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Volumn 11, Issue , 2011, Pages

Monitoring health-related quality of life in paediatric practice: Development of an innovative web-based application

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CHILD; CLINICAL PRACTICE; CONSULTATION; CONTROLLED STUDY; FEEDBACK SYSTEM; HUMAN; INFANT; INTERNET; JUVENILE RHEUMATOID ARTHRITIS; MAJOR CLINICAL STUDY; MEDICAL EDUCATION; OUTPATIENT CARE; PATIENT SATISFACTION; PEDIATRICIAN; PEDIATRICS; PRESCHOOL CHILD; QUALITY OF LIFE; SCHOOL CHILD; ADOLESCENT; CLINICAL TRIAL; CONFIDENTIALITY; EDUCATION; METHODOLOGY; MULTICENTER STUDY; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; SELF REPORT; TREATMENT OUTCOME;

EID: 78651233280     PISSN: None     EISSN: 14712431     Source Type: Journal    
DOI: 10.1186/1471-2431-11-3     Document Type: Article
Times cited : (97)

References (33)
  • 1
    • 38449085166 scopus 로고    scopus 로고
    • Translating the science of patient-reported outcomes assessment into clinical practice
    • 10.1093/jncimonographs/lgm002, 17951224
    • Osoba D. Translating the science of patient-reported outcomes assessment into clinical practice. J Natl Cancer Inst Monogr 2007, 5-11. 10.1093/jncimonographs/lgm002, 17951224.
    • (2007) J Natl Cancer Inst Monogr , pp. 5-11
    • Osoba, D.1
  • 2
    • 0032127838 scopus 로고    scopus 로고
    • Quality of life assessment in daily clinical oncology practice: a feasibility study
    • 10.1016/S0959-8049(98)00018-5, 9849476
    • Detmar SB, Aaronson NK. Quality of life assessment in daily clinical oncology practice: a feasibility study. Eur J Cancer 1998, 34:1181-1186. 10.1016/S0959-8049(98)00018-5, 9849476.
    • (1998) Eur J Cancer , vol.34 , pp. 1181-1186
    • Detmar, S.B.1    Aaronson, N.K.2
  • 3
    • 0037132574 scopus 로고    scopus 로고
    • Health-related quality-of-life assessments and patient-physician communication: a randomized controlled trial
    • 10.1001/jama.288.23.3027, 12479768
    • Detmar SB, Muller MJ, Schornagel JH, Wever LD, Aaronson NK. Health-related quality-of-life assessments and patient-physician communication: a randomized controlled trial. JAMA 2002, 288:3027-3034. 10.1001/jama.288.23.3027, 12479768.
    • (2002) JAMA , vol.288 , pp. 3027-3034
    • Detmar, S.B.1    Muller, M.J.2    Schornagel, J.H.3    Wever, L.D.4    Aaronson, N.K.5
  • 4
    • 59449090706 scopus 로고    scopus 로고
    • The applications of PROs in clinical practice: what are they, do they work, and why?
    • 10.1007/s11136-008-9430-6, 19105048
    • Greenhalgh J. The applications of PROs in clinical practice: what are they, do they work, and why?. Qual Life Res 2009, 18:115-123. 10.1007/s11136-008-9430-6, 19105048.
    • (2009) Qual Life Res , vol.18 , pp. 115-123
    • Greenhalgh, J.1
  • 5
    • 0037033713 scopus 로고    scopus 로고
    • Computer-based quality of life questionnaires may contribute to doctor-patient interactions in oncology
    • 10.1038/sj.bjc.6600001, 2746549, 11857011
    • Velikova G, Brown JM, Smith AB, Selby PJ. Computer-based quality of life questionnaires may contribute to doctor-patient interactions in oncology. Br J Cancer 2002, 86:51-59. 10.1038/sj.bjc.6600001, 2746549, 11857011.
    • (2002) Br J Cancer , vol.86 , pp. 51-59
    • Velikova, G.1    Brown, J.M.2    Smith, A.B.3    Selby, P.J.4
  • 6
    • 67651241048 scopus 로고    scopus 로고
    • Use of patient-reported outcomes in clinical practice
    • 10.1016/S0140-6736(09)61400-8, 19647598
    • Snyder CF, Aaronson NK. Use of patient-reported outcomes in clinical practice. Lancet 2009, 374:369-370. 10.1016/S0140-6736(09)61400-8, 19647598.
