메뉴 건너뛰기




Volumn 18, Issue 11, 2012, Pages 1709-1715

Stem Cell Transplant for Children with Sickle Cell Anemia: Parent and Patient Interest

Author keywords

Hematopoietic stem cell transplant; Prognosis; Quality of life; Sickle cell disease

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; BETA THALASSEMIA; DEMOGRAPHY; DISEASE SEVERITY; EXCHANGE BLOOD TRANSFUSION; FEMALE; HEALTH SURVEY; HEMATOPOIETIC STEM CELL TRANSPLANTATION; HUMAN; LIFESPAN; MAJOR CLINICAL STUDY; MALE; PROGNOSIS; QUALITY OF LIFE; QUESTIONNAIRE; RISK BENEFIT ANALYSIS; SICKLE CELL ANEMIA;

EID: 84867488154     PISSN: 10838791     EISSN: 15236536     Source Type: Journal    
DOI: 10.1016/j.bbmt.2012.05.013     Document Type: Article
Times cited : (32)

References (37)
  • 2
    • 27944496081 scopus 로고    scopus 로고
    • Outcome of sickle cell anemia: a 4-decade observational study of 1056 patients
    • Powars D.R., Chan L.S., Hiti A., Ramicone E., Johnson C. Outcome of sickle cell anemia: a 4-decade observational study of 1056 patients. Medicine (Baltimore) 2005, 84:363-376.
    • (2005) Medicine (Baltimore) , vol.84 , pp. 363-376
    • Powars, D.R.1    Chan, L.S.2    Hiti, A.3    Ramicone, E.4    Johnson, C.5
  • 3
    • 0028291736 scopus 로고
    • Mortality in sickle cell disease. Life expectancy and risk factors for early death
    • Platt O.S., Brambilla D.J., Rosse W.F., et al. Mortality in sickle cell disease. Life expectancy and risk factors for early death. N Engl J Med 1994, 330:1639-1644.
    • (1994) N Engl J Med , vol.330 , pp. 1639-1644
    • Platt, O.S.1    Brambilla, D.J.2    Rosse, W.F.3
  • 4
    • 78650116768 scopus 로고    scopus 로고
    • The impact of hydroxyurea on career and employment of patients with sickle cell anemia
    • Ballas S.K., Bauserman R.L., McCarthy W.F., Waclawiw M.A. The impact of hydroxyurea on career and employment of patients with sickle cell anemia. J Natl Med Assoc 2010, 102:993.
    • (2010) J Natl Med Assoc , vol.102 , pp. 993
    • Ballas, S.K.1    Bauserman, R.L.2    McCarthy, W.F.3    Waclawiw, M.A.4
  • 5
    • 24944563944 scopus 로고    scopus 로고
    • Health-related quality of life in children with sickle cell disease: child and parent perception
    • Panepinto J.A., O'Mahar K.M., DeBaun M.R., Loberiza F.R., Scott J.P. Health-related quality of life in children with sickle cell disease: child and parent perception. Br J Haematol 2005, 130:437-444.
    • (2005) Br J Haematol , vol.130 , pp. 437-444
    • Panepinto, J.A.1    O'Mahar, K.M.2    DeBaun, M.R.3    Loberiza, F.R.4    Scott, J.P.5
  • 7
    • 0036616656 scopus 로고    scopus 로고
    • Parental report of health-related quality of life in children with sickle cell disease
    • Palermo T.M., Schwartz L., Drotar D., McGowan K. Parental report of health-related quality of life in children with sickle cell disease. J Behav Med 2002, 25:269-283.
    • (2002) J Behav Med , vol.25 , pp. 269-283
    • Palermo, T.M.1    Schwartz, L.2    Drotar, D.3    McGowan, K.4
  • 8
    • 34948830175 scopus 로고    scopus 로고
    • Long-term results of related myeloablative stem-cell transplantation to cure sickle cell disease
    • Bernaudin F., Socie G., Kuentz M., et al. Long-term results of related myeloablative stem-cell transplantation to cure sickle cell disease. Blood 2007, 110:2749-2756.
    • (2007) Blood , vol.110 , pp. 2749-2756
    • Bernaudin, F.1    Socie, G.2    Kuentz, M.3
  • 9
