Researching children's health experiences: The place for participatory, child-centered, arts-based approaches

Research in Nursing and Health

Volumn 36, Issue 1, 2013, Pages 95-107

  Carter, Bernie ^a   Ford, Karen ^b  

^a UNIVERSITY OF CENTRAL LANCASHIRE   (United Kingdom)

^b UNIVERSITY OF TASMANIA   (Australia)

Author keywords

Arts based methods; Children; Health care; Participatory research; Qualitative research

Indexed keywords

ART; ARTICLE; ASSOCIATION; ATTITUDE TO HEALTH; CHILD; HUMAN; HUMAN RELATION; INFORMATION PROCESSING; METHODOLOGY; NURSING RESEARCH; PARTICIPATORY RESEARCH; PHOTOGRAPHY; QUALITATIVE RESEARCH;

ART; ATTITUDE TO HEALTH; CHILD; COMMUNITY-BASED PARTICIPATORY RESEARCH; CUES; DATA COLLECTION; HUMANS; NURSING RESEARCH; PHOTOGRAPHY; QUALITATIVE RESEARCH; RESEARCHER-SUBJECT RELATIONS;

EID: 84872384709     PISSN: 01606891     EISSN: 1098240X     Source Type: Journal    
DOI: 10.1002/nur.21517     Document Type: Article

References (58)

