메뉴 건너뛰기




Volumn 117, Issue 6, 2012, Pages 509-532

Unique and universal barriers: Hospice care for aging adults with intellectual disability

Author keywords

End of life; Hospice; Intellectual disability; Palliative care

Indexed keywords

AGED; AGING; EDUCATION; HEALTH CARE DELIVERY; HEALTH CARE PERSONNEL; HOSPICE; HUMAN; INTELLECTUAL IMPAIRMENT; META ANALYSIS; NOMENCLATURE; PALLIATIVE THERAPY; PATIENT REFERRAL; PHYSIOLOGY; REVIEW; STATISTICS; UNITED STATES;

EID: 84870519741     PISSN: 19447515     EISSN: 19447558     Source Type: Journal    
DOI: 10.1352/1944-7558-117.6.509     Document Type: Article
Times cited : (40)

References (104)
  • 1
    • 77950692246 scopus 로고    scopus 로고
    • Quality of end-of-life care for dementia patients during acute hospital admission: A retrospective study in Ireland
    • doi:10.1016/j.genhosppsych.2009.10.003
    • Afzal, N., Buhagiar K., Flood, J., & Cosgrave, M. (2010). Quality of end-of-life care for dementia patients during acute hospital admission: A retrospective study in Ireland. General Hospital Psychiatry, 32(2), 141-146. doi:10.1016/j.genhosppsych.2009.10.003
    • (2010) General Hospital Psychiatry , vol.32 , Issue.2 , pp. 141-146
    • Afzal, N.1    Buhagiar, K.2    Flood, J.3    Cosgrave, M.4
  • 2
    • 4544375100 scopus 로고    scopus 로고
    • Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals
    • DOI 10.1191/0269216304pm921oa
    • Ahmed, N., Bestall, J. C., & Ahmedzai, S. H. (2004). Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals. Palliative Medicine, 18, 525-542. (Pubitemid 39242799)
    • (2004) Palliative Medicine , vol.18 , Issue.6 , pp. 525-542
    • Ahmed, N.1    Bestall, J.C.2    Ahmedzai, S.H.3    Payne, S.A.4    Clark, D.5    Noble, B.6
  • 4
    • 77950215736 scopus 로고    scopus 로고
    • Palliative or hospice care? Understanding the similarities and differences
    • Batchelor, N. H. (2010). Palliative or hospice care? Understanding the similarities and differences. Rehabilitation Nursing, 35(2), 60-64.
    • (2010) Rehabilitation Nursing , vol.35 , Issue.2 , pp. 60-64
    • Batchelor, N.H.1
  • 5
    • 16444371049 scopus 로고    scopus 로고
    • Sisters to the end: The rights of the mentally retarded to refuse treatment
    • doi:10.1177/104990910502200215
    • Baumrucker, S. J. (2005). Sisters to the end: The rights of the mentally retarded to refuse treatment. American Journal of Hospice and Palliative Medicine, 22(2), 153-157. doi:10.1177/104990910502200215
    • (2005) American Journal of Hospice and Palliative Medicine , vol.22 , Issue.2 , pp. 153-157
    • Baumrucker, S.J.1
  • 9
    • 0033846020 scopus 로고    scopus 로고
    • Integrating end of life care into services for people with an intellectual disability
    • Botsford, A. L. (2000). Integrating end of life care into services for people with an intellectual disability. Social Work in Health Care, 31(1), 35-48. (Pubitemid 30662105)
    • (2000) Social Work in Health Care , vol.31 , Issue.1 , pp. 35-48
    • Botsford, A.L.1
  • 10
    • 4344561194 scopus 로고    scopus 로고
    • Status of end of life care in organizations providing services for older people with a developmental disability
    • Botsford, A. L. (2004). Status of end of life care in organizations providing services for older people with a developmental disability. American Journal on Mental Retardation, 109(5), 421-428.
    • (2004) American Journal on Mental Retardation , vol.109 , Issue.5 , pp. 421-428
    • Botsford, A.L.1
  • 11
    • 84870478717 scopus 로고    scopus 로고
    • End-of-life policies and practices
    • S. L. Friedman & D. T. Helm Eds., Washington, DC: American Association on Intellectual and Developmental Disabilities
    • Botsford, A. L., & King, A. (2010). End-of-life policies and practices. In S. L. Friedman & D. T. Helm (Eds.), End-of-life care for children and adults with intellectual and developmental disabilities (pp. 13-29). Washington, DC: American Association on Intellectual and Developmental Disabilities.
    • (2010) End-of-life Care for Children and Adults with Intellectual and Developmental Disabilities , pp. 13-29
    • Botsford, A.L.1    King, A.2
  • 13
    • 4444272626 scopus 로고    scopus 로고
    • A proactive approach to improve end-of-life care in a medical intensive care unit for patients with terminal dementia
    • DOI 10.1097/01.CCM.0000138560.56577.88
    • Campbell, M. L., & Guzman, J. A. (2004). A proactive approach to improve end-of-life care in a medical intensive care unit for patients with terminal dementia. Critical Care Medicine, 32(9), 1839-1843. doi:10.1097/01. CCM.0000138560. 56577.88 (Pubitemid 39202358)
    • (2004) Critical Care Medicine , vol.32 , Issue.9 , pp. 1839-1843
    • Campbell, M.L.1    Guzman, J.A.2
  • 14
    • 77950498030 scopus 로고    scopus 로고
    • Exploring the needs of hospice staff supporting people with an intellectual disability: A UK perspective
    • Cartlidge, D., & Read, S. (2010). Exploring the needs of hospice staff supporting people with an intellectual disability: A UK perspective. International Journal of Palliative Nursing, 16(2), 93-98.
