Patients' perspective on factors that facilitate transition from child-centered to adult-centered health care: A theory integrated metasummary of quantitative and qualitative studies

Journal of Adolescent Health

Volumn 48, Issue 5, 2011, Pages 429-440

  Lugasi, Tziona ^a   Achille, Marie ^a   Stevenson, Moire ^a  

^a UNIVERSITÉ DE MONTRÉAL   (Canada)

Author keywords

Adolescence adolescent; Adult centered care; Child centered care; Chronic illness; Metasummary; Systematic review; Transition

Indexed keywords

CHILD CARE; EMOTION; HEALTH CARE; HEALTH CARE PERSONNEL; HEALTH CENTER; HUMAN; INDEPENDENCE; PERCEPTION; PRIORITY JOURNAL; QUALITATIVE ANALYSIS; QUANTITATIVE ANALYSIS; REVIEW;

ADOLESCENT; ADOLESCENT DEVELOPMENT; CONTINUITY OF PATIENT CARE; HUMANS; PATIENT SATISFACTION; PATIENTS;

EID: 79955009064     PISSN: 1054139X     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jadohealth.2010.10.016     Document Type: Review

References (65)

1. R.W. Blum, D. Garell, and C.H. Hodgman Transition from child-centered to adult health-care systems for adolescents with chronic conditions A position paper for the Society of Adolescent Medicine J Adolesc Health 14 1993 570 576 (Pubitemid 23345069)
2. P. Scal Transition for youth with chronic conditions: Primary care physicians' approaches Pediatrics 110 2002 1315 1321 (Pubitemid 35425173)
3. L. Rew Adolescent Health: A Multidisciplinary Approach to Theory, Research, and Intervention 2005 Sage Publications Thousand Oaks, CA
4. A.M. Kelly, B. Kratz, M. Bielski, and P.M. Rinehart Implementing transitions for youth with complex chronic conditions using the medical home model Pediatrics 110 2002 1322 1327 (Pubitemid 35425174)
5. D.V. Shidlow, and S.B. Fiel Life beyond pediatrics: Transition of chronically ill adolescents from pediatric to adult health care systems Med Clin North Am 74 1990 1113 1120 (Pubitemid 20278210)
6. D.S. Rosen Transition of young people with respiratory diseases to adult health care Paediatr Respir Rev 5 2004 124 131 (Pubitemid 38701811)
7. S. Madge, and M. Bryon A model for transition from pediatric to adult care in cystic fibrosis J Pediatr Nurs 17 2002 283 288 (Pubitemid 40433691)
8. D.S. Rosen Between two worlds: Bridging the cultures of child health and adult medicine J Adolesc Health 17 1995 10 16
9. L. Landau Cystic fibrosis: Transition from paediatric to adult physician's care Thorax 50 1995 1031 1032
10. K.L. Shaw, T.R. Southwood, and J.E. McDonagh User perspectives of transitional care for adolescents with juvenile idiopathic arthritis Rheumatology 43 2004 770 778 (Pubitemid 38807436)
11. J.E. McDonagh Growing up and moving on: Transition from pediatric to adult care Pediatr Transplant 9 2005 364 372 (Pubitemid 40780370)
12. R. Viner Transition from paediatric to adult care Bridging the gaps or passing the buck? Arch Dis Child 81 1999 271 275 (Pubitemid 29398392)
13. L.M.J. Stehl Transition Readiness in Adolescents with Blood Disorders: The Importance of Family Functioning and Parent-Adolescent Communication Style [dissertation] 2005 Drexel University Philadelphia, PA
14. R.W. Blum Consensus statement on health care transitions for young adult with special health care needs Pediatrics 110 2002 1301 1303 (Pubitemid 35425170)
15. American Academy of Pediatric, American Academy of Family Physicians, American College of Physicians American Society of Internal Medicine Consensus statement on health care transitions for young adult with special health care needs Pediatrics 110 2002 1304 1306
16. D.S. Rosen, R.W. Blum, and M. Britto Transition to adult health care for adolescents and young adults with chronic conditions Position paper of the Society for Adolescent Medicine J Adolesc Health 33 2003 309 311
17. J.S. Cameron The continued care of children with renal disease into adult life Pediatr Nephrol 16 2002 680 685
18. A. Dabadie, F. Trobadec, and L. Heresbach Transition of patients with inflammatory bowel disease from pediatric to adult care Gastroenterol Clin Biol 32 2008 451 459
