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Volumn 16, Issue 3, 2003, Pages 205-218

Just Getting on with it: Exploring the Service Needs of Mothers Who Care for Young Children with Severe/Profound and Life-Threatening Intellectual Disability

Author keywords

Babies; Complex medical need; Intellectual disability; Life threatening conditions; Mothers; Severe and profound disability; Young children

Indexed keywords


EID: 1842587495     PISSN: 13602322     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1468-3148.2003.00165.x     Document Type: Article
Times cited : (74)

References (55)
  • 3
    • 1842574719 scopus 로고    scopus 로고
    • Living with disability - The experience of parents and children
    • (ed. G. Allan). Blackwell Publishing, Oxford
    • Baldwin S. & Carlisle J. (1999) Living with disability - the experience of parents and children. In: The Sociology of the Family (ed. G. Allan), pp. 340-363. Blackwell Publishing, Oxford.
    • (1999) The Sociology of the Family , pp. 340-363
    • Baldwin, S.1    Carlisle, J.2
  • 4
    • 84956957631 scopus 로고
    • Children with disabilities and their families
    • (eds A. Walker & P. Townsend). Martin Robertson, Oxford
    • Baldwin S. & Glendinning C. (1981) Children with disabilities and their families. In: Disability in Britain: A Manifesto of Rights (eds A. Walker & P. Townsend). Martin Robertson, Oxford.
    • (1981) Disability in Britain: A Manifesto of Rights
    • Baldwin, S.1    Glendinning, C.2
  • 5
    • 0020607416 scopus 로고
    • Influence of selected child characteristics on stress in families of handicapped infants
    • Beckman P. J. (1983) Influence of selected child characteristics on stress in families of handicapped infants. American Journal of Mental Deficiency 88, 150-156.
    • (1983) American Journal of Mental Deficiency , vol.88 , pp. 150-156
    • Beckman, P.J.1
  • 6
    • 0028009641 scopus 로고
    • Resources and strategies: How parents cope with the care of a disabled child
    • Beresford B. (1994) Resources and strategies: how parents cope with the care of a disabled child. Journal of Child Psychology and Psychiatry 35, 171-209.
    • (1994) Journal of Child Psychology and Psychiatry , vol.35 , pp. 171-209
    • Beresford, B.1
  • 9
    • 1842470177 scopus 로고
    • Parental reasons for out-of-home placements of children with severe handicaps
    • Bromley B. E. & Blacher J. (1991) Parental reasons for out-of-home placements of children with severe handicaps. British Journal of Social Work 8, 181-192.
    • (1991) British Journal of Social Work , vol.8 , pp. 181-192
    • Bromley, B.E.1    Blacher, J.2
  • 10
    • 0018853704 scopus 로고
    • Measuring the effects of stress on the mothers of handicapped infants: Must depression always follow?
    • Burden R. L. (1980) Measuring the effects of stress on the mothers of handicapped infants: must depression always follow? Child: Care, Health and Development 6, 111-125.
    • (1980) Child: Care, Health and Development , vol.6 , pp. 111-125
    • Burden, R.L.1
  • 11
    • 0038166451 scopus 로고    scopus 로고
    • Management of respite and personal assistance. In a consumer-directed family support programme
    • Caldwell J. & Heller T. (2003) Management of respite and personal assistance. In a consumer-directed family support programme. Journal of Intellectual Disability Support 47, 352-366.
    • (2003) Journal of Intellectual Disability Support , vol.47 , pp. 352-366
    • Caldwell, J.1    Heller, T.2
  • 17
    • 1842522249 scopus 로고
    • Fools and heretics: Parents' views of professionals
    • (eds T. Booth et al.). Routledge in association with the Open University, London
    • Goodey C. (1992) Fools and heretics: parents' views of professionals. In: Learning for All: Policies for Diversity in Education (eds T. Booth et al.), pp. 165-176. Routledge in association with the Open University, London.
    • (1992) Learning for All: Policies for Diversity in Education , pp. 165-176
    • Goodey, C.1
  • 18
    • 84986357075 scopus 로고
    • Support networks and transitions over 2 years among adults with mental handicap
    • Grant G. (1993) Support networks and transitions over 2 years among adults with mental handicap. Mental Handicap Research 6, 36-55.
    • (1993) Mental Handicap Research , vol.6 , pp. 36-55
    • Grant, G.1
  • 21
  • 23
    • 0027490451 scopus 로고
    • Permanency planning for adults with mental retardation living with family caregivers
