The quality of the caregiving relationship in informal care for older adults with dementia and chronic psychiatric patients

Psychology and Psychotherapy: Theory, Research and Practice

Volumn 75, Issue 3, 2002, Pages 295-311

  Spruytte, Nele ^a,b   Van Audenhove, Chantal ^a   Lammertyn, Frans ^a   Storms, Gerrit ^b  

^a Centre for Sociological Research   (Belgium)

^b UNIVERSITY OF LEUVEN   (Belgium)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CAREGIVER; CHRONIC PATIENT; CONFLICT; DEMENTIA; HEALTH CARE QUALITY; HUMAN; MEDICAL LITERATURE; MENTAL PATIENT; PATIENT CARE; PERCEPTION; QUESTIONNAIRE;

ADULT; AGED; CAREGIVERS; CHRONIC DISEASE; COGNITION DISORDERS; DEMENTIA; FEMALE; HUMANS; INTERPERSONAL RELATIONS; MALE; MENTAL DISORDERS; MIDDLE AGED;

EID: 0036760925     PISSN: 14760835     EISSN: None     Source Type: Journal    
DOI: 10.1348/147608302320365208     Document Type: Article

References (45)

1. Baronet, A. M. (1999). Factors associated with caregiver burden in mental illness: A critical review of the research literature. Clinical Psychology Review, 19, 819-841.
2. Bebbington, P., & Kuipers, L. (1994). The predictive utility of expressed emotion in schizophrenia: An aggregate analysis. Psychological Medicine, 24, 707-718.
3. Biegel, D. E., & Schulz, R. (1999). Caregiving and caregiver interventions in aging and mental illness. Family Relations, 48, 345-354.
4. Bledin, K. D., MacCarthy, B., Kuipers, L., & Woods, R. T. (1990). Daughters of people with dementia: Expressed emotion, strain and coping. British Journal of Psychiatry, 157, 221-227.
5. Blieszner, R., & Shifflett, P. A. (1990). The effects of Alzheimer's disease on close relationships between patients and caregivers. Family Relations, 39, 57-62.
6. Brewin, C. R., MacCarthy, B., Duda, K., & Vaughn, C. E. (1991). Attribution and expressed emotion in the relatives of patients with schizophrenia. Journal of Abnormal Psychology, 100, 546-554.
7. Brown, S., & Birtwistle, J. (1998). People with schizophrenia and their family. Fifteen-year outcome. British Journal of Psychiatry, 173, 139-144.
8. Chang, B.-H., Noonan, A. E., & Tennstedt, S. L. (1998). The role of religion/spirituality in coping with caregiving for diabled elders. Gerontologist, 38, 463-470.
9. Cicirelli, V. (1995). A measure of caregiving daughters' attachment to elderly mothers. Journal of Family Psychology, 9(1), 89-94.
10. Cools, B. (1993). Mechelse Activiteiten Schaal (MAS) experimentele vorm: Een werkinstrument voor Dagcentra en Diensten voor Beschut en Begeleid Wonen [Mechlin Activity Scale (MAS) experimental form: An instrument for day centers and services of sheltered living]. Diagnostiek-Wijzer, 1, 27-39.
11. Cools, B., Van Audenhove, Ch., Declercq, A., & Spruytte, N. (2000). De Mechelse Activiteiten Schaal - Versie Dementie [The Mechlin Activity Scale - Dementia Version]. Internal publication. Leuven: LUCAS.
12. De Rick, K., Opdebeeck, S., Van Audenhove, Ch., Lammertyn, F., & Hedebouw, G. (2000). De gezinsleden van personen met langdurige psychische problemen. Eindrapport [Family Members of Persons with Chronic Mental Illness]. Leuven: LUCAS.
13. Donaldson, C., & Burns, A. (1999). Burden of Alzheimer's disease: Helping the patient and the caregiver. Journal of Geriatric Psychiatry and Neurology, 12, 21-28.
14. Donaldson, C., Tarrier, N., & Burns, A. (1997). The impact of the symptoms of dementia on caregivers. British Journal of Psychiatry, 170, 62-68.
15. Dunkin, J. J., & Anderson-Hanley, C. (1998). Dementia caregiver burden. A review of the literature and guidelines for assessment and intervention. Neurology, 51(Supplement 1), 53-60.
16. Fearon, M., Donaldson, C., Burns, A., & Tarrier, N. (1998). Intimacy as a determinant of expressed emotion in carers of people with Alzheimer's disease. Psychological Medicine, 28, 1085-1090.
17. Fisher, C. S. (1982). To Dwell Among Friends. Personal Networks in Town and City. Chicago, IL: University of Chicago Press.
18. Gilhooly, M. L. M. (1984). The impact of caregiving on caregivers: Factors associated with the psychological well-being of people supporting a dementing relative in the community. British Journal of Medical Psychology, 57, 35-44.
19. Gilhooly, M. L. M. (1986). Senile dementia: Factors associated with caregivers' preference for institutional care. British Journal of Medical Psychology, 59, 165-171.
20. Gilhooly, M. L. M., & Whittick, J. E. (1989). Expressed emotion in caregivers of the dementing elderly. British Journal of Medical Psychology, 62, 265-272.
21. Green, H. (1988). General Household Survey 1985. Informal Carers. London: HMSO.
22. Haley, W. E., Levine, E. G., Brown, S. L., & Bartolucci, A. A. (1987). Stress, appraisal, coping and social support as predictors of adaptational outcome among dementia caregivers. Psychology and Aging, 2, 323-330.
23. Haley, W. E., West, C. A. C., Wadley, V. G., Ford, G. R., White, F. A., Barrett, J. J., Harrell, L. E., & Roth, D. L. (1995). Psychological, social and health impact of caregiving: A comparison of black and white dementia family caregivers and noncaregivers. Psychology and Aging, 10, 540-552.
24. Harper, S., & Lund, D. A. (1990). Wives, husbands and daughters caring for institutionalized and noninstitutionalized dementia patients: Toward a model of caregiver burden. International Journal of Aging and Human Development, 30, 241-262.
25. Harrison, C. A., Dadds, M. R., & Smith, G. (1998). Family caregivers' criticism of patients with schizophrenia. Psychiatric Services, 49, 918-924.
26. Hooley, J. M., & Licht, D. M. (1997). Expressed emotion and causal attributions in the spouses of depressed patients. Journal of Abnormal Psychology, 106, 298-306.
27. Hooley, J. M., & Teasdale, J. D. (1989). Predictors of relapse in unipolar depressives: Expressed emotion, marital distress and perceived criticism. Journal of Abnormal Psychology, 98, 229-235.
28. Kramer, B. J. (1993). Marital history and the prior relationship as predictors of positive and negative outcomes among wife caregivers. Family Relations, 42, 367-375.
29. Lawrence, T. H., Tennstedt, S. L., & Assmann, S. E (1998). Quality of the caregiver-care recipient relationship: Does it offset negative consequences of caregiving for family caregivers? Psychology and Aging, 13, 150-158.
30. McCallister, L., & Fisher, C. (1978). A procedure for surveying social networks. Sociological Methods and Research, 7, 131-148.
31. Orford, J., O'Reilly, P., & Goonatilleke, A. (1987). Expressed emotion and perceived family interaction in the key relatives of elderly patients with dementia. Psychological Medicine, 17, 963-970.
32. Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. Gerontologist, 30, 583-594.
33. Reisberg, B., Ferris, S. H., de Leon, M. J., & Crook, T. (1982). The Global Deterioration Scale (GDS): An instrument for the assessment of primary degenerative dementia (PDD). American Journal of Psychiatry, 139, 1136-1139.
34. Spruytte, N., Van Audenhove, Ch., & Lammertyn, F. (2000). De Schaal Voor de Kwaliteit van de Huidige Relatie (KHR) [The Scale for the Quality of the Current Relationship]. Leuven: LUCAS.
35. Townsend, A. L., & Franks, M. M. (1995). Binding ties: Closeness and conflict in adult children's caregiving relationships. Psychology and Aging, 10, 343-351.
36. Townsend, A. L., & Franks, M. M. (1997). Quality of the relationship between elderly spouses: Influence on spouse caregivers' subjective effectiveness. Family Relations, 46, 33-39.
37. Van Audenhove, Ch., Spruytte, N., Declercq, A., & Lammertyn, F. (2000). De Schaal Voor Storend Gedrag Bij Dementerenden (SSGD) [The Scale for Behavioural Disturbances in Dementia]. Leuven: LUCAS.
38. Van den Broucke, S., Vertommen, H., & Vandereycken, W. (1995). Construction and validation of a marital intimacy questionnaire. Family Relations, 44, 285-290.
39. Vitaliano, P. P., Young, H. M., Russo, J., Romano, J., & Magana-Amato, A. (1993). Does expressed emotion in spouses predict subsequent problems among care recipients with Alzheimer's disease. Journal of Gerontology, 48, 202-209.
40. Wagner, A. W., Logsdon, R. G., Pearson, J. L., & Teri, L. (1997). Caregiver expressed emotion and depression in Alzheimer's disease. Aging and Mental Health, 1, 132-139.
41. Wearden, A. J., Tarrier, N., Barrowclough, C., Zastowny, T. R., & Rahill, A. A. (2000). A review of expressed emotion research in health care. Clinical Psychology Review, 20, 633-666.
42. Willamson, G. M., & Schulz, R. (1990). Relationship orientation, quality of prior relationship and distress among caregivers of Alzheimer's patients. Psychology and Aging, 5, 502-509.
43. Wright, L.K. (1991). Alzheimer's disease afflicted spouses who remain at home: Can human dialectics explain the findings? Social Science and Medicine, 38, 1037-1046.
44. Wuest, J., Ericson, P. K., & Stern, P N. (1994). Becoming strangers: The changing family caregiver relationship in Alzheimer's disease. Journal of Advanced Nursing, 20, 437-443.
45. Yates, M. E., Tennstedt, S., & Chang, B. H. (1999). Contributors to and mediators of psychological well-being for informal caregivers. Journal of Gerontology, 54, 12-22.