Measuring adolescents' HRQoL via self reports and parent proxy reports: An evaluation of the psychometric properties of both versions of the KINDL-R instrument

Health and Quality of Life Outcomes

Volumn 7, Issue , 2009, Pages 77-

  Erhart, Michael ^a   Ellert, Ute ^b   Kurth, Bärbel Maria ^b   Ravens Sieberer, Ulrike ^a  

^a UNIVERSITY MEDICAL CENTER HAMBURG EPPENDORF   (Germany)

^b ROBERT KOCH INSTITUTE   (Germany)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADOLESCENT HEALTH; ADULT; ANALYTICAL ERROR; ARTICLE; CHILD; CONTROLLED STUDY; CRONBACH ALPHA COEFFICIENT; FACTORIAL ANALYSIS; FEMALE; HUMAN; INFANT; KINDL R QUESTIONNAIRE; MALE; OBESITY; PARENT; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; RELIABILITY; SCORING SYSTEM; SELF REPORT; SOCIAL STATUS; STATISTICAL MODEL; VALIDITY;

ADOLESCENT; ADULT; ANALYSIS OF VARIANCE; CHILD; CROSS-SECTIONAL STUDIES; FEMALE; GROUP PROCESSES; HEALTH STATUS INDICATORS; HUMANS; MALE; PARENTS; PROXY; PSYCHOMETRICS; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS; SELF ASSESSMENT (PSYCHOLOGY); SOCIAL CLASS;

EID: 70449504869     PISSN: None     EISSN: 14777525     Source Type: Journal    
DOI: 10.1186/1477-7525-7-77     Document Type: Article

References (38)

