Development of the Japanese version of the Pediatric Quality of Life Inventory™ Brain Tumor Module

Health and Quality of Life Outcomes

Volumn 8, Issue , 2010, Pages

  Sato, Iori ^a   Higuchi, Akiko ^b   Yanagisawa, Takaaki ^c   Mukasa, Akitake ^a   Ida, Kohmei ^a   Sawamura, Yutaka ^d   Sugiyama, Kazuhiko ^e   Saito, Nobuhito ^a   Kumabe, Toshihiro ^f   Terasaki, Mizuhiko ^g   Nishikawa, Ryo ^c   Ishida, Yasushi ^h   Kamibeppu, Kiyoko ^a  

^a UNIVERSITY OF TOKYO   (Japan)

^b Children's Cancer Association of Japan   (Japan)

^c SAITAMA MEDICAL UNIVERSITY   (Japan)

^d HOKKAIDO UNIVERSITY HOSPITAL   (Japan)

^e HIROSHIMA UNIVERSITY   (Japan)

^f TOHOKU UNIVERSITY GRADUATE SCHOOL OF MEDICINE   (Japan)

^g KURUME UNIVERSITY SCHOOL OF MEDICINE   (Japan)

^h ST LUKE'S INTERNATIONAL HOSPITAL   (Japan)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CHRONIC PAIN; CLINICAL TRIAL; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; ENDURANCE TRAINING; FEMALE; FOLLOW UP; HUMAN; ISOMETRIC EXERCISE; MAJOR CLINICAL STUDY; MOTIVATION; MUSCLE TRAINING; NECK PAIN; OFFICE WORKER; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL; RESISTANCE TRAINING; STRETCHING EXERCISE; ADOLESCENT; BRAIN TUMOR; CHILD; JAPAN; PARENT; PRESCHOOL CHILD; QUESTIONNAIRE; REPRODUCIBILITY; VALIDATION STUDY;

ADOLESCENT; BRAIN NEOPLASMS; CHILD; CHILD, PRESCHOOL; HUMANS; JAPAN; PARENTS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS;

EID: 77950688914     PISSN: None     EISSN: 14777525     Source Type: Journal    
DOI: 10.1186/1477-7525-8-38     Document Type: Article

References (36)

