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Volumn 22, Issue 1, 2013, Pages 185-201

Factors influencing self- and parent-reporting health-related quality of life in children with brain tumors

Author keywords

Brain neoplasms; Child; Observer variation; Parents; Quality of life; Questionnaires

Indexed keywords

ADOLESCENT; ARTICLE; BRAIN TUMOR; CHILD; FEMALE; HEALTH STATUS; HEALTH SURVEY; HUMAN; MALE; PARENT; PERSONALITY TEST; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; QUESTIONNAIRE; REPRODUCIBILITY; SELF REPORT; STANDARD; BRAIN NEOPLASMS; PSYCHOLOGY; STANDARDS;

EID: 84872687818     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-012-0137-3     Document Type: Article
Times cited : (17)

References (45)
  • 2
    • 66349104265 scopus 로고    scopus 로고
    • Quality of life of extremely long-time germinoma survivors mainly treated with radiotherapy
    • 19329867 10.1159/000210059
    • Sugiyama, K.; Yamasaki, F.; Kurisu, K.; & Kenjo, M. (2009). Quality of life of extremely long-time germinoma survivors mainly treated with radiotherapy. Progress in Neurological Surgery, 23, 130-139.
    • (2009) Progress in Neurological Surgery , vol.23 , pp. 130-139
    • Sugiyama, K.1    Yamasaki, F.2    Kurisu, K.3    Kenjo, M.4
  • 3
    • 31544446902 scopus 로고    scopus 로고
    • Outcome of medulloblastoma in children: Long-term complications and quality of life
    • 16429375 10.1055/s-2005-872880 1:STN:280:DC%2BD28%2FktVyqsw%3D%3D
    • Ribi, K.; Relly, C.; Landolt, M. A.; Alber, F. D.; Boltshauser, E.; & Grotzer, M. A. (2005). Outcome of medulloblastoma in children: Long-term complications and quality of life. Neuropediatrics, 36(6), 357-365.
    • (2005) Neuropediatrics , vol.36 , Issue.6 , pp. 357-365
    • Ribi, K.1    Relly, C.2    Landolt, M.A.3    Alber, F.D.4    Boltshauser, E.5    Grotzer, M.A.6
  • 4
    • 1842484057 scopus 로고    scopus 로고
    • Outcome of craniopharyngioma in children: Long-term complications and quality of life
    • 15077699 10.1111/j.1469-8749.2004.tb00476.x
    • Poretti, A.; Grotzer, M. A.; Ribi, K.; Schonle, E.; & Boltshauser, E. (2004). Outcome of craniopharyngioma in children: Long-term complications and quality of life. Developmental Medicine and Child Neurology, 46(4), 220-229.
    • (2004) Developmental Medicine and Child Neurology , vol.46 , Issue.4 , pp. 220-229
    • Poretti, A.1    Grotzer, M.A.2    Ribi, K.3    Schonle, E.4    Boltshauser, E.5
  • 6
    • 0036235552 scopus 로고    scopus 로고
    • Survivors of childhood brain tumors: Behavioral, emotional, and social adjustment
    • 12094511 10.1016/S0272-7358(01)00120-9
    • Fuemmeler, B. F.; Elkin, T. D.; & Mullins, L. L. (2002). Survivors of childhood brain tumors: Behavioral, emotional, and social adjustment. Clinical Psychology Review, 22(4), 547-585.
    • (2002) Clinical Psychology Review , vol.22 , Issue.4 , pp. 547-585
    • Fuemmeler, B.F.1    Elkin, T.D.2    Mullins, L.L.3
  • 7
    • 0029664491 scopus 로고    scopus 로고
    • Assessment of quality-of-life outcomes
    • 8596551 10.1056/NEJM199603283341306 1:STN:280:DyaK287ns1akug%3D%3D
    • Testa, M. A.; & Simonson, D. C. (1996). Assessment of quality-of-life outcomes. New England Journal of Medicine, 334(13), 835-840.
    • (1996) New England Journal of Medicine , vol.334 , Issue.13 , pp. 835-840
    • Testa, M.A.1    Simonson, D.C.2
  • 8
    • 33847725886 scopus 로고    scopus 로고
    • Parent as proxy reporting: Implications and recommendations for quality of life research
    • 17220383 10.1177/1074840706297789
    • Sherifali, D.; & Pinelli, J. (2007). Parent as proxy reporting: Implications and recommendations for quality of life research. Journal of Family Nursing, 13(1), 83-98.