    • (2010) International Journal of Palliative Nursing , vol.16 , Issue.2 , pp. 93-98
    • Cartlidge, D.1    Read, S.2
  • 15
    • 35448972953 scopus 로고    scopus 로고
    • Facts and indicators on palliative care development in 52 countries of the WHO European region: Results of an EAPC task force
    • DOI 10.1177/0269216307081942
    • Centeno, C., Clark, D., Lynch, T., Rocafort, J., Praill, D., De Lima, L., ⋯ Giordano, A. (2007). Facts and indicators on palliative care development in 52 countries of the WHO European region: Results of an EAPC task force. Palliative Medicine, 21(6), 463-471. doi:10.1177/0269216307081942 (Pubitemid 47616600)
    • (2007) Palliative Medicine , vol.21 , Issue.6 , pp. 463-471
    • Centeno, C.1    Clark, D.2    Lynch, T.3    Rocafort, J.4    Praill, D.5    De Lima, L.6    Greenwood, A.7    Flores, L.A.8    Brasch, S.9    Giordano, A.10
  • 16
    • 0002252541 scopus 로고    scopus 로고
    • Originating a movement: Cicely saunders and the development of St. Christopher's hospice, 1957-1967
    • doi:10.1080/713685885
    • Clark, D. (1998). Originating a movement: Cicely Saunders and the development of St. Christopher's Hospice, 1957-1967. Mortality: Promoting the Interdisciplinary Study of Death and Dying, 3(1), 43-63. doi:10.1080/713685885
    • (1998) Mortality: Promoting the Interdisciplinary Study of Death and Dying , vol.3 , Issue.1 , pp. 43-63
    • Clark, D.1
  • 17
    • 36749054213 scopus 로고    scopus 로고
    • Development of hospice and palliative care in the United States
    • Connor, S. R. (2007). Development of hospice and palliative care in the United States. Journal of Death and Dying, 56(1), 89-99.
    • (2007) Journal of Death and Dying , vol.56 , Issue.1 , pp. 89-99
    • Connor, S.R.1
  • 18
    • 0031976949 scopus 로고    scopus 로고
    • A clinical study of the effects of age on the physical health of adults with mental retardation
    • Cooper, S. A. (1998). A clinical study of the effects of age on the physical health of adults with mental retardation. American Journal on Mental Retardation, 102, 582-589.
    • (1998) American Journal on Mental Retardation , vol.102 , pp. 582-589
    • Cooper, S.A.1
  • 19
    • 4344669148 scopus 로고    scopus 로고
    • People with intellectual disabilities
    • Cooper, S., Melville, C., & Morrison, J. (2004). People with intellectual disabilities. British Medical Journal, 329, 414-415. (Pubitemid 39141469)
    • (2004) British Medical Journal , vol.329 , Issue.7463 , pp. 414-415
    • Cooper, S.-A.1    Melville, C.2    Morrison, J.3
  • 20
    • 84861607313 scopus 로고    scopus 로고
    • New and emerging treatments for Alzheimer's disease
    • doi:10.1517/14728214.2012.675327
    • Corbett, A., & Ballard, C. (2012). New and emerging treatments for Alzheimer's disease. Expert Opinion on Emerging Drugs, 17(2), 147-156. doi:10.1517/14728214.2012.675327
    • (2012) Expert Opinion on Emerging Drugs , vol.17 , Issue.2 , pp. 147-156
    • Corbett, A.1    Ballard, C.2
  • 21
    • 77951875044 scopus 로고    scopus 로고
    • Learning disabilities and dying
    • doi:10.1089/jpm.2009.0303
    • Crawford, H. (2010). Learning disabilities and dying. Journal of Palliative Medicine, 13(4), 361-363. doi:10.1089/jpm.2009.0303
    • (2010) Journal of Palliative Medicine , vol.13 , Issue.4 , pp. 361-363
    • Crawford, H.1
  • 23
    • 78649619606 scopus 로고    scopus 로고
    • End-of-life care policies in flemish residential care facilities accommodating persons with intellectual disabilities
    • doi:10.1111/j.1365-2788.2010.01335.x
    • D'Haene, I., Pasman, H. R. W., Deliens, L., Bilsen, J., Mortier, F., & Vander Stichele, R. (2010). End-of-life care policies in Flemish residential care facilities accommodating persons with intellectual disabilities. Journal of Intellectual Disability Research, 54(12), 1067-1077. doi:10.1111/j.1365-2788.2010.01335.x
    • (2010) Journal of Intellectual Disability Research , vol.54 , Issue.12 , pp. 1067-1077
    • D'Haene, I.1    Pasman, H.R.W.2    Deliens, L.3    Bilsen, J.4    Mortier, F.5    Stichele, V.R.6
  • 26
    • 73349122899 scopus 로고    scopus 로고
    • Developing an education intervention for staff supporting persons with an intellectual disability and advanced dementia
    • doi:10.1111/j.1741-1130.2009.00231.x
    • Fahey-McCarthy, E., McCarron, M., Connaire, K., & McCallion, P. (2009). Developing an education intervention for staff supporting persons with an intellectual disability and advanced dementia. Journal of Policy and Practice in Intellectual Disabilities, 6(4), 267-275. doi:10.1111/j.1741-1130.2009. 00231.x
    • (2009) Journal of Policy and Practice in Intellectual Disabilities , vol.6 , Issue.4 , pp. 267-275
    • Fahey-McCarthy, E.1    McCarron, M.2    Connaire, K.3    McCallion, P.4
  • 27
    • 5044229431 scopus 로고    scopus 로고
    • Detecting pain in people with an intellectual disability
    • DOI 10.1016/j.aaen.2004.06.002, PII S0965230204000475
    • Foley, D. C., & McCutcheon, H. (2004). Detecting pain in people with an intellectual disability. Accident and Emergency Nursing, 12(4), 196-200. (Pubitemid 39335696)
    • (2004) Accident and Emergency Nursing , vol.12 , Issue.4 , pp. 196-200
    • Foley, D.C.1    McCutcheon, H.2
  • 28
    • 84993734402 scopus 로고    scopus 로고
    • Who cares? Contextual layers in end-of-life care for people with intellectual disability and dementia
    • Forbat, L., & Service, K. P. (2005). Who cares? Contextual layers in end-of-life care for people with intellectual disability and dementia. Dementia, 4(3), 413.
