Online health consultation: Examining uses of an interactive cancer communication tool by low-income women with breast cancer

International Journal of Medical Informatics

Volumn 80, Issue 7, 2011, Pages 518-528

  Lu, Hsueh Yi ^a   Shaw, Bret R ^b   Gustafson, David H ^b  

^a NATIONAL YUNLIN UNIVERSITY OF SCIENCE AND TECHNOLOGY   (Taiwan)

^b UNIVERSITY OF WISCONSIN MADISON   (United States)

Author keywords

Breast cancer; Communication; Consultation; Decision support; Internet

Indexed keywords

BREAST CANCER; COMMUNICATION TOOLS; CONSULTATION; CONSULTATION SERVICES; CORRELATION TESTS; DECISION SUPPORT; DEPENDENT VARIABLES; INFORMATION SEEKING; INTERNET BASED; MAIN EFFECT; MAKING DECISION; MULTIPLE REGRESSION MODEL; PSYCHOSOCIAL VARIABLES; REGRESSION MODEL; SELF EFFICACY; SOCIAL SUPPORT; SUPPORT SYSTEMS;

DECISION SUPPORT SYSTEMS; DISEASES; HEALTH CARE; INFORMATION USE; INTERNET; MEDICAL COMPUTING; PLASTICS MOLDING; REGRESSION ANALYSIS; TELECOMMUNICATION NETWORKS; TESTING; USER INTERFACES;

HEALTH;

ADULT; ARTICLE; BREAST CANCER; CANCER PATIENT; COMPUTER INPUT DEVICE; CONSULTATION; DOCTOR PATIENT RELATION; FEMALE; HEALTH CARE; HEALTH EDUCATION; HEALTH PROGRAM; HEALTH SERVICE; HUMAN; INTERNET; INTERPERSONAL COMMUNICATION; LOWEST INCOME GROUP; MEDICAL DECISION MAKING; MEDICAL INFORMATION; ONLINE MONITORING; PERCEPTION; POVERTY; PRIORITY JOURNAL; RETROSPECTIVE STUDY; SELF CONCEPT; SOCIAL SUPPORT;

ADAPTATION, PSYCHOLOGICAL; BREAST NEOPLASMS; HUMANS; ONLINE SYSTEMS; POVERTY; PROFESSIONAL-PATIENT RELATIONS; RETROSPECTIVE STUDIES; USER-COMPUTER INTERFACE;

EID: 79957539426     PISSN: 13865056     EISSN: 18728243     Source Type: Journal    
DOI: 10.1016/j.ijmedinf.2011.03.011     Document Type: Article

References (44)