    • (2009) Lancet , vol.374 , pp. 369-370
    • Snyder, C.F.1    Aaronson, N.K.2
  • 7
    • 39149101458 scopus 로고    scopus 로고
    • The impact of measuring patient-reported outcomes in clinical practice: a systematic review of the literature
    • 10.1007/s11136-007-9295-0, 18175207
    • Valderas JM, Kotzeva A, Espallargues M, Guyatt G, Ferrans CE, Halyard MY, et al. The impact of measuring patient-reported outcomes in clinical practice: a systematic review of the literature. Qual Life Res 2008, 17:179-193. 10.1007/s11136-007-9295-0, 18175207.
    • (2008) Qual Life Res , vol.17 , pp. 179-193
    • Valderas, J.M.1    Kotzeva, A.2    Espallargues, M.3    Guyatt, G.4    Ferrans, C.E.5    Halyard, M.Y.6
  • 8
    • 39149085644 scopus 로고    scopus 로고
    • Effectiveness of health-related quality-of-life measurement in clinical practice: a prospective, randomized controlled trial in patients with chronic liver disease and their physicians
    • 10.1007/s11136-008-9308-7, 2238788, 18246446
    • Gutteling JJ, Darlington AS, Janssen HL, Duivenvoorden HJ, Busschbach JJ, de Man RA. Effectiveness of health-related quality-of-life measurement in clinical practice: a prospective, randomized controlled trial in patients with chronic liver disease and their physicians. Qual Life Res 2008, 17:195-205. 10.1007/s11136-008-9308-7, 2238788, 18246446.
    • (2008) Qual Life Res , vol.17 , pp. 195-205
    • Gutteling, J.J.1    Darlington, A.S.2    Janssen, H.L.3    Duivenvoorden, H.J.4    Busschbach, J.J.5    de Man, R.A.6
  • 9
    • 0036341735 scopus 로고    scopus 로고
    • Patient/parent assessment of the quality of care
    • 10.1367/1539-4409(2002)002<0345:PPAOTQ>2.0.CO;2, 12135410
    • Darby C. Patient/parent assessment of the quality of care. Ambul Pediatr 2002, 2:345-348. 10.1367/1539-4409(2002)002<0345:PPAOTQ>2.0.CO;2, 12135410.
    • (2002) Ambul Pediatr , vol.2 , pp. 345-348
    • Darby, C.1
  • 10
    • 0034129890 scopus 로고    scopus 로고
    • Impact of computerized quality of life screening on physician behaviour and patient satisfaction in lung cancer outpatients
    • 10.1002/1099-1611(200005/06)9:3<203::AID-PON453>3.3.CO;2-P, 10871716
    • Taenzer P, Bultz BD, Carlson LE, Speca M, DeGagne T, Olson K, et al. Impact of computerized quality of life screening on physician behaviour and patient satisfaction in lung cancer outpatients. Psychooncology 2000, 9:203-213. 10.1002/1099-1611(200005/06)9:3<203::AID-PON453>3.3.CO;2-P, 10871716.
    • (2000) Psychooncology , vol.9 , pp. 203-213
    • Taenzer, P.1    Bultz, B.D.2    Carlson, L.E.3    Speca, M.4    DeGagne, T.5    Olson, K.6
  • 11
    • 1442283184 scopus 로고    scopus 로고
    • Measuring quality of life in routine oncology practice improves communication and patient well-being: a randomized controlled trial
    • 10.1200/JCO.2004.06.078, 14966096
    • Velikova G, Booth L, Smith AB, Brown PM, Lynch P, Brown JM, et al. Measuring quality of life in routine oncology practice improves communication and patient well-being: a randomized controlled trial. J Clin Oncol 2004, 22:714-724. 10.1200/JCO.2004.06.078, 14966096.
    • (2004) J Clin Oncol , vol.22 , pp. 714-724
    • Velikova, G.1    Booth, L.2    Smith, A.B.3    Brown, P.M.4    Lynch, P.5    Brown, J.M.6
  • 12
    • 34547601182 scopus 로고    scopus 로고
    • Health-related quality of life problems of children aged 8-11 years with a chronic disease
    • 10.1080/13682820600691017, 17608324
    • Grootenhuis MA, Koopman HM, Verrips EG, Vogels AG, Last BF. Health-related quality of life problems of children aged 8-11 years with a chronic disease. Dev Neurorehabil 2007, 10:27-33. 10.1080/13682820600691017, 17608324.