    • (2005) Dementia , vol.4 , Issue.3 , pp. 413
    • Forbat, L.1    Service, K.P.2
  • 30
    • 34548618861 scopus 로고    scopus 로고
    • Supporting people with intellectual disability in the cancer journey: The "living with cancer" Communication pack
    • Gilbert, T., Wilkinson, T., & Crudgington, S. (2007). Supporting people with intellectual disability in the cancer journey: The "Living with Cancer" communication pack. European Journal of Oncology Nursing, 11, 357-361.
    • (2007) European Journal of Oncology Nursing , vol.11 , pp. 357-361
    • Gilbert, T.1    Wilkinson, T.2    Crudgington, S.3
  • 31
    • 27244443700 scopus 로고    scopus 로고
    • Integrating palliative care into chronic care for children with severe neurodevelopmental disabilities
    • DOI 10.1097/00004703-200510000-00004
    • Graham, B. J., & Robinson, W. M. (2005). Integrating palliative care into chronic care for children with severe neurodevelopmental disabilities. Developmental and Behavioral Pediatrics, 26(5), 361-365. (Pubitemid 41518839)
    • (2005) Journal of Developmental and Behavioral Pediatrics , vol.26 , Issue.5 , pp. 361-365
    • Graham, R.J.1    Robinson, W.M.2
  • 32
    • 79952459841 scopus 로고    scopus 로고
    • Development and evaluation of a staff training program on palliative care for persons with intellectual and developmental disabilities
    • doi:10.1111/j.1741-1130.2011.00288.x
    • Hahn, J. E., & Cadogan, M. P. (2011). Development and evaluation of a staff training program on palliative care for persons with intellectual and developmental disabilities. Journal of Policy and Practice in Intellectual Disabilities, 8(1), 42-52. doi:10.1111/j.1741-1130.2011.00288.x
    • (2011) Journal of Policy and Practice in Intellectual Disabilities , vol.8 , Issue.1 , pp. 42-52
    • Hahn, J.E.1    Cadogan, M.P.2
  • 33
    • 34249816514 scopus 로고    scopus 로고
    • A family facing end of life issues with a person with learning disabilities: A personal reflection
    • Harwood, I. (2007). A family facing end of life issues with a person with learning disabilities: A personal reflection. British Journal of Learning Disabilities, 35, 102-106.
    • (2007) British Journal of Learning Disabilities , vol.35 , pp. 102-106
    • Harwood, I.1
  • 34
    • 84870565403 scopus 로고    scopus 로고
    • Constructing a "good death": Historical and social frameworks
    • S. L. Friedman & D. T. Helm Eds., Washington, DC: American Association on Intellectual and Developmental Disabilities
    • Helm, D. T., & Friedman, S. L. (2010). Constructing a "good death": Historical and social frameworks. In S. L. Friedman & D. T. Helm (Eds.), End-of-life care for children and adults with intellectual and developmental disabilities (pp. 3-12). Washington, DC: American Association on Intellectual and Developmental Disabilities.
    • (2010) End-of-life Care for Children and Adults with Intellectual and Developmental Disabilities , pp. 3-12
    • Helm, D.T.1    Friedman, S.L.2
  • 37
    • 15844419779 scopus 로고    scopus 로고
    • Older people with learning disabilities, part 1: Individuals, ageing and health
    • Jenkins, R. (2005). Older people with learning disabilities, part 1: Individuals, ageing and health. Nursing Older People, 16(10), 30-34.
    • (2005) Nursing Older People , vol.16 , Issue.10 , pp. 30-34
    • Jenkins, R.1
  • 38
    • 0038043155 scopus 로고    scopus 로고
    • Access to hospice care: Expanding boundaries, overcoming barriers
    • S9-13, S15-21, March-April
    • Jennings, B., Ryndes, T., D'Onofrio, C., & Baily, M. A. (2003, March-April). Access to hospice care: Expanding boundaries, overcoming barriers. The Hastings Report, Supplement, S3-7, S9-13, S15-21.