1. Alderson, P. (1993). Children's consent to surgery. Buckingham: Open University Press.
2. Backett-Milburn, K., & Mckie, L. (1999). A critical appraisal of the draw and write technique. Health Education Research, 14, 387-398.
3. Bagnoli, A. (2009). Beyond the standard interview: The use of graphic elicitation and arts-based methods. Qualitative Research, 9, 547-570.
4. Barker, J., & Weller, S. (2003). "Is it fun?" Developing children centred research methods. International Journal of Sociology and Social Policy, 23, 33-58.
5. Barthes, R. (2009). Camera lucida. Reflections on photography. (Translated by Richard Howard). London: Vintage Classics.
6. Carnevale, F. A., Macdonald, M. E., Bluebond-Langner, M., & McKeever, P. (2008). Using participant observation in pediatric health care settings: Ethical challenges and solutions. Journal of Child Health Care, 12, 18-32.
7. Carter, B. (2005). "They've got to be as good as mum and dad": Children with complex health care needs and their siblings' perceptions of a Diana community nursing service. Clinical Effectiveness in Nursing, 9, 49-61.
8. Carter, B. (2011). Ethical aspects of paediatric nursing research. In G. Brykczynska & J. Simons (Eds.), Ethical and philosophical aspects of nursing children (pp. 201-209). Oxford: Wiley-Blackwell.
9. Carter, B., Marshall, M., & Sanders, C. (2009). An exquisite knowing of children. In R. C. Locsin & M. Purnell (Eds.), Contemporary process of nursing: The (un)bearable weight of knowing persons in nursing (pp. 281-303). New York: Springer Publishing.
10. Christensen, P., & James, A. (2008). Childhood diversity and commonality. In P. Christensen & A. James (Eds.), Research with children: Perspectives and practices (2nd ed., pp. 156-172). New York: Routledge.
11. Clark, A. (2010). Young children as protagonists and the role of participatory, visual methods in engaging multiple perspectives. American Journal of Community Psychology, 46, 115-123.
12. Clarke-Stewart, K. A., & Beck, R. J. (1999). Maternal scaffolding and children's narrative retelling of a movie story. Early Childhood Research Quarterly, 14, 409-434.
13. Colucci, E. (2007). "Focus groups can be fun": The use of activity-oriented questions in focus group discussions. Qualitative Health Research, 17, 1422-1433.
14. Curtis-Tyler, K. (2011). Levers and barriers to patient-centred care with children: Findings from a synthesis of studies of the experiences of children living with type 1 diabetes or asthma. Child: Care, Health & Development, 37, 540-550.
15. Darbyshire, P., MacDougall, C., & Schiller, W. (2005). Multiple methods in qualitative research with children: More insight or just more? Qualitative Research, 5, 417-436.
16. Day, C., Carey, M., & Surgenor, T. (2006). Children's key concerns: Piloting a qualitative approach to understanding their experience of mental health care. Clinical Child Psychology and Psychiatry, 11, 139-155.
17. Dennis, J., Gaulocher, S., Carpiano, R. M., & Brown, D. (2009). Participatory photo mapping (PPM): Exploring an integrated method for health and place research with young people. Health and Place, 15, 466-473.
18. Docherty, S. L., Sandelowski, M., & Preisser, J. S. (2006). Three months in the symptom life of a teenage girl undergoing treatment for cancer. Research in Nursing & Health, 29, 294-310.
19. Driessnack, M. (2005). Children's drawings as facilitators of communication: A meta-analysis. Journal of Pediatric Nursing, 20, 415-423.
20. Driessnack, M., & Furukawa, R. (2012). Arts-based data collection techniques used in child research. Journal for Specialists in Pediatric Nursing, 17, 3-9.
21. Fargas-Malet, M., McSherry, D., Larkin, E., & Robinson, C. (2010). Research with children: Methodological issues and innovative techniques. Journal of Early Childhood Research, 8, 175-192.
22. Ford, K. (2011). 'I didn't really like it, but it sounded exciting': Admission to hospital for surgery from the perspectives of children. Journal of Child Health Care, 15, 250-260.
23. Ford, K., Sankey, J., & Crisp, J. (2007). Development of children's assent documents using a child-centred approach. Journal of Child Health Care, 11, 19-28.
24. France, A., Bendelow, G., & Williams, S. (2000). A 'risky' business: Researching the health beliefs of children and young people. In A. Lewis & G. Lindsay (Eds.), Researching children's perspectives (pp. 150-162). Buckingham: Open University Press.
25. Gibson, F. (2007). Conducting focus groups with children and young people: Strategies for success. Journal of Research in Nursing, 12, 473-483.
26. Gibson, J. E. (2012). Interviews and focus groups with children: Methods that match children's developing competencies. Journal of Family Theory & Review, 4, 148-159.
27. Guell, C. (2007). Painful childhood: Children living with juvenile arthritis. Qualitative Health Research, 17, 884-892.
28. Gwyther, G., & Possamai-Inesedy, A. (2009). Methodologies à la carte: An examination of emerging qualitative methodologies in social research. International Journal of Social Research Methodology, 12, 99-115.