    • (2007) Dev Neurorehabil , vol.10 , pp. 27-33
    • Grootenhuis, M.A.1    Koopman, H.M.2    Verrips, E.G.3    Vogels, A.G.4    Last, B.F.5
  • 13
    • 30344435904 scopus 로고    scopus 로고
    • The PedsQL as a pediatric patient-reported outcome: reliability and validity of the PedsQL Measurement Model in 25,000 children
    • 10.1586/14737167.5.6.705, 19807613
    • Varni JW, Burwinkle TM, Seid M. The PedsQL as a pediatric patient-reported outcome: reliability and validity of the PedsQL Measurement Model in 25,000 children. Expert Rev Pharmacoecon Outcomes Res 2005, 5:705-719. 10.1586/14737167.5.6.705, 19807613.
    • (2005) Expert Rev Pharmacoecon Outcomes Res , vol.5 , pp. 705-719
    • Varni, J.W.1    Burwinkle, T.M.2    Seid, M.3
  • 14
    • 49649123932 scopus 로고    scopus 로고
    • Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being: a randomized controlled trial
    • 10.2337/dc08-0394, 2494630, 18509204
    • de Wit M, Delemarre-van de Waal HA, Bokma JA, Haasnoot K, Houdijk MC, Gemke RJ, et al. Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being: a randomized controlled trial. Diabetes Care 2008, 31:1521-1526. 10.2337/dc08-0394, 2494630, 18509204.
    • (2008) Diabetes Care , vol.31 , pp. 1521-1526
    • de Wit, M.1    Delemarre-van de Waal, H.A.2    Bokma, J.A.3    Haasnoot, K.4    Houdijk, M.C.5    Gemke, R.J.6
  • 16
    • 78751703235 scopus 로고    scopus 로고
    • Monitoring Health Related Quality of Life in pediatric oncology practice increases discussion and identification of emotional problems
    • Engelen V, Detmar SB, Koopman HM, Maurice-Stam H, Caron HN, Hoogerbrugge PM, et al. Monitoring Health Related Quality of Life in pediatric oncology practice increases discussion and identification of emotional problems. Submitted 2010,
    • (2010) Submitted
    • Engelen, V.1    Detmar, S.B.2    Koopman, H.M.3    Maurice-Stam, H.4    Caron, H.N.5    Hoogerbrugge, P.M.6
  • 17
    • 69249229604 scopus 로고    scopus 로고
    • PatientViewpoint: a website for patient-reported outcomes assessment
    • 10.1007/s11136-009-9497-8, 19544089
    • Snyder CF, Jensen R, Courtin SO, Wu AW. PatientViewpoint: a website for patient-reported outcomes assessment. Qual Life Res 2009, 18:793-800. 10.1007/s11136-009-9497-8, 19544089.
    • (2009) Qual Life Res , vol.18 , pp. 793-800
    • Snyder, C.F.1    Jensen, R.2    Courtin, S.O.3    Wu, A.W.4
  • 18
    • 28744442730 scopus 로고    scopus 로고
    • Computerized symptom and quality-of-life assessment for patients with cancer part II: acceptability and usability
    • 10.1188/04.ONF.E84-E89, 15378105
    • Mullen KH, Berry DL, Zierler BK. Computerized symptom and quality-of-life assessment for patients with cancer part II: acceptability and usability. Oncol Nurs Forum 2004, 31:E84-E89. 10.1188/04.ONF.E84-E89, 15378105.
    • (2004) Oncol Nurs Forum , vol.31
    • Mullen, K.H.1    Berry, D.L.2    Zierler, B.K.3
  • 19
    • 34848924964 scopus 로고    scopus 로고
    • Exploration of the value of health-related quality-of-life information from clinical research and into clinical practice
    • 10.4065/82.10.1229, 17908529
    • Guyatt GH, Ferrans CE, Halyard MY, Revicki DA, Symonds TL, Varricchio CG, et al. Exploration of the value of health-related quality-of-life information from clinical research and into clinical practice. Mayo Clin Proc 2007, 82:1229-1239. 10.4065/82.10.1229, 17908529.