    • (2003) The Hastings Report, Supplement
    • Jennings, B.1    Ryndes, T.2    D'Onofrio, C.3    Baily, M.A.4
  • 39
    • 84870484612 scopus 로고    scopus 로고
    • Practical guide to health care decision making
    • S. L. Friedman & D. T. Helm Eds., Washington, DC: American Association on Intellectual and Developmental Disabilities
    • Johnson, B. B. (2010). Practical guide to health care decision making. In S. L. Friedman & D. T. Helm (Eds.), End-of-life care for children and adults with intellectual and developmental disabilities (pp. 133-146). Washington, DC: American Association on Intellectual and Developmental Disabilities.
    • (2010) End-of-life Care for Children and Adults with Intellectual and Developmental Disabilities , pp. 133-146
    • Johnson, B.B.1
  • 40
    • 33947662194 scopus 로고    scopus 로고
    • Palliative care and people with learning disabilities
    • Jones, A. (2003). Palliative care and people with learning disabilities. Learning Disability Practice, 6(7), 30-36. (Pubitemid 37089760)
    • (2003) Learning Disability Practice , vol.6 , Issue.7 , pp. 30-36
    • Jones, A.1
  • 41
    • 32544441548 scopus 로고    scopus 로고
    • A cascade of disparities: Health and health care access for people with intellectual disabilities
    • DOI 10.1002/mrdd.20098
    • Krahn, G. L., Hammond, L., & Turner, A. (2006). A cascade of disparities: Health and health care access for people with intellectual disabilities. Mental Retardation and Developmental Disabilities, 12, 70-82. (Pubitemid 43238126)
    • (2006) Mental Retardation and Developmental Disabilities Research Reviews , vol.12 , Issue.1 , pp. 70-82
    • Krahn, G.L.1    Hammond, L.2    Turner, A.3
  • 42
    • 0034523327 scopus 로고    scopus 로고
    • Dignity or denial? Decisions regarding initiation of dialysis and medical therapy in the institutionalized severely mentally retarded
    • Kujdych, N., Lowe, D. A., Sparks, J., Dottes, A., & Crook, E. D. (2000). Dignity or denial? Decisions regarding initiation of dialysis and medical therapy in the institutionalized severely mentally retarded. The American Journal of the Medical Sciences, 320(6), 374-378. (Pubitemid 32046954)
    • (2000) American Journal of the Medical Sciences , vol.320 , Issue.6 , pp. 374-378
    • Douglas, S.P.1    Kujdych, N.2    Lowe, D.A.3    Sparks, J.4    Dottes, A.5    Crook, E.D.6
  • 43
    • 57149135338 scopus 로고    scopus 로고
    • End-of-life care: Nurses' experiences in caring for dying patients with profound learning disabilities-A descriptive case study
    • Li, S., & Ng, J. (2008). End-of-life care: Nurses' experiences in caring for dying patients with profound learning disabilities-A descriptive case study. Palliative Medicine, 22(8), 949-955.
    • (2008) Palliative Medicine , vol.22 , Issue.8 , pp. 949-955
    • Li, S.1    Ng, J.2
  • 44
    • 0034151323 scopus 로고    scopus 로고
    • District nurses' needs: Palliative care for people with learning disabilities
    • Lindop, E., & Read, S. (2000). District nurses' needs: Palliative care for people with learning disabilities. International Journal of Palliative Nursing, 6(3), 117-122.
    • (2000) International Journal of Palliative Nursing , vol.6 , Issue.3 , pp. 117-122
    • Lindop, E.1    Read, S.2
  • 45
    • 84870538341 scopus 로고    scopus 로고
    • Macmillan Cancer Support. (2011). Macmillan nurses. Available at http://www.macmillan.org.uk/HowWeCanHelp/Nurses/AboutMacmillanNurses.aspx
    • (2011) Macmillan Nurses
  • 46
    • 55949107294 scopus 로고    scopus 로고
    • "A voyage of grief and beauty": Supporting a dying family member with an intellectual disability
    • Marlow, S., & Martin, M. (2008). "A voyage of grief and beauty": Supporting a dying family member with an intellectual disability. International Journal of Palliative Nursing, 14(7), 342-349.
    • (2008) International Journal of Palliative Nursing , vol.14 , Issue.7 , pp. 342-349
    • Marlow, S.1    Martin, M.2
  • 47
    • 77952296080 scopus 로고    scopus 로고
    • One size fits all: Palliative care for people with learning disabilities
    • Matthews, D., Gibson, L., & Regnard, C. (2010). One size fits all: Palliative care for people with learning disabilities. British Journal of Hospital Medicine, 71(1), 40-43.
    • (2010) British Journal of Hospital Medicine , vol.71 , Issue.1 , pp. 40-43
    • Matthews, D.1    Gibson, L.2    Regnard, C.3
  • 48
    • 34247108296 scopus 로고    scopus 로고
    • End-oflife care challenges for persons with intellectual disability and dementia: Making decisions about tube feeding
    • McCarron, M., & McCallion, P. (2007). End-oflife care challenges for persons with intellectual disability and dementia: Making decisions about tube feeding. Intellectual and Developmental Disabilities, 45(2), 128-131.
    • (2007) Intellectual and Developmental Disabilities , vol.45 , Issue.2 , pp. 128-131
    • McCarron, M.1    McCallion, P.2
  • 49
    • 77955992088 scopus 로고    scopus 로고
    • Staff perceptions of essential prerequisites underpinning endof-life care for persons with intellectual disability and advanced dementia
    • McCarron, M., McCallion, P., Fahey-McCarthy, E., & Connaire, K. (2010). Staff perceptions of essential prerequisites underpinning endof-life care for persons with intellectual disability and advanced dementia. Journal of Policy and Practice in Intellectual Disabilities, 7(2), 143-152.