    • Heller T. & Factor A. (1991) Permanency planning for adults with mental retardation living with family caregivers. American Journal on Mental Retardation 98, 417-426.
    • (1991) American Journal on Mental Retardation , vol.98 , pp. 417-426
    • Heller, T.1    Factor, A.2
  • 24
    • 0033411141 scopus 로고    scopus 로고
    • Impact of a consumer-directed family support programme on adults with disabilities
    • Heller T., Miller A. B. & Hsiek K. (1999) Impact of a consumer-directed family support programme on adults with disabilities. Family Relations 48, 419-427.
    • (1999) Family Relations , vol.48 , pp. 419-427
    • Heller, T.1    Miller, A.B.2    Hsiek, K.3
  • 25
    • 0025997367 scopus 로고
    • Use and impact of a cash subsidy program
    • Herman S. (1991) Use and impact of a cash subsidy program. Mental Retardation 29, 253-258.
    • (1991) Mental Retardation , vol.29 , pp. 253-258
    • Herman, S.1
  • 27
    • 84979379184 scopus 로고
    • Very young children and the family fund
    • Lawton D. (1989) Very young children and the family fund. Children and Society 3, 215-225.
    • (1989) Children and Society , vol.3 , pp. 215-225
    • Lawton, D.1
  • 28
    • 0034178458 scopus 로고    scopus 로고
    • Expensive children in poor families: Out-of-pocket expenditures for the care of disabled and chronically ill children in welfare families
    • Lukemeyer A., Meyers M. K. & Smeeding T. (2000) Expensive children in poor families: out-of-pocket expenditures for the care of disabled and chronically ill children in welfare families. Journal of Marriage and the Family 62, 399-415.
    • (2000) Journal of Marriage and the Family , vol.62 , pp. 399-415
    • Lukemeyer, A.1    Meyers, M.K.2    Smeeding, T.3
  • 29
    • 84882467518 scopus 로고
    • Families and professionals: Prospects for partnerships
    • (eds S. Segal & V. Verma). David Fulton, London
    • McConachie H. (1991) Families and professionals: prospects for partnerships. In: Prospects for People with Learning Difficulties (eds S. Segal & V. Verma). David Fulton, London.
    • (1991) Prospects for People with Learning Difficulties
    • McConachie, H.1
  • 32
    • 84922150789 scopus 로고    scopus 로고
    • Social policy and older people
    • (eds S. Quin et al.). University College Dublin Press, Dublin (in Ireland)
    • O'Loughlin A. (1999) Social policy and older people. In: Irish Social Policy (eds S. Quin et al.), pp. 221-242. University College Dublin Press, Dublin (in Ireland).
    • (1999) Irish Social Policy , pp. 221-242
    • O'Loughlin, A.1
  • 35
    • 1842574712 scopus 로고    scopus 로고
    • Moving from Needs to Rights: Social Policy for People with Disability in Ireland'
    • (eds S. Quin et al.). University College Dublin press, Dublin
    • Quin S. & Redmond B. (1999) Moving from Needs to Rights: Social Policy for People with Disability in Ireland'. In: Contemporary Irish Social Policy (eds S. Quin et al.), pp. 146-169. University College Dublin press, Dublin.
    • (1999) Contemporary Irish Social Policy , pp. 146-169
    • Quin, S.1    Redmond, B.2
  • 36
    • 0000299035 scopus 로고
    • Examining the causes of stress in families with severely mentally handicapped children
    • Quine L. & Pahl J. (1985) Examining the causes of stress in families with severely mentally handicapped children. 'British Journal of Social Work 5, 501-571.
    • (1985) British Journal of Social Work , vol.5 , pp. 501-571
    • Quine, L.1    Pahl, J.2
  • 37
    • 0001874722 scopus 로고
    • There was never really any choice: The experience of mothers of disabled children in the United Kingdom
    • Read J. (1991) There was never really any choice: the experience of mothers of disabled children in the United Kingdom. Women's Studies International Forum 14, 561-571.
    • (1991) Women's Studies International Forum , vol.14 , pp. 561-571
    • Read, J.1
  • 39
    • 84937395557 scopus 로고    scopus 로고
    • Family services - Power or patronage
    • Redmond B. (1997) Family services - power or patronage. Irish Social Worker 15, 4-5.
    • (1997) Irish Social Worker , vol.15 , pp. 4-5
    • Redmond, B.1
  • 41
    • 85039538260 scopus 로고    scopus 로고
    • Parents and professionals - Exploring a complex relationship
    • (eds P.N. Walsh & H. Gash). Wellword Publishers, Dublin
    • Redmond B. (2003) Parents and professionals - exploring a complex relationship. In: Lives in Times: Perspectives of People with Disabilities (eds P.N. Walsh & H. Gash). Wellword Publishers, Dublin.