    • (2007) Journal of Family Nursing , vol.13 , Issue.1 , pp. 83-98
    • Sherifali, D.1    Pinelli, J.2
  • 9
    • 18844374145 scopus 로고    scopus 로고
    • Proxy evaluation of health-related quality of life: A conceptual framework for understanding multiple proxy perspectives
    • 15838415 10.1097/01.mlr.0000160419.27642.a8
    • Pickard, A. S.; & Knight, S. J. (2005). Proxy evaluation of health-related quality of life: A conceptual framework for understanding multiple proxy perspectives. Medical Care, 43(5), 493-499.
    • (2005) Medical Care , vol.43 , Issue.5 , pp. 493-499
    • Pickard, A.S.1    Knight, S.J.2
  • 10
    • 70449504869 scopus 로고    scopus 로고
    • Measuring adolescents' HRQoL via self reports and parent proxy reports: An evaluation of the psychometric properties of both versions of the KINDL-R instrument
    • 19709410 10.1186/1477-7525-7-77
    • Erhart, M.; Ellert, U.; Kurth, B. M.; & Ravens-Sieberer, U. (2009). Measuring adolescents' HRQoL via self reports and parent proxy reports: An evaluation of the psychometric properties of both versions of the KINDL-R instrument. Health and Quality of Life Outcomes, 7, 77.
    • (2009) Health and Quality of Life Outcomes , vol.7 , pp. 77
    • Erhart, M.1    Ellert, U.2    Kurth, B.M.3    Ravens-Sieberer, U.4
  • 11
    • 0035432179 scopus 로고    scopus 로고
    • PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations
    • 11468499 10.1097/00005650-200108000-00006 1:STN:280: DC%2BD3MvitVGgtw%3D%3D
    • Varni, J. W.; Seid, M.; & Kurtin, P. S. (2001). PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Medical Care, 39(8), 800-812.
    • (2001) Medical Care , vol.39 , Issue.8 , pp. 800-812
    • Varni, J.W.1    Seid, M.2    Kurtin, P.S.3
  • 14
    • 38649093641 scopus 로고    scopus 로고
    • Adaptive style and differences in parent and child report of health-related quality of life in children with cancer
    • 17410520 10.1002/pon.1195
    • Jurbergs, N.; Russell, K. M. W.; Long, A.; & Phipps, S. (2008). Adaptive style and differences in parent and child report of health-related quality of life in children with cancer. Psychooncology, 17(1), 83-90.
    • (2008) Psychooncology , vol.17 , Issue.1 , pp. 83-90
    • Jurbergs, N.1    Russell, K.M.W.2    Long, A.3    Phipps, S.4
  • 15
    • 54949087062 scopus 로고    scopus 로고
    • The relationship between proxy reported health-related quality of life and parental distress: Gender differences
    • 1:STN:280:DC%2BD1cnptlGiuw%3D%3D
    • Davis, E.; Davies, B.; Waters, E.; & Priest, N. (2008). The relationship between proxy reported health-related quality of life and parental distress: Gender differences. Child: Care, Health and Development, 34(6), 830-837.
    • (2008) Child: Care, Health and Development , vol.34 , Issue.6 , pp. 830-837
    • Davis, E.1    Davies, B.2    Waters, E.3    Priest, N.4
  • 16
    • 0036884071 scopus 로고    scopus 로고
    • Proxy reporting of quality of life using the EQ-5D
    • 12458301 10.1097/00005650-200212000-00006
    • Tamim, H.; McCusker, J.; & Dendukuri, N. (2002). Proxy reporting of quality of life using the EQ-5D. Medical Care, 40, 1186-1195.
    • (2002) Medical Care , vol.40 , pp. 1186-1195
    • Tamim, H.1    McCusker, J.2    Dendukuri, N.3
  • 18
    • 30744453240 scopus 로고    scopus 로고
    • Functional outcome after low-grade astrocytoma treatment in childhood
    • 16353203 10.1002/cncr.21612
    • Aarsen, F. K.; Paquier, P. F.; Reddingius, R. E.; Streng, I. C.; Arts, W. F. M.; Evera-Preesman, M.; et al. (2006). Functional outcome after low-grade astrocytoma treatment in childhood. Cancer, 106(2), 396-402.
