-
1
-
-
78651404592
-
Diagnosis and management of juvenile idiopathic arthritis
-
Prince FH, Otten MH, van Suijlekom-Smit LW. Diagnosis and management of juvenile idiopathic arthritis. BMJ. 2010;341:c6434
-
(2010)
BMJ
, vol.341
-
-
Prince, F.H.1
Otten, M.H.2
Van Suijlekom-Smit, L.W.3
-
2
-
-
34547601182
-
Health-related quality of life problems of children aged 8-11 years with a chronic disease
-
Grootenhuis MA, Koopman HM, Verrips EG, Vogels AG, Last BF. Health-related quality of life problems of children aged 8-11 years with a chronic disease. Dev Neurorehabil. 2007;10(1):27-33
-
(2007)
Dev Neurorehabil.
, vol.10
, Issue.1
, pp. 27-33
-
-
Grootenhuis, M.A.1
Koopman, H.M.2
Verrips, E.G.3
Vogels, A.G.4
Last, B.F.5
-
3
-
-
33846676220
-
Health-related quality of life of patients with juvenile idiopathic arthritis coming from 3 different geographic areas
-
Pediatric Rheumatology International Trials Organisation (PRINTO). Rheumatology (Oxford).
-
Gutiérrez-Suárez R, Pistorio A, Cespedes Cruz A, et al; Pediatric Rheumatology International Trials Organisation (PRINTO). Health-related quality of life of patients with juvenile idiopathic arthritis coming from 3 different geographic areas. The PRINTO multinational quality of life cohort study. Rheumatology (Oxford). 2007;46(2): 314-320
-
(2007)
The PRINTO Multinational Quality Of Life Cohort Study.
, vol.46
, Issue.2
, pp. 314-320
-
-
Gutiérrez-Suárez, R.1
Pistorio, A.2
Cespedes Cruz, A.3
-
4
-
-
0037231784
-
Psychological adjustment of children and adolescents with chronic arthritis: A meta-analytic review
-
LeBovidge JS, Lavigne JV, Donenberg GR, Miller ML. Psychological adjustment of children and adolescents with chronic arthritis: A meta-analytic review. J Pediatr Psychol. 2003;28(1):29-39
-
(2003)
J Pediatr Psychol.
, vol.28
, Issue.1
, pp. 29-39
-
-
LeBovidge, J.S.1
Lavigne, J.V.2
Donenberg, G.R.3
Miller, M.L.4
-
5
-
-
1542299617
-
The relationship between health-related quality of life, pain and coping strategies in juvenile idiopathic arthritis
-
Sawyer MG, Whitham JN, Roberton DM, Taplin JE, Varni JW, Baghurst PA. The relationship between health-related quality of life, pain and coping strategies in juvenile idiopathic arthritis. Rheumatology (Oxford). 2004;43(3):325-330
-
(2004)
Rheumatology (Oxford).
, vol.43
, Issue.3
, pp. 325-330
-
-
Sawyer, M.G.1
Whitham, J.N.2
Roberton, D.M.3
Taplin, J.E.4
Varni, J.W.5
Baghurst, P.A.6
-
6
-
-
33645944372
-
Health-related quality of life in adolescents with juvenile idiopathic arthritis
-
Shaw KL, Southwood TR, Duffy CM, McDonagh JE. Health-related quality of life in adolescents with juvenile idiopathic arthritis. Arthritis Rheum. 2006;55(2):199-207
-
(2006)
Arthritis Rheum.
, vol.55
, Issue.2
, pp. 199-207
-
-
Shaw, K.L.1
Southwood, T.R.2
Duffy, C.M.3
McDonagh, J.E.4
-
8
-
-
1442283184
-
Measuring quality of life in routine oncology practice improves communication and patient well-being: A randomized controlled trial
-
Velikova G, Booth L, Smith AB, et al. Measuring quality of life in routine oncology practice improves communication and patient well-being: A randomized controlled trial. J Clin Oncol. 2004;22(4):714-724
-
(2004)
J Clin Oncol.