    • (2003) Lives in Times: Perspectives of People with Disabilities
    • Redmond, B.1
  • 42
    • 0018399668 scopus 로고
    • A home training service for pre-school developmentally handicapped children
    • Reville S. & Blunden R. (1979) A home training service for pre-school developmentally handicapped children. Behaviour Research and Therapy 17, 207-214.
    • (1979) Behaviour Research and Therapy , vol.17 , pp. 207-214
    • Reville, S.1    Blunden, R.2
  • 45
    • 0024418363 scopus 로고
    • Aging parents with mentally retarded children: Family risk factors and sources of support
    • Seltzer M. M. & Krauss M. (1989) Aging parents with mentally retarded children: family risk factors and sources of support. American Journal on Mental Retardation 94, 303-312.
    • (1989) American Journal on Mental Retardation , vol.94 , pp. 303-312
    • Seltzer, M.M.1    Krauss, M.2
  • 47
    • 0347461949 scopus 로고    scopus 로고
    • Still at home: Participation in paid employment of mothers of children with learning disabilities
    • Shearn J. (1998) Still at home: participation in paid employment of mothers of children with learning disabilities. British Journal of Learning Disabilities 26, 100-104.
    • (1998) British Journal of Learning Disabilities , vol.26 , pp. 100-104
    • Shearn, J.1
  • 48
    • 0031432753 scopus 로고    scopus 로고
    • Parental work: An account of the day-to-day activities of parents of adults with learning disability
    • Shearn J. & Todd S. (1997) Parental work: an account of the day-to-day activities of parents of adults with learning disability. Journal of Intellectual Disability Research 41, 285-301.
    • (1997) Journal of Intellectual Disability Research , vol.41 , pp. 285-301
    • Shearn, J.1    Todd, S.2
  • 49
    • 0034374155 scopus 로고    scopus 로고
    • Maternal employment and family responsibility: The perspectives of mothers of children with intellectual disabilities
    • Shearn J. & Todd S. (2000) Maternal employment and family responsibility: the perspectives of mothers of children with intellectual disabilities. Journal of Applied Research in Disability 13, 109-131.
    • (2000) Journal of Applied Research in Disability , vol.13 , pp. 109-131
    • Shearn, J.1    Todd, S.2
  • 50
    • 0036202044 scopus 로고    scopus 로고
    • The mental health of family caregivers with intellectually disable children who receive a home care program
    • Shu B.-C, Lung F.-W. & Huang C. (2002) The mental health of family caregivers with intellectually disable children who receive a home care program. Journal of Intellectual Disability Research 46, 257-263.
    • (2002) Journal of Intellectual Disability Research , vol.46 , pp. 257-263
    • Shu, B.-C.1    Lung, F.-W.2    Huang, C.3
  • 51
    • 0026913434 scopus 로고
    • Service needs of families with severe physical disability
    • Sloper P. & Turner S. (1992) Service needs of families with severe physical disability. Child: Care, Health and Development 18, 259-282.
    • (1992) Child: Care, Health and Development , vol.18 , pp. 259-282
    • Sloper, P.1    Turner, S.2
  • 52
    • 0026913434 scopus 로고
    • Risk and resistance factors in the adaptation of children with severe physical disability
    • Sloper P. & Turner S. (1993) Risk and resistance factors in the adaptation of children with severe physical disability. Child: Care, Health and Development 18, 259-282.
    • (1993) Child: Care, Health and Development , vol.18 , pp. 259-282
    • Sloper, P.1    Turner, S.2
  • 53
    • 0030519258 scopus 로고    scopus 로고
    • Struggles with time: The careers of parents with adult sons and daughters with learning disability
    • Todd S. & Shearn J. (1996a) Struggles with time: the careers of parents with adult sons and daughters with learning disability. Disability and Society 11, 379-401.
    • (1996) Disability and Society , vol.11 , pp. 379-401
    • Todd, S.1    Shearn, J.2
  • 54
    • 3042988022 scopus 로고    scopus 로고
    • Time and the person: The impact of support services on the lives of parents of adults with learning disability
    • Todd S. & Shearn J. (1996b) Time and the person: the impact of support services on the lives of parents of adults with learning disability. Journal of Applied Research in Intellectual Disabilities 9, 40-60.
    • (1996) Journal of Applied Research in Intellectual Disabilities , vol.9 , pp. 40-60
    • Todd, S.1    Shearn, J.2


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