    • (2006) Cancer , vol.106 , Issue.2 , pp. 396-402
    • Aarsen, F.K.1    Paquier, P.F.2    Reddingius, R.E.3    Streng, I.C.4    Arts, W.F.M.5    Evera-Preesman, M.6
  • 19
    • 44349164073 scopus 로고    scopus 로고
    • Health related quality of life in the first year after diagnosis in children with brain tumours compared with matched healthy controls; A prospective longitudinal study
    • 17997300 10.1016/j.ejca.2007.09.015
    • Penn, A.; Lowis, S. P.; Hunt, L. P.; Shortman, R. I.; Stevens, M. C. G.; McCarter, R. L.; et al. (2008). Health related quality of life in the first year after diagnosis in children with brain tumours compared with matched healthy controls; a prospective longitudinal study. European Journal of Cancer, 44(9), 1243-1252.
    • (2008) European Journal of Cancer , vol.44 , Issue.9 , pp. 1243-1252
    • Penn, A.1    Lowis, S.P.2    Hunt, L.P.3    Shortman, R.I.4    Stevens, M.C.G.5    McCarter, R.L.6
  • 20
    • 7044247627 scopus 로고    scopus 로고
    • Parent proxy-reported health-related quality of life and fatigue in pediatric patients diagnosed with brain tumors and acute lymphoblastic leukemia
    • 15389475 10.1002/cncr.20609
    • Meeske, K. Katz.; Katz, E. R.; Palmer, S. N.; Burwinkle, T.; & Varni, J. W. (2004). Parent proxy-reported health-related quality of life and fatigue in pediatric patients diagnosed with brain tumors and acute lymphoblastic leukemia. Cancer, 101, 2116-2125.
    • (2004) Cancer , vol.101 , pp. 2116-2125
    • Meeske, K.K.1    Katz, E.R.2    Palmer, S.N.3    Burwinkle, T.4    Varni, J.W.5
  • 22
    • 48949119152 scopus 로고    scopus 로고
    • Outcome in children with brain tumours diagnosed in the first year of life: Long-term complications and quality of life
    • 17634182 10.1136/adc.2007.116202 1:STN:280:DC%2BD1czpslKiug%3D%3D
    • Gerber, N. U.; Zehnder, D.; Zuzak, T. J.; Poretti, A.; Boltshauser, E.; & Grotzer, M. A. (2008). Outcome in children with brain tumours diagnosed in the first year of life: Long-term complications and quality of life. Archives of Disease in Childhood, 93, 582-589.
    • (2008) Archives of Disease in Childhood , vol.93 , pp. 582-589
    • Gerber, N.U.1    Zehnder, D.2    Zuzak, T.J.3    Poretti, A.4    Boltshauser, E.5    Grotzer, M.A.6
  • 24
    • 77950688914 scopus 로고    scopus 로고
    • Development of the Japanese version of the Pediatric Quality of Life Inventory Brain Tumor Module
    • 20398254 10.1186/1477-7525-8-38
    • Sato, I.; Higuchi, A.; Yanagisawa, T.; Mukasa, A.; Ida, K.; Sawamura, Y.; et al. (2010). Development of the Japanese version of the Pediatric Quality of Life Inventory Brain Tumor Module. Health and Quality of Life Outcomes, 8(1), 38.
    • (2010) Health and Quality of Life Outcomes , vol.8 , Issue.1 , pp. 38
    • Sato, I.1    Higuchi, A.2    Yanagisawa, T.3    Mukasa, A.4    Ida, K.5    Sawamura, Y.6
  • 25
    • 33845945922 scopus 로고
    • Coefficient alpha and the internal structure of tests
    • 10.1007/BF02310555
    • Cronbach, L. J. (1951). Coefficient alpha and the internal structure of tests. Psychometrika, 16(3), 297-334.
    • (1951) Psychometrika , vol.16 , Issue.3 , pp. 297-334
    • Cronbach, L.J.1
  • 27
    • 85004678206 scopus 로고
    • A study on standardization of Japanese version of the STAIC [Japanese]
    • 10.4992/jjpsy.54.215
    • Soga, S. (1983). A study on standardization of Japanese version of the STAIC [Japanese]. The Japanese Journal of Psychology, 54(4), 215-221.
    • (1983) The Japanese Journal of Psychology , vol.54 , Issue.4 , pp. 215-221
    • Soga, S.1
  • 30
    • 0037321461 scopus 로고    scopus 로고
    • The performance of the K6 and K10 screening scales for psychological distress in the Australian National Survey of Mental Health and Well-Being
    • 12622315 10.1017/S0033291702006700 1:STN:280:DC%2BD3s7gvFeqsA%3D%3D
    • Furukawa, T. A.; Kessler, R. C.; Slade, T.; & Andrews, G. (2003). The performance of the K6 and K10 screening scales for psychological distress in the Australian National Survey of Mental Health and Well-Being. Psychological Medicine, 33(2), 357-362.