19. G.L. Freed, and E.J. Hudson Transitioning children with chronic diseases to adult care: Current knowledge, practices, and directions J Pediatr 148 2006 824 827 (Pubitemid 43849823)
20. M. Sandelowski, J. Barroso, and C. Voils Using qualitative metasummary to synthesize qualitative and quantitative descriptive findings Res Nurs Health 30 2007 99 111
21. K. Brumfield, and G. Lansbury Experiences of adolescents with cystic fibrosis during their transition from pediatric to adult health care: A qualitative study of young Australian adults Disabil Rehabil 26 2004 223 234 (Pubitemid 38325153)
22. E.S. Hauser, and L. Dorn Transitioning adolescents with sickle cell disease to adult-centred care Pediatr Nur 25 1999 479 488
23. J. Kirk, and P. Clayton Specialist services and transitional care in paediatric endocrinology in the UK and Ireland Clin Endocrinol 65 2006 59 63
24. C. McCurdy, A. DiCenso, and S. Boblin There to here: Young adult patients' perceptions of the process of transition from pediatric to adult transplant care Prog Transplant 16 2006 309 316 (Pubitemid 44902090)
25. K. Miles, S. Edwards, and M. Clapson Transition from paediatric to adult services: Experiences of HIV-positive adolescents AIDS Care 16 2004 305 314 (Pubitemid 38478926)
26. P. Moons, S. Pixten, and D. Dedroog Expectations and experiences of adolescents with congenital heart disease on being transferred from pediatric cardiology to an adult congenital heart disease program J Adolesc Health 44 2009 316 322
27. D.L. Patterson, and C. Lanier Adolescent health transitions: Focus group study of teens and young adults with special health care Fam Community Health 22 1999 43 58
28. J. Reiss, R.W. Gibson, and L.R. Walker Health care transition: Youth, family, and provider perspectives Pediatrics 115 2005 112 120 (Pubitemid 43046289)
29. S.M. Sawyer, D.B. Collins, and D. Brown Young people with spina bifida: Transfer from paediatric to adult health care J Paediatr Child Health 34 1998 414 417 (Pubitemid 28481723)
30. C. Soanes, and S. Timmons Improving transition: A qualitative study examining the attitudes of young people with chronic illness transferring to adult care J Child Health Care 8 2004 102 112
31. L.K. Tuchman, G.B. Slap, and M.T. Britto Transition to adult care: Experiences and expectations of adolescents with a chronic illness Child Care Health Dev 34 2008 557 563
32. J. Zach, C.P. Jacobs, and P.M. Keenan Perspectives of patients with cystic fibrosis on preventive counseling and transition to adult care Pediatr Pulmonol 36 2003 376 383 (Pubitemid 37296697)
33. A.C. Malbrunot-Wagner, F. Bonnemains, and E.D. Troussier Transition from pediatric to adult care: Experience of a cystic fibrosis care center Arch Pediatr 16 2009 235 242
34. M.P. Boyle, Z. Farukhi, and M.L. Nosky Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views Pediatr Pulmonol 32 2001 428 436 (Pubitemid 33121653)
35. L. Wiener, M. Zobel, and H. Battles Transition from a pediatric HIV intramural clinical research program to adolescent and adult community based care services: Assessing transition readiness Soc Work Health Care 46 2004 1 18
36. A.T.R. Westwood, L.D. Henley, and P. Wilcox Transition from pediatric to adult care for persons with cystic J Paediatr Child Health 35 1999 442 445
37. M. McPherson, L. Thaniel, and C.P. Minniti Transition of patients with sickle cell disease from pediatric to adult care: Assessing patients' readiness Pediatr Blood Cancer 52 2009 838 841
38. K. Steinbeck, and L. Brodie Bringing in the voices: A transition forum for young people with chronic illness or disability Neonatal Paediatr Child Health Nurs 9 2006 22 27
39. K. Visentin, T. Koch, and D. Kralik Adolescents with Type 1 diabetes: Transition between diabetes services J Clin Nurs 15 2006 761 769 (Pubitemid 43965690)
40. D.L. Anderson, P.A. Flume, and K.K. Hardy Transition programs in cystic fibrosis centers Pediatr Pulmonol 33 2002 327 331
41. G. Dovey-Pearce, R. Hurrel, and C. May Young adults' (16-25) suggestions for providing developmentally appropriate diabetes services: A qualitative study Health Soc Care Community 13 2005 409 419 (Pubitemid 41137419)