, vol.22
, Issue.4
, pp. 714-724
-
-
Velikova, G.1
Booth, L.2
Smith, A.B.3
-
9
-
-
77955926356
-
Patients report improvements in continuity of care when quality of life assessments are used routinely in oncology practice: Secondary outcomes of a randomised controlled trial
-
Velikova G, Keding A, Harley C, et al. Patients report improvements in continuity of care when quality of life assessments are used routinely in oncology practice: Secondary outcomes of a randomised controlled trial. Eur J Cancer. 2010;46(13): 2381-2388
-
(2010)
Eur J Cancer.
, vol.46
, Issue.13
, pp. 2381-2388
-
-
Velikova, G.1
Keding, A.2
Harley, C.3
-
10
-
-
0037132574
-
Health-related quality-of-life assessments and patientphysician communication: A randomized controlled trial
-
Detmar SB, Muller MJ, Schornagel JH, Wever LD, Aaronson NK. Health-related quality-of-life assessments and patientphysician communication: A randomized controlled trial. JAMA. 2002;288(23):3027-3034
-
(2002)
JAMA
, vol.288
, Issue.23
, pp. 3027-3034
-
-
Detmar, S.B.1
Muller, M.J.2
Schornagel, J.H.3
Wever, L.D.4
Aaronson, N.K.5
-
11
-
-
0034129890
-
Impact of computerized quality of life screening on physician behaviour and patient satisfaction in lung cancer outpatients
-
Taenzer P, Bultz BD, Carlson LE, et al. Impact of computerized quality of life screening on physician behaviour and patient satisfaction in lung cancer outpatients. Psychooncology. 2000;9(3):203-213
-
(2000)
Psychooncology.
, vol.9
, Issue.3
, pp. 203-213
-
-
Taenzer, P.1
Bultz, B.D.2
Carlson, L.E.3
-
12
-
-
39149085644
-
Effectiveness of health-related qualityof-life measurement in clinical practice: A prospective, randomized controlled trial in patients with chronic liver disease and their physicians
-
Gutteling JJ, Darlington AS, Janssen HL, Duivenvoorden HJ, Busschbach JJ, de Man RA. Effectiveness of health-related qualityof-life measurement in clinical practice: A prospective, randomized controlled trial in patients with chronic liver disease and their physicians. Qual Life Res. 2008;17(2): 195-205
-
(2008)
Qual Life Res.
, vol.17
, Issue.2
, pp. 195-205
-
-
Gutteling, J.J.1
Darlington, A.S.2
Janssen, H.L.3
Duivenvoorden, H.J.4
Busschbach, J.J.5
De Man, R.A.6
-
13
-
-
67651241048
-
Use of patientreported outcomes in clinical practice
-
Snyder CF, Aaronson NK. Use of patientreported outcomes in clinical practice. Lancet. 2009;374(9687):369-370
-
(2009)
Lancet.
, vol.374
, Issue.9687
, pp. 369-370
-
-
Snyder, C.F.1
Aaronson, N.K.2
-
14
-
-
0028892098
-
Improving patient quality of life with feedback to physicians about functional status
-
Rubenstein LV, McCoy JM, Cope DW, et al. Improving patient quality of life with feedback to physicians about functional status. J Gen Intern Med. 1995;10(11):607-614
-
(1995)
J Gen Intern Med.
, vol.10
, Issue.11
, pp. 607-614
-
-
Rubenstein, L.V.1
McCoy, J.M.2
Cope, D.W.3
-
15
-
-
0036341735
-
Patient/parent assessment of the quality of care
-
Darby C. Patient/parent assessment of the quality of care. Ambul Pediatr. 2002;2(suppl 4):345-348
-
(2002)
Ambul Pediatr.
, vol.2
, Issue.SUPPL. 4
, pp. 345-348
-
-
Darby, C.1
-
16
-
-
27344441386
-
Healthrelated quality of life measurement in pediatric clinical practice: An appraisal and precept for future research and application
-
Varni JW, Burwinkle TM, Lane MM. Healthrelated quality of life measurement in pediatric clinical practice: An appraisal and precept for future research and application. Health Qual Life Outcomes. 2005;3:34
-
(2005)
Health Qual Life Outcomes
, vol.3
, pp. 34
-
-
Varni, J.W.1
Burwinkle, T.M.2
Lane, M.M.3
-
18
-
-
49649123932
-
Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being: A randomized controlled trial
-
de Wit M, Delemarre-van de Waal HA, Bokma JA, et al. Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being: A randomized controlled trial. Diabetes Care. 2008;31(8):1521-1526
-
(2008)
Diabetes Care.
