrieval 2005, 43-50. 10.1145/1076034.1076045.
13. Lancaster T., Stead L.F. Self-help interventions for smoking cessation. Cochrane Database Syst. Rev. 2005, 3:CD001118.
14. Moody L.E. E-health web portals: delivering holistic healthcare and making home the point of care. Holist. Nurs. Pract. 2005, 19(July-August (4)):156-160.
15. Rice R.E., Influences usage, and outcomes of Internet health information searching: multivariate results from the Pew surveys. Int. J. Med. Inf. 2006, 75(January (1)):8-28.
16. Maviglia S.M., Yoon C.S., Bates D.W., Kuperman G. KnowledgeLink: impact of context-sensitive information retrieval on clinicians' information needs. J. Am. Med. Inform. Assoc. 2006, 13(January-February (1)):67-73.
17. Ralston J.D., Carrell D., Reid R., Anderson M., Moran M., Hereford J. Patient web services integrated with a shared medical record: patient use and satisfaction. J. Am. Med. Inform. Assoc. 2007, 14(November-December (6)):798-806.
18. Princeton Survey Research Associates International for the Pew Internet and American Life Project Pew Internet & American Life Project Fall Tracking Survey 2008 (Data for November 19-December 20, 2008) 2008, Available from:. http://www.pewinternet.org/Shared-Content/Data-Sets/2008/December-2008--Health.aspx.
19. Horrigan J.B. Homes Broadband Adoption 2008 2008, Available from:, (cited 06.06.11). http://www.pewinternet.org/Reports/2008/Home-Broadband-2008/01-Summary-of-Findings/Summary-of-Findings.aspx.
20. Lau R.Y.K., Bruza P.D., Song D. Towards a belief-revision-based adaptive and context-sensitive information retrieval system. ACM Trans. Inform. Syst. 2008, 26.(2).
21. Horrigan J. Home Broadband 2008 2008, Available from:, (updated 02.07.08; cited 20.06.11). http://www.pewinternet.org/Reports/2008/Home-Broadband-2008.aspx.
22. Hawkins R.P., Kreuter M., Resnicow K., Fishbein M., Dijkstra A. Understanding tailoring in communicating about health. Health Educ. Res. 2008, 23(June (3)):454-466.
23. Lintonen T.P., Konu A.I., Seedhouse D. Information technology in health promotion. Health Educ. Res. 2008, 23(June (3)):560-566.
24. Bevan J.L., Pecchioni L.L. Understanding the impact of family caregiver cancer literacy on patient health outcomes. Patient Educ. Couns. 2008, 71(June (3)):356-364.
25. Docherty A., Owens A., Asadi-Lari M., Petchey R., Williams J., Carter Y.H. Knowledge and information needs of informal caregivers in palliative care: a qualitative systematic review. Palliat. Med. 2008, 22(March (2)):153-171.
26. Strecher V.J., McClure J.B., Alexander G.L., Chakraborty B., Nair V.N., Konkel J.M., Greene S.M., Collins L.M., Carlier C.C., Wiese C.J., Little R.J., Pomerleau C.S., Pomerleau O.F. Web-based smoking-cessation programs: results of a randomized trial. Am. J. Prev. Med. 2008, 34(May (5)):373-381.
27. Hay M.C., Strathmann C., Lieber E., Wick K., Giesser B. Why patients go online: multiple sclerosis, the internet, and physician-patient communication. Neurologist 2008, 14(November (6)):374-381.
28. Trotter M.I., Morgan D.W. Patients' use of the Internet for health related matters: a study of Internet usage in 2000 and 2006. Health Inform. J. 2008, 14(September (3)):175-181.
29. Atkinson N.L., Saperstein S.L., Pleis J. Using the internet for health-related activities: findings from a national probability sample. J. Med. Internet Res. 2009, 11(1):e4.
30. Kim E.H., Stolyar A., Lober W.B., Herbaugh A.L., Shinstrom S.E., Zierler B.K., Soh C.B., Kim Y. Challenges to using an electronic personal health record by a low-income elderly population. J. Med. Internet Res. 2009, 11(4):e44.
