Normalization strategies of children with asthma

Qualitative Health Research

Volumn 19, Issue 1, 2009, Pages 94-104

  Protudjer, Jennifer L P ^a   Kozyrskyj, Anita L ^b,c   Becker, Allan B ^a   Marchessault, Gail ^a  

^a UNIVERSITY OF MANITOBA   (Canada)

^b UNIVERSITY OF ALBERTA   (Canada)

^c UNIVERSITY OF MANITOBA   (Canada)

Author keywords

Asthma; Children; Chronic illness; Coping and adaptation; Health care; Users' experiences

Indexed keywords

ANTIASTHMATIC AGENT;

ARTICLE; ASTHMA; ATTITUDE TO ILLNESS; CANADA; CHILD; CHILD BEHAVIOR; CHILDHOOD DISEASE; CHRONIC DISEASE; CLINICAL ARTICLE; CONTROLLED STUDY; COPING BEHAVIOR; DAILY LIFE ACTIVITY; EMOTIONALITY; FEMALE; HUMAN; MALE; MEDICAL ASSESSMENT; MEDICAL SPECIALIST; PEDIATRICIAN; PRIORITY JOURNAL; SEMI STRUCTURED INTERVIEW; SOCIAL ADAPTATION; SOCIAL LIFE; SYMPTOM;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; ASTHMA; ATTITUDE TO HEALTH; CHILD; FEMALE; HUMANS; MALE; QUALITATIVE RESEARCH;

EID: 57749176204     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732308327348     Document Type: Article

References (48)

1. Adams, S., Pill, R., & Jones, A. (1997). Medication, chronic illness and identity: The perspective of people with asthma. Social Science and Medicine, 45, 189-201.
2. Asthma Society of Canada. (2007). Asthma facts & statistics. Retrieved March 4, 2007, from http://www.asthma.ca
3. Atwater, E. (1996). Adolescence (4th ed.). Upper Saddle River, NJ: Simon & Schuster.
4. Becker, A., Berube, D., Chad, Z., Dolovich, M., Ducharme, F., D'Urzo, T., et al. (2005). Canadian Pediatric Consensus Guidelines, 2003 (updated to December 2004): Introduction. Canadian Medical Association Journal, 173, S12-S14.
5. Bender, B.G. (2007). Depression symptoms and substance abuse in adolescents with asthma. Annals of Allergy, Asthma and Immunology, 99, 319-324.
6. Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77-101.
7. Burney, P.G., Chinn, S., & Rona, R.J. (1990). Has the prevalence of asthma increased in children? Evidence from the national study of health growth 1973-86. British Medical Journal, 300(6735), 1306-1310.
8. Buston, K., & Wood, S. (2000). Non-compliance amongst adolescents with asthma: Listening to what they tell us about self-management. Family Practice, 17, 134-138.
9. Callery, P., Milnes, L., Verduyn, C., & Couriel, J. (2003). Qualitative study of young people's and parents' beliefs about childhood asthma. The British Journal of General Practice, 53(488), 185-190.
10. Carrieri, V., Kieckhefer, G., Jansson-Bjerklie, S., & Souza, J. (1991). The sensation of pulmonary dyspnea in school-age children. Nursing Research, 40, 81-85.
11. Clarke, M. (1992). Memories of breathing: A phenomenological dialogue: Asthma as a way of becoming. In J. M. Morse (Ed.), Qualitative health research (pp. 123-140). Newbury Park, CA: Sage.
12. Cohen, R., Franco, K., Motlow, F., Reznik, M., & Ozuah, P. (2003). Perceptions and attitudes of adolescents with asthma. Journal of Asthma, 40, 207-211.
13. Deatrick, J., Knafl, K., & Murphy-Moore, C. (1999). Clarifying the concept of normalization. Journal of Nursing Scholarship, 31, 209-214.
14. Earle, R., Rennick, J., Carnevale, F., & Davis, G. (2006). "It's okay. It helps me to breathe": The experience of home ventilation from a child's perspective. Journal of Child Health Care, 10, 270-282.
15. Gjengedal, E., Rustøden, T., Wahl, A.K., & Hanestad, B.R. (2003). Growing up and living with cystic fibrosis: Everyday life and encounters with the health care and social services-A qualitative study. Advances in Nursing Science, 26, 149-159.
16. Guell, C. (2007). Painful childhood: Children living with juvenile arthritis. Qualitative Health Research, 17, 884-892.
17. Habbick, B., Pizzichini, M., Taylor, B., Rennie, D., Senthilselvan, A., & Sears, M. (1999). Prevalence of asthma, rhinitis and eczema among children in 2 Canadian cities: The International Study of Asthma and Allergies in Childhood. Canadian Medical Association Journal, 160, 1824-1828.
18. Hargreave, F., Ryan, G., Thomson, N., O'Byrne, P., Latimer, K., Juniper, E., et al. (1981). Bronchial responsiveness to histamine or methacholine in asthma: Measurement and clinical significance. Journal of Allergy and Clinical Immunology, 68, 347-355.
19. Ireland, L. (1997). Children's perceptions of asthma: Establishing normality. Children's Nursing, 6, 1059-1064.
20. Jenkins, M., Clarke, J., Carlin, J., Robertson, C., Hopper, J., Dalton, M., et al. (1996). Validation of questionnaire and broncial hyperresponsiveness against respiratory physician assessment in the diagnosis of asthma. International Journal of Epidemiology, 25, 609-616.
21. Kim, D.H., & Yoo, I.Y. (2007). Factors associated with depression and resilience in asthmatic children. Journal of Asthma, 44, 423-427.
22. Knight, D. (2005). Beliefs and self-care practices of adolescents with asthma. Issues in Comprehensive Pediatric Nursing, 28, 71-81.
23. Kozyrskyj, A.L., Mustard, C.A., & Simons, F.E. (2002). Development of a drug treatment-based severity measure in childhood asthma. Journal of Asthma, 39(5), 421-428.
24. Kozyrskyj, A.L., Mustard, C.A., & Simons, F.E. (2003). Inhaled corticosteroids in childhood asthma: Income differences in youth. Pediatric Pulmonology, 36(3), 241-247.
25. Lynd, L., Sanford, A., Kelly, E., Pare, P., Bai, T., Fitzgerald, J., et al. (2004). Reconcilable differences: A cross-sectional study of the relationship between socio-economic status and the magnitude of short-acting beta-agonist use in asthma. Chest, 126, 1161-1168.
26. Mai, X.-M., Becker, A., Sellers, E., Liem, J., & Kozyrskyj, A. (2007). The relationship between breast-feeding, overweight, and asthma in preadolescents. Journal of Allergy and Clinical Immunology, 120, 551-556.
27. Manfreda, J., Becker, A., Wang, P., Roos, L., & Antonisen, N. (1993). Trends in physician-diagnosed asthma prevalence in Manitoba between 1980 and 1990. Chest, 103, 151-157.
28. Merikallio, V.J., Mustalahti, K., Remes, S.T., Valovirta, E.J., & Kaila, M. (2005). Comparison of quality of life between asthmatic and healthy school children. Pediatric Allergy and Immunology, 16, 332-340.
29. Morse, J.M. (2007). Ethics in action: Ethical principles for doing qualitative health research. Qualitative Health Research, 17, 1003-1005.
30. Morse, J.M., Wilson, S., & Penrod, J. (2000). Mothers and their disabled children: Refining the concept of normalization. Health Care for Women International, 21, 659-676.
31. Ninan, T., & Russel, G. (1992). Respiratory symptoms and atopy in Aberdeen schoolchildren: Evidence from two surveys 25 years apart. British Medical Journal, 204, 873-875.
32. Patton, M. (2002). Qualitative research and evaluation methods (3rd ed.). Thousand Oaks, CA: Sage.
33. Penza-Clyve, S., Mansell, C., & McQuaid, E. (2004). Why don't children take their asthma medications? A qualitative analysis of children's perspectives on adherence. Journal of Asthma, 41, 189-197.
34. Petersen, C., Schmidt, S., Power, M., Bullinger, M., & DIS-ABKIDS Group. (2005). Development and pilot-testing of a health-related quality of life chronic generic module for children and adolescents with chronic health conditions: A European perspective. Quality of Life Research, 14, 1065-1077.
35. Pradel, F.G., Hartzema, A.G., & Bush, P.J. (2001). Asthma self-management: The perspective of children. Patient Education and Counselling, 45, 199-209.
36. Prout, A., Hayes, L., & Gelder, L. (1999). Medicines and the maintenance of ordinariness in the household management of childhood asthma. Sociology of Health and Illness, 21, 137-162.
37. QSR International Pty Ltd. (n.d.). Retrieved May 1, 2006, from http://www.qsrinternational.com
38. Rehm, R.S., & Bradley, J.F. (2005). Normalization in families raising a child who is medically fragile/technology dependent and developmentally delayed. Qualitative Health Research, 15, 807-820.
39. Robinson, C.A. (1993). Managing life with a chronic condition: The story of normalization. Qualitative Health Research, 3, 6-28.
40. Roux, G., Sawin, K.K., Bellin, M.H., Buran, C.F., & Brei, T.J. (2007). The experience of adolescent women living with spina bifida part II: Peer relationships. Rehabilitation Nursing, 32, 112-119.
41. Rydstrïm, U., Dalheim Englund, A.-C., & Sandman, P.O. (1999). Being a child with asthma. Pediatric Nursing, 25, 589-596.
42. Scherman, M.H., Dahlgren, L.O., & Löwhagen, O. (2002). Refusing to be ill: A longitudinal study of patients' experiences of asthma/ allergy. Disability and Rehabilitation, 24, 297-307.
43. Seligman, M., & Darling, R.B. (2007). Ordinary families, special children (3rd ed.). New York: Guilford Press.
44. van Mens-Verhulst, J., Radtke, H., & Spence, C. (2004). The private struggle of mothers with asthma: A gender perspective on illness management. Patient Education and Counseling, 54, 79-86.
45. Wilkins, K., & Mao, Y. (1993). Trends in rates of admission to hospital and death from asthma among young children and young adults in Canada during the 1980s. Canadian Medical Association Journal, 148, 185-190.
46. Wise, B.V. (2002). In their own words: The lived experience of pediatric liver transplantation. Qualitative Health Research, 12, 74-90.
47. Wolfensberger, W. (1972). Normalization: The principle of normalization in human services. Toronto, ON: National Institute on Mental Retardation.
48. Yunginger, J.W., Reed, C.E., O'Connell, E.J., Melton, L.J., O'Fallon, W.M., & Silverstein, M.D. (1992). A community-based study of the epidemiology of asthma-Incidence rates, 1964-1983. The American Review of Respiratory Diseases, 146, 888-894.