Family support and education

Physical and Occupational Therapy in Pediatrics

Volumn 33, Issue 1, 2013, Pages 139-161

  Goldstein, Lou Ann ^a  

^a UNIVERSITY OF ILLINOIS AT CHICAGO   (United States)

Author keywords

Birth defects; Family functioning; High risk newborn; Infant development

Indexed keywords

ARTICLE; EDUCATION; FAMILY; FAMILY NURSING; HOSPITAL DISCHARGE; HUMAN; METHODOLOGY; NEWBORN; NEWBORN INTENSIVE CARE; PARENT; PHYSIOTHERAPY; PREMATURITY; PSYCHOLOGICAL ASPECT; STANDARD;

FAMILY; FAMILY NURSING; HUMANS; INFANT, NEWBORN; INFANT, PREMATURE; INTENSIVE CARE UNITS, NEONATAL; PARENTS; PATIENT DISCHARGE; PHYSICAL THERAPY MODALITIES;

EID: 84872226631     PISSN: 01942638     EISSN: 15413144     Source Type: Journal    
DOI: 10.3109/01942638.2012.754393     Document Type: Article

References (80)

1. Als, H., Gilkerson, L., Duffy, F., McAnulty, G., Buehler, D., Vandenberg, K., et al. (2003). A three center randomized controlled trial of individualized developmental care for very low birth weight preterm infants: Medical, neurodevelopmental, parenting, and care giving effects. Journal of Developmental and Behavioral Pediatrics, 24, 399-408.
2. American Academy of Pediatrics/American College of Obstetricians and Gynecologists. (2002). Guidelines for perinatal care (5th ed.). Elk Grove Village and Washington, DC: AAP & ACOG.
3. Anthony,M.,&Hudson-Barr,D. (2004).Apatient-centered model of care for hospital discharge. Clinical Nursing Research, 13, 117-136.
4. Bailey, R., & Caldwell, C. (1997). Preparing parents for going home. Pediatric Nursing, 9, 15-17.
5. Barrera, M., Rosenbaum, P., & Cunningham, C. (1986). Early home intervention with low-birth weight infants and their parents. Child Development, 57, 20-33.
6. Bartlett, D., & Kneale-Fanning, J. (2003). Relationships of equipment use and play positions to motor development at eight months corrected age of infants born preterm. Pediatric Physical Therapy, 15, 8-15.
7. Bissell, G., & Long, T. (2003). From the neonatal unit to the home: How do parents adapt to life at home with their baby? Journal of Neonatal Nursing, 9, 7-12.
8. Blauw-Hospers, C. H., & Hadders-Algra, A. (2005). A systematic review of the effects of early intervention on motor development. Developmental Medicine and Child Neurology, 47, 421-432.
9. Brazelton, T. B. (1973). Neonatal behavioral assessment scale. London: Spastics International.
10. Brazelton, T. B., & Nugent, J. K. (1995). The neonatal behavioral assessment scale. London: Mac Keith Press.
11. Broedsgaard, A., & Wagner, L. (2005). How to facilitate parents and their premature infant for the transition home. International Nursing Review, 52, 196-203.
12. Bruns, D., & Klein, S. (2005). An evaluation of family-centered care in a Level III NICU. Infants and Young Children, 18, 222-233.
13. Byrne, E. M., & Campbell, S. K. (2012). Physical therapy observation and assessment in the neonatal intensive care unit. Physical and Ocupational Therapy in Pediatrics, 32.
14. Byrne, E. M., & Garber, J. B. (2012). Physical therapy intervention in the NICU. Physical and Ocupational Therapy in Pediatrics, 32.
15. Campbell, S. K. (2012). The child's development of functional movement. In S. K. Campbell, R. J. Palisano, & M. N. Orlin (Eds.), Physical therapy for children, (4th ed.). Philadelphia, PA: Elsevier.
16. Campbell, S. K., Kolobe, T. H. A., Osten, E. T., Lenke, M., & Girolami, G. L. (1995). Construct validity of the test of infant motor performance. Physical Therapy, 75, 585-596.
17. Campbell, S. K., Levy, P., Zawacki, L., & Liao, P.-J. (2006). Population-based age standards for interpreting results on the test of infant motor performance. Pediatric Physical Therapy, 18, 119-125.
18. Cleveland, L. (2008). Parenting in the neonatal intensive care unit. Journal of Obstetric, Gynecologic, & Neonatal Nursing, 37, 666-691.
19. Collins, J.W.,David, R., Symons, R., Handler,A.,Wall, S.,&Andes, S. (1998).African-American mothers' perception of their residential environment, stressful life events, and very low birthweight. Epidemiology, 9, 286-289.