, vol.31
, Issue.8
, pp. 1521-1526
-
-
De Wit, M.1
Delemarre-Van De Waal, H.A.2
Bokma, J.A.3
-
19
-
-
77954600416
-
Development and implementation of a patient reported outcome intervention (QLICON PROfile) in clinical paediatric oncology practice
-
Engelen V, Haverman L, Koopman H, et al. Development and implementation of a patient reported outcome intervention (QLICON PROfile) in clinical paediatric oncology practice. Patient Educ Couns. 2010;81(2): 235-244
-
(2010)
Patient Educ Couns.
, vol.81
, Issue.2
, pp. 235-244
-
-
Engelen, V.1
Haverman, L.2
Koopman, H.3
-
20
-
-
84861212454
-
The influence of patient reported outcomes on the discussion of psychosocial issues in children with cancer
-
Engelen V, van Zwieten M, Koopman H, et al. The influence of patient reported outcomes on the discussion of psychosocial issues in children with cancer. Pediatr Blood Cancer. 2012;59(1):161-166
-
(2012)
Pediatr Blood Cancer.
, vol.59
, Issue.1
, pp. 161-166
-
-
Engelen, V.1
Van Zwieten, M.2
Koopman, H.3
-
21
-
-
78651233280
-
Monitoring health-related quality of life in paediatric practice: Development of an innovative webbased application
-
Haverman L, Engelen V, van Rossum MA, Heymans HS, Grootenhuis MA. Monitoring health-related quality of life in paediatric practice: Development of an innovative webbased application. BMC Pediatr. 2011;11:3
-
(2011)
BMC Pediatr
, vol.11
, pp. 3
-
-
Haverman, L.1
Engelen, V.2
Van Rossum, M.A.3
Heymans, H.S.4
Grootenhuis, M.A.5
-
22
-
-
0034466038
-
Development and psychometric evaluation of the TAPQOL: A health-related quality of life instrument for 1-5-year-old children
-
Fekkes M, Theunissen NC, Brugman E, et al. Development and psychometric evaluation of the TAPQOL: A health-related quality of life instrument for 1-5-year-old children. Qual Life Res. 2000;9(8):961-972
-
(2000)
Qual Life Res.
, vol.9
, Issue.8
, pp. 961-972
-
-
Fekkes, M.1
Theunissen, N.C.2
Brugman, E.3
-
24
-
-
0348161127
-
The PedsQL 4.0 as a pediatric population health measure: Feasibility, reliability, and validity
-
Varni JW, Burwinkle TM, Seid M, Skarr D. The PedsQL 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambul Pediatr. 2003;3(6):329-341
-
(2003)
Ambul Pediatr.
, vol.3
, Issue.6
, pp. 329-341
-
-
Varni, J.W.1
Burwinkle, T.M.2
Seid, M.3
Skarr, D.4
-
25
-
-
70749096678
-
Health related quality of life of Dutch children: Psychometric properties of the PedsQL in the Netherlands
-
Engelen V, Haentjens MM, Detmar SB, Koopman HM, Grootenhuis MA. Health related quality of life of Dutch children: Psychometric properties of the PedsQL in the Netherlands. BMC Pediatr. 2009;9:68
-
(2009)
BMC Pediatr
, vol.9
, pp. 68
-
-
Engelen, V.1
Haentjens, M.M.2
Detmar, S.B.3
Koopman, H.M.4
Grootenhuis, M.A.5
-
26
-
-
28044440505
-
The European DISABKIDS project: Development of seven condition-specific modules to measure health related quality of life in children and adolescents
-
DISABKIDS group
-
Baars RM, Atherton CI, Koopman HM, Bullinger M, Power M; DISABKIDS group. The European DISABKIDS project: Development of seven condition-specific modules to measure health related quality of life in children and adolescents. Health Qual Life Outcomes. 2005;3:70
-
(2005)
Health Qual Life Outcomes
, vol.3
, pp. 70
-
-
Baars, R.M.1
Atherton, C.I.2
Koopman, H.M.3
Bullinger, M.4
Power, M.5
-
27
-
-
0028131530
-
Measurement of health status in children with juvenile rheumatoid arthritis
-
Singh G, Athreya BH, Fries JF, Goldsmith DP. Measurement of health status in children with juvenile rheumatoid arthritis. Arthritis Rheum. 1994;37(12):1761-1769
-
(1994)
Arthritis Rheum.
