메뉴 건너뛰기




Volumn 122, Issue 5, 2008, Pages

Hidden consequences of success in pediatrics: Parental health-related quality of life-results from the care project

Author keywords

Caregiver; Chronic condition childhood; Health related quality of life

Indexed keywords

ADULT; AGGRESSIVENESS; ARTICLE; CHRONIC PATIENT; COGNITION; DAILY LIFE ACTIVITY; DEPRESSION; EFFECT SIZE; EMOTION; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MOTOR PERFORMANCE; PAIN; PARENT; PRIORITY JOURNAL; QUALITY OF LIFE; SEXUALITY; SLEEP; SOCIAL INTERACTION; ADOLESCENT; CAREGIVER; CHILD; CHRONIC DISEASE; COMPARATIVE STUDY; EPIDEMIOLOGY; FAMILY HEALTH; HEALTH STATUS; INFANT; MIDDLE AGED; PRESCHOOL CHILD; RETROSPECTIVE STUDY;

EID: 58149154254     PISSN: 00314005     EISSN: 10984275     Source Type: Journal    
DOI: 10.1542/peds.2008-0582     Document Type: Article
Times cited : (149)

References (36)
  • 1
    • 63749085002 scopus 로고    scopus 로고
    • Mokkink LB, van der Lee JH, Grootenhuis MA, Offringa M. , van Praag BMS, Heymans HSA. Extent and Consequences of Chronic Conditions in Children [in Dutch]. Amsterdam, Netherlands: Emma Children's Hospital, AMC; 2006
    • Mokkink LB, van der Lee JH, Grootenhuis MA, Offringa M. , van Praag BMS, Heymans HSA. Extent and Consequences of Chronic Conditions in Children [in Dutch]. Amsterdam, Netherlands: Emma Children's Hospital, AMC; 2006
  • 2
    • 34347238256 scopus 로고    scopus 로고
    • The increase of childhood chronic conditions in the United States
    • Perrin JM, Bloom SR, Gortmaker SL. The increase of childhood chronic conditions in the United States. JAMA. 2007;297(24): 2755-2759
    • (2007) JAMA , vol.297 , Issue.24 , pp. 2755-2759
    • Perrin, J.M.1    Bloom, S.R.2    Gortmaker, S.L.3
  • 3
    • 34248154705 scopus 로고    scopus 로고
    • The criterion A problem revisited: Controversies and challenges in defining and measuring psychological trauma
    • Weathers FW, Keane TM. The criterion A problem revisited: controversies and challenges in defining and measuring psychological trauma. J Trauma Stress. 2007;20(2):107-121
    • (2007) J Trauma Stress , vol.20 , Issue.2 , pp. 107-121
    • Weathers, F.W.1    Keane, T.M.2
  • 4
    • 0031984571 scopus 로고    scopus 로고
    • Effects of pediatric chronic physical disorders on child and family adjustment
    • Wallander JL, Varni JW. Effects of pediatric chronic physical disorders on child and family adjustment. J Child Psychol Psychiatry. 1998;39(1):29-46
    • (1998) J Child Psychol Psychiatry , vol.39 , Issue.1 , pp. 29-46
    • Wallander, J.L.1    Varni, J.W.2
  • 5
    • 23044467727 scopus 로고    scopus 로고
    • The economic burden of home care for children with HIV and other chronic illnesses
    • Wilson LS, Moskowitz JT, Acree M, et al. The economic burden of home care for children with HIV and other chronic illnesses. Am J Public Health. 2005;95(8):1445-1452
    • (2005) Am J Public Health , vol.95 , Issue.8 , pp. 1445-1452
    • Wilson, L.S.1    Moskowitz, J.T.2    Acree, M.3
  • 6
    • 0036985268 scopus 로고    scopus 로고
    • Parenting and childhood chronicity: Making visible the invisible work
    • Ray LD. Parenting and childhood chronicity: making visible the invisible work. J Pediatr Nurs. 2002;17(6):424-438
    • (2002) J Pediatr Nurs , vol.17 , Issue.6 , pp. 424-438
    • Ray, L.D.1
  • 7
    • 2642564546 scopus 로고    scopus 로고
    • Caregiving process and caregiver burden: Conceptual models to guide research and practice
    • Raina P, O'Donnell M, Schwellnus H, et al. Caregiving process and caregiver burden: conceptual models to guide research and practice. BMC Pediatr. 2004;4:1
    • (2004) BMC Pediatr , vol.4 , pp. 1
    • Raina, P.1    O'Donnell, M.2    Schwellnus, H.3
  • 8
    • 0037613363 scopus 로고    scopus 로고