1. Jemal A, Siegel R, Ward E, Murray T, Xu J, Thun MJ. Cancer statistics, 2007. CA Cancer J Clin 2007, 57:43-66. 10.3322/canjclin.57.1.43, 17237035.
2. Collins JJ, Byrnes ME, Dunkel IJ, Lapin J, Nadel T, Thaler HT, Polyak T, Rapkin B, Portenoy RK. The measurement of symptoms in children with cancer. J Pain Symptom Manage 2000, 19:363-377. 10.1016/S0885-3924(00)00127-5, 10869877.
3. Ribi K, Relly C, Landolt MA, Alber FD, Boltshauser E, Grotzer MA. Outcome of medulloblastoma in children: long-term complications and quality of life. Neuropediatrics 2005, 36:357-365. 10.1055/s-2005-872880, 16429375.
4. Poretti A, Grotzer MA, Ribi K, Schonle E, Boltshauser E. Outcome of craniopharyngioma in children: long-term complications and quality of life. Dev Med Child Neurol 2004, 46:220-229. 10.1017/S0012162204000374, 15077699.
5. Sønderkær S, Schmiegelow M, Carstensen H, Nielsen LB, Muller J, Schmiegelow K. Long-term neurological outcome of childhood brain tumors treated by surgery only. J Clin Oncol 2003, 21:1347-1351. 10.1200/JCO.2003.08.009, 12663725.
6. Fuemmeler BF, Elkin TD, Mullins LL. Survivors of childhood brain tumors: Behavioral, emotional, and social adjustment. Clin Psychol Rev 2002, 22:547-585. 10.1016/S0272-7358(01)00120-9, 12094511.
7. Schwartz CL, Hobbie WL, Constine LS, Ruccione KS, . (Eds) Survivors of Childhood and Adolescent Cancer: A Multidisciplinary Approach 2005, Berlin Heidelberg: Springer-Verlag, (Eds).
8. Sugiyama K, Yamasaki F, Kurisu K, Kenjo M. Quality of life of extremely long-time germinoma survivors mainly treated with radiotherapy. Prog Neurol Surg 2009, 23:130-139. full_text, 19329867.
9. Cardarelli C, Cereda C, Masiero L, Viscardi E, Faggin R, Laverda A, Bisogno G, Perilongo G. Evaluation of health status and health-related quality of life in a cohort of Italian children following treatment for a primary brain tumor. Pediatr Blood Cancer 2006, 46:637-644. 10.1002/pbc.20480, 16421901.
10. Meeske K, Katz ER, Palmer SN, Burwinkle T, Varni JW. Parent proxy-reported health-related quality of life and fatigue in pediatric patients diagnosed with brain tumors and acute lymphoblastic leukemia. Cancer 2004, 101:2116-2125. 10.1002/cncr.20609, 15389475.
11. Bull KS, Spoudeas HA, Yadegarfar G, Kennedy CR. Reduction of health status 7 years after addition of chemotherapy to craniospinal irradiation for medulloblastoma: a follow-up study in PNET 3 trial survivors - on behalf of the CCLG (formerly UKCCSG). J Clin Oncol 2007, 25:4239-4245. 10.1200/JCO.2006.08.7684, 17878477.
12. Testa MA, Simonson DC. Assessment of quality-of-life outcomes. N Engl J Med 1996, 334:835-840. 10.1056/NEJM199603283341306, 8596551.
13. Weitzner MA, Meyers CA, Gelke CK, Byrne KS, Cella DF, Levin VA. The functional assessment of cancer therapy (FACT) scale. Development of a brain subscale and revalidation of the general version (FACT-G) in patients with primary brain tumors. Cancer 1995, 75:1151-1161. 10.1002/1097-0142(19950301)75:5<1151::AID-CNCR2820750515>3.0.CO;2-Q, 7850714.
14. Osoba D, Aaronson NK, Muller M, Sneeuw K, Hsu MA, Yung WK, Brada M, Newlands E. The development and psychometric validation of a brain cancer quality-of-life questionnaire for use in combination with general cancer-specific questionnaires. Qual Life Res 1996, 5:139-150. 10.1007/BF00435979, 8901377.
15. Varni JW, Seid M, Kurtin PS. PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ version 4.0 generic core scales in healthy and patient populations. Med Care 2001, 39:800-812. 10.1097/00005650-200108000-00006, 11468499.
16. Palmer SN, Meeske KA, Katz ER, Burwinkle TM, Varni JW. The PedsQL™ brain tumor module: initial reliability and validity. Pediatr Blood Cancer 2007, 49:287-293. 10.1002/pbc.21026, 16991131.
17. Aaronson NK, Bullinger M, Ahmedzai S. A modular approach to quality-of-life assessment in cancer clinical trials. Recent Results Cancer Res 1988, 111:231-249.
18. Varni JW, Burwinkle TM, Sherman SA, Hanna K, Berrin SJ, Malcarne VL, Chambers HG. Health-related quality of life of children and adolescents with cerebral palsy: Hearing the voices of the children. Dev Med Child Neurol 2005, 47:592-597. 10.1017/S0012162205001179, 16138665.
19. Walker DA, Perilongo G, Punt JAG, Taylor RE, . (Eds) Brain and Spinal Tumors of Childhood 2004, New York: Oxford University Press Inc, (Eds).
20. Acquadro C, Conway K, Giroudet C, Mear I. Linguistic Validation Manual for Patient-Reported Outcomes (PRO) Instruments 2004, Lyon: Mapi Research Institute.
21. Harris-Kojetin LD, Fowler FJJ, Brown JA, Schnaier JA, Sweeny SF. The use of cognitive testing to develop and evaluate CAHPSTM 1.0 core survey items. Med Care 1999, 37(suppl 3):MS10-21. 10.1097/00005650-199903001-00002, 10098555.
22. Cronbach LJ. Coefficient alpha and the internal structure of tests. Psychometrika 1951, 16:297-334.
23. Kobayashi K, Kamibeppu K. Measuring quality of life in Japanese children: Development of Japanese version of PedsQL™. Pediatr Int 2010, 52:80-88. 10.1111/j.1442-200X.2009.02889.x, 19496977.
24. Spielberger CD, Edward CD, Lushene RE, Montouri J, Platzek D. STAIC preliminary manual for the State-Trait Anxiety Inventory for Children ("How I feel questionnaire") 1973, California: Consulting Psychological Press Inc.
25. Soga S. A study on standardization of Japanese version of the STAIC [Japanese]. The Japanese Journal of Psychology 1983, 54:215-221.
26. Bartko JJ. The intraclass correlation coefficient as a measure of reliability. Psychol Rep 1966, 19:3-11.
27. Calmines EG, Zeller RA. Reliability and validity assessment 1979, London: SAGE Publications Inc.
28. Walter SD, Eliasziw M, Donner A. Sample size and optimal designs for reliability studies. Stat Med 1998, 17:101-110. 10.1002/(SICI)1097-0258(19980115)17:1<101::AID-SIM727>3.0.CO;2-E, 9463853.
29. Lai JS, Cella D, Tomita T, Bode RK, Newmark M, Goldman S. Developing a health-related quality of life instrument for childhood brain tumor survivors. Childs Nerv Syst 2007, 23:47-57. 10.1007/s00381-006-0176-6, 16960733.
30. Yeh CH, Chang CW, Chang PC. Evaluating quality of life in children with cancer using children's self-reports and parent-proxy reports. Nurs Res 2005, 54:354-62. 10.1097/00006199-200509000-00010, 16224322.
31. Eiser C, Vance YH, Horne B, Glaser A, Galvin H. The value of the PedsQLTM in assessing quality of life in survivors of childhood cancer. Child Care Health Dev 2003, 29:95-102. 10.1046/j.1365-2214.2003.00318.x, 12603354.
32. Eiser C, Morse R. Quality-of-life measures in chronic diseases of childhood. Health Technol Assess 2001, 5(4).
33. Southam-Gerow MA, Flannery-Schroeder EC, Kendall PC. A psychometric evaluation of the parent report form of the State-Trait Anxiety Inventory for Children--Trait version. J Anxiety Disord 2003, 17:427-446. 10.1016/S0887-6185(02)00223-2, 12826090.
34. Tamim H, McCusker J, Dendukuri N. Proxy reporting of quality of life using the EQ-5D. Med Care 2002, 40:1186-1195. 10.1097/00005650-200212000-00006, 12458301.
35. Cohen LL, Lemanek K, Blount RL, Dahlquist LM, Lim CS, Palermo TM, McKenna KD, Weiss KE. Evidence-based assessment of pediatric pain. J Pediatr Psychol 2008, 33:939-955. 10.1093/jpepsy/jsm103, 2639489, 18024983.
36. Reimers TS, Ehrenfels S, Mortensen EL, Schmiegelow M, Sønderkær S, Carstensen H, Schmiegelow K, Müller J. Cognitive deficits in long-term survivors of childhood brain tumors: Identification of predictive factors. Med Pediatr Oncol 2003, 40:26-34. 10.1002/mpo.10211, 12426683.