29. Hanney, L., & Kozlowska, K. (2002). Healing traumatized children: Creating illustrated storybooks in family therapy. Family Process, 41, 37-65.
30. Harper, D. (2002). Talking about pictures: A case for photo elicitation. Visual Studies, 17, 13-26.
31. Hendrick, H. (2008). The child as a social actor in historical sources: Problems in identification and interpretation. In P. Christensen & A. James (Eds.), Research with children: Perspectives and practices (2nd ed., pp. 40-65). New York: Routledge.
32. Irwin, L. G., & Johnson, J. (2005). Interviewing young children: Explicating our practices and dilemmas. Qualitative Health Research, 15, 821-831.
33. Kalvaitis, D., & Monhardt, R. M. (2011). The architecture of children's relationships with nature: A phenomenographic investigation seen through drawings and written narratives of elementary students. Environmental Education Research, 18, 209-227.
34. Kellett, M. (2011). Researching with and for children and young people. Centre for Children and Young People: Background Briefing Series, Report No. 5. Southern Cross University, epubs@scu.edu.au.
35. Laenen, F. V. (2009). I don't trust you, you are going to tell, adolescents with emotional and behavioural disorders participating in qualitative research. Child: Care, Health and Development, 35, 323-329.
36. Mand, K. (2012). Giving children a 'voice': Arts-based participatory research activities and representation. International Journal of Social Research Methodology, 15, 149-160.
37. Matthews, H., & Limb, M. (1999). Defining an agenda for the geography of children: Review and prospect. Progress in Human Geography, 23, 61-90.
38. Mayall, B. (2006). Values and assumptions underpinning policy for children and young people in England. Children's Geographies, 4, 9-17.
39. Moffatt, C. J., & Murray, S. G. (2010). The experience of children and families with lymphoedema: A journey within a journey. International Wound Journal, 7, 14-26.
40. Moran-Ellis, J. (2010). Reflections on the sociology of childhood in the UK. Current Sociology, 58, 186-205.
41. Morgan, M., Gibbs, S., Maxwell, K., & Britten, N. (2002). Hearing children's voices: Methodological issues in conducting focus groups with children aged 7-11 years. Qualitative Research, 2, 5-20.
42. Nicholas, D. B., Picone, G., & Selkirk, E. K. (2011). The lived experiences of children and adolescents with end-stage renal disease. Qualitative Health Research, 21, 162-173.
43. Nigro, G. N., & Wolpow, S. I. (2004). Interviewing young children with props: Prior experience matters. Applied Cognitive Psychology, 18, 549-565.
44. O'Kane, C. (2008). The development of participatory techniques. In P. Christensen & A. James (Eds.), Research with children: Perspectives and practices (2nd ed., pp. 125-155). New York: Routledge.
45. Patterson, T., & Hayne, H. (2011). Does drawing facilitate older children's reports of emotionally laden events? Applied Cognitive Psychology, 25, 119-126.
46. Piper, H., & Frankham, J. (2007). Seeing voices and hearing pictures: Image as discourse and the framing of image-based research. Discourse: Studies in the Cultural Politics of Education, 28, 373-387.
47. Pridmore, P., & Bendelow, G. (1995). Images of health: Exploring beliefs of children using the "draw-and-write" technique. Health Education Journal, 54, 473-488.
48. Prosser, J. (2006). Working paper. Researching with visual images: Some guidance notes and a glossary for beginners. http://www.reallifemethods.ac.uk/.
49. Protudjer, J. L. P., Kozyrskyj, A. L., Becker, A. B., & Marchessault, G. (2009). Normalization strategies of children with asthma. Qualitative Health Research, 19, 94-104.
50. Punch, S. (2002). Research with children: The same or different from research with adults? Childhood, 9, 321-341.
51. Rollins, J. A. (2005). Tell me about it: Drawing as a communication tool for children with cancer. Journal of Pediatric Oncology Nursing, 22, 203-221.
52. Ryan, P. J. (2008). How new is the "new" social study of childhood? The myth of a paradigm shift. Journal of Interdisciplinary History, 38, 553-576.
53. Sartain, S. A., Clarke, C. L., & Heyman, R. (2000). Hearing the voices of children with chronic illness. Journal of Advanced Nursing, 32, 913-921.
54. Strack, R. W., Magill, C., & McDonagh, K. (2004). Engaging youth through photovoice. Health Promotion Practice, 5, 49-58.
55. United Nations. (1989). Convention on the rights of the child. Office of the United Nations High Commissioner for Human Rights, http://www2.ohchr.org/english/law/crc.htm.
56. Walker, K., Caine-Bish, N., & Wait, S. (2009). "I like to jump on my trampoline": An analysis of drawings from 8- to 12-year-old children beginning a weight-management program. Qualitative Health Research, 19, 907-917.
57. Wang, C., & Burris, M. A. (1997). Photovoice: Concept, methodology, and use for participatory needs assessment. Health Education & Behavior, 24, 369-387.
58. Wilson, N., Minkler, M., Dasho, S., Wallerstein, N., & Martin, A. C. (2008). Getting to social action: The youth empowerment strategies (YES!) Project. Health Promotion Practice, 9, 395-403.