    • 0033118835 scopus 로고    scopus 로고
    • Management of sickle cell disease
    • Steinberg M.H. Management of sickle cell disease. N Engl J Med 1999, 340:1021-1030.
    • (1999) N Engl J Med , vol.340 , pp. 1021-1030
    • Steinberg, M.H.1
  • 10
    • 0031870487 scopus 로고    scopus 로고
    • Haematopoietic stem cell transplantation for sickle cell anaemia: the first 50 patients transplanted in Belgium
    • Vermylen C., Cornu G., Ferster A., et al. Haematopoietic stem cell transplantation for sickle cell anaemia: the first 50 patients transplanted in Belgium. Bone Marrow Transplant 1998, 22:1-6.
    • (1998) Bone Marrow Transplant , vol.22 , pp. 1-6
    • Vermylen, C.1    Cornu, G.2    Ferster, A.3
  • 11
    • 9344231922 scopus 로고    scopus 로고
    • Bone marrow transplantation for sickle cell disease
    • Walters M.C., Patience M., Leisenring W., et al. Bone marrow transplantation for sickle cell disease. N Engl J Med 1996, 335:369-376.
    • (1996) N Engl J Med , vol.335 , pp. 369-376
    • Walters, M.C.1    Patience, M.2    Leisenring, W.3
  • 12
    • 0034654139 scopus 로고    scopus 로고
    • Impact of bone marrow transplantation for symptomatic sickle cell disease: an interim report. Multicenter investigation of bone marrow transplantation for sickle cell disease
    • Walters M.C., Storb R., Patience M., et al. Impact of bone marrow transplantation for symptomatic sickle cell disease: an interim report. Multicenter investigation of bone marrow transplantation for sickle cell disease. Blood 2000, 95:1918-1924.
    • (2000) Blood , vol.95 , pp. 1918-1924
    • Walters, M.C.1    Storb, R.2    Patience, M.3
  • 13
    • 0026040687 scopus 로고
    • Bone marrow transplantation for sickle cell disease. A study of parents' decisions
    • Kodish E., Lantos J., Stocking C., Singer P.A., Siegler M., Johnson F.L. Bone marrow transplantation for sickle cell disease. A study of parents' decisions. N Engl J Med 1991, 325:1349-1353.
    • (1991) N Engl J Med , vol.325 , pp. 1349-1353
    • Kodish, E.1    Lantos, J.2    Stocking, C.3    Singer, P.A.4    Siegler, M.5    Johnson, F.L.6
  • 14
    • 0034779987 scopus 로고    scopus 로고
    • Allogeneic stem cell transplantation for sickle cell disease. A study of patients' decisions
    • van Besien K., Koshy M., Anderson-Shaw L., et al. Allogeneic stem cell transplantation for sickle cell disease. A study of patients' decisions. Bone Marrow Transplant 2001, 28:545-549.
    • (2001) Bone Marrow Transplant , vol.28 , pp. 545-549
    • van Besien, K.1    Koshy, M.2    Anderson-Shaw, L.3
  • 16
    • 78851469729 scopus 로고    scopus 로고
    • Health-related quality of life in adults with sickle cell disease (SCD): a report from the comprehensive sickle cell centers clinical trial consortium
    • Dampier C., LeBeau P., Rhee S., et al. Health-related quality of life in adults with sickle cell disease (SCD): a report from the comprehensive sickle cell centers clinical trial consortium. Am J Hematol 2011, 86:203-205.
    • (2011) Am J Hematol , vol.86 , pp. 203-205
    • Dampier, C.1    LeBeau, P.2    Rhee, S.3
  • 17
    • 0035432179 scopus 로고    scopus 로고
    • PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations
    • Varni J.W., Seid M., Kurtin P.S. PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care 2001, 39:800-812.
    • (2001) Med Care , vol.39 , pp. 800-812
    • Varni, J.W.1    Seid, M.2    Kurtin, P.S.3
  • 18