    • Family burden and quality of life
    • Sales E. Family burden and quality of life. Qual Life Res. 2003; 12(suppl 1):33-41
    • (2003) Qual Life Res , vol.12 , Issue.SUPPL. 1 , pp. 33-41
    • Sales, E.1
  • 9
    • 1442358732 scopus 로고    scopus 로고
    • Great expectations: A position description for parents as caregivers. Part I
    • Sullivan-Bolyai S, Sadler L, Knafl KA, Gilliss CL. Great expectations: a position description for parents as caregivers. Part I. Pediatr Nurs. 2003;29(6):457-461
    • (2003) Pediatr Nurs , vol.29 , Issue.6 , pp. 457-461
    • Sullivan-Bolyai, S.1    Sadler, L.2    Knafl, K.A.3    Gilliss, C.L.4
  • 10
    • 33846875890 scopus 로고    scopus 로고
    • The health of caregivers for children with disabilities: Caregiver perspectives
    • Murphy NA, Christian B, Caplin DA, Young PC. The health of caregivers for children with disabilities: caregiver perspectives. Child Care Health Dev. 2007;33(2):180-187
    • (2007) Child Care Health Dev , vol.33 , Issue.2 , pp. 180-187
    • Murphy, N.A.1    Christian, B.2    Caplin, D.A.3    Young, P.C.4
  • 11
    • 33644836013 scopus 로고    scopus 로고
    • Quality of life for children with functional abdominal pain: A comparison study of patients' and parents' perceptions
    • Youssef NN, Murphy TG, Langseder AL, Rosh JR. Quality of life for children with functional abdominal pain: a comparison study of patients' and parents' perceptions. Pediatrics. 2006; 117(1):54-59
    • (2006) Pediatrics , vol.117 , Issue.1 , pp. 54-59
    • Youssef, N.N.1    Murphy, T.G.2    Langseder, A.L.3    Rosh, J.R.4
  • 12
    • 33644836813 scopus 로고    scopus 로고
    • Key worker services for disabled children: What characteristics of services lead to better outcomes for children and families?
    • Sloper P, Greco V, Beecham J, Webb R. Key worker services for disabled children: what characteristics of services lead to better outcomes for children and families? Child Care Health Dev. 2006;32(2):147-157
    • (2006) Child Care Health Dev , vol.32 , Issue.2 , pp. 147-157
    • Sloper, P.1    Greco, V.2    Beecham, J.3    Webb, R.4
  • 13
    • 33750910760 scopus 로고    scopus 로고
    • Families with disabled children
    • Sloper T, Beresford B. Families with disabled children. BMJ. 2006;333(7575):928-929
    • (2006) BMJ , vol.333 , Issue.7575 , pp. 928-929
    • Sloper, T.1    Beresford, B.2
  • 14
    • 33749255333 scopus 로고    scopus 로고
    • Factors relating to carer burden for families of persons with muscular dystrophy
    • Boyer F, Drame M, Morrone I, Novella JL. Factors relating to carer burden for families of persons with muscular dystrophy. J Rehabil Med. 2006;38(5):309-315
    • (2006) J Rehabil Med , vol.38 , Issue.5 , pp. 309-315
    • Boyer, F.1    Drame, M.2    Morrone, I.3    Novella, J.L.4
  • 15
    • 3142574829 scopus 로고    scopus 로고
    • Depression in parents of children with Duchenne muscular dystrophy
    • bi Daoud MS, Dooley JM, Gordon KE. Depression in parents of children with Duchenne muscular dystrophy. Pediatr Neurol. 2004;31(1):16-19
    • (2004) Pediatr Neurol , vol.31 , Issue.1 , pp. 16-19
    • bi Daoud, M.S.1    Dooley, J.M.2    Gordon, K.E.3
  • 16
    • 0041829239 scopus 로고    scopus 로고
    • Quality of life among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children
    • Lawoko S, Soares JJ. Quality of life among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children. Qual Life Res. 2003; 12(6):655-666
    • (2003) Qual Life Res , vol.12 , Issue.6 , pp. 655-666
    • Lawoko, S.1    Soares, J.J.2
  • 17
    • 33645119030 scopus 로고    scopus 로고
    • Stress and well-being among parents of children with rare diseases: A prospective intervention study
