Strategies for living with the risk of anaphylaxis in adolescence: Qualitative study of young people and their parents

Primary Care Respiratory Journal

Volumn 21, Issue 4, 2012, Pages 392-397

  Gallagher, Michael ^a   Worth, Allison ^b   Cunningham Burley, Sarah ^b   Sheikh, Aziz ^b  

^a UNIVERSITY OF GLASGOW   (United Kingdom)

^b UNIVERSITY OF EDINBURGH   (United Kingdom)

Author keywords

Adolescents; Allergy; Anaphylaxis; Management; Qualitative

Indexed keywords

ADRENALIN;

ADOLESCENT; ADOLESCENT HEALTH; ADULT; ANAPHYLAXIS; ARTICLE; ATTITUDE TO HEALTH; AWARENESS; CLINICAL ARTICLE; FEMALE; FOOD ALLERGY; HEALTH CARE NEED; HUMAN; MALE; PARENTAL ATTITUDE; PATIENT ATTITUDE; QUALITATIVE RESEARCH; RISK ASSESSMENT; RISK MANAGEMENT; SELF CARE; SEMI STRUCTURED INTERVIEW; SOCIAL MEDIA; SOCIAL SUPPORT; UNITED KINGDOM;

ADOLESCENT; ADOLESCENT PSYCHOLOGY; ANAPHYLAXIS; FEMALE; HUMANS; INTERVIEW, PSYCHOLOGICAL; MALE; PARENTS; YOUNG ADULT;

EID: 84870867114     PISSN: 14714418     EISSN: 14751534     Source Type: Journal    
DOI: 10.4104/pcrj.2012.00072     Document Type: Article

References (34)

