Service users' and caregivers' perspectives on continuity of care in out-of-hours primary care

Qualitative Health Research

Volumn 23, Issue 3, 2013, Pages 407-421

  Gallagher, Niamh ^a   MacFarlane, Anne ^b   Murphy, Andrew W ^a   Freeman, George K ^c   Glynn, Liam G ^a   Bradley, Colin P ^d  

^a NATIONAL UNIVERSITY OF IRELAND   (Ireland)

^b UNIVERSITY OF LIMERICK   (Ireland)

^c IMPERIAL COLLEGE LONDON   (United Kingdom)

^d UNIVERSITY COLLEGE CORK   (Ireland)

Author keywords

caregivers; case studies; health care, primary; interviews, semistructured; qualitative analysis; quality of care

Indexed keywords

CAREGIVER; CHRONIC DISEASE; COMORBIDITY; DISEASE COURSE; DOCTOR PATIENT RELATION; EMERGENCY HEALTH SERVICE; EPIDEMIOLOGY; GENERAL PRACTICE; HEALTH CARE DELIVERY; HUMAN; INTERPERSONAL COMMUNICATION; IRELAND; OUT-OF-HOURS CARE; PATIENT CARE; PATIENT SATISFACTION; PRIMARY HEALTH CARE; PSYCHOLOGY; ARTICLE; PSYCHOLOGICAL ASPECT;

AFTER-HOURS CARE; CAREGIVERS; CHRONIC DISEASE; COMMUNICATION; COMORBIDITY; CONTINUITY OF PATIENT CARE; DISEASE PROGRESSION; EMERGENCY MEDICAL SERVICES; GENERAL PRACTICE; HEALTH SERVICES ACCESSIBILITY; HUMANS; IRELAND; PATIENT SATISFACTION; PHYSICIAN-PATIENT RELATIONS; PRIMARY HEALTH CARE; SAMPLING STUDIES; TRIAGE;

EID: 84873052777     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732312470521     Document Type: Article

References (74)