31. Caqueo-Urizar A., Gutierrez-Maldonado J., Miranda-Castillo C. Quality of life in caregivers of patients with schizophrenia: a literature review. Health Qual. Life Outcomes 2009, 7:84.
32. Adams E., Boulton M., Watson E. The information needs of partners and family members of cancer patients: a systematic literature review. Patient Educ. Couns. 2009, 77(November (2)):179-186.
33. Weaver J.B., Mays D., Lindner G., Eroglu D., Fridinger F., Bernhardt J.M. Profiling characteristics of internet medical information users. J. Am. Med. Inform. Assoc. 2009, 16(September-October (5)):714-722.
34. Kinnane N., Milne D. The role of the Internet in supporting and informing carers of people with cancer: a literature review. Support. Care Cancer 2010, 18(9):1123-1136.
35. Sarkar U., Karter A.J., Liu J.Y., Adler N.E., Nguyen R., Lopez A., Schillinger D. The literacy divide: health literacy and the use of an internet-based patient portal in an integrated health system-results from the diabetes study of northern California (DISTANCE). J. Health Commun. 2010, 15(Suppl. 2):183-196.
36. Smith A. Mobile Access 2010 2010, Available from:, (updated 07.07.10; cited 20.06.11). http://www.pewinternet.org/Reports/2010/Mobile-Access-2010.aspx.
37. Chisolm D.J. Does online health information seeking act like a health behavior? A test of the behavioral model. Telemed. J. E Health 2010, 16(March (2)):154-160.
38. Hafsteinsdottir T.B., Vergunst M., Lindeman E., Schuurmans M. Educational needs of patients with a stroke and their caregivers: a systematic review of the literature. Patient Educ. Couns. 2010, (September).
39. Washington K.T., Meadows S.E., Elliott S.G., Koopman R.J. Information needs of informal caregivers of older adults with chronic health conditions. Patient Educ. Couns. 2011, 83(April (1)):37-44.
40. Wahl H., Banerjee J., Manikam L., Parylo C., Lakhanpaul M. Health information needs of families attending the paediatric emergency department. Arch. Dis. Child. 2011, 96(April (4)):335-339.
41. Zulman D.M., Nazi K.M., Turvey C.L., Wagner T.H., Woods S.S., An L.C. Patient interest in sharing personal health record information: a web-based survey. Ann. Intern. Med. 2011, 155(December (12)):805-810.
42. Lu H.Y., Shaw B.R., Gustafson D.H. Online health consultation: examining uses of an interactive cancer communication tool by low-income women with breast cancer. Int. J. Med. Inf. 2011, 80(July (7)):518-528.
43. Dolce M.C. The Internet as a source of health information: experiences of cancer survivors and caregivers with healthcare providers. Oncol. Nurs. Forum 2011, 38(May (3)):353-359.
44. Byczkowski T.L., Munafo J.K., Britto M.T. Variation in use of Internet-based patient portals by parents of children with chronic disease. Arch. Pediatr. Adolesc. Med. 2011, 165(May (5)):405-411.
45. Mayo Clinic Health Information, 2012. Available from: (cited 10.9.12). http://www.mayoclinic.com/health-information/.
46. Cleveland Clinic Health Information, 2012 Available from: (cited 10.09.12). http://my.clevelandclinic.org/health/health.aspx.
47. Dinh D., Tamine L. Towards a context sensitive approach to searching information based on domain specific knowledge sources. Web Semantics: Sci. Services Agents World Wide Web 2012, 12-13:41-52. 10.1016/j.websem.2011.11.009.
48. Mayo Clinic Connect, 2012. Available from: (cited 10.09.12). http://www.mayoclinic.org/connect.
49. Turvey C.L., Zulman D.M., Nazi K.M., Wakefield B.J., Woods S.S., Hogan T.P., Weaver F.M., McInnes K. Transfer of information from personal health records: a survey of veterans using my HealtheVet. Telemed. J. E Health 2012, 18(March (2)):109-114.