    • (2010) Journal of Policy and Practice in Intellectual Disabilities , vol.7 , Issue.2 , pp. 143-152
    • McCarron, M.1    McCallion, P.2    Fahey-McCarthy, E.3    Connaire, K.4
  • 52
    • 50149096628 scopus 로고    scopus 로고
    • Breaking bad news of cancer to people with learning disabilities
    • doi:10.1111/j.1468-3156.2008.00517.x
    • McEnhill, L. S. (2008). Breaking bad news of cancer to people with learning disabilities. British Journal of Learning Disabilities, 36(3), 157-164. doi:10.1111/j.1468-3156.2008.00517.x
    • (2008) British Journal of Learning Disabilities , vol.36 , Issue.3 , pp. 157-164
    • McEnhill, L.S.1
  • 53
    • 0043021922 scopus 로고    scopus 로고
    • Barriers to physicians' decisions to discuss hospice: Insights gained from the United States hospice model
    • DOI 10.1046/j.1365-2753.2003.00406.x
    • McGorty, E. K., & Bornstein, B. H. (2003). Barriers to physicians' decisions to discuss hospice: Insights gained from the United States hospice model. Journal of Evaluation in Clinical Practice, 9(3), 363-372. (Pubitemid 36999142)
    • (2003) Journal of Evaluation in Clinical Practice , vol.9 , Issue.3 , pp. 363-372
    • McGorty, E.K.1    Bornstein, B.H.2
  • 55
    • 84993017448 scopus 로고    scopus 로고
    • Healthcare for all: The independent inquiry into access to healthcare for people with learning disabilities
    • Michael, J., & Richardson, A. (2008). Healthcare for all: The independent inquiry into access to healthcare for people with learning disabilities. Tizard Learning Disability Review, 13(4), 28-34.
    • (2008) Tizard Learning Disability Review , vol.13 , Issue.4 , pp. 28-34
    • Michael, J.1    Richardson, A.2
  • 56
    • 0030630854 scopus 로고    scopus 로고
    • Barriers to hospice care: Family physicians' perceptions
    • Miller, K. E., Miller, M. M., & Single, N. (1997). Barriers to hospice care: Family physicians' perceptions. The Hospice Journal, 12(4), 29-41.
    • (1997) The Hospice Journal , vol.12 , Issue.4 , pp. 29-41
    • Miller, K.E.1    Miller, M.M.2    Single, N.3
  • 59
    • 77954139769 scopus 로고    scopus 로고
    • National Consensus Project for Palliative Care. (2004). What is palliative care? Available at http://www.nationalconsensusproject.org/ DisplayPage.aspx?Title5What%20Is%20Pallia tive%20Care?
    • (2004) What Is Palliative care?
  • 61
    • 46749098091 scopus 로고    scopus 로고
    • National Hospice and Palliative Care Organization, Alexandria, VA: Author
    • National Hospice and Palliative Care Organization. (2010). NHPCO facts and figures: Hospice care in America. Alexandria, VA: Author.
    • (2010) NHPCO Facts and Figures: Hospice Care in America
  • 62
    • 46749098091 scopus 로고    scopus 로고
    • National Hospice and Palliative Care Organization, Alexandria, VA: Author
    • National Hospice and Palliative Care Organization. (2012). NHPCO facts and figures: Hospice care in America. Alexandria, VA: Author.
    • (2012) NHPCO Facts and Figures: Hospice Care in America
  • 63
    • 0033790116 scopus 로고    scopus 로고
    • Life expectancy of people with intellectual disability: A 35-year follow-up study
    • doi:10.1046/j.1365-2788.2000.00280.x
    • Patja, K., Iivanainen, M., Vesala, H., Oksanen, H., & Ruoppila, I. (2000). Life expectancy of people with intellectual disability: A 35-year follow-up study. Journal of Intellectual Disability Research, 44(5), 591-599. doi:10.1046/j.1365-2788.2000.00280.x
    • (2000) Journal of Intellectual Disability Research , vol.44 , Issue.5 , pp. 591-599
    • Patja, K.1    Iivanainen, M.2    Vesala, H.3    Oksanen, H.4    Ruoppila, I.5
  • 64
    • 77953963606 scopus 로고    scopus 로고
    • Placement, relocation, and end of life issues in aging adults with and without Down's syndrome: A retrospective study
    • doi:10.1111/j.1365-2788.2010.01279.x
    • Patti, P., Amble, K., & Flory, M. (2010). Placement, relocation, and end of life issues in aging adults with and without Down's syndrome: A retrospective study. Journal of Intellectual Disability Research, 54(6), 538-546. doi:10.1111/j.1365-2788.2010.01279.x
    • (2010) Journal of Intellectual Disability Research , vol.54 , Issue.6 , pp. 538-546
    • Patti, P.1    Amble, K.2    Flory, M.3
  • 66
  • 67
    • 15844417585 scopus 로고    scopus 로고
    • Learning disabilities and palliative care: Recognizing pitfalls and exploring potential
    • Read, S. (2005). Learning disabilities and palliative care: Recognizing pitfalls and exploring potential. International Journal of Palliative Nursing, 11(1), 15-20.