1. Hays RD, Vickrey BG, Hermann BP, Perrine K, Cramer J, Meador K. Agreement between self-reports and proxy reports of quality of life in epilepsy patients. Qual Life Res 1995, 4:159-168. 10.1007/BF01833609, 7780382.
2. Ravens-Sieberer U, Erhart M, Wille N, Wetzel R, Nickel J, Bullinger M. Generic health-related quality of life assessment in children and adolescents: methodological considerations. Pharmacoeconomics 2006, 24:1199-1220. 10.2165/00019053-200624120-00005, 17129075.
3. Eiser C, Morse R. A review of measures of quality of life for children with chronic illness. Arch Dis Child 2001, 84:205-211. 10.1136/adc.84.3.205, 1718699, 11207164.
4. White-Koning M, Arnaud C, Dickinson HO, Thyen U, Beckung E, Fauconnier J, McManus V, Michelsen SI, Parkes J, Parkinson K, Schirripa G, Colver A. Determinants of Child-Parent Agreement in Quality-of-Life Reports: A European Study of Children With Cerebral Palsy. Pediatrics 2007, 120:e804-e814. 10.1542/peds.2006-3272, 17908738.
5. Robitail S, Simeoni MC, Ravens-Sieberer U, Bruil J, Auquier P. Children proxies' quality-of-life agreement depended on the country using the European KIDSCREEN-52 questionnaire. J Clin Epidem 2007, 60:e1-469.
6. Eiser C, Morse R. Quality-of-life measures in chronic diseases of childhood. Health Technol Assess 2001, 5:55-63.
7. Jokovic A, Locker D, Guyatt G. How well do parents know their children? Implications for proxy reporting of child health related quality of life. Qual Life Res 2004, 13:1297-1307. 10.1023/B:QURE.0000037480.65972.eb, 15473508.
8. De Civita M, Regier D, Alamgir AH, Anis AH, Fitzgerald MJ, Marra CA. Evaluating health-related quality-of-life studies in paediatric populations: some conceptual, methodological and developmental considerations and recent applications. Pharmacoeconomics 2005, 23:659-685. 10.2165/00019053-200523070-00003, 15987225.
9. White-Koning M, Arnaud C, Bourdet-Loubère S, Bazex H, Colver A. Subjective quality of life in children with intellectual impairment - how can it be assessed?. Developmental Medicine & Child Neurology 2005, 47:281-285.
10. Epstein AM, Hall JA, Tognetti J, Son LH, Conant L. Using proxies to evaluate quality of life: can they provide valid information about patients' health status and satisfaction with medical care?. Med Care 1989, 27(Suppl 3):S91-S98. 10.1097/00005650-198903001-00008, 2921889.
11. Lawford J, Volavka N, Eiser C. A generic measure of quality of life for children aged 3-8 years: results of two preliminary studies. Pediatr Rehabil 2001, 4:197-207. 10.1080/13638490210124033, 12160360.
12. Solans M, Pane S, Estrada M-D, Serra-Sutton V, Berra S, Herdman M, Alonso J, Rajmil L. Health-related quality of life measurement in children and adolescents: A systematic review of generic and disease specific instruments. Value in Health 2008, 11:742-764. 10.1111/j.1524-4733.2007.00293.x, 18179668.
13. Le Coq EM, Boeke AJP, Bezemer PD, Colland VT, van Eijk JTM. Which source should we use to measure quality of life in children with asthma: The children themselves or their parents?. Qual Life Res 2000, 9:625-636. 10.1023/A:1008977200176, 11236853.
14. Steele MM. Reliability and validity of the Oral Health Scale of the PedsQL: Measuring the relationship between child oral health and health-related quality of life. Dissertation Abstracts International: Section B: the Science and Engineering 2008, 69(1B):701.
15. Hainsworth KR, Davies WH, Khan KA, Weisman SJ. Development and preliminary validation of the Child Activity Limitations Questionnaire: Flexible and efficient assessment of pain-related functional disability. Journal of Pain 2007, 8:746-752. 10.1016/j.jpain.2007.05.005, 17631055.
16. Laaksonen C, Aromaa M, Heinonen OJ, Suominen S, Salantera S. Paediatric health-related quality of life instrument for primary school children: Cross-cultural validation. Journal of Advanced Nursing 2007, 59:542-550. 10.1111/j.1365-2648.2007.04347.x, 17681083.
17. Upton P, Maddocks A, Eiser C, Earnest PM, Williams J. Development of a measure of the health-related quality of life of children in public care. Child: Care, Health and Development 2005, 31:409-415. 10.1111/j.1365-2214.2005.00520.x, 15948877.
18. Ravens-Sieberer U, . the European KIDSCREEN Group The KIDSCREEN Questionnaires - Quality of life questionnaires for children and adolescents - handbook 2006, Lengerich: Papst Science Publisher.
19. Verrips EGH, Vogels TGC, Koopman HM, Theunissen NCM, Kamphuis RP, Fekkes M, Wit JM, Verloove-Vanhorick SP. Measuring health-related quality of life in a child population. European Journal of Public Health 1999, 9:188-193.
20. Varni JW, Burwinkle TM, Seid M. The PedsQLTM 4.0 as a school population health measure: Feasibility, reliability, and validity. Qual Life Res 2006, 15:203-215. 10.1007/s11136-005-1388-z, 16468077.
21. Bastiaansen D, Koot HM, Bongers IL, Varni JW, Verhulst FC. Measuring quality of life in children referred for psychiatric problems: Psychometric properties of the PedsQL-super(TM) 4.0 generic core scales. Qual Life Research 2004, 13:489-495.
22. Varni JW, Burwinkle TM, Rapoff MA, Kamps JL, Olson N. The PedsQL-super(TM) in pediatric asthma: Reliability and validity of the Pediatric Quality of Life Inventory-super(TM) generic core scales and asthma module. J Beh Medicine 2004, 27:297-318.
23. Ravens-Sieberer U. Der Kindl-R Fragebogen zur Erfassung der gesundheitsbezogenen Lebensqualität bei Kindern und Jugendlichen - Revidierte Form. Diagnostische Verfahren zu Lebensqualität und Wohlbefinden 2003, 184-188. Göttingen: Hogrefe Verlag, Schumacher J, Klaiberg A, Brähler E.
24. Kurth B-M, Kamtsiuris P, Hoelling H, Schlaud M, Doelle R, Ellert U, Kahl H, Knopf H, Lange M, Mensinck GBM, Neuhauser H, Schaffrath Rosario A, Scheidt-Nave C, Schenk L, Schlack R, Stolzenberg H, Thamm M, Thierfelder W, Wolf U. The challenge of comprehensively mapping children's health in a nation-wide health survey: Design of the German KiGGS-Study. BMC Public Health 2008, 8:196. 2442072, 18533019, 10.1186/1471-2458-8-196.
25. Goodman R. The Strengths and Difficulties Questionnaire: A research note. Journal of Child Psychology, Psychiatry, and Allied Disciplines 1997, 38:581-586.
26. Cole TJ, Bellizzi MC, Flegal KM, Dietz WH. Establishing a standard definition for child overweight and obesity worldwide: international survey. British Medical Journal 2000, 320:1240-1243. 27365, 10797032, 10.1136/bmj.320.7244.1240.
27. Winkler J, Stolzenberg H. Der Sozialschichtindex im Bundesgesundheitssurvey. Gesundheitswesen 1999, 61:S178-S183.
28. Bethell C, Read D, Stein RE, Blumberg SJ, Wells N, Newacheck PW. Identifying children with spezial health care needs: developement and evaluation of a short screening instrument. Ambulatory Pediatrics 2002, 2:38-48. 10.1367/1539-4409(2002)002<0038:ICWSHC>2.0.CO;2, 11888437.
29. Nunnally JC, Bernstein IR. Psychometric Theory 1994, New York, NY: McCraw-Hill, 3.
30. Feldt LS. A test of the hypothesis that Cronbach's alpha reliability coefficient is the same for two tests administered to the same sample. Psychometrika 1980, 45:99-105.
31. Jöreskog KG, Sörbom D. LISREL 8: Users's Reference Guide 2001, Lincolnwood: Scientific Software International, Inc.
32. McDonald RP, Ho MHR. Principals and Practice in Reporting Structural Equation Analyses. Psychological Methods 2002, 7:64-82. 10.1037/1082-989X.7.1.64, 11928891.
33. Jöreskog KG, Sörbom D. PRELIS 2: Users's Reference Guide 2002, Lincolnwood: Scientific Software International, Inc.
34. Hu L, Bentler PM. Cutoff Criteria for Fit Indexes in Covariance Structure Analysis. Conventional Criteria Versus New Alternatives. Structural Equation Modeling 1999, 6:1-55.
35. Cohen J. Statistical Power Analysis for the Behavioural Sciences 1988, New York, Erlbaum.
36. Schenk L, Ellert U, Neuhauser H. Children and adolescents in Germany with a migration background. Methodological aspects in the German Health Interview and Examination Survey for Children and Adolescents (KiGGS). Bundesgessundheitsbl - Gesundheitsforsch - Gesundheitsschutz 2007, 50:590-599.
37. Ungar WJ, Mirabelli C, Cousins M, Boydell KM. A qualitative analysis of a dyad approach to health-related quality of life measurement in children with asthma. Soc Sci Med 2006, 63:2354-2366. 10.1016/j.socscimed.2006.06.016, 16887248.
38. Campbell DT, Fiske DW. Convergent and discriminant validation by the multitrait-Multimethod Matrix. Psychological Bulletin 1959, 103:276-279.