1. American Cancer Society Cancer Facts and Figures 2009.
2. Sutherland H.J., Llewellyn-Thomas H.A., Lockwood G.A., Tritchler D.L., Till J.E. Cancer patients: their desire for information and participation in treatment decisions. J. R. Soc. Med. 1989, 82(May (5)):260-263.
3. Bilodeau B.A., Degner L.F. Information needs, sources of information, and decisional roles in women with breast cancer. Oncol. Nurs. Forum. 1996, 23(May (4)):691-696.
4. Lobb E.A., Kenny D.T., Butow P.N., Tattersall M.H. Women's preferences for discussion of prognosis in early breast cancer. Health Expect. 2001, 4(March (1)):48-57.
5. Mellink W.A., Dulmen A.M., Wiggers T., Spreeuwenberg P.M., Eggermont A.M., Bensing J.M. Cancer patients seeking a second surgical opinion: results of a study on motives, needs, and expectations. J. Clin. Oncol. 2003, 21(April (8)):1492-1497.
6. Scroggins T.G., Bartley T.K. Enhancing cancer control: assessing cancer knowledge, attitudes, and beliefs in disadvantaged communities. J. La State Med. Soc. 1999, 151(April (4)):202-208.
7. Reid K.W., Vittinghoff E., Kushel M.B. Association between the level of housing instability, economic standing and health care access: a meta-regression. J. Health Care Poor Underserved. 2008, 19(November (4)):1212-1228.
8. Rosenzweig M.Q., Wiehagen T., Brufsky A., Arnold R. Challenges of illness in metastatic breast cancer: a low-income African American perspective. Palliat. Support Care. 2009, 7(June (2)):143-152.
9. Pendleton D.A., Bochner S. The communication of medical information in general practice consultations as a function of patients' social class. Soc. Sci. Med. Med. Psychol. Med. Sociol. 1980, 14A(December (6)):669-673.
10. Polacek G.N., Ramos M.C., Ferrer R.L. Breast cancer disparities and decision-making among U.S. women. Patient Educ. Couns. 2007 Feb, 65(2):158-165.
11. Akesson K.M., Saveman B.I., Nilsson G. Health care consumers' experiences of information communication technology-a summary of literature. Int. J. Med. Inform. 2007, 76(September (9)):633-645.
12. Umefjord G., Hamberg K., Malker H., Petersson G. The use of an internet-based ask the doctor service involving family physicians: evaluation by a web survey. Fam. Pract. 2006, 23(April (2)):159-166.
13. Harless W.G., Zier M.A., Harless M.G., Duncan R.C., Braun M.A., Willey S., et al. Evaluation of a virtual dialogue method for breast cancer patient education. Patient Educ. Couns. 2009, 76(August (2)):189-195.
14. Gustafson D.H., Hawkins R.P., Boberg E.W., McTavish F., Owens B., Wise M., et al. CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved. Int. J. Med. Inform. 2002 Nov 12, 65(3):169-177.
15. Umefjord G., Sandstrom H., Malker H., Petersson G. Medical text-based consultations on the internet: a 4-year study. Int. J. Med. Inform. 2008, 77(Feburary (2)):114-121.
16. Miller T.E., Derse A.R. Between strangers: the practice of medicine online. Health Aff. (Millwood) 2002, 21((July-August) 4):168-179.
17. Shaw B.R., Han J.Y., Hawkins R.P., Stewart J., McTavish F., Gustafson D.H. Doctor-patient relationship as motivation and outcome: examining uses of an interactive cancer communication system. Int. J. Med. Inform. 2007, 76(April (4)):274-282.
18. Ford P. Is the internet changing the relationship between consumers and practitioners?. J. Healthc Qual. 2000, 22(September-October (5)):41-43.
19. Gerber B.S., Eiser A.R. The patient physician relationship in the internet age: future prospects and the research agenda. J Med Internet Res. 2001, 3(April-June (2)):E15.
20. Eysenbach G. Towards ethical guidelines for e-health: JMIR theme issue on eHealth ethics. J. Med. Internet Res. 2000, 2(January-March (1)):E7.
21. Geissbuhler A., Boyer C. Health and the internet for all. Int. J. Med. Inform. 2006, 75(January (1)):1-3.
22. Shaw B.R., Han J.Y., Baker T., Witherly J., Hawkins R.P., McTavish F., et al. How women with breast cancer learn using interactive cancer communication systems. Health Educ. Res. 2007, 22(Feburary (1)):108-119.