    • (2005) International Journal of Palliative Nursing , vol.11 , Issue.1 , pp. 15-20
    • Read, S.1
  • 68
    • 84993012803 scopus 로고    scopus 로고
    • Death and learning disability: A vulnerability perspective
    • Read, S., & Elliott, D. (2003). Death and learning disability: A vulnerability perspective. The Journal of Adult Protection, 5(1), 5-14. (Pubitemid 36586022)
    • (2003) The Journal of Adult Protection , vol.5 , Issue.1 , pp. 5-14
    • Read, S.1    Elliott, D.2
  • 69
    • 84952663895 scopus 로고    scopus 로고
    • Care planning in palliative care for people with intellectual disabilities
    • B. Gates Ed., Malden, MA: Blackwell
    • Read, S., & Elliott, D. (2006). Care planning in palliative care for people with intellectual disabilities. In B. Gates (Ed.), Care planning and delivery in intellectual disability nursing (pp. 195-211). Malden, MA: Blackwell.
    • (2006) Care Planning and Delivery in Intellectual Disability Nursing , pp. 195-211
    • Read, S.1    Elliott, D.2
  • 70
    • 48549089384 scopus 로고    scopus 로고
    • Palliative care nursing in relation to people with intellectual disabilities
    • Read, S., & Thompson-Hill, J. (2008). Palliative care nursing in relation to people with intellectual disabilities. British Journal of Nursing, 17(8), 506-510.
    • (2008) British Journal of Nursing , vol.17 , Issue.8 , pp. 506-510
    • Read, S.1    Thompson-Hill, J.2
  • 71
    • 77954811513 scopus 로고    scopus 로고
    • A palliative care resource for professional carers of people with learning disabilities
    • doi:10.1111/j.1365-2354.2009. 01072.x
    • Reddall, C. (2010). A palliative care resource for professional carers of people with learning disabilities. European Journal of Cancer Care, 19(4), 469-475. doi:10.1111/j.1365-2354.2009. 01072.x
    • (2010) European Journal of Cancer Care , vol.19 , Issue.4 , pp. 469-475
    • Reddall, C.1
  • 72
    • 33847652201 scopus 로고    scopus 로고
    • Understanding distress in people with severe communication difficulties: Developing and assessing the Disability Distress Assessment Tool (DisDAT)
    • DOI 10.1111/j.1365-2788.2006.00875.x
    • Regnard, C., Reynolds, J., Watson, B., Matthews, D., Gibson, L., & Clarke, C. (2007). Understanding distress in people with severe communication difficulties: Developing and assessing the Disability Distress Assessment Tool (DisDAT). Journal of Intellectual Disability Research, 51(4), 277-292. doi:10.1111/j.1365-2788.2006.00875.x (Pubitemid 46357249)
    • (2007) Journal of Intellectual Disability Research , vol.51 , Issue.4 , pp. 277-292
    • Regnard, C.1    Reynolds, J.2    Watson, B.3    Matthews, D.4    Gibson, L.5    Clarke, C.6
  • 74
    • 20544468159 scopus 로고    scopus 로고
    • Palliative care for disadvantaged groups: People with intellectual disabilities
    • DOI 10.1179/096992605X42431
    • Ryan, K. R., & McQuillan, R. (2005). Palliative care for disadvantaged groups: People with intellectual disabilities. Progress in Palliative Care, 13(2), 70-74. (Pubitemid 40846913)
    • (2005) Progress in Palliative Care , vol.13 , Issue.2 , pp. 70-74
    • Ryan, K.R.1    McQuillan, R.2
  • 77
    • 33845481861 scopus 로고    scopus 로고
    • AAMR's definition, classification, and systems of supports and its relation to international trends and issues in the field of intellectual disabilities
    • Schalock, R. L., & Luckasson, R. (2005). AAMR's definition, classification, and systems of supports and its relation to international trends and issues in the field of intellectual disabilities. Journal of Policy and Practice in Intellectual Disability, 1, 136-146.
    • (2005) Journal of Policy and Practice in Intellectual Disability , vol.1 , pp. 136-146
    • Schalock, R.L.1    Luckasson, R.2
  • 78
    • 0032838914 scopus 로고    scopus 로고
    • Mortality of persons with developmental disabilities after transfer into community care: A 1996 update
    • DOI 10.1352/0895-8017(1999)104<0143:MOPWDD>2.0.CO;2
    • Shavelle, R., & Strauss, D. (1999). Mortality of persons with developmental disabilities after transfer into community care: A 1996 update. American Journal on Mental Retardation, 104(2), 143-147. (Pubitemid 29394895)
    • (1999) American Journal on Mental Retardation , vol.104 , Issue.2 , pp. 143-147
    • Shavelle, R.1    Strauss, D.2
  • 80
    • 0036988853 scopus 로고    scopus 로고
    • Meeting complex needs: An analysis of Macmillan nurses' work with patients
    • Skilbeck, J., & Seymour, J. (2002). Meeting complex needs: An analysis of Macmillan nurses' work with patients. International Journal of Palliative Nursing, 8(12), 574-582.