    • (2007) Mayo Clin Proc , vol.82 , pp. 1229-1239
    • Guyatt, G.H.1    Ferrans, C.E.2    Halyard, M.Y.3    Revicki, D.A.4    Symonds, T.L.5    Varricchio, C.G.6
  • 20
    • 9644302471 scopus 로고    scopus 로고
    • The use of patient reported outcome measures in routine clinical practice: lack of impact or lack of theory?
    • 10.1016/j.socscimed.2004.06.022, 15571900
    • Greenhalgh J, Long AF, Flynn R. The use of patient reported outcome measures in routine clinical practice: lack of impact or lack of theory?. Soc Sci Med 2005, 60:833-843. 10.1016/j.socscimed.2004.06.022, 15571900.
    • (2005) Soc Sci Med , vol.60 , pp. 833-843
    • Greenhalgh, J.1    Long, A.F.2    Flynn, R.3
  • 21
    • 0037333581 scopus 로고    scopus 로고
    • Outcome in adults with juvenile idiopathic arthritis: a quality of life study
    • 10.1002/art.10863, 12632431
    • Foster HE, Marshall N, Myers A, Dunkley P, Griffiths ID. Outcome in adults with juvenile idiopathic arthritis: a quality of life study. Arthritis Rheum 2003, 48:767-775. 10.1002/art.10863, 12632431.
    • (2003) Arthritis Rheum , vol.48 , pp. 767-775
    • Foster, H.E.1    Marshall, N.2    Myers, A.3    Dunkley, P.4    Griffiths, I.D.5
  • 22
    • 0031471247 scopus 로고    scopus 로고
    • Psychosocial outcomes and health status of adults who have had juvenile rheumatoid arthritis: a controlled, population-based study
    • 10.1002/art.1780401219, 9416862
    • Peterson LS, Mason T, Nelson AM, O'Fallon WM, Gabriel SE. Psychosocial outcomes and health status of adults who have had juvenile rheumatoid arthritis: a controlled, population-based study. Arthritis Rheum 1997, 40:2235-2240. 10.1002/art.1780401219, 9416862.
    • (1997) Arthritis Rheum , vol.40 , pp. 2235-2240
    • Peterson, L.S.1    Mason, T.2    Nelson, A.M.3    O'Fallon, W.M.4    Gabriel, S.E.5
  • 23
    • 19544385956 scopus 로고    scopus 로고
    • Favourable social functioning and health related quality of life of patients with JIA in early adulthood
    • 10.1136/ard.2004.026591, 1755522, 15897308
    • Arkela-Kautiainen M, Haapasaari J, Kautiainen H, Vilkkumaa I, Malkia E, Leirisalo-Repo M. Favourable social functioning and health related quality of life of patients with JIA in early adulthood. Ann Rheum Dis 2005, 64:875-880. 10.1136/ard.2004.026591, 1755522, 15897308.
    • (2005) Ann Rheum Dis , vol.64 , pp. 875-880
    • Arkela-Kautiainen, M.1    Haapasaari, J.2    Kautiainen, H.3    Vilkkumaa, I.4    Malkia, E.5    Leirisalo-Repo, M.6
  • 24
    • 0034466038 scopus 로고    scopus 로고
    • Development and psychometric evaluation of the TAPQOL: a health-related quality of life instrument for 1-5-year-old children
    • 10.1023/A:1008981603178, 11284215
    • Fekkes M, Theunissen NC, Brugman E, Veen S, Verrips EG, Koopman HM, et al. Development and psychometric evaluation of the TAPQOL: a health-related quality of life instrument for 1-5-year-old children. Qual Life Res 2000, 9:961-972. 10.1023/A:1008981603178, 11284215.
    • (2000) Qual Life Res , vol.9 , pp. 961-972
    • Fekkes, M.1    Theunissen, N.C.2    Brugman, E.3    Veen, S.4    Verrips, E.G.5    Koopman, H.M.6
  • 25
    • 0348161127 scopus 로고    scopus 로고
    • The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity
    • 10.1367/1539-4409(2003)003<0329:TPAAPP>2.0.CO;2, 14616041
    • Varni JW, Burwinkle TM, Seid M, Skarr D. The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr 2003, 3:329-341. 10.1367/1539-4409(2003)003<0329:TPAAPP>2.0.CO;2, 14616041.
    • (2003) Ambul Pediatr , vol.3 , pp. 329-341
    • Varni, J.W.1    Burwinkle, T.M.2    Seid, M.3    Skarr, D.4
  • 27
    • 78751704552 scopus 로고    scopus 로고
    • Ref Type: Internet Communication
    • 2009, Ref Type: Internet Communication., http://epp.eurostat.ec.europa.eu/cache/ITY_OFFPUB/KS-QA-09-046/EN/KS-QA-09-046-EN.PDF
    • (2009)
  • 28
    • 48649104981 scopus 로고    scopus 로고
    • The ePedsQL in type 1 and type 2 diabetes: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Internet administration
    • 10.2337/dc07-2021, 18184893
    • Varni JW, Limbers CA, Burwinkle TM, Bryant WP, Wilson DP. The ePedsQL in type 1 and type 2 diabetes: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Internet administration. Diabetes Care 2008, 31:672-677. 10.2337/dc07-2021, 18184893.
    • (2008) Diabetes Care , vol.31 , pp. 672-677
    • Varni, J.W.1    Limbers, C.A.2    Burwinkle, T.M.3    Bryant, W.P.4    Wilson, D.P.5
  • 29
    • 33750960287 scopus 로고    scopus 로고
    • Barriers to the integration of psychosocial factors in medicine: results of a national survey of physicians
    • 10.3122/jabfm.19.6.557, 17090789
    • Astin JA, Soeken K, Sierpina VS, Clarridge BR. Barriers to the integration of psychosocial factors in medicine: results of a national survey of physicians. J Am Board Fam Med 2006, 19:557-565. 10.3122/jabfm.19.6.557, 17090789.
    • (2006) J Am Board Fam Med , vol.19 , pp. 557-565
    • Astin, J.A.1    Soeken, K.2    Sierpina, V.S.3    Clarridge, B.R.4
  • 30
    • 0030793982 scopus 로고    scopus 로고
    • The Strengths and Difficulties Questionnaire: a research note
    • 10.1111/j.1469-7610.1997.tb01545.x, 9255702
    • Goodman R. The Strengths and Difficulties Questionnaire: a research note. J Child Psychol Psychiatry 1997, 38:581-586. 10.1111/j.1469-7610.1997.tb01545.x, 9255702.
    • (1997) J Child Psychol Psychiatry , vol.38 , pp. 581-586
    • Goodman, R.1
  • 31
    • 0347024583 scopus 로고    scopus 로고
    • Dutch version of the Strengths and Difficulties Questionnaire (SDQ)
    • 10.1007/s00787-003-0341-3, 14689260
    • van Widenfelt BM, Goedhart AW, Treffers PD, Goodman R. Dutch version of the Strengths and Difficulties Questionnaire (SDQ). Eur Child Adolesc Psychiatry 2003, 12:281-289. 10.1007/s00787-003-0341-3, 14689260.
    • (2003) Eur Child Adolesc Psychiatry , vol.12 , pp. 281-289
    • van Widenfelt, B.M.1    Goedhart, A.W.2    Treffers, P.D.3    Goodman, R.4
  • 32
    • 65449146288 scopus 로고    scopus 로고
    • Paediatric illness! Family matters
    • 10.1111/j.1651-2227.2009.01321.x, 19484829
    • Grootenhuis MA, Bronner MB. Paediatric illness! Family matters. Acta Paediatr 2009, 98:940-941. 10.1111/j.1651-2227.2009.01321.x, 19484829.
    • (2009) Acta Paediatr , vol.98 , pp. 940-941
    • Grootenhuis, M.A.1    Bronner, M.B.2
  • 33
    • 58149154254 scopus 로고    scopus 로고
    • Hidden consequences of success in pediatrics: parental health-related quality of life-results from the Care Project
    • 10.1542/peds.2008-0582, 18852185
    • Hatzmann J, Heymans HS, Carbonell A, van Praag BM, Grootenhuis MA. Hidden consequences of success in pediatrics: parental health-related quality of life-results from the Care Project. Pediatrics 2008, 122:e1030-e1038. 10.1542/peds.2008-0582, 18852185.
    • (2008) Pediatrics , vol.122
    • Hatzmann, J.1    Heymans, H.S.2    Carbonell, A.3    van Praag, B.M.4    Grootenhuis, M.A.5


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