, vol.37
, Issue.12
, pp. 1761-1769
-
-
Singh, G.1
Athreya, B.H.2
Fries, J.F.3
Goldsmith, D.P.4
-
28
-
-
0035404474
-
The dutch version of the childhood health assessment questionnaire (CHAQ) and the Child Health Questionnaire (CHQ
-
Paediatric Rheumatology International Trials Organisation
-
Wulffraat N, van der Net JJ, Ruperto N, et al Paediatric Rheumatology International Trials Organisation. The Dutch version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin Exp Rheumatol. 2001; 19(4 suppl 23):S111-S115
-
(2001)
Clin Exp Rheumatol.
, vol.19
, Issue.4 SUPPL. 23
-
-
Wulffraat, N.1
Van Der Net, J.J.2
Ruperto, N.3
-
29
-
-
0034284094
-
Doctor-patient communication and cancer patients' quality of life and satisfaction
-
Ong LM, Visser MR, Lammes FB, de Haes JC. Doctor-patient communication and cancer patients' quality of life and satisfaction. Patient Educ Couns. 2000;41(2):145-156
-
(2000)
Patient Educ Couns.
, vol.41
, Issue.2
, pp. 145-156
-
-
Ong, L.M.1
Visser, M.R.2
Lammes, F.B.3
De Haes, J.C.4
-
30
-
-
9244222702
-
Satisfaction with the outpatient encounter: A comparison of patients' and physicians' views
-
Zandbelt LC, Smets EM, Oort FJ, Godfried MH, de Haes HC. Satisfaction with the outpatient encounter: A comparison of patients' and physicians' views. J Gen Intern Med. 2004;19 (11):1088-1095
-
(2004)
J Gen Intern Med.
, vol.19
, Issue.11
, pp. 1088-1095
-
-
Zandbelt, L.C.1
Smets, E.M.2
Oort, F.J.3
Godfried, M.H.4
De Haes, H.C.5
-
31
-
-
77952547094
-
Assessing the use of health-related quality of life measures in the routine clinical care of lung-transplant patients
-
Santana MJ, Feeny D, Johnson JA, et al. Assessing the use of health-related quality of life measures in the routine clinical care of lung-transplant patients. Qual Life Res. 2010;19(3):371-379
-
(2010)
Qual Life Res.
, vol.19
, Issue.3
, pp. 371-379
-
-
Santana, M.J.1
Feeny, D.2
Johnson, J.A.3
-
32
-
-
60049093580
-
Endpoints in medical communication research, proposing a framework of functions and outcomes
-
de Haes H, Bensing J. Endpoints in medical communication research, proposing a framework of functions and outcomes. Patient Educ Couns. 2009;74(3):287-294
-
(2009)
Patient Educ Couns.
, vol.74
, Issue.3
, pp. 287-294
-
-
De Haes, H.1
Bensing, J.2
-
33
-
-
39149101458
-
The impact of measuring patientreported outcomes in clinical practice: A systematic review of the literature
-
Valderas JM, Kotzeva A, Espallargues M, et al. The impact of measuring patientreported outcomes in clinical practice: A systematic review of the literature. Qual Life Res. 2008;17(2):179-193
-
(2008)
Qual Life Res.
, vol.17
, Issue.2
, pp. 179-193
-
-
Valderas, J.M.1
Kotzeva, A.2
Espallargues, M.3
-
34
-
-
33748891590
-
Impact of patient-reported outcome measures on routine practice: A structured review
-
Marshall S, Haywood K, Fitzpatrick R. Impact of patient-reported outcome measures on routine practice: A structured review. J Eval Clin Pract. 2006;12(5):559-568
-
(2006)
J Eval Clin Pract
, vol.12
, Issue.5
, pp. 559-568
-
-
Marshall, S.1
Haywood, K.2
Fitzpatrick, R.3
-
35
-
-
0032127838
-
Quality of life assessment in daily clinical oncology practice: A feasibility study
-
Detmar SB, Aaronson NK. Quality of life assessment in daily clinical oncology practice: A feasibility study. Eur J Cancer. 1998;34(8):1181-1186
-
(1998)
Eur J Cancer.