20. Costello, A., & Chapman, J. (1998).Mothers' perceptions of the care-by-parent program prior to hospital discharge of their preterm infants. Neonatal Network, 17, 37-42.
21. Coyl, D., Roggman, L., & Newland, L. (2002). Stress, maternal depression, and negative motherinfant interactions in relation to infant attachment. Infant Mental Health Journal, 23, 145-163.
22. Davis, B. E., Moon, R. Y., Sachs, H. C., & Ottolini, M. D. (1998). Effects of sleep position on infant motor development. Pediatrics, 102, 1135-1140.
23. Davis, L., Edwards, J., & Mohay, H. (2003). Mother-infant interation in premature infants at 3 months after nursery discharge. International Journal of Nursing Practice, 9, 374-381.
24. DeGroote, I., Vanhaesebrouck, P., Bruneel, E., Dom, L., Durein, I., Hasaerts, D., et al. (2007). Outcome at 3 years of age in a population-based cohort of extremely premature infants. Obstetrics and Gynecology, 110, 855-864.
25. Diamond, K. (1993). The role of parents' observations and concerns in screening for development for developmental delays in young children. Topic in Childhood Special Education, 13, 68-81.
26. Donovan, W., Leavitt, L., Taylor, N., & Broder, J. (2007). Maternal sensory sensitivity, motherinfant 9-month interaction, infant attachment status: Predictors of mother-toddler interaction at 24 months. Infant Behavior & Development, 30, 336-352.
27. Dudek-Shriber, L. (2004). Parent stress in the NICU and the influence of the parent and infant characteristics. American Journal of Occupational Therapy, 58, 509-520.
28. Dudek-Shriber, L., & Zelazny, S. (2007). The effects of prone positioning on the quality and acquisition of developmental milestones in four month old infants. Pediatric Physical Therapy, 19, 48-55.
29. Dusing, S., Murray, T.,&Stern,M. (2008). Parent preferences for motor developmental education in the neonatal intensive care unit. Pediatric Physical Therapy, 20, 363-368.
30. Dusing, S., VanDrew, C.,&Brown, S. (2012). Instituting parent education practices in the NICU: An administrative case report of practice evaluation and statewide action. Physical Therapy Journal, 92, 967-975.
31. Eckerman, C., & Oehler, J. (1992). Very low birth weight newborns and parents as early social partners. In S. L. Freidman&M.D. Sigman (Eds.), The psychological development of low birth weight infants (pp. 91-124). Norwood, NJ: Ablex.
32. Fegran, L., Helseth, S., & Solveig-Fagermoen, M. (2008). A comparison of mothers' and fathers' experiences of the attachment process in a neonatal intensive care unit. Journal of Clinical Nursing, 17, 810-816.
33. Feiring, C., Fox, N., Jaskir, J., & Lewis,M. (1987). The relation between social support, infant risk status and mother-infant interaction. Developmental Psychology, 23, 400-405.
34. Feldman, R., Eidelman, A., Sirota, L., & Weller, A. (2002). Comparison of skin-to-skin (kangaroo) and traditional care: Parenting outcomes and preterm infant development. Pediatrics, 110, 16-26.
35. Garber, J. B. (2012). Oral motor function and feeding intervention. Physical and Ocupational Therapy in Pediatrics, 32.
36. Gennaro, S., Medoff-Cooper, B., & Lotas, M. (1992). Perinatal factors and infant temperament: A collaborative approach. Nursing Research, 41, 375-377.
37. Gerner, E. (1999). Emotional interaction in a group of preterm infants at 3 and 6 months of corrected age. Infant and Child Development, 8, 117-128.
38. Goldstein, L., & Campbell, S. K. (2008). Effectiveness of the test of infant motor performance as an educational tool for mothers. Pediatric Physical Therapy, 20, 152-159.
39. Harrison, M. (1990). A comparison of parental interactions with term and preterm infants. Research in Nursing and Health, 13, 173-179.
40. Jackson, K. (2003). Fromalienation to familiarity: Experiences of mothers and fathers of preterm infants. Journal of Advanced Nursing, 43, 120-129.
41. Jennings, J. T., Sarbaugh, B. G., & Payne, N. S. (2005). Conveying the message optimal infant positions. Physical and Occupational Therapy in Pediatrics, 25, 3-18.
42. Kripalani, S., Paasche-Orlow, M. K., Parker, R. M., & Saha, S. (2006). Advancing the field of health literacy. Journal of General Internal Medicine, 21, 804-805.
43. Lawhon, G. (2002). Facilitation of parenting the premature infant within the newborn intensive care unit. Journal of Perinatal Neonatal Nursing, 16, 71-82.
44. Lawler, P. (1991). Keys to adult learning: Theory and practical strategies. Philadelphia, PA: Research for Better Schools.
45. Lekskulchai, R., & Cole, J. (2001). Effect of a developmental program on motor performance in infants born preterm. Australian Journal of Physiotherapy, 47, 169-176.
46. Loo, K., Espinosa, M., Tyler, R., & Howard, J. (2003). Using knowledge to cope with stress in the NICU: How parents integrate learning to read the physiologic and behavioral cues of the infant. Neonatal Network, 22, 31-37.
47. Maternal and Child Health Bureau. (2005). Definition and principles of family-centered care. Rockville, MD: Department of Health and Human Services. www.familyvoices.org/admin/work family centered/files/FCCare.rtf. Last Accessed: September 2012.
48. Melnyk, B. (2000). Intervention studies involving parents of hospitalized young children: An analysis of the past and future recommendations. Journal of Pediatric Nursing, 15, 4-13.
49. Melnyk, B., Alpert-Gillis, L., Fischbeck-Feinstein, N., Fairbanks, E., Schultz-Czarniak, J., Hust, D., et al. (2001). Improving cognitive development of low birth weight premature Infants with the COPE program: A pilot study of the benefit of early NICU intervention with mothers. Research in Nursing & Health, 24, 373-389.
50. Melnyk, B. M., Feinstein, N. F., Alpert-Gillis, L., Fairbanks, E., Crean, H. Sinkin, R. A., et al. (2006). Reducing premature infants' length of stay and improving parents' mental health outcomes with the Creating Opportunities for Parent Empowerment (COPE) neonatal intensive care unit program: A randomized, controlled trial. Pediatrics, 118, e1414-e1427.
51. Melnyk, B. M., Feinstein, N. F., & Fairbanks, E. (2002). Effectiveness of information/behavioral interventions with parents of low birth weight premature infants: An evidence base to guide clinical practice. Pediatric Nursing, 28, 511-516.
52. Menghini, K. (2005).Designing and evaluating parent educationalmaterials. Advances in Neonatal Care, 5, 273-283.
53. Micelli, P. J., Goeke-Morey, M. C., Whitman, T. L., Kolberg, K. S., Miller-Loncar, C., & White, R. D. (2000). Brief report: Birth status, medical complications, and social environment: Individual differences in development of preterm, very low birth weight infants. Journal of Pediatric Psychology, 25, 353-358.
54. Miles, M., &Holditch-Davis,D. (1995). Compensatory parenting: How mothers describe parenting their 3-year-old, prematurely born children. Journal of Pediatric Nursing: Nursing Care of Children and Families, 10, 243-253.
55. Nargoski-Johnson, A. (2008). Engaging fathers in the NICU: Taking down the barriers to the baby. Journal of Perinatal and Neonatal Nursing, 22, 302-306.
56. Nugent, J. K., Keefer, C. H., Minear, S., Johnson, L. C., & Blanchard, Y. (2007). Understanding newborn behavior & early relationships: The newborn behavioral observations (NBO) systems handbook. Baltimore, MD: Paul H. Brooks Publishing Co.
57. Parker, S. J., Zahr, L., Cole, J. G., & Brecht, M. (1992). Outcomes after developmental intervention in the neonatal intensive care unit for mothers of preterm infants with low socioeconomic status. Journal of Pediatrics, 120, 780-785.
58. Pohlman, S. (2005). The primacy of work and fathering preterm infants: Findings from an interpretive phenolmenological study. Advances in Neonatal Care, 5, 204-216.
59. Pridham, K., Lin, C., & Brown, R. (2001). Mothers' evaluation of their caregiving for premature and full term infants through the first year: Contributing factors. Research in Nursing and Health, 24, 157-169.
60. Rastall, M., Brook, B., Klarenta, M., Moylan, N., McCloud, W., & Tracey, S. (1999). An investigation into younger and older adults' memory for physiotherapy exercises. Physiotherapy, 85, 122-128.
61. Resnick, M., Armstrong, S., & Carter, R. (1988). Developmental intervention program for high risk premature infants: Effects on development and parent-infant interactions. Journal of Developmental and Behavioral Pediatrics, 9, 73-78.
62. Sajaniemi, N., Makela, J., Salokorpi, T., von Wendt, L., Hamalaien, T., & Hakamies-Blomqvist, L. (2001). Cognitive performance and attachment patterns at four years of age in extremely low birth weight infants after early intervention. Journal of Perinatal and Neonatal Nursing, 10, 122-129.
63. Shaw, R., Deblois, T., Ikuta, L., Ginzberg, K., Fleisher, B., & Koopman, D. (2006). Acute stress disorder among parents of infants in the neonatal intensive care nursery. Psychosomatics, 47, 206-212.
64. Shelton, T. L., & Stepanek, J. S. (1994). Family-centered care for children needing specialized health and developmental services (3rd ed.). Bethesda, MD: Association for the Care of Children's Health.
65. Shields-Poe,D.,&Pinelli, J. (1997).Variables associated with parental stress in neonatal intensive care units. Neonatal Network, 16, 29-37.
66. Siegel, A., & Burton, R. (1999). Effects of baby walkers on motor and mental development in human infants. Journal of Development and Behavior in Pediatrics, 20, 355-361.
67. Suderman, E. M., Deatrick, J. V., Johnson, L. S., & Sawatzky-Dickson, D. M. (2000). Action research sets the stage to improve discharge preparation. Pediatric Nursing, 26, 571-576.
68. Sudore, R. L., Landefeld, C. S.,Williams, B. A., Barnes, D. E., Lindquist, K., & Schillinger,M. D. (2006). Use of a modified informed consent process among vulnerable patients: A descriptive study. Journal of General Internal Medicine, 21, 867-873.
69. Sweeney, J., Heriza, C., & Blanchard, Y. (2009). Neonatal physical therapy. Part I: Clinical competencies and neonatal training models. Pediatric Physical Therapy, 21, 296-307.
70. Sweeney, J., Heriza, C., Blanchard, Y., & Dusing, S. (2010). Neonatal physical therapy. Part II: Practice frameworks and evidence-based practice guidelines. Pediatric Physical Therapy, 22, 2-16.
71. American Physical TherapyAssociation. (2001). The guide to physical therapist practice. 2nd Ed. Physical Therapy, 81, 9-744.
72. Unanue, R. (2002). The effect of parent education on the motor performance of premature infants and parent care giving abilities. PhD dissertation. Hahnemann University, Philadelphia, PA.
73. United States Census Bureau. (2009). Selected Social Characteristics in the United States: 2009. Suitland, MD: United States Census Bureau.
74. United States Census Bureau. (2010). Poverty Status in the last 12 months: 2010. Suitland, MD: United States Census Bureau.
75. Vergara, E., Anzalone, M., Bigsby, R., Gorga, D., Holloway, E., Hunter, J., et al. (2006). Specialized knowledge and skills for occupational therapy practice in the neonatal intensive care unit. American Journal of Occupational Therapy, 60, 659-668.
76. Vohr, B.,Wright, L.,Dusick,A., Mele, L., Verter, J., Steichen, J., et al. (2000). Neurodevelopmental and functional outcomes of extremely low birth weight infants in the National Institute of Child Health and Human Development Neonatal Research Network, 1993-1994. Pediatrics, 105; 1216-1226.
77. Weiss, M., Johnson, N. L., Malin, S., Jerofke, T., Lang, C., & Sherburne, E. (2008). Readiness for discharge in parents of hospitalized children. Journal of Pediatric Nursing, 23, 282-295.
78. White-Traut, R., & Nelson, M. (1988). Maternally administered tactile, auditory, visual, and vestibular stimulation: Relationship to later interactions between mothers and premature infants. Research in Nursing & Health, 11, 31-39.
79. Widmayer, S. M., & Field, T. M. (1981). Effects of Brazelton demonstrations for the mothers on the development of preterm infants. Pediatrics, 67, 711-714.
80. Winslow, E. H. (2001). Parent education materials: Can patients read them or are they ending up in the trash. American Journal of Nursing, 101, 33-38.