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Volumn 27, Issue 6, 2012, Pages 642-651

Explicating Caregiving by Mothers of Children With Complex Needs in Ireland: A Phenomenological Study

Author keywords

Caregiving; Children's nursing; Community care; Complex needs; Mothers

Indexed keywords

ADOLESCENT; AGE; ARTICLE; CAREGIVER; CHILD; COMPARATIVE STUDY; DEVELOPMENTAL DISORDER; DISABILITY; FEMALE; HANDICAPPED CHILD; HUMAN; INTERVIEW; IRELAND; MALE; MATERNAL BEHAVIOR; MENTAL STRESS; MOTHER CHILD RELATION; NEEDS ASSESSMENT; NURSING; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; QUALITY OF LIFE; QUESTIONNAIRE; RISK ASSESSMENT; STATISTICS; VULNERABLE POPULATION;

EID: 84867879262     PISSN: 08825963     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pedn.2011.07.003     Document Type: Article
Times cited : (30)

References (56)
  • 1
    • 0005205498 scopus 로고    scopus 로고
    • Association for Children With Life-Threatening or Terminal Conditions and Their Families (ACT) and Royal College of Paediatrics and Child Health (RCP&CH) A guide to the development of children's palliative care services. Report of a Joint Working Party Bristol: ACT, RCP&CH, London
    • Association for Children With Life-Threatening or Terminal Conditions and Their Families (ACT) and Royal College of Paediatrics and Child Health (RCP&CH) A guide to the development of children's palliative care services. Report of a Joint Working Party 1997, Bristol: ACT, RCP&CH, London.
    • (1997) A guide to the development of children's palliative care services. Report of a Joint Working Party
  • 2
    • 84867895780 scopus 로고    scopus 로고
    • Association for Children With Life-Threatening or Terminal Conditions and Their Families (ACT) and Royal College of Paediatrics and Child Health A guide to the development of paediatric palliative care services ACT and RCP&CH, London. 2nd ed.
    • Association for Children With Life-Threatening or Terminal Conditions and Their Families (ACT) and Royal College of Paediatrics and Child Health A guide to the development of paediatric palliative care services 2003, ACT and RCP&CH, London. 2nd ed.
    • (2003)
  • 3
    • 0034183627 scopus 로고    scopus 로고
    • The changing face of phenomenological research: Traditional and American phenomenology in nursing
    • Caelli K. The changing face of phenomenological research: Traditional and American phenomenology in nursing. Qualitative Health Research 2000, 10:366-377.
    • (2000) Qualitative Health Research , vol.10 , pp. 366-377
    • Caelli, K.1
  • 5
    • 31144460099 scopus 로고    scopus 로고
    • Negotiating mothering against the odds: Gastrostomy tube feeding, stigma, governmentality and disabled children
    • Craig G.M., Scambler G. Negotiating mothering against the odds: Gastrostomy tube feeding, stigma, governmentality and disabled children. Social Science Medicine 2006, 62:1115-1125.
    • (2006) Social Science Medicine , vol.62 , pp. 1115-1125
    • Craig, G.M.1    Scambler, G.2
  • 10
    • 33845451612 scopus 로고    scopus 로고
    • From Husserl to Van Manen. A review of different phenomenological approaches
    • Dowling M. From Husserl to Van Manen. A review of different phenomenological approaches. International Journal of Nursing Studies 2007, 44:131-142.
    • (2007) International Journal of Nursing Studies , vol.44 , pp. 131-142
    • Dowling, M.1
  • 11
    • 2642582329 scopus 로고    scopus 로고
    • Supporting children with complex health care needs and their families: An overview of the research agenda
    • Emond A., Eaton N. Supporting children with complex health care needs and their families: An overview of the research agenda. Child: Care, Health and Development 2004, 30:195-199.
    • (2004) Child: Care, Health and Development , vol.30 , pp. 195-199
    • Emond, A.1    Eaton, N.2
  • 12
    • 0041105650 scopus 로고
    • The problem of historical consciousness
    • University of California Press, Berkley California, P. Rabinow, W.M. Sullivan (Eds.)
    • Gadamer H. The problem of historical consciousness. Interpretive Social science: A Reader 1979, University of California Press, Berkley California. P. Rabinow, W.M. Sullivan (Eds.).
    • (1979) Interpretive Social science: A Reader
    • Gadamer, H.1
  • 13
    • 0035626072 scopus 로고    scopus 로고
    • Wellbeing of mothers with children exhibiting sleep disturbance