1. Adam R.. Personal care and general practice medicine in the UK: A qualitative interview study with patients and general practitioners. BMC Osteopathic Medicine and Primary Care. 2007 ; 1 (1). 13
2. AlegriaM.PescosolidoB. A.SantosD.VeraM. (1997). Can we conceptualise and measure continuity of care in individual episodes? The case of mental health services in Puerto Rico. Sociological Focus, 30(2), 113-129. Retrieved from http://www.sociologicalfocus.net/
3. Allen D., Griffiths L., Lyne P.. Understanding complex trajectories in health and social care provision. Sociology of Health and Illness. 2004 ; 26 (7). 1008-1030
4. ArskeyH. (1996). Collecting data through joint interviews. Social Research Update, 15, 1-8. Retrieved from http://sru.soc.surrey.ac.uk/SRU15.html
5. Baker G. R.. The contribution of case study research to knowledge of how to improve quality of care. BMJ Quality and Safety. 2011 ; 20: i30 - i35
6. BakerR.FreemanG. K.BoultonM.WindridgeK.TarrantC.LowJ.BryanS. (2005). Continuity of care: Patients' and care-givers' views and choices in their use of primary care services. Retrieved from www.sdo.nihr.ac.uk/files/project/13b- final-report.pdf
7. Bell J. A. H., Hyland S., DePellegrin T., Upshur R. E. G., Bernstein M., Douglas K. M.. SARS and hospital priority setting: A qualitative case study and evaluation. BMC Heath Services Research. 2004 ; 4: 36
8. CharltonR. (2005). Implications of the new GP contract. Clinical Medicine, 5(1), 50-54. Retrieved from http://old.rcplondon.ac.uk/pubs/ clinicalmedicine/0501janfeb/0501-janfeb-prof5.htm
9. ICPC-2: International Classification of Primary Care. Oxford: Oxford University Press ; 1997 :
10. CorbinJ. (1998). The Corbin and Strauss Trajectory Model: An update. Scholarly Inquiry for Nursing Practice, 12(1), 33-41. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/9805470
11. Corbin J., Strauss A.. Grounded theory research: Procedures, canons and evaluative criteria. Qualitative Sociology. 1990 ; 13 (1). 3-21
12. Creswell J. W. Qualitative inquiry and research design: Choosing among five approaches. Thousand Oaks, CA: Sage ; 2007 :
13. Department of Health and Children. (2001). Primary care: A new direction. Dublin: Stationery Office. Retrieved from http://www.dohc.ie/publications/pdf/ primcare.pdf?direct=1
14. Diederiks J. P. M., Bal R. M.. Perspectives on patient career in chronic illness: Theoretical status and practical implications. Sociological Focus. 1997 ; 30 (2). 167-175
15. Eisikovits Z., Koren C.. Approaches to and outcomes of dyadic interview analysis. Qualitative Health Research. 2010 ; 20: 1642-1655
16. Ely M., Anzul M., Friedman T., Garner D., Steinmetz A. M. Doing qualitative research: Circles within circles. London: Falmer ; 1991 :
17. Fairhurst K., May C. Knowing patients and knowledge about patients: Evidence of modes of reasoning in the consultation?. Family Practice. 2001 ; 18 (5). 501-505
18. A case for the case study. Feagin J. R. Orum A. M. Sjobjerg G., ed. Chapel Hill: University of North Carolina Press ; 1991 :
19. Flocke S. A., Stange K. C., Zyzanski S. J.. The impact of insurance type and forced discontinuity of care on the delivery of primary care. Journal of Family Practice. 1997 ; 45 (2). 129-135
20. Forrest C. B., Shi L., von Schrader S., Ng J.. Managed care, primary care, and the patient-practitioner relationship. Journal of General Internal Medicine. 2002 ; 17: 270-277
21. FreemanG. K.ShepperdS.RobinsonI.EnrichK.RichardsS. (2001). Continuity of care: Report of a scoping exercise. Retrieved from www.sdo.nihr.ac.uk/files/ project/2-final-report.pdf
22. Freeman G. K., Walker J., Heaney D., Howie J.. Personal continuity and the quality of GP consultations: Knowing the doctor or having a regular doctor?. European Journal of General Practice. 2002 ; 8: 90-94
23. FreemanG. K.WoloshynowychM.BakerR.BoultonM.GuthrieB.CarJ.TarrantC. (2007). Continuity of care 2006: What have we learned since 2000 and what are the policy imperatives now? Retrieved from www.sdo.nihr.ac.uk/files/project/138- final-report.pdf
24. Gill N., Freeman G. K.. Continuity of care and rapid access: The potential impact of appointment systems. Primary Health Care Research and Development. 2007 ; 8 (3). 235-242
25. Glynn L. G., Byrne M., Newell J., Murphy A. W.. The effect of health status on patients' satisfaction with out of hours care provided by a family doctor co-operative. Family Practice. 2004 ; 21 (6). 677-683