    • (2002) International Journal of Palliative Nursing , vol.8 , Issue.12 , pp. 574-582
    • Skilbeck, J.1    Seymour, J.2
  • 82
    • 56749185983 scopus 로고    scopus 로고
    • Providing palliative care to people with intellectual disabilities: Services, staff knowledge, and challenges
    • doi:10. 1089/jpm.2008.0130
    • Stein, G. L. (2008). Providing palliative care to people with intellectual disabilities: Services, staff knowledge, and challenges. Journal of Palliative Medicine, 11(9), 1241-1248. doi:10. 1089/jpm.2008.0130
    • (2008) Journal of Palliative Medicine , vol.11 , Issue.9 , pp. 1241-1248
    • Stein, G.L.1
  • 83
    • 84870495463 scopus 로고    scopus 로고
    • Palliative care and pain management: Resources for direct care providers
    • S. L. Friedman & D. T. Helm Eds., Washington, DC: American Association on Intellectual and Developmental Disabilities
    • Stevens, A. C., Barron, A.-M., & Rissmiller, P. N. (2010). Palliative care and pain management: Resources for direct care providers. In S. L. Friedman & D. T. Helm (Eds.), End-of-life care for children and adults with intellectual and developmental disabilities (pp. 329-352). Washington, DC: American Association on Intellectual and Developmental Disabilities.
    • (2010) End-of-life Care for Children and Adults with Intellectual and Developmental Disabilities , pp. 329-352
    • Stevens, A.C.1    Barron, A.-M.2    Rissmiller, P.N.3
  • 84
    • 0029997117 scopus 로고    scopus 로고
    • Mortality of people with mental retardation in California with and without Down syndrome, 1986-1991
    • Strauss, D., & Eyman, R. (1996). Mortality of people with mental retardation in California with and without Down syndrome, 1986-1991. American Journal of Mental Retardation, 100, 643-653. (Pubitemid 26180473)
    • (1996) American Journal on Mental Retardation , vol.100 , Issue.6 , pp. 643-653
    • Strauss, D.1    Eyman, R.K.2
  • 85
    • 0031591628 scopus 로고    scopus 로고
    • Palliative care and learning disabilities
    • Tuffrey-Wijne, I. (1997). Palliative care and learning disabilities. Nursing Times, 93(31), 50-51.
    • (1997) Nursing Times , vol.93 , Issue.31 , pp. 50-51
    • Tuffrey-Wijne, I.1
  • 86
    • 0036580391 scopus 로고    scopus 로고
    • The palliative care needs of people with intellectual disabilities: A case study
    • Tuffrey-Wjine, I. (2002). The palliative care needs of people with intellectual disabilities: A case study. International Journal of Palliative Nursing, 8(5), 222-232.
    • (2002) International Journal of Palliative Nursing , vol.8 , Issue.5 , pp. 222-232
    • Tuffrey-Wjine, I.1
  • 87
    • 0037273240 scopus 로고    scopus 로고
    • The palliative care needs of people with intellectual disabilities: A literature review
    • DOI 10.1191/0269216303pm668oa
    • Tuffrey-Wijne, I. (2003). The palliative care needs of people with intellectual disabilities: A literature review. Palliative Medicine, 17, 55-62. (Pubitemid 36193222)
    • (2003) Palliative Medicine , vol.17 , Issue.1 , pp. 55-62
    • Tuffrey-Wijne, I.1
  • 88
    • 33947667760 scopus 로고    scopus 로고
    • Using nominal group technique to investigate the views of people with intellectual disabilities on end-of-life care provision
    • doi:10.1111/j.1365-2648.2007.04227.x
    • Tuffrey-Wijne, I., Bernal, J., Butler, G., Hollins, S., & Curfs, L. (2007). Using Nominal Group Technique to investigate the views of people with intellectual disabilities on end-of-life care provision. Journal of Advanced Nursing, 58(1), 80-89. doi:10.1111/j.1365-2648.2007.04227.x
    • (2007) Journal of Advanced Nursing , vol.58 , Issue.1 , pp. 80-89
    • Tuffrey-Wijne, I.1    Bernal, J.2    Butler, G.3    Hollins, S.4    Curfs, L.5
  • 89
    • 33745799114 scopus 로고    scopus 로고
    • People with intellectual disabilities and their need for cancer information
    • doi:10.1016/j.ejon. 2005.05.005
    • Tuffrey-Wijne, I., Bernal, J., Jones, A., Butler, G., & Hollins, S. (2006). People with intellectual disabilities and their need for cancer information. European Journal of Oncology Nursing, 10(2), 106-116. doi:10.1016/j.ejon. 2005.05.005
    • (2006) European Journal of Oncology Nursing , vol.10 , Issue.2 , pp. 106-116
    • Tuffrey-Wijne, I.1    Bernal, J.2    Jones, A.3    Butler, G.4    Hollins, S.5
  • 91
    • 33947701625 scopus 로고    scopus 로고
    • This is my story: I've got cancer. "the veronica project": An ethnographic study of the experiences of people with learning disabilities who have cancer
    • doi:10.1111/j.1468-3156. 2006.00421.x
    • Tuffrey-Wijne, I., & Davies, J. (2006). This is my story: I've got cancer. "The Veronica Project": An ethnographic study of the experiences of people with learning disabilities who have cancer. British Journal of Learning Disabilities, 35(1), 7-11. doi:10.1111/j.1468-3156. 2006.00421.x
    • (2006) British Journal of Learning Disabilities , vol.35 , Issue.1 , pp. 7-11
    • Tuffrey-Wijne, I.1    Davies, J.2
  • 92
    • 34250334565 scopus 로고    scopus 로고
    • End-of-life and palliative care for people with intellectual disabilities who have cancer or other life-limiting illness: A review of the literature and available resources
    • doi:10.1111/j.1468-3148.2006. 00350.x
    • Tuffrey-Wijne, I., Hogg, J., & Curfs, L. (2007). End-of-life and palliative care for people with intellectual disabilities who have cancer or other life-limiting illness: A review of the literature and available resources. Journal of Applied Research in Intellectual Disabilities, 20(4), 331-344. doi:10.1111/j.1468-3148.2006. 00350.x
    • (2007) Journal of Applied Research in Intellectual Disabilities , vol.20 , Issue.4 , pp. 331-344
    • Tuffrey-Wijne, I.1    Hogg, J.2    Curfs, L.3
  • 93
    • 20444484142 scopus 로고    scopus 로고
    • Supporting patients who have intellectual disabilities: A survey investigating staff training needs
    • Tuffrey-Wijne, I., Hollins, S., & Curfs, L. (2005). Supporting patients who have intellectual disabilities: A survey investigating staff training needs. International Journal of Palliative Nursing, 11(4), 182-188.