    • (2003) Psychological Medicine , vol.33 , Issue.2 , pp. 357-362
    • Furukawa, T.A.1    Kessler, R.C.2    Slade, T.3    Andrews, G.4
  • 31
    • 33751224822 scopus 로고
    • Convergent and discriminant validation by the multitrait-multimethod matrix
    • 13634291 10.1037/h0046016 1:STN:280:DyaG1M%2FmtlyqsA%3D%3D
    • Campbell, D. T.; & Fiske, D. W. (1959). Convergent and discriminant validation by the multitrait-multimethod matrix. Psychological Bulletin, 56(2), 81-105.
    • (1959) Psychological Bulletin , vol.56 , Issue.2 , pp. 81-105
    • Campbell, D.T.1    Fiske, D.W.2
  • 32
    • 0031859245 scopus 로고    scopus 로고
    • The proxy problem: Child report versus parent report in health-related quality of life research
    • 9691719 10.1023/A:1008801802877 1:STN:280:DyaK1czls1Onug%3D%3D
    • Theunissen, N. C.; Vogels, T. G.; Koopman, H. M.; Verrips, G. H.; Zwinderman, K. A.; Verloove-Vanhorick, S. P.; et al. (1998). The proxy problem: Child report versus parent report in health-related quality of life research. Quality of Life Research, 7(5), 387-397.
    • (1998) Quality of Life Research , vol.7 , Issue.5 , pp. 387-397
    • Theunissen, N.C.1    Vogels, T.G.2    Koopman, H.M.3    Verrips, G.H.4    Zwinderman, K.A.5    Verloove-Vanhorick, S.P.6
  • 33
    • 0026229130 scopus 로고
    • Multitrait-multimethod analysis of health-related quality-of-life measures
    • 1921534 10.1097/00005650-199109000-00004 1:STN:280:DyaK38%2Fhs1KmtA%3D%3D
    • Hadorn, D. C. M. D.; & Hays, R. D. P. (1991). Multitrait-multimethod analysis of health-related quality-of-life measures. Medical Care, 29(9), 829-840.
    • (1991) Medical Care , vol.29 , Issue.9 , pp. 829-840
    • Hadorn, D.1    Hays, R.D.P.2
  • 34
    • 67650706330 scopus 로고    scopus 로고
    • Cutoff criteria for fit indices in covariance structure analysis: Conventional criteria versus new alternatives
    • 10.1080/10705519909540118
    • Hu, L.; & Bentler, P. M. (1999). Cutoff criteria for fit indices in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling: A Multidisciplinary Journal, 6, 1-55.
    • (1999) Structural Equation Modeling: A Multidisciplinary Journal , vol.6 , pp. 1-55
    • Hu, L.1    Bentler, P.M.2
  • 35
    • 0002324062 scopus 로고
    • Path analysis: Sociological examples
    • 10.1086/224256
    • Duncan, O. D. (1966). Path analysis: Sociological examples. American Journal of Sociology, 72, 1-16.
    • (1966) American Journal of Sociology , vol.72 , pp. 1-16
    • Duncan, O.D.1
  • 36
    • 0002037905 scopus 로고
    • Asymptotic confidence intervals for indirect effects in structural equation models
    • 10.2307/270723
    • Sobel, M. E. (1982). Asymptotic confidence intervals for indirect effects in structural equation models. Sociological Methodology, 13, 290-312.
    • (1982) Sociological Methodology , vol.13 , pp. 290-312
    • Sobel, M.E.1
  • 38
    • 42749098792 scopus 로고    scopus 로고
    • Guidance for industry: Patient-reported outcome measures: Use in medical product development to support labeling claims: Draft guidance
    • U.S. Department of Health and Human Services FDA Center for Drug Evaluation and Research U.S. Department of Health and Human Services FDA Center for Biologics Evaluation and Research U.S. Department of Health and Human Services FDA Center for Devices and Radiological Health 10.1186/1477-7525-4-79
    • U.S. Department of Health and Human Services FDA Center for Drug Evaluation and Research, U.S. Department of Health and Human Services FDA Center for Biologics Evaluation and Research, & U.S. Department of Health and Human Services FDA Center for Devices and Radiological Health. (2006). Guidance for industry: Patient-reported outcome measures: Use in medical product development to support labeling claims: Draft guidance. Health and Quality of Life Outcomes, 4, 79.