, vol.34
, Issue.8
, pp. 1181-1186
-
-
Detmar, S.B.1
Aaronson, N.K.2
-
36
-
-
79955564504
-
A new approach to clinical care of juvenile idiopathic arthritis: The Juvenile Arthritis Multidimensional Assessment Report
-
Filocamo G, Consolaro A, Schiappapietra B, et al. A new approach to clinical care of juvenile idiopathic arthritis: The Juvenile Arthritis Multidimensional Assessment Report. J Rheumatol. 2011;38(5):938-953
-
(2011)
J Rheumatol.
, vol.38
, Issue.5
, pp. 938-953
-
-
Filocamo, G.1
Consolaro, A.2
Schiappapietra, B.3
-
37
-
-
0033955161
-
Distinction of quality of life, health related quality of life, and health status in children referred for rheumatologic care
-
Feldman BM, Grundland B, McCullough L, Wright V. Distinction of quality of life, health related quality of life, and health status in children referred for rheumatologic care. J Rheumatol. 2000;27(1):226-233
-
(2000)
J Rheumatol.
, vol.27
, Issue.1
, pp. 226-233
-
-
Feldman, B.M.1
Grundland, B.2
McCullough, L.3
Wright, V.4
-
38
-
-
84867068685
-
Implementing patient-reported outcomes assessment in clinical practice: A review of the options and considerations
-
Snyder CF, Aaronson NK, Choucair AK, et al. Implementing patient-reported outcomes assessment in clinical practice: A review of the options and considerations. Qual Life Res. 2012;21(8):1305-1314
-
(2012)
Qual Life Res.
, vol.21
, Issue.8
, pp. 1305-1314
-
-
Snyder, C.F.1
Aaronson, N.K.2
Choucair, A.K.3
-
39
-
-
34848924964
-
Exploration of the value of healthrelated quality-of-life information from clinical research and into clinical practice
-
Clinical Significance Consensus Meeting Group. [published Correction Appears In Mayo Clin Proc. 2007;82(12)1579]
-
Guyatt GH, Ferrans CE, Halyard MY, et al Clinical Significance Consensus Meeting Group. Exploration of the value of healthrelated quality-of-life information from clinical research and into clinical practice [published correction appears in Mayo Clin Proc. 2007;82(12)1579]. Mayo Clin Proc. 2007;82(10):1229-1239
-
(2007)
Mayo Clin Proc.
, vol.82
, Issue.10
, pp. 1229-1239
-
-
Guyatt, G.H.1
Ferrans, C.E.2
Halyard, M.Y.3
-
40
-
-
48649104981
-
The ePedsQL in type 1 and type 2 diabetes: Feasibility, reliability, and validity of the pediatric quality of life inventory internet administration
-
Varni JW, Limbers CA, Burwinkle TM, Bryant WP, Wilson DP. The ePedsQL in type 1 and type 2 diabetes: Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Internet administration. Diabetes Care. 2008;31(4):672-677
-
(2008)
Diabetes Care.
, vol.31
, Issue.4
, pp. 672-677
-
-
Varni, J.W.1
Limbers, C.A.2
Burwinkle, T.M.3
Bryant, W.P.4
Wilson, D.P.5
-
41
-
-
58149154254
-
Hidden consequences of success in pediatrics: Parental health-related quality of life-results from the care project
-
Available at
-
Hatzmann J, Heymans HS, Ferreri-Carbonell A, van Praag BM, Grootenhuis MA. Hidden consequences of success in pediatrics: Parental health-related quality of life-results from the Care Project. Pediatrics. 2008;122 (5). Available at: Www.pediatrics.org/cgi/content/full/122/5/e1030
-
(2008)
Pediatrics.
, vol.122
, Issue.5
-
-
Hatzmann, J.1
Heymans, H.S.2
Ferreri-Carbonell, A.3
Van Praag, B.M.4
Grootenhuis, M.A.5
-
42
-
-
84856514960
-
Patientand family-centered care and the pediatrician's role
-
Committee on Hospital Care and Institute for Patient-and Family-Centered Care
-
Committee on Hospital Care and Institute for Patient-and Family-Centered Care. Patientand family-centered care and the pediatrician's role. Pediatrics. 2012;129(2):394-404
-
(2012)
Pediatrics.
, vol.129
, Issue.2
, pp. 394-404
-
-
|