26. Glynn L. G., MacFarlane A., Murphy A. W.. The complexity of patients' satisfaction with out-of-hours care: A qualitative study. European Journal of General Practice. 2007 ; 13 (2). 83-88
27. Goldblatt H., Karnieli-Miller O., Neumann M.. Sharing qualitative research findings with participants: Study experiences of methodological and ethical dilemmas. Patient Education and Counselling. 2011 ; 82 (3). 389-395
28. Guthrie B., Saultz J. W., Freeman G. K., Haggerty J. L.. Continuity of care matters. British Medical Journal. 2008 ; 337: 548-549
29. Guthrie B., Wyke S.. Personal continuity and access in UK general practice: A qualitative study of general practitioners' and patients' perceptions of when and how they matter. BMC Family Practice. 2006 ; 7: 11
30. Gysels M., Shipman C., Higginson I. J.. Is the qualitative research interview an acceptable medium for research with palliative care patients and carers?. BMC Medical Ethics. 2008 ; 9: 7
31. Haggerty J. L., Reid R. J., Freeman G. K., Starfield B., Adair C. E., McHendry R.. Continuity of care: A multidisciplinary review. British Medical Journal. 2003 ; 327: 1219-1221
32. HallamL.HenthorneK. (1999). Cooperatives and their primary care centres: Organization and impact. Health Technology Assessment, 3(3), 7. Retrieved from www.hta.ac.uk/execsumm/summ307.shtml
33. HarasC.SauquetD.AmelineP.JaulentM. C.DegouletP. (2005). Patient data synchronization process in a continuity of care environment. American Medical Informatics Association Annual Symposium Proceedings, 296-300. Retrieved from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1560702/
34. Hart J. T.. The inverse care law. Lancet. 1971 ; 297 (7696). 401-412
35. Jensen J. L., Rodgers R.. Cumulating the intellectual gold of case study research. Public Administration Review. 2001 ; 61: 235-246
36. Kim T. W., Samet J. H., Cheng D. M., Winter R. M., Safran D. G., Saitz R.. Primary care quality and addiction severity: A prospective cohort study. Health Services Research. 2007 ; 42 (4). 755-772
37. Leibowitz R., Day S., Dunt D.. A systematic review of the effect of different models of after-hours primary medical care services on clinical outcome, medical workload and patient and GP satisfaction. Family Practice. 2003 ; 20 (3). 311-317
38. LowJ. (2004). Continuity of care from a patient's point of view: Context, process, relation. Family Medicine, 36(1), 61-64. Retrieved from http://www.stfm.org/fmhub/
39. MacFarlane A., O'Reilly-de Brún M.. Using a theory driven conceptual framework in qualitative health research. Qualitative Health Research. 2012 ; 22: 607-618
40. Marshall M. N.. Sampling in qualitative research. Family Practice. 1996 ; 13: 522-525
41. McKeganeyN. (1989). On the analysis of medical work: General practitioners, opiate abusing patients and medical sociology. Sociology of Health and Illness, 11, 24-40. Retrieved from http://www3.interscience.wiley. com/journal/119438763/abstract
42. McKinley R. K., Stevenson K., Adams S., Manku-Scott T.. Meeting patient expectations of care: The major determinant of satisfaction with out-of-hours primary medical care. Family Practice. 2002 ; 19 (4). 333-338
43. Morgan J. Living with chronic illness: The experience of patients and their families. Anderson R. Bury M., ed. London: Unwin Hyman ; 1988: 203-224.
44. Morris S. M.. Joint and individual interviewing in the context of cancer. Qualitative Health Research. 2001 ; 11: 553-567
45. Murray S. A., Kendall M., Boyd K., Sheikh A.. Illness trajectories and palliative care. British Medical Journal. 2005 ; 330 (7498). 1007-1011
46. Naithani S., Gulliford N., Morgan M.. Patients' perceptions and experiences of continuity of care in diabetes. Health Expectations. 2006 ; 9 (2). 118-129
47. O'DowdT. C.KellyA.O'KellyF. (2006). The structure of general practice in Ireland: 1982-2005. Dublin: Department of Public Health and Primary Care, Trinity College Dublin and Irish College of General Practitioners. Retrieved from http://www.medicine.tcd.ie/public-health-primary-care/assets/pdf/reports/ GP-Structure.pdf
48. O'DowdT. C.SinclairH.McSweeneyN. (1997). Stress and morale in general practice in the Republic of Ireland. Dublin: Irish College of General Practitioners. Retrieved from http://openlibrary.org/books/OL18421490M/Stress- and-morale-in-general-practice-in-the-Republic-of-Ireland
49. Pelaez-Ballestas I., Romero-Memdoza M., Ramos-Lira L., Caballero R., Hernandez-Garduno A., Burgos-Vargas R.. Illness trajectories in Mexican children with juvenile idiopathic arthritis and their parents. Rheumatology. 2006 ; 45: 1399-1403
