Learning disabilities and dying

Journal of Palliative Medicine

Volumn 13, Issue 4, 2010, Pages 361-363

  Crawford, Hannah ^a  

^a Woodside Resource Centre   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ASPIRATION PNEUMONIA; DOWN SYNDROME; DYING; HEART FAILURE; HUMAN DIGNITY; HYDRATION; LEARNING DISORDER; LETTER; NUTRITION; PALLIATIVE THERAPY; TERMINAL CARE;

DOWN SYNDROME; HUMANS; INFORMED CONSENT; LEARNING DISORDERS; PALLIATIVE CARE; PATIENT EDUCATION AS TOPIC; PATIENT-CENTERED CARE; PROFESSIONAL-PATIENT RELATIONS;

EID: 77951875044     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/jpm.2009.0303     Document Type: Letter

References (19)

1. Regnard C, Mathews D, Gibson L, Clarke C: Difficulties in identifying distress and its causes in people with severe communication problems. Int J Palliat Nurs 2003;9: 173-176.
2. Regnard C, Reynolds J, Watson B, Matthews D, Gibson L, Clarke C: Understanding distress in people with severe communication difficulties: Developing and assessing the Disability Distress Assessment Tool (DisDAT). J Intellect Disabil Res 2007;15(Pt 4):277-292.
3. Matthew D, Gibson L: End of Life Care: A Resource Pack for Those Caring for or Supporting People with a Learning Disability at the End of Life. NHS North East, 2007.
4. Tuffrey-Wijne I, McEnhill L, Curfs L, Hollins S: Palliative care provision for people with intellectual disabilities: Interviews with specialist palliative care professionals in London. Palliat Med 2007;21:493-499.
5. Tuffrey-Wijne I, Hollins S, Curfs L: Supporting patients who have intellectual disabilities: A survey investigating staff training needs. Int J Palliat Nurs 2005;11:182-188.
6. Tuffrey-Wijne I: The palliative care needs of people with intellectual disabilities: A literature review. Palliat Med 2003;17:55-62.
7. Read S: The palliative care needs of people with learning disabilities. Int J Palliat Nurs 1998;4:246-251.
8. Read S: Learning disabilities and palliative care: Recognizing pitfalls and exploring potential. Int J Palliat Nurs 2005; 11:15-20.
9. Department of Health: End of Life Care Strategy: Promoting High Quality Care for All Adults at the End of Life. 2008.
10. Department of Health: Gold Standards Framework. 2005.
11. Department of Health: Signposts for Succes in Commissioning and Providing Health Services for People with Learning Disabilities. 1998.
12. Department of Health: Valuing People: A New Strategy for Learning Disability for the 21st Century. A White Paper. 2001.
13. The Scottish Government: The Same as You: A Review of Services for People with Learning Disabilities. 2000.
14. Treat Me Right: Better Healthcare for People with a Learning Disability. London: Mencap, 2004.
15. Death by Indifference. London: Mencap, 2007.
16. Parliamentary and Health Service Ombudsman: Six Lives: The Provision of Public Services to People with Learning Disabilities. 2009.
17. Department of Health: Valuing People Now: From Progress to Transformation-A Consultation on the Next Three Years of Learning Disability Policy, 2009.
18. Todd S: Death counts: The challenge of death and dying in learning disability services. Learn Disabil Pract 2004;7: 12-15.
19. Harwood I: A family facing end of life issues of a person with learning disabilities-A personal reflection. Br J Learn Disabil 2007;35:102-106.