    • Dellve L, Samuelsson L, Tallborn A, Fasth A, Hallberg LR. Stress and well-being among parents of children with rare diseases: a prospective intervention study. J Adv Nurs. 2006; 53(4):392-402
    • (2006) J Adv Nurs , vol.53 , Issue.4 , pp. 392-402
    • Dellve, L.1    Samuelsson, L.2    Tallborn, A.3    Fasth, A.4    Hallberg, L.R.5
  • 18
    • 16544379495 scopus 로고    scopus 로고
    • The health of primary caregivers of children with cerebral palsy: How does it compare with that of other Canadian caregivers?
    • Available at
    • Brehaut JC, Kohen DE, Raina P, et al. The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers? Pediatrics. 2004;114(2). Available at: www. pediatrics. org/cgi/content/full/114/2/e182
    • (2004) Pediatrics , vol.114 , Issue.2
    • Brehaut, J.C.1    Kohen, D.E.2    Raina, P.3
  • 19
    • 0037565091 scopus 로고    scopus 로고
    • Family pediatrics: Report of the Task Force on the Family
    • Schor EL. Family pediatrics: report of the Task Force on the Family. Pediatrics. 2003;111(6 pt 2):1541-1571
    • (2003) Pediatrics , vol.111 , Issue.6 PART 2 , pp. 1541-1571
    • Schor, E.L.1
  • 20
    • 54249092970 scopus 로고    scopus 로고
    • Dutch National Consensus Committees' Chronic Diseases and Health Conditions in Childhood. Defining chronic disease and health conditions in childhood (0-18 years): National consensus in the Netherlands
    • Mar 14
    • Mokkink LB, van der Lee JH, Grootenhuis MA, Offringa M, Heymans HS; Dutch National Consensus Committees' Chronic Diseases and Health Conditions in Childhood. Defining chronic disease and health conditions in childhood (0-18 years): national consensus in the Netherlands. Eur J Pediatr. 2008; Mar 14
    • (2008) Eur J Pediatr
    • Mokkink, L.B.1    van der Lee, J.H.2    Grootenhuis, M.A.3    Offringa, M.4    Heymans, H.S.5
  • 21
    • 63749096592 scopus 로고    scopus 로고
    • Leiden, Germany: Leiden Center for Child Health and Pediatrics, LUMC-TNO;
    • Bruil J, Fekkes T, Vogels T, Verrips GHW. TACQoL Manual. Leiden, Germany: Leiden Center for Child Health and Pediatrics, LUMC-TNO; 2004
    • (2004) TACQoL Manual
    • Bruil, J.1    Fekkes, T.2    Vogels, T.3    Verrips, G.H.W.4
  • 23
    • 0033013779 scopus 로고    scopus 로고
    • Statistical issues encountered in the comparison of health-related quality of life in diseased patients to published general population norms: Problems and solutions
    • Rose MS, Koshman ML, Spreng S, Sheldon R. Statistical issues encountered in the comparison of health-related quality of life in diseased patients to published general population norms: problems and solutions. J Clin Epidemiol. 1999;52(5):405-412
    • (1999) J Clin Epidemiol , vol.52 , Issue.5 , pp. 405-412
    • Rose, M.S.1    Koshman, M.L.2    Spreng, S.3    Sheldon, R.4
  • 24
    • 33748749158 scopus 로고    scopus 로고
    • Facilitating family resilience with childhood illness and disability
    • Rolland JS, Walsh F. Facilitating family resilience with childhood illness and disability. Curr Opin Pediatr. 2006;18(5):527-538
    • (2006) Curr Opin Pediatr , vol.18 , Issue.5 , pp. 527-538
    • Rolland, J.S.1    Walsh, F.2
  • 26
    • 42149156610 scopus 로고    scopus 로고
    • Quality of life of female caregivers of children with sickle cell disease: A survey
    • van den Tweel XW, Hatzmann J, Ensink E, et al. Quality of life of female caregivers of children with sickle cell disease: a survey. Haematologica. 2008;93(4):588-593
    • (2008) Haematologica , vol.93 , Issue.4 , pp. 588-593
    • van den Tweel, X.W.1    Hatzmann, J.2    Ensink, E.3
  • 27
    • 39049168695 scopus 로고    scopus 로고
    • Parenting stress in parents of children with epilepsy and asthma
    • Chiou HH, Hsieh LP. Parenting stress in parents of children with epilepsy and asthma. J Child Neurol. 2008;23(3):301-306
    • (2008) J Child Neurol , vol.23 , Issue.3 , pp. 301-306
    • Chiou, H.H.1    Hsieh, L.P.2
  • 29
    • 63749129096 scopus 로고    scopus 로고
    • Dutch population increasingly higher educated
    • Central Bureau of Statistics, in Dutch, July, Voorburg/Heerlen, Netherlands: Central Bureau of Statistics;
    • Central Bureau of Statistics. Dutch population increasingly higher educated [in Dutch]. Webmagazine CBS, July 2005. Voorburg/Heerlen, Netherlands: Central Bureau of Statistics; 2007
    • (2005) Webmagazine CBS
  • 30
    • 28944447646 scopus 로고    scopus 로고
    • Socioeconomic status in health research: One size does not fit all
    • Braveman PA, Cubbin C, Egerter S, et al. Socioeconomic status in health research: one size does not fit all. JAMA. 2005; 294(22):2879-2888
    • (2005) JAMA , vol.294 , Issue.22 , pp. 2879-2888
    • Braveman, P.A.1    Cubbin, C.2    Egerter, S.3
  • 31
    • 33644869771 scopus 로고    scopus 로고
    • The psychosocial well-being of children with chronic disease, their parents and siblings: An overview of the research evidence base
    • Barlow JH, Ellard DR. The psychosocial well-being of children with chronic disease, their parents and siblings: an overview of the research evidence base. Child Care Health Dev. 2006;32(1): 19-31
    • (2006) Child Care Health Dev , vol.32 , Issue.1 , pp. 19-31
    • Barlow, J.H.1    Ellard, D.R.2
  • 32
    • 34548380906 scopus 로고    scopus 로고
    • No health without mental health
    • Prince M, Patel V, Saxena S, et al. No health without mental health. Lancet. 2007;370(9590):859-877
    • (2007) Lancet , vol.370 , Issue.9590 , pp. 859-877
    • Prince, M.1    Patel, V.2    Saxena, S.3
  • 33
    • 38449087428 scopus 로고    scopus 로고
    • Determinants of life quality in school-age children with cerebral palsy
    • Majnemer A, Shevell M, Rosenbaum P, Law M, Poulin C. Determinants of life quality in school-age children with cerebral palsy. J Pediatr. 2007;151(5):470-475
    • (2007) J Pediatr , vol.151 , Issue.5 , pp. 470-475
    • Majnemer, A.1    Shevell, M.2    Rosenbaum, P.3    Law, M.4    Poulin, C.5
  • 34
    • 11144283173 scopus 로고    scopus 로고
    • Parent functioning in families of preadolescents with spina bifida: Longitudinal implications for child adjustment
    • Friedman D, Holmbeck GN, Jandasek B, Zukerman J, Abad M. Parent functioning in families of preadolescents with spina bifida: longitudinal implications for child adjustment. J Fam Psychol. 2004;18(4):609-619
    • (2004) J Fam Psychol , vol.18 , Issue.4 , pp. 609-619
    • Friedman, D.1    Holmbeck, G.N.2    Jandasek, B.3    Zukerman, J.4    Abad, M.5
  • 35
    • 35648970014 scopus 로고    scopus 로고
    • Families of infants and young children with cancer: A post-traumatic stress framework
    • Kazak AE, Baxt C. Families of infants and young children with cancer: a post-traumatic stress framework. Pediatr Blood Cancer. 2007;49(7 suppl):1109-1113
    • (2007) Pediatr Blood Cancer , vol.49 , Issue.7 SUPPL. , pp. 1109-1113
    • Kazak, A.E.1    Baxt, C.2
  • 36
    • 21244449614 scopus 로고    scopus 로고
    • The effect of thyroxine treatment started in the neonatal period on development and growth of 2-year-old Down syndrome children: A randomized clinical trial
    • van Trotsenburg AS, Vulsma T, van Rozenburg-Marres SL, et al. The effect of thyroxine treatment started in the neonatal period on development and growth of 2-year-old Down syndrome children: a randomized clinical trial. J Clin Endocrinol Metab. 2005;90(6):3304-3311
    • (2005) J Clin Endocrinol Metab , vol.90 , Issue.6 , pp. 3304-3311
    • van Trotsenburg, A.S.1    Vulsma, T.2    van Rozenburg-Marres, S.L.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.