    • Gelman V.S., King N.J. Wellbeing of mothers with children exhibiting sleep disturbance. Australian Journal of Psychology 2001, 53:18-22.
    • (2001) Australian Journal of Psychology , vol.53 , pp. 18-22
    • Gelman, V.S.1    King, N.J.2
  • 14
    • 0032240656 scopus 로고    scopus 로고
    • Hermeneutic philosophy. Part 2. A nursing research example of the hermeneutic imperative to address forestructures/preunderstandings
    • Geneallos R. Hermeneutic philosophy. Part 2. A nursing research example of the hermeneutic imperative to address forestructures/preunderstandings. Nursing Inquiry 1998, 5:238-247.
    • (1998) Nursing Inquiry , vol.5 , pp. 238-247
    • Geneallos, R.1
  • 15
    • 33751245900 scopus 로고    scopus 로고
    • "We're tired, not sad": Benefits and burdens of mothering a child with a disability
    • Green S. "We're tired, not sad": Benefits and burdens of mothering a child with a disability. Social Sciences and Medicine 2007, 64:150-163.
    • (2007) Social Sciences and Medicine , vol.64 , pp. 150-163
    • Green, S.1
  • 17
    • 0348109441 scopus 로고    scopus 로고
    • Korean mothers' psychosocial adjustment to their children's cancer
    • Han H.R. Korean mothers' psychosocial adjustment to their children's cancer. Journal of Advanced Nursing 2003, 44:499-506.
    • (2003) Journal of Advanced Nursing , vol.44 , pp. 499-506
    • Han, H.R.1
  • 18
    • 33744763914 scopus 로고    scopus 로고
    • The experiences of sleep disruption in families of technology-dependent children living at home
    • Heaton J., Noyes J., Sloper P., Shah R. The experiences of sleep disruption in families of technology-dependent children living at home. Children and Society 2005, 20:196-208.
    • (2005) Children and Society , vol.20 , pp. 196-208
    • Heaton, J.1    Noyes, J.2    Sloper, P.3    Shah, R.4
  • 19
    • 23044446352 scopus 로고    scopus 로고
    • Caring for children with complex and continuing care needs
    • Hewitt-Taylor J. Caring for children with complex and continuing care needs. Nursing Standard 2005, 19:41-47.
    • (2005) Nursing Standard , vol.19 , pp. 41-47
    • Hewitt-Taylor, J.1
  • 20
    • 0036691179 scopus 로고    scopus 로고
    • Stress and coping strategies of mothers living with a child with cystic fibrosis: Implications for nursing professionals
    • Hodgkinson R., Lester H. Stress and coping strategies of mothers living with a child with cystic fibrosis: Implications for nursing professionals. Journal of Advanced Nursing 2002, 39:377-383.
    • (2002) Journal of Advanced Nursing , vol.39 , pp. 377-383
    • Hodgkinson, R.1    Lester, H.2
  • 22
    • 35848932977 scopus 로고    scopus 로고
    • Changing from oral feeding to enteral feeding: Impact on families with disabilities
    • Hunt F. Changing from oral feeding to enteral feeding: Impact on families with disabilities. Paediatric Nursing 2007, 19:30-32.
    • (2007) Paediatric Nursing , vol.19 , pp. 30-32
    • Hunt, F.1
  • 23
    • 23944469011 scopus 로고    scopus 로고
    • Parent or nurse? The experience of being a parent of a technology-dependent child
    • Kirk S., Glendinning C., Callery P. Parent or nurse? The experience of being a parent of a technology-dependent child. Journal of Advanced Nursing 2005, 51:456-464.
    • (2005) Journal of Advanced Nursing , vol.51 , pp. 456-464
    • Kirk, S.1    Glendinning, C.2    Callery, P.3
  • 24
    • 0029303666 scopus 로고
    • Interpretive approaches in nursing research: The influence of Husserl and Heidegger
    • Koch T. Interpretive approaches in nursing research: The influence of Husserl and Heidegger. Journal of Advanced Nursing 1995, 21:827-836.
    • (1995) Journal of Advanced Nursing , vol.21 , pp. 827-836
    • Koch, T.1
  • 25
    • 4143088473 scopus 로고    scopus 로고
    • Factors influencing health promoting activities of mothers caring for ventilator-assisted children
    • Kuster P., Badr L.K., Chang B.L., Wuerker A.K., Benjamin A.E. Factors influencing health promoting activities of mothers caring for ventilator-assisted children. Journal of Pediatric Nursing 2004, 4:276-287.
    • (2004) Journal of Pediatric Nursing , vol.4 , pp. 276-287
    • Kuster, P.1    Badr, L.K.2    Chang, B.L.3    Wuerker, A.K.4    Benjamin, A.E.5
  • 26
    • 0033545250 scopus 로고    scopus 로고
    • A normal lifestyle: Parental stress and coping in childhood diabetes
    • Lowes L., Lyne P. A normal lifestyle: Parental stress and coping in childhood diabetes. British Journal of Nursing 1999, 8:133-139.
    • (1999) British Journal of Nursing , vol.8 , pp. 133-139
    • Lowes, L.1    Lyne, P.2
  • 27
    • 0036246379 scopus 로고    scopus 로고
    • Distress and hopelessness among parents of children with congenital heart disease, parents of other children with other diseases and parents of healthy children
    • Lowoko S., Soares J. Distress and hopelessness among parents of children with congenital heart disease, parents of other children with other diseases and parents of healthy children. Journal of Psychosomatic Research 2002, 52:193-208.
    • (2002) Journal of Psychosomatic Research , vol.52 , pp. 193-208
    • Lowoko, S.1    Soares, J.2
  • 29
    • 35548930930 scopus 로고    scopus 로고
    • Developing a hospice service in Northern Ireland
    • Maguire H. Developing a hospice service in Northern Ireland. Paediatric Nursing 2001, 13:19-21.
    • (2001) Paediatric Nursing , vol.13 , pp. 19-21
    • Maguire, H.1
  • 33
    • 33845260044 scopus 로고    scopus 로고
    • The key to success: Managing children's complex packages of community support
    • Retrieved November 5, 2009, from
    • Noyes J. The key to success: Managing children's complex packages of community support. Archives of Disease in Childhood Education and Practice 2006, 91:ep106-ep110. Retrieved November 5, 2009, from. http://epjournals.com.
    • (2006) Archives of Disease in Childhood Education and Practice , vol.91
    • Noyes, J.1
  • 34
    • 0033155288 scopus 로고    scopus 로고
    • The experiences and views of parents who care for ventilator-dependent children
    • Noyes J., Hartman H., Samuels M., Southall D. The experiences and views of parents who care for ventilator-dependent children. Journal of Clinical Nursing 1999, 8:431-439.
    • (1999) Journal of Clinical Nursing , vol.8 , pp. 431-439
    • Noyes, J.1    Hartman, H.2    Samuels, M.3    Southall, D.4
  • 35
    • 0035192973 scopus 로고    scopus 로고
    • Depression of mothers and fathers of children with intellectual disability
    • Olsson M., Hwang C. Depression of mothers and fathers of children with intellectual disability. Journal of Intellectual Disability Research 2001, 45:535-543.
    • (2001) Journal of Intellectual Disability Research , vol.45 , pp. 535-543
    • Olsson, M.1    Hwang, C.2
  • 36
    • 0033161499 scopus 로고    scopus 로고
    • Coping with a child with disabilities from the parents' perspective: The function of information
    • Pain H. Coping with a child with disabilities from the parents' perspective: The function of information. Child: Care, Health and Development 1999, 25:299-312.
    • (1999) Child: Care, Health and Development , vol.25 , pp. 299-312
    • Pain, H.1
  • 37
    • 33846263959 scopus 로고    scopus 로고
    • Predictors of care-giver stress in families of preschool-aged children with developmental disabilities
    • Plant K.M., Sanders M.R. Predictors of care-giver stress in families of preschool-aged children with developmental disabilities. Journal of Intellectual Disability Research 2007, 51:109-124.
    • (2007) Journal of Intellectual Disability Research , vol.51 , pp. 109-124
    • Plant, K.M.1    Sanders, M.R.2
  • 38
    • 0036985268 scopus 로고    scopus 로고
    • Parenting and childhood chronicity: Making visible the invisible work
    • Ray L.D. Parenting and childhood chronicity: Making visible the invisible work. Journal of Pediatric Nursing 2002, 17:424-438.
    • (2002) Journal of Pediatric Nursing , vol.17 , pp. 424-438
    • Ray, L.D.1
  • 39
    • 0038299330 scopus 로고    scopus 로고
    • The demands of biochemical genetic disorders: A survey of mothers of children with mitochondrial disease or phenylketonuria
    • Read C.Y. The demands of biochemical genetic disorders: A survey of mothers of children with mitochondrial disease or phenylketonuria. Journal of Pediatric Nursing 2003, 18:181-186.
    • (2003) Journal of Pediatric Nursing , vol.18 , pp. 181-186
    • Read, C.Y.1
  • 40
    • 1842587495 scopus 로고    scopus 로고
    • Just getting on with it: Exploring the service needs of mothers who care for young children with severe/profound and life-threatening intellectual disability
    • Redmond B., Richardson V. Just getting on with it: Exploring the service needs of mothers who care for young children with severe/profound and life-threatening intellectual disability. Journal of Applied Research in Intellectual Disabilities 2003, 16:205-218.
    • (2003) Journal of Applied Research in Intellectual Disabilities , vol.16 , pp. 205-218
    • Redmond, B.1    Richardson, V.2
  • 41
    • 33750616338 scopus 로고    scopus 로고
    • Parents' experiences of negotiating care for their technology-dependent child
    • Reeves E., Timmons S., Dampier S. Parents' experiences of negotiating care for their technology-dependent child. Journal of Child Health Care 2006, 13:228-239.
    • (2006) Journal of Child Health Care , vol.13 , pp. 228-239
    • Reeves, E.1    Timmons, S.2    Dampier, S.3
  • 42
    • 34250781124 scopus 로고    scopus 로고
    • Safe-guarding precarious survival: Parenting children who have life-threatening heart disease
    • Rempel G.R., Harrison M.J. Safe-guarding precarious survival: Parenting children who have life-threatening heart disease. Qualitative Heath Research 2007, 17:824-837.
    • (2007) Qualitative Heath Research , vol.17 , pp. 824-837
    • Rempel, G.R.1    Harrison, M.J.2
  • 43
    • 0022705254 scopus 로고
    • The problem of rigor in qualitative research
    • Sandelowski M. The problem of rigor in qualitative research. Advances in Nursing Science 1986, 8:125-130.
    • (1986) Advances in Nursing Science , vol.8 , pp. 125-130
    • Sandelowski, M.1
  • 44
    • 13644250095 scopus 로고    scopus 로고
    • Three epistemological stances for qualitative enquiry
    • Sage, Thousand Oaks CA, N. Denzin, Y. Lincoln (Eds.)
    • Schwandt T. Three epistemological stances for qualitative enquiry. The landscape of qualitative research 2003, 292-331. Sage, Thousand Oaks CA. N. Denzin, Y. Lincoln (Eds.).
    • (2003) The landscape of qualitative research , pp. 292-331
    • Schwandt, T.1
  • 45
    • 13844275452 scopus 로고    scopus 로고
    • The effect of support group on the mental health and quality of life for mothers with autistic children
    • Shu B.C., Lung F.W. The effect of support group on the mental health and quality of life for mothers with autistic children. Journal of Intellectual Disability 2005, 49:47-53.
    • (2005) Journal of Intellectual Disability , vol.49 , pp. 47-53
    • Shu, B.C.1    Lung, F.W.2
  • 49
    • 0033002156 scopus 로고    scopus 로고
    • Employment, child care, and mental health of mothers caring for children assisted by technology
    • Thyen Y., Kulhthau K., Perrin J.M. Employment, child care, and mental health of mothers caring for children assisted by technology. Pediatrics 1999, 103:1235-1242.
    • (1999) Pediatrics , vol.103 , pp. 1235-1242
    • Thyen, Y.1    Kulhthau, K.2    Perrin, J.M.3
  • 50
    • 0033629131 scopus 로고    scopus 로고
    • Hermeneutic phenomenology; providing knowledge for nursing practice
    • Van der Zalm J.E., Bergum V. Hermeneutic phenomenology; providing knowledge for nursing practice. Journal of Advanced Nursing 2000, 31:211-218.
    • (2000) Journal of Advanced Nursing , vol.31 , pp. 211-218
    • Van der Zalm, J.E.1    Bergum, V.2
  • 52
    • 0036582610 scopus 로고    scopus 로고
    • Exploring multi-agency working in services to disabled children with complex health care needs and their families
    • Watson D., Townsley R., Abbott D. Exploring multi-agency working in services to disabled children with complex health care needs and their families. Journal of Clinical Nursing 2002, 11:367-375.
    • (2002) Journal of Clinical Nursing , vol.11 , pp. 367-375
    • Watson, D.1    Townsley, R.2    Abbott, D.3
  • 55
    • 0032380281 scopus 로고    scopus 로고
    • Absolute involvement: The experience of mothers of ventilator-dependent children
    • Wilson S., Morse J.M., Penrod J. Absolute involvement: The experience of mothers of ventilator-dependent children. Health and Social Care in the Community 2001, 6:224-233.
    • (2001) Health and Social Care in the Community , vol.6 , pp. 224-233
    • Wilson, S.1    Morse, J.M.2    Penrod, J.3
  • 56
    • 0036599377 scopus 로고    scopus 로고
    • Gender differences in parental distress in children with cancer
    • Yeh C. Gender differences in parental distress in children with cancer. Journal of Advanced Nursing 2002, 38:598-606.
    • (2002) Journal of Advanced Nursing , vol.38 , pp. 598-606
    • Yeh, C.1


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