End-of-life care: Nurses' experiences in caring for dying patients with profound learning disabilities - A descriptive case study

Palliative Medicine

Volumn 22, Issue 8, 2008, Pages 949-955

  Li, S ^a   Ng, J ^a  

^a KINGSTON UNIVERSITY   (United Kingdom)

Author keywords

Illness trajectory; Knowledge; Learning disability; Palliative care; Qualitative research

Indexed keywords

ARTICLE; BEHAVIOR CHANGE; CASE STUDY; DELAYED DIAGNOSIS; DESCRIPTIVE RESEARCH; DISEASE EXACERBATION; HOSPICE CARE; HOSPICE NURSING; HUMAN; ILLNESS TRAJECTORY; JOB EXPERIENCE; LEARNING DISORDER; NURSING COMPETENCE; NURSING KNOWLEDGE; PALLIATIVE THERAPY; PATHOPHYSIOLOGY; PERSONALITY DISORDER; SEMI STRUCTURED INTERVIEW; TERMINAL CARE; UNITED KINGDOM;

ATTITUDE OF HEALTH PERSONNEL; FEMALE; HUMANS; LEARNING DISORDERS; MALE; NURSE-PATIENT RELATIONS; NURSES; PALLIATIVE CARE; QUALITATIVE RESEARCH; TERMINAL CARE; TERMINALLY ILL;

EID: 57149135338     PISSN: 02692163     EISSN: None     Source Type: Journal    
DOI: 10.1177/0269216308096905     Document Type: Article

References (26)

1. Ng, J Li, S. A survey exploring the educational needs of care practitioners in learning disability (LD) settings in relation to death, dying and people with learning disabilities. Eur J Cancer Care 2003; 12: 12-19.
2. http://www.endoflifecare.nhs.uk
3. http://www.who.org
4. S Payne, J Seymour C Ingleton. Palliative care nursing. Principles and evidence for practice. UK: Open University Press; 2004.
5. H Brown, S Burns, M Flynn. Dying matters. A workbook on caring for people with learning disabilities who are terminally ill. London: The Mental Health Foundation; 2005.
6. http://www.doh.gov.uk
7. Li S. Symbiotic niceness: A study of psychosocial care in palliative care settings. PhD thesis. London: Goldsmith's College, University of London; 2002.
8. Cardy P. Open Dialogue. Learning disability and palliative care. Int J Palliat Nurs 2005; 11: 14.
9. Read S. Learning disabilities and palliative care: Recognizing pitfalls and exploring potential. Int J Palliat Nurs 2005; 11: 15-20.
10. Gibson L, Mathews D. End of life care. A resource pack for those caring for or supporting people with a learning disability at the end of life. Northumberland, Northumberland Tyne and Wear NHS Trust. NHS NorthEast; 2003.
11. Tuffrey-Wijne I. The palliative care needs of people with intellectual disabilities: A case study. Int J Palliat Nurs 2002; 8: 222-232.
12. Jones A, Tuffrey-Wijne I, Bernal J, Butler G, Hollins S. Meeting the cancer information needs of people with learning disabilities: experiences of paid carers. Br J Learn Disabil 2007; 35: 12-18.
13. Regnard C, Mathews D, Gibson L, Clarke C, Watson B. Difficulties in people with severe communication problems. Int J Palliat Nurs 2003; 9: 173-176.
14. Bennett D. Death and people with learning disabilities: Empowering carers. Br J Learn Disabil 2003; 31: 118-122.
15. Black P, Hyde C. Caring for people with a learning disability, colorectal cancer and stoma. Br J Nurs 2004; 13: 970-975.
16. Yin R. Case study research: Design and methods. London: Sage; 1989.
17. Yin R. Case study research. Design and methods. 3rd ed. London: Sage Publications; 2003.
18. Glaser B, Strauss A. The Discovery of grounded theory: Strategies for qualitative research. Chicago: Aldine; 1967.
19. Luker KA, Austin L, Caress A, Hallet CE. The importance of knowing the patient: Community nurses constructions of quality in providing palliative care. J Adv Nurs 2000; 31: 775-782.
20. Corner J. Nurses experiences of cancer. Eur J Cancer Care 2002; 11: 193-199.
21. McILLmurray. MB, Francis, B, Harman, JC, Morris, SM, Soothill, K, Thomas, C. Psychosocial needs in cancer patients related to religious belief. Palliat Med 2003; 17: 49-54.
22. Regnard C, Hockley J. Flow diagram in advanced cancer and other diseases. London: Edward Arnold; 1995.
23. Regnard C, Tempest S. A guide to symptom relief in advanced disease. Oxford, Ratcliffe Medical Press; 2004.
24. Lindop E, Read S. District nurses needs: Palliative care for people with learning disabilities. Int J Palliat Nurs 2000; 6: 117-122.
25. Tuffrey-Wijne I, McEnhill L, Curfs L, Hollins S. Palliative care provision for people with intellectual disabilities: Interviews with specialist palliative professionals in London. Palliat Med 2007; 21: 493-499.
26. http://www.mencap.org.uk