23. Powell J.A., Darvell M., Gray J.A. The doctor, the patient and the world-wide web: how the internet is changing healthcare. J. R. Soc. Med. 2003, 96(Feburary (2)):74-76.
24. Gustafson D.H., Hawkins R., Pingree S., McTavish F., Arora N.K., Mendenhall J., et al. Effect of computer support on younger women with breast cancer. J. Gen. Intern. Med. 2001, 16(July (7)):435-445.
25. Institute of Medicine, Crossing the Quality Chasm: A New Health System for the Twenty-first Century 2001, National Academy Press, Washington.
26. McKinstry B. Do patients wish to be involved in decision making in the consultation? A cross sectional survey with video vignettes. BMJ 2000, 321(October (7265)):867-871.
27. Swenson S.L., Buell S., Zettler P., White M., Ruston D.C., Lo B. Patient-centered communication: do patients really prefer it?. J. Gen. Intern. Med. 2004, 19(November (11)):1069-1079.
28. Gustafson D.H., McTavish F.M., Stengle W., Ballard D., Jones E., Julesberg K., et al. Reducing the digital divide for low-income women with breast cancer: a feasibility study of a population-based intervention. J. Health Commun. 2005, 10(Suppl. 1):173-193.
29. Krippendorff K. Content Analysis: An Introduction to its Methodology 2004, Sage, Thousand Oaks, California. 2nd ed.
30. Bryman A., Cramer D. Quantitative Data Analysis With SPSS for Windows. A Guide for Social Scientists 1997, Routledge, London and New York.
31. Gustafson D.H., McTavish F.M., Stengle W., Ballard D., Hawkins R., Shaw B.R., et al. Use and impact of eHealth system by low-income women with breast cancer. J. Health Commun. 2005, 10(Suppl. 1):195-218.
32. Shaw B.R., Hawkins R., Arora N., McTavish F., Pingree S., Gustafson D.H. An exploratory study of predictors of participation in a computer support group for women with breast cancer. Comput. Inform. Nurs. 2006, 24(January-Feburary (1)):18-27.
33. Arora N.K., Finney Rutten L.J., Gustafson D.H., Moser R., Hawkins R.P. Perceived helpfulness and impact of social support provided by family, friends, and health care providers to women newly diagnosed with breast cancer. Psychooncology 2007, 16(May (5)):474-486.
34. Smith M.S., Wallston K.A., Smith C.A. The development and validation of the perceived health competence scale. Health Educ. Res. 1995, 10(March (1)):51-64.
35. Carroll S. Breast cancer. Part 3: psychosocial care. Prof. Nurs. 1998, 13(September (12)):875-883.
36. Keller M. Psychosocial care of breast cancer patients. Anticancer Res. 1998, 18(May-June (3C)):2257-2259.
37. Gray R.E., Greenberg M., Fitch M., Sawka C., Hampson A., Labrecque M., et al. Information needs of women with metastatic breast cancer. Cancer Prev. Contr. 1998, 2(April (2)):57-62.
38. Adler N.E., Cohen F., Stone G.C. Themes and professional prospects in health psychology. Health Psychology-A Handbook 1979, 573-590. Jossey-Bass, San Francisco. N.E. Adler, F. Cohen, G.C. Stone (Eds.).
39. Pendleton D., Schofield T., Tate P., Havelock P. The New Consultation: Developing Doctor-Patient Communication 2003, Oxford University Press, Oxford.
40. Shuyler K.S., Knight K.M. What are patients seeking when they turn to the Internet? Qualitative content analysis of questions asked by visitors to an orthopaedics Web site. J. Med. Internet Res. 2003, 5(October (4)):e24.
41. Nijland N., van Gemert-Pijnen J.E., Kelders S.M., et al. Evaluation of the use of an " ask-the-expert" e-consultation service for support on health-related requests. Stud. Health Technol. Inform. 2010, 821-825.
42. Umefjord G., Petersson G., Hamberg K. Reasons for consulting a doctor on the Internet: web survey of users of an ask the doctor service. J. Med. Internet Res. 2003, 5(October (4)):e26.
43. Himmel W., Meyer J., Kochen M.M., et al. Information needs and visitors' experience of an Internet expert forum on infertility. J. Med. Internet Res. 2005, 7(June (2)):e20.
44. Shaw B.R., Jeong Yeob H., Hawkins R.P., McTavish F.M., Gustafson D.H. Communicating about self and others within an online support group for women with breast cancer and subsequent outcomes. J. Health Psychol. 2008, 13(October (7)):930-939.