Epilogue: Principles for engaging patients in U.S. health care and policy

Patients as Policy Actors

Volumn , Issue , 2011, Pages 278-291

  Grob, Rachel ^a   Schlesinger, Mark ^b  

^a Child Development Institute   (United States)

^b YALE UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84873736925     PISSN: None     EISSN: None     Source Type: Book    
DOI: None     Document Type: Chapter

References (31)

1. Albert Hirschman, Exit, Voice, and Loyalty (Cambridge, Mass.: Harvard University Press, 1980).
2. U.S. Department of Health and Human Services, Americans Speak on Health Care Reform: Report on Health Care Community Discussions (March 2009), 9, http:www.healthreform.gov?reports/hccd/.
3. Jenine Harris, Sarah Shelton, Sarah Moreland-Russell, and Douglas Luke, "Tobacco Coverage in Print Media: The Use of Timing and Themes by Tobacco Control Supporters and Opposition Before a Failed Tobacco Tax Initiative, " Tobacco Control 19, 1 (2010): 37-43.
4. Joel Adelson and Joanna Weinberg, "The California Stem Cell Initiative: Persuasion, Politics, and Public Science, " American Journal of Public Health 100, 3 (2010): 446-451.
5. Krista Farey and Vishwanath Lingappa, "California's Proposition 186: Lessons from a Single-Payer Health Care Reform Ballot Initiative Campaign, " Journal of Public Health Policy 17, 2 (1996): 133-152.
6. Mark Schlesinger and Jacob Hacker, "Secret Weapon: The 'New' Medicare as a Route to Health Security, " Journal of Health Politics, Policy, and Law 32 (2007): 247-292.
7. Ronald Paterson, "The Patients' Complaints System in New Zealand, " Health Affairs 21, 3 (2002): 70-79.
8. Roland Friele and R.D. Emily Sluijs, "Patient Expectations of Fair Complaint Handling in Hospitals: Empirical Data, " BMC Health Services Research 6 (2006): 106.
9. Sydney Halpern, "Medical Authority and the Culture of Rights, " Journal of Health Politics, Policy, and Law 29, 405 (2004): 835-852.
10. Angela Coulter, Suzanne Parsons, and Janet Askham, Where Are the Patients in Decision-making about Their Own Care? WHO Policy Brief (Copenhagen: World Health Organization, 2008).
11. Angela Coulter and Christopher Jenkinson, "European Patients' Views on the Responsiveness of Health Systems and Healthcare Providers, " European Journal of Public Health 15, 4 (2005): 355-360.
12. Cathy Schoen, Robin Osborn, Sabrina How, Michelle Doty, and Jordon Peugh, "In Chronic Condition: Experiences of Patients with Complex Health Needs in Eight Countries, 2008, " Health Affairs 28, 1 (2008): w1-w16.
13. Cathy Schoen, Robin Osborn, Michelle Doty, Meghan Bishop, Jordon Peugh, and Nandita Murukutla, "Toward Higher-Performance Health Care Systems: Adults' Health Care Experiences in Seven Countries, 2007" Health Affairs 26, 6 (November-December 2007): w717-w734.
14. Marc Elliott, Megan Beckett, David Kanouse, Katrin Hambarsoomians, and Shulamit Bernard, "Problem-Oriented Reporting of CAHPS Consumer Evaluations of Health Care, " Medical Care Research and Review 64, 5 (2007): 600-614.
15. Marsha Hurst, Margaret Gaines, Rachel Grob, Laura Weil, and Sarah Davis, "Educating for Health Advocacy in Settings of Higher Education, " in Patient Advocacy for Health Care Quality, ed. Jo Anne Earp, Elizabeth French, Elizabeth, and Melissa Gilkey (Sudbury, Mass.: Jones and Bartlett, 2008), 481-506.
16. Carroll Estes, Donna Zulman, Sheryl Goldberg, and Dawn Ogawa, "State Long-Term Care Ombudsman Programs: Factors Associated with Perceived Effectiveness, " Gerontologist 44, 1 (2004): 104-115.
17. LaVerne D. Miller and Latrease R. Moore, "State Mental Health Policy: Developing Statewide Consumer Networks, " Psychiatric Services 60 (2009): 291-293.
18. Mark Learmonth, Graham Martin, and Philipp Warwick, "Ordinary and Effective: The Catch-22 in Managing the Public Voice in Health Care?" Health Expectations 12 (2009): 196-115.
19. John Church, Duncan Saunders, Margaret Wanke, Raymond Pong, Carol Spooner, and Marlene Dorgan, "Citizen Participation in Health Decision-Making: Past Experience, Future Prospects, " Journal of Public Health Policy 23, 1 (2002): 12-32.
20. David Evans, Jane Powell, and Tanya Cross, "Patient Advice and Liaison Services: Results of an Audit Survey in England, " Health Expectations 11 (2008): 304-316.
21. Commonwealth Fund, The Commonwealth Fund 2007 International Health Policy Survey of Sicker Adults (New York: Commonwealth Fund, 2008).
22. Robert Weech-Maldonado, Marc Elliott, Atetokundo Oluwole, K. Cameron Schiller, and Ron Hays, "Survey Response Style and Differential Use of CAHPS Rating Scales by Hispanics, " Medical Care 46, 9 (2008): 963-968.
23. Doren Fredrickson, Teresa Jones, Craig Molgaard, Claudia Carman, Jay Schukman, S. Edward Dismuke, and Elizabeth Ablah, "Optimal Design Features for Surveying Low-Income Populations, " Journal of Health Care for the Poor and Underserved 16, 4 (2005): 677-690.
24. Mary Jo Gibson and Ari Houser, "Valuing the Invaluable: A New Look at the Economic Value of Family Caregiving, " AARP Public Policy Institute Issue Brief (Washington, D.C.: American Association of Retired Persons, 2007).
25. Paterson, "The Patients' Complaints System, " 70-79.
26. Schoen et al., "In Chronic Condition, " w1-w16.
27. Schoen et al., "Toward Higher-Performance Health Care Systems, " 717-734.
28. Alicia O'Cathain, Jackie Goode, Donna Luff, Tim Strangleman, Gerard Hanlon, and David Greatbatch, "Does NHS Direct Empower Patients?" Social Science and Medicine 61, 8 (2005): 1761-1771.
29. John H. Wasson and Neil J. Baker, "Balanced Measures for Patient-Centered Care, " Journal of Ambulatory Care Management 32, 1 (2009): 44-55.
30. Shoshanna Sofaer, "Navigating Poorly Charted Territory: Patient Dilemmas in Health Care 'Nonsystems, '" Medical Care Research and Review 66, 1 (2009): S75-s93.
31. Sarita Verma, Leslie Flynn, and Rachelle Seguin, "Faculty's and Residents' Perceptions of Teaching and Evaluating the Role of Health Advocate, " Academic Medicine 80 (2005): 103-108.