42. K.L. Shaw, T.R. Southwood, and J.E. McDonagh Young people's satisfaction of transitional care in adolescent rheumatology in the UK Child Care Dev 33 2006 368 379
43. L. Scott, M. Vallis, and M. Charrette Transition of care: Researching the needs of young adults with Type 1 diabetes Can J Diabetes 29 2005 203 210 (Pubitemid 43741136)
44. J. Wray, and L. Maynard Specialist cardiac services: What do young people want? Cardiol Young 18 2008 569 574
45. I.L. Ostlie, O. Dale, and A. Moller From childhood to adult life with juvenile idiopathic arthritis (JIA): A pilot study Disabil Rehabil 29 2007 445 452 (Pubitemid 47161301)
46. S.J. Anthony, M. Kaufman, and A. Drabble Perceptions of transitional care needs and expriences in pediatric heart transplant recipients Am J Transplant 9 2009 614 619
47. D. Pacaud, J.F. Yale, and D. Stephure Problems in transition from pediatric care to adult care for individuals with diabetes Can J Diabetes 29 2005 13 18 (Pubitemid 43733694)
48. M.T. Russell, J. Reinhold, and H.J. Maltby Transferring to adult health care: Experiences of adolescents with cystic fibrosis J Pediatr Nurs 11 1996 262 268
49. S. Stabile, R. Lynette, and K.M. Porterfield Transfer versus transition: Success in pediatric transplantation brings the welcome challenge of transition Prog Transplant 15 2005 363 371
50. F.P. Busse, P. Hiermann, and A. Galler Evaluation of patients' opinion and metabolic control after transfer of young adults with type 1 diabetes from a pediatric diabetes clinic to adult care Horm Res 67 2007 132 138 (Pubitemid 46355586)
51. S. Chatuverdi, C.L. Jones, and G. Walker The transition of kidney transplant recipients: A work in progress Pediatr Nephrol 24 2009 1055 1060
52. R.A. Annunziato, S. Emre, and B.L. Shneider Adherence and medical outcomes in pediatric liver transplant recipients who transition to adult services Pediatr Transplant 11 2007 608 614 (Pubitemid 47174384)
53. S. Kipps, K. Bahu, and R.S. Ackland Current methods of transfer of young people with Type 1 diabetes to adult services Diabet Med 19 2002 649 654 (Pubitemid 34985165)
54. I. Duguproux, A. Tamalet, and I. Sermet-Gaudelus Clinical changes of patients with cystic fibrosis during transition from pediatric to adult care J Adolesc Health 43 2008 459 465
55. J.E. McDonagh, T.R. Southwood, and K.L. Shaw The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis Rheumathol 46 2007 161 168 (Pubitemid 44932806)
56. N. Van Walleghem, C.A. MacDonald, and H.J. Dean Evaluation of a systems navigator model for transition from pediatric to adult care for young adults with type 1 diabetes Diabetes Care 31 2008 1529 1530
57. S.M. Koshy, D. Hebert, and K. Lam Renal allograft loss during transition to adult healthcare services among pediatric renal transplant patients Clin Transational Res 87 2009 1733 1736
58. G.J. Reid, M.J. Irvine, and B.W. McCrindle Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects Pediatrics 113 2004 197 205
59. C. Sparud-Lundin, I. Ohrn, and E. Danielson Glycaemic control and diabetes care utilization in young adults with Type 1 diabetes Diabet Med 25 2008 968 973
60. E.A. Wojciechowski, A. Hurtig, and L. Dorn A natural history study of adolescents and young adults with sickle cell disease as they transfer to adult care: A need for case management services J Pediatr Nurs 17 2002 18 27 (Pubitemid 40439259)
61. A.R. Watson Non-compliance and transfer from paediatric to adult transplant unit Pediatr Nephrol 14 2000 469 472 (Pubitemid 30319234)
62. D.P. Orr, N.S. Fineberg, and D.L. Gray Glycemic control and transfer of health care among adolescents with insulin dependent diabetes mellitus J Adolesc Health 18 1996 44 47 (Pubitemid 26061945)
63. D.J. Holmes-Walker, A.C. Llewellyn, and K. Farrell A transition programme which improves diabetes control and reduces hospital admission rates in young adults with Type 1 diabetes aged 1525 years Diabet Med 24 2006 764 769 (Pubitemid 47012129)
64. K.L. Schumacher, and A.I. Meleis Transitions: A central concept in nursing Imag J Nurs Sch 26 1994 125 127
65. C.H. Gibson A concept analysis of empowerment J Adv Nurs 16 1991 354 361