    • (2006) Health and Quality of Life Outcomes , vol.4 , pp. 79
  • 39
    • 0348161127 scopus 로고    scopus 로고
    • The PedsQL 4.0 as a pediatric population health measure: Feasibility, reliability, and validity
    • 14616041 10.1367/1539-4409(2003)003<0329:TPAAPP>2.0.CO;2
    • Varni, J. W.; Burwinkle, T. M.; Seid, M.; & Skarr, D. (2003). The PedsQL 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambulatory Pediatrics, 3, 329-341.
    • (2003) Ambulatory Pediatrics , vol.3 , pp. 329-341
    • Varni, J.W.1    Burwinkle, T.M.2    Seid, M.3    Skarr, D.4
  • 40
    • 37549045546 scopus 로고    scopus 로고
    • Development and psychometric evaluation of a Catalan self- and interviewer-administered version of the Pediatric Quality of Life Inventory version 4.0
    • 17569714 10.1093/jpepsy/jsm040
    • Huguet, A.; & Miro, J. (2008). Development and psychometric evaluation of a Catalan self- and interviewer-administered version of the Pediatric Quality of Life Inventory version 4.0. Journal of Pediatric Psychology, 33(1), 63-79.
    • (2008) Journal of Pediatric Psychology , vol.33 , Issue.1 , pp. 63-79
    • Huguet, A.1    Miro, J.2
  • 41
    • 0034329950 scopus 로고    scopus 로고
    • Measuring health-related quality of life in adolescents: Agreement between raters and between methods of administration
    • 10.1046/j.1365-2214.2000.00181.x 1:STN:280:DC%2BD3MzpsVynug%3D%3D
    • Verrips, G. H.; Vogels, A. G.; den Ouden, A. L.; Paneth, N.; & Verloove-Vanhorick, S. P. (2000). Measuring health-related quality of life in adolescents: Agreement between raters and between methods of administration. Child: Care, Health and Development, 26(6), 457-469.
    • (2000) Child: Care, Health and Development , vol.26 , Issue.6 , pp. 457-469
    • Verrips, G.H.1    Vogels, A.G.2    Den Ouden, A.L.3    Paneth, N.4    Verloove-Vanhorick, S.P.5
  • 43
    • 0035161833 scopus 로고    scopus 로고
    • Can parents rate their child's health-related quality of life? Results of a systematic review
    • 11763247 10.1023/A:1012253723272 1:STN:280:DC%2BD38%2FjsVymtQ%3D%3D
    • Eiser, C.; & Morse, R. (2001). Can parents rate their child's health-related quality of life? Results of a systematic review. Quality of Life Research, 10(4), 347-357.
    • (2001) Quality of Life Research , vol.10 , Issue.4 , pp. 347-357
    • Eiser, C.1    Morse, R.2
  • 44
    • 0034947039 scopus 로고    scopus 로고
    • Issues in measuring quality of life in childhood cancer: Measures, proxies, and parental mental health
    • 10.1111/1469-7610.00761 1:STN:280:DC%2BD38%2Fit1eksA%3D%3D
    • Vance, Y. H.; Morse, R. C.; Jenney, M. E.; & Eiser, C. (2001). Issues in measuring quality of life in childhood cancer: Measures, proxies, and parental mental health. Journal of Child Psychology and Psychiatry and Allied Disciplines, 42, 661-667.
    • (2001) Journal of Child Psychology and Psychiatry and Allied Disciplines , vol.42 , pp. 661-667
    • Vance, Y.H.1    Morse, R.C.2    Jenney, M.E.3    Eiser, C.4
  • 45
    • 34547145165 scopus 로고    scopus 로고
    • G Power 3: A flexible statistical power analysis program for the social, behavioral, and biomedical sciences
    • 17695343 10.3758/BF03193146
    • Faul, F.; Erdfelder, E.; Lang, A. G.; & Buchner, A. (2007). G Power 3: A flexible statistical power analysis program for the social, behavioral, and biomedical sciences. Behavior Research Methods, 39, 175-191.
    • (2007) Behavior Research Methods , vol.39 , pp. 175-191
    • Faul, F.1    Erdfelder, E.2    Lang, A.G.3    Buchner, A.4


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