    • (2005) International Journal of Palliative Nursing , vol.11 , Issue.4 , pp. 182-188
    • Tuffrey-Wijne, I.1    Hollins, S.2    Curfs, L.3
  • 94
    • 49849086512 scopus 로고    scopus 로고
    • Communication difficulties and intellectual disability in end-of-life care
    • Tuffrey-Wijne, I., & McEnhill, L. (2008). Communication difficulties and intellectual disability in end-of-life care. International Journal of Palliative Nursing, 14(4), 189-194.
    • (2008) International Journal of Palliative Nursing , vol.14 , Issue.4 , pp. 189-194
    • Tuffrey-Wijne, I.1    McEnhill, L.2
  • 95
    • 35448970652 scopus 로고    scopus 로고
    • Palliative care provision for people with intellectual disabilities: Interviews with specialist palliative care professionals in London
    • DOI 10.1177/0269216307082019
    • Tuffrey-Wijne, I., McEnhill, L., Curfs, L., & Hollins, S. (2007). Palliative care provision for people with intellectual disabilities: Interviews with specialist palliative care professionals in London. Palliative Medicine, 21(6), 493-499. doi:10.1177/0269216307082019 (Pubitemid 47616604)
    • (2007) Palliative Medicine , vol.21 , Issue.6 , pp. 493-499
    • Tuffrey-Wijne, I.1    McEnhill, L.2    Curfs, L.3    Hollins, S.4
  • 96
    • 44849120241 scopus 로고    scopus 로고
    • Palliative care provision for people with intellectual disabilities: A questionnaire survey of specialist palliative care professionals
    • DOI 10.1177/0269216308088686
    • Tuffrey-Wijne, I., Whelton, R., Curfs, L., & Hollins, S. (2008). Palliative care provision for people with intellectual disabilities: A questionnaire survey of specialist palliative care professionals. Palliative Medicine, 22, 281-290. (Pubitemid 351795933)
    • (2008) Palliative Medicine , vol.22 , Issue.3 , pp. 281-290
    • Tuffrey-Wijne, I.1    Whelton, R.2    Curfs, L.3    Hollins, S.4
  • 97
    • 0029954531 scopus 로고    scopus 로고
    • The health needs of adults with learning disabilities and the Health of the Nation strategy
    • Turner, S., & Moss, S. (1996). The health needs of adults with learning disabilities and the Health of the Nation strategy. Journal of Intellectual Disability Research, 40(5), 438-450. (Pubitemid 26362892)
    • (1996) Journal of Intellectual Disability Research , vol.40 , Issue.5 , pp. 438-450
    • Turner, S.1    Moss, S.2
  • 98
    • 84889397124 scopus 로고    scopus 로고
    • Psychopathology in older age
    • P. W. Davidson, V. P. Prasher, & M. P. Janicki Eds., Oxford, England: Blackwell, doi:10.1002/9780470776179. ch3
    • Tyrell, J., & Dodd, P. (2003). Psychopathology in older age. In P. W. Davidson, V. P. Prasher, & M. P. Janicki (Eds.), Mental Health, Intellectual Disabilities and the Aging Process. Oxford, England: Blackwell. doi:10.1002/9780470776179. ch3
    • (2003) Mental Health, Intellectual Disabilities and the Aging Process
    • Tyrell, J.1    Dodd, P.2
  • 102
    • 77953635934 scopus 로고    scopus 로고
    • A fast track path improves access to palliative care for people with learning disabilities
    • Whitington, J. (2010). A fast track path improves access to palliative care for people with learning disabilities. Nursing Times, 106(19), 13-14.
    • (2010) Nursing Times , vol.106 , Issue.19 , pp. 13-14
    • Whitington, J.1
  • 103
    • 22244458157 scopus 로고    scopus 로고
    • World Health Organization. (2010). WHO definition of palliative care. Available at http://www.who.int/cancer/palliative/definition/en
    • (2010) WHO Definition of Palliative Care
  • 104
    • 0034669275 scopus 로고    scopus 로고
    • Access to palliative care and hospice in nursing homes
    • doi:10.1001/jama.284.19.2489
    • Zerzan, J., Stearns, S., & Hanson, L. (2000). Access to palliative care and hospice in nursing homes. JAMA, 284(19), 2489-2494. doi:10.1001/jama.284.19.2489
    • (2000) JAMA , vol.284 , Issue.19 , pp. 2489-2494
    • Zerzan, J.1    Stearns, S.2    Hanson, L.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.