    • 0036525747 scopus 로고    scopus 로고
    • The PedsQL in pediatric cancer: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module
    • Varni J.W., Burwinkle T.M., Katz E.R., Meeske K., Dickinson P. The PedsQL in pediatric cancer: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer 2002, 94:2090-2106.
    • (2002) Cancer , vol.94 , pp. 2090-2106
    • Varni, J.W.1    Burwinkle, T.M.2    Katz, E.R.3    Meeske, K.4    Dickinson, P.5
  • 19
    • 3543133546 scopus 로고    scopus 로고
    • The PedsQL in pediatric asthma: reliability and validity of the Pediatric Quality of Life Inventory generic core scales and asthma module
    • Varni J.W., Burwinkle T.M., Rapoff M.A., Kamps J.L., Olson N. The PedsQL in pediatric asthma: reliability and validity of the Pediatric Quality of Life Inventory generic core scales and asthma module. J Behav Med 2004, 27:297-318.
    • (2004) J Behav Med , vol.27 , pp. 297-318
    • Varni, J.W.1    Burwinkle, T.M.2    Rapoff, M.A.3    Kamps, J.L.4    Olson, N.5
  • 20
    • 0348161127 scopus 로고    scopus 로고
    • The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity
    • Varni J.W., Burwinkle T.M., Seid M., Skarr D. The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr 2003, 3:329-341.
    • (2003) Ambul Pediatr , vol.3 , pp. 329-341
    • Varni, J.W.1    Burwinkle, T.M.2    Seid, M.3    Skarr, D.4
  • 21
    • 59449092216 scopus 로고    scopus 로고
    • The performance of the PedsQL generic core scales in children with sickle cell disease
    • Panepinto J.A., Pajewski N.M., Foerster L.M., Hoffmann R.G. The performance of the PedsQL generic core scales in children with sickle cell disease. J Pediatr Hematol Oncol 2008, 30:666-673.
    • (2008) J Pediatr Hematol Oncol , vol.30 , pp. 666-673
    • Panepinto, J.A.1    Pajewski, N.M.2    Foerster, L.M.3    Hoffmann, R.G.4
  • 22
    • 84867563174 scopus 로고    scopus 로고
    • The PedsQL4.0 measurement model for the pediatric quality of life inventory version 4.0: administration guidelines
    • Varni JW. The PedsQL4.0 measurement model for the pediatric quality of life inventory version 4.0: administration guidelines 1999.
    • (1999)
    • Varni, J.W.1
  • 23
    • 34247858963 scopus 로고    scopus 로고
    • Matched-related donor transplantation for sickle cell disease: report from the Center for International Blood and Transplant Research
    • Panepinto J.A., Walters M.C., Carreras J., et al. Matched-related donor transplantation for sickle cell disease: report from the Center for International Blood and Transplant Research. Br J Haematol 2007, 137:479-485.
    • (2007) Br J Haematol , vol.137 , pp. 479-485
    • Panepinto, J.A.1    Walters, M.C.2    Carreras, J.3
  • 24
    • 0035544031 scopus 로고    scopus 로고
    • Stable mixed hematopoietic chimerism after bone marrow transplantation for sickle cell anemia
    • Walters M.C., Patience M., Leisenring W., et al. Stable mixed hematopoietic chimerism after bone marrow transplantation for sickle cell anemia. Biol Blood Marrow Transplant 2001, 7:665-673.
    • (2001) Biol Blood Marrow Transplant , vol.7 , pp. 665-673
    • Walters, M.C.1    Patience, M.2    Leisenring, W.3
  • 25
    • 21344450307 scopus 로고    scopus 로고
    • Psychological complications in sickle cell disease
    • Anie K.A. Psychological complications in sickle cell disease. Br J Haematol 2005, 129:723-729.
    • (2005) Br J Haematol , vol.129 , pp. 723-729
    • Anