Cystic fibrosis: A clinician's tool for management of care advancing into the adult population

Journal of the American Academy of Nurse Practitioners

Volumn 24, Issue 11, 2012, Pages 625-632

  Nast, Deanna ^a   Paniagua, Carmen ^b   Anderson, Paula ^b  

^a White River Surgery Clinic   (United States)

^b UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES   (United States)

Author keywords

25 hydroxyvitamin D; Advanced practice nurse (APN); Health promotion; Liver; Malabsorption syndrome; Osteoporosis; Respiratory

Indexed keywords

ADULT; ARTICLE; COMORBIDITY; CYSTIC FIBROSIS; DIABETES MELLITUS; FEMALE; HEALTH PROMOTION; HUMAN; INFERTILITY; LIVER DISEASE; MALE; OSTEOPOROSIS; PRACTICE GUIDELINE;

ADULT; COMORBIDITY; CYSTIC FIBROSIS; DIABETES MELLITUS; FEMALE; HEALTH PROMOTION; HUMANS; INFERTILITY; LIVER DISEASES; MALE; OSTEOPOROSIS; PRACTICE GUIDELINES AS TOPIC;

EID: 84867912486     PISSN: 10412972     EISSN: 17457599     Source Type: Journal    
DOI: 10.1111/j.1745-7599.2012.00763.x     Document Type: Article

References (32)

1. Aris, R. M.,Merkel, P. A., Bachrach, L. K., Borowitz, D. S., Boyle,M. P., Ellan, S. L., White, T. B. (2005). Consensus statement: Guide to bone health and disease in cystic fibrosis. Journal of Clinical Endocrinology and Metabolism, 90, 1888-1896. doi: 10.1210/jc.2004-1629.
2. Boas, S. R., Hageman, J. R., Ho, L. T., & Liveris, M. (2009). Very high-dose ergocalciferol is effective for correcting vitamin D deficiency in children and young adults with cystic fibrosis. Journal of Cystic Fibrosis, 8, 270-272. doi: 10.10.1016/j.jcf.2009.04.004
3. Borowitz, D. S., Grand, R. J., & Durie, P. R. (1995). Use of pancreatic enzyme supplements for patients with CF in the context of fibrosing colonopathy. CF Foundation Consensus, III, Section I. Journal of Pediatrics, 25(5), 681-684.
4. Boyd, J. M., Mehta, A., & Murphy, D. J. (2004). Fertility and pregnancy outcomes in men and women with CF in the United Kingdom. Human Reproduction, 19, 2238-2243. doi: 10.1093/humrep/deh405
5. Boyle, M. P., Noschese, M. L., Watts, S. L., Davis, M. E., Stenner, S. E., & Lechtzin, N. (2005). Failure of high-dose ergocalciferol to correct vitamin D deficiency in adults with cystic fibrosis. American Journal of Respiratory Critical Care Medicine, 172, 212-217. doi: 10.1164/rccm.200403-387OC.
6. Brunzell, C., Hardin, D. S., Moran, A., Schindler, T., & Schissel, K. (2008). Managing CF related diabetes (CFRD): An instruction guide for patients and families (4th ed.). CF Foundation. Retrieved from www.cff.org
7. (2011) CF Foundation. Patient Registry 2009 Annual Data Report Retrieved from http://www.cff.org/research/ClinicalResearch/PatientRegistryReport/
8. Cheng, K., Ashby, D., & Smyth, R. L. (2009). Ursodeoxycholic acid for cystic fibrosis-related liver disease. The Cochrane Library, 2. Retrieved from http://www.thecochranelibrary.com
9. Colombo, C. (2007). Liver disease in cystic fibrosis. Current Opinion in Pulmonary Medicine, 13, 529-536. doi:10.1097/MCP.ObO13e3282f10a16
10. Cummings, M. R. (2009). Human heredity: Principles and issues. (8th ed.). Pacific Grove, CA: Brookes/Cole-Thompson Learning.
11. Ferguson, J. H., & Chang, A. B. (2009). Vitamin D supplementation in cystic fibrosis. The Cochrane Library, 4. Retrieved from http://www.thecochranelibrary.com
12. Flume, D. A., Robinson, K. A., O'Sullivan, B. P., Finder, J. D., Vander, R. L., Wiley-Courand D. B., Marshall, B. (2007). CF pulmonary guidelines: Chronic medications for maintenance of lung function. American Journal of Respiratory and Critical Care Medicine, 176, 957-969. doi:10.1164/rccm.200705-664OC
13. Flume, D. A., Robinson, K. A., O'Sullivan, B. P., Finder, J. D., Vander, R. L., Wiley-Courand, D. B.. Clinical Practice Guidelines for Pulmonary Therapies Committee. (2009). CF pulmonary guidelines: Airway clearance therapies. Respiratory Care, 54, 522-537. Retrieved from www.cff.org
14. Hodges, C. A., Palmert, M. R., & Drumm, M. L. (2008). Infertility in females with CF is multifactorial: Evidence from mouse model. Endocrinology, 149, 2790-2797. doi: 10.1210/en.2007-1581
15. Huh, S. Y., & Gordon, C. M. (2008). Vitamin D deficiency in children and adolescents: Epidemiology, impact, and treatment. Reviews in Endocrine & Metabolic Disorders, 9, 161-170. doi: 10.1007/s11154-007-9072-y
16. Khazai, N. B., Judd, S. E., Jeng, L., Wolfenden, L. L., Stecenko, A., Ziegler, T. R., & Tangpricha, V. (2009). Treatment and prevention of vitamin D insufficiency in CF patients: Comparative efficacy of ergocalciferol, cholecalciferol, and UV light. Journal of Clinical Endocrinology & Metabolism, 94, 2037-2043. doi: 10.1210/jc.2008-2012
17. Kotalova, R., Jirsa, M., Vavrova, V., Vrabelova-Pouchla, S., & Macek, M. (2009). Wilson disease as a cause of liver injury in cystic fibrosis. Journal of Cystic Fibrosis, 8, 63-65. doi:10.1016/j.jcf.2008.09.003
18. LeHeron, L. L., Guillaume, C., Velard, F., Braux, J., Touqui, L., Moriceau, S., Sermet-Gaudelus, I., Laurent-Maquin, D., and Jacquot, J. (2010). CF transmembrane conductance regulator (CFTR) regulates the production of osteoprotegerin (OPG) and prostaglandin (PG) E2 in human bone. Journal of Cystic Fibrosis, 9, 69-72. doi: 10.1016/j.jcf.2009.11.005
19. Lensmeyer, G. L., Wiebe, D. A., Binkley, N., & Drezner, M. K. (2006). HPLC method for 25-hydroxyvitamin D measurement: Comparison and contemporary assays. Clinical Chemistry, 52, 1120-1126. doi: 10.1373/clinchem.2005.064956
20. McCance, K. L., & Huether, S. E. (2006). Pathophysiology: The biologic basis for disease in adults and children (5th ed.). St. Louis, MO: Elsevier Mosby.
21. McMullen, A. H., Pasta, D. J., Frederick, P. D., Konstan, M. W., Morgan, W. J., Schechter, M. S., Wagener, J. S. (2006) Investigators and Coordinates of the Epidemiologic Study of Cystic Fibrosis. Impact of pregnancy on women with cystic fibrosis. Chest, 129, 706-711. doi:10.1378/chest.129.3.706
22. Moran, A., Brunzell, C., Cohen, R. C., Katz, M., Marshall, B. C., Onady, G., Robinson, K. A., Sabadosa, K. A., Stecenko, A., Slovis, B., (2010). CFRD Guidelines Committee Clinical care guidelines for cystic-fibrosis-related diabetes. Diabetes Care, 33, 2697-2708. doi: 10.2337/dc10-1768
23. Moyer K., & Balistreri, W. (2009). Hepatobiliary disease in patients with cystic fibrosis. Current Opinion in Gastroenterology, 25, 272-278. doi:10.1097/MOG.Ob013e3283298865
24. (2010) National Osteoporosis Foundation. Clinicians guide to prevention and treatment of osteoporosis. Washington, DC: Author.
25. Paccou, J., Zeboulon, N., Combescure, C., Gossec, L., & Cortet, B. (2009). The prevalence of osteoporosis, osteopenia, and fractures among adults with cystic fibrosis: A systematic literature review with meta-analysis. Calcif Tissue International, 86, 1-7. doi: 10.1007/s00223-009-9316-9
26. Shead, E. F., Haworth, C. S., Barker, H., Bilton, D., & Compstone, J. E. (2010). Osteoclast function, bone turnover and inflammatory cytokines during infective exacerbations of cystic fibrosis. Journal of Cystic Fibrosis, 9, 93-98. doi: 10.1016/j.jcf.2009.11.007
27. Sokol, R. J., & Durie, P. R. (1999). Recommendations for management of liver and biliary tract disease in cystic fibrosis. Journal of Pediatric Gastroenterology & Nutrition, 28, S1-S13. Retrieved from PubMed search engine.
28. Stephenson, A., Brotherwood, M., Ronalee, R., Atenafu, E., Corey, M., & Tullis, E. (2007). Cholecalciferol significantly increases 25-hydroxyvitamin D concentrations in adults with cystic fibrosis. American Journal of Clinical Nutrition, 85, 1307-3011. Retrieved from www.ajcn.org
29. Stewart, L. (2005). The role of abdominal ultrasound in the diagnosis, staging, and management of CF liver disease. Journal of the Royal Society of Medicine, 98(Suppl. 45), 17-27.
30. Tangpricha, V., Kelly, A., Stephenson, A., Maquiness, K. Endees, J. Robinson, K. A., Marshall, B. C., Borowitz, D., (2012) Cystic Fibrosis Foundation Vitamin D Evidence-Based Review Committee. An update on the screening, diagnosis, management, and treatment of vitamin D deficiency in individuals with cystic fibrosis: Evidence-based recommendations from the CF Foundation. Journal of Clinical Endocrinology & Metabolism, jc2011-jc3050. doi: 10.1210/jc.2011-3050
31. Yankaskas, J. R., & Mallory, G. B. (1998). Lung transplantation in cystic fibrosis. Chest: Official Publication of the American College of Chest Physicians, 113, 217-226. doi: 10.1378/chest.113.1.217
32. Yankaskas, J. R., Marshall, B. C., Sufian, B., Simon, R. H., & Rodman, D. (2004). CF adult care. Chest: Official Publication of the American College of Chest Physicians, 125, 1S-39S. doi: 10.1378/chest.125.1 suppl.1S