50. PescosolidoB. A. (1996). Bringing the community into utilization models: How social networks link individuals to changing systems of care. Research in the Sociology of Health Care, 13, 171-198. Retrieved from http://www.indiana. edu/∼icmhsr/publications%20icmhsr.html
51. Pike K. Language in relation to a unified theory of the structure of human behaviour. The Hague: Mouton ; 1967 :
52. Pless I. B., Pinkerton P. Chronic childhood disorder: Promoting patterns of adjustment. Chicago: Year Book Medical ; 1975 :
53. RachlisV. (1993). Who goes to after-hours clinics? Demographic analysis of an after-hours clinic. Canadian Family Physician, 39, 266-270. Retrieved from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2379751/pdf/canfamphys00108-0048. pdf
54. Ragin C. C., Becker H. S. E. What is a case? Exploring foundations in social inquiry. New York: Cambridge University Press ; 1992 :
55. Richards L. Using NVivo in qualitative research. London: Sage ; 1999 :
56. Richards S. H., Winder R., Seamark C., Seamark D., Avery S., Gilbert J., Campbell J.. The experiences and needs of people seeking palliative health care out-of-hours: A qualitative study. Primary Health Care Research & Development. 2011 ; 12: 165-178
57. Richards S. S., Pound P., Dickens A., Greco M., Campbell J. L.. Exploring users' experiences of accessing out-of-hours primary medical care services. Quality and Safety in Health Care. 2007 ; 16: 469-477
58. Robles-Silva L.. The caregiving trajectory among poor and chronically ill people. Qualitative Health Research. 2008 ; 18: 358-368
59. Schoenberg N. E., Bardach S. H., Manchikanti K. N., Goodenow A. C.. Appalachian residents' experiences with and management of multiple morbidity. Qualitative Health Research. 2011 ; 21: 601-611
60. Silverman D. Interpreting qualitative data: Methods for analyzing talk, text and interaction. London: Sage ; 2001 :
61. Singer P. A., Martin D. K., Giacomini M., Purdy L.. Priority setting for new technologies in medicine: Qualitative case study. British Medical Journal. 2000 ; 321: 1316-1318
62. Sparbel K., Anderson M.. Integrated literature review of continuity of care: Part 1: Conceptual definitions. Journal of Nursing Scholarship. 2000 ; 32 (1). 17-24
63. Strauss A. Human nature and collective behavior: Papers in honor of Herbert Blumer. Shibutani T., ed. Englewood Cliffs, NJ: Prentice-Hall ; 1970: 46-53.
64. Strauss A., Corbin J. Basics of qualitative method: Grounded theory procedures and techniques. Beverly Hills CA: Sage ; 1990 :
65. Strauss A., Fagerhaugh S., Suczek B., Wiener C. Social organization of medical work. London: University of Chicago Press ; 1985 :
66. Tarrant C., Windridge K., Boulton M., Baker R., Freeman G. K.. Qualitative study of the meaning of personal care in general practice. British Medical Journal. 2003 1310 ; 326 ( 7402 ):
67. Taylor B., de Vocht H.. Interviewing separately or as couples? Considerations of authenticity of method. Qualitative Health Research. 2011 ; 21: 1576-1587
68. van den Hombergh P., Engels Y., van den Hoogen H., van Doremalen J., van den Bosch W., Grol R. Saying 'goodbye' to single-handed practices: What do patients and staff lose or gain?. Family Practice. 2005 ; 22 (1). 20-27
69. van Servellen G., Fongwa M., Mockus D'errico E.. Continuity of care and quality care outcomes for people experiencing chronic conditions: A literature review. Nursing and Health Sciences. 2006 ; 8: 185-195
70. van UdenC. J. T.GiesenM. D.JobF. M.MetsemakersM. D.GrolR. (2006). Development of out of hours primary care by general practitioners (GPs) in the Netherlands: From small-call rotations to large-scale GP cooperatives. International Family Medicine, 38(8), 565-569. Retrieved from http://www.stfm.org/fmhub/fm2006/September/Caro565.pdf
71. Vaughan D. What is a case? Exploring foundations in social inquiry. Ragin C. Becker H. S. E., ed. New York: Cambridge University Press ; 1992: 173-202.
72. von Bultzingslowen I., Eliasson G., Sarvimaki A., Mattsson B.. Patients' views on interpersonal continuity in primary care: A sense of security based on four core foundations. Family Practice. 2006 ; 23: 210-219
73. WorthA.BoydK.KendallM.HeaneyD.MacleodU.CormieP.MurrayS. (2006). Out-of-hours palliative care: A qualitative study of cancer patients, care-givers and professionals. British Journal of General Practice, 56, 6-13. Retrieved from http://www.rcgp.org.uk/brjgenpract.aspx
74. Yin R. K. Case study research: Design and methods. 2003 ). Case study research: Design and methods (3rd ed.). London: Sage. London: Sage ; 2003 :