1. Sampson MA, Munoz-Furlong A, Sicherer SH. Risk-taking and coping strategies of adolescents and young adults with food allergy. J Allergy Clin Immunol 2006;117:1440-5. http://dx.doi.org/10.1016/j.jaci.2006.03.009
2. Bock SA, Munoz-Furlong A, Sampson HA. Further fatalities caused by anaphylactic reactions to food, 2001-2006. J Allergy Clin Immunol 2007;119:1016-18. http://dx.doi.org/10.1016/j.jaci.2006.12.622
3. Pumphrey R, Gowland H. Further fatal allergic reactions to food in the United Kingdom, 1999-2006. J Allergy Clin Immunol 2007;119:1018-19. http://dx.doi.org/10.1016/j.jaci.2007.01.021
4. Alves B, Sheikh A. Age-specific aetiology of anaphylaxis: a study of routine hospital admission data in England. Arch Dis Child 2001;85:349. http://dx.doi.org/10.1136/adc.85.4.348b
5. Lyons AC, Forde EME. Food allergy in young adults: perceptions and psychological effects. J Health Psychol 2004;9:497-504. http://dx.doi.org/10.1177/1359105304044032
6. Akeson N, Worth A, Sheikh A. The psychosocial impact of anaphylaxis on young people and their parents. Clin Exp Allergy 2007;37:1213-20. http://dx.doi.org/10.1111/j.1365-2222.2007.02758.x
7. Greenhawt MJ, Singer AM, Baptist AP. Food allergy and food allergy attitudes among college students. J Allergy Clin Immunol 2009;124:323-7. http://dx.doi.org/10.1016/j.jaci.2009.05.028
8. Mackenzie H, Roberts G, van Laar D, Dean T. Teenagers' experiences of living with food hypersensitivity: a qualitative study. Pediatr Allergy Immunol 2010;21:595-602. http://dx.doi.org/10.1111/j.1399-3038.2009.00938.x
9. Christensen P, Mikkelsen MR. Jumping off and being careful: children's strategies of risk management in everyday life. Sociol Health Illness 2008;30:112-30. http://dx.doi.org/10.1111/j.1467-9566.2007.01046.x
10. DunnGalvin A, Gaffney A, O'Hourihane JOB. Developmental pathways in food allergy: a new theoretical framework. Allergy 2009;64:560-8. http://dx.doi.org/10.1111/j.1398-9995.2008.01862.x
11. Cummings AJ, Knibb RC, King RM, Lucas JS. The psychosocial impact of food allergy and food hypersensitivity in children, adolescents and their families: a review. Allergy 2010;65:933-45. http://dx.doi.org/10.1111/j.1398-9995.2010.02342.x
12. Mandell D, Curtis R, Gold M, Hardie S. Families coping with a diagnosis of anaphylaxis in a child. ACI International 2002;14:96-101. http://dx.doi.org/10.1027/0838-1925.14.3.96
13. Monks H, Gowland MH, MacKenzie H, et al. How do teenagers manage their food allergies? Clin Exp Allergy 2010;40:1533-40. http://dx.doi.org/10.1111/j.1365-2222.2010.03586.x
14. Gallagher M, Worth A, Cunningham-Burley SC, Sheikh A. Epinephrine auto-injector use in adolescents at risk of anaphylaxis: a qualitative study in Scotland, UK. Clin Exp Allergy 2011;41:869-77. http://dx.doi.org/10.1111/j.1365-2222.2011.03743.x
15. Marklund B, Wilde-Larsson B, Ahlstedt S, Nordström G. Adolescents' experiences of being food-hypersensitive: a qualitative study. BMC Nursing 2007;6:8. http://dx.doi.org/10.1186/1472-6955-6-8
16. Cummings AJ, Knibb RC, Erlewyn-Lajeunesse M, King RM, Roberts G, Lucas JS. Management of nut allergy influences quality of life and anxiety in children and their mothers. Pediatr Allergy Immunol 2010;21:586-94. http://dx.doi.org/10.1111/j.1399-3038.2009.00975.x
17. Rodham K, Brewer H, Mistral W, Stallard P. Adolescents' perception of risk and challenge: a qualitative study. J Adolescence 2006;29:261-72. http://dx.doi.org/10.1016/j.adolescence.2005.05.012
18. Horne R. Compliance, adherence and concordance: implications for asthma treatment. Chest 2006;130:65-72. http://dx.doi.org/10.1378/chest.130.1_suppl.65S
19. Soar J, Pumphrey R, Cant A, et al. Emergency treatment of anaphylactic reactionsguidelines for healthcare providers. Resuscitation 2008;77:157-69. http://dx.doi.org/10.1016/j.resuscitation.2008.02.001
20. Simons FER, Clark S, Camargo CA. Anaphylaxis in the community: learning from the survivors. J Allergy Clin Immunol 2009;124:301-06. http://dx.doi.org/10.1016/j.jaci.2009.03.050
21. Sawyer SM, Drew S, Yeo MS, Britto MT. Adolescents with a chronic condition: challenges living, challenges treating. Lancet 2007;369:1481-9. http://dx.doi.org/10.1016/S0140-6736(07)60370-5
22. Pope C, Ziebland S, Mays N. Qualitative research in health care: analysing qualitative data. BMJ 2000;320:114-16. http://dx.doi.org/10.1136/bmj.320.7227.114
23. Ewan PW, Clark AT. Efficacy of a management plan based on severity assessment in longitudinal and case-controlled studies of 747 children with nut allergy: proposal for good practice. Clin Exp Allergy 2005;35:751-6. http://dx.doi.org/10.1111/j.1365-2222.2005.02266.x
24. Worth A, Nurmatov U, Sheikh A. Key components of anaphylaxis management plans: consensus findings from a national electronic Delphi study. J R Soc Med Sh Rep 2010;1:42. http://dx.doi.org/10.1258/shorts.2010.010060
25. Hourihane JO.B, Beirne P. Evidence of effectiveness of anaphylaxis management plans: are we waiting for Godot? Clin Exp Allergy 2007;37:967-9. http://dx.doi.org/10.1111/j.1365-2222.2007.02754.x
26. Royal College of Paediatrics and Child Health (RCPCH). Care pathway for anaphylaxis. London: RCPCH, 2011. Available at: www.rcpch.ac.uk/allergy/anaphylaxis (accessed 24 Aug 2011)
27. Pumphrey RSH. Lessons for management of anaphylaxis from a study of fatal reactions. Clin Exp Allergy 2000;30:1144-50. http://dx.doi.org/10.1046/j.1365-2222.2000.00864.x
28. Leitch IS, Walker MJ, Davey R. Food allergy: gambling your life on a take-away meal. Int J Env Health Res 2005;15:79-87. http://dx.doi.org/10.1080/09603120500062052
29. Food Standards Agency. 'May contain' labelling: the consumer's perspective. London: Food Standards Agency, 2002. Available at: www.food.gov.uk/multimedia/pdfs/maycontainreport.pdf (accessed 12 Apr 2012)
30. Primeau M-N, Kagan R, Joseph L, et al. The psychological burden of peanut allergy as perceived by adults with peanut allergy and the parents of peanut-allergic children. Clin Exp Allergy 2000;30:1135-43. http://dx.doi.org/10.1046/j.1365-2222.2000.00889.x
31. Sicherer SH, Forman JA, Noone SA. Use assessment of self-administered epinephrine among food-allergic children and pediatricians. Pediatrics 2000;105:359-62. http://dx.doi.org/10.1542/peds.105.2.359
32. Kennedy A, Sloman F, Douglass JA, Sawyer SM. Young people with chronic illness: the approach to transition. Intern Med J 2007;37:555-60. http://dx.doi.org/10.1111/j.1445-5994.2007.01440.x
33. Lugasi T, Achille M, Stevenson M. Patients' perspective on factors that facilitate transition from child-centered to adult-centered health care: a theory integrated metasummary of quantitative and qualitative studies. J Adolesc Health 2011;48:429-40. http://dx.doi.org/10.1016/j.jadohealth.2010.10.016
34. Upton J, Madoc-Sutton H, Sheikh A, Frank TL, Walker S, Fletcher M. National survey on the roles and training of primary care respiratory nurses in the UK in 2006: are we making progress? Prim Care Respir J 2007;16:284-90. http://dx.doi.org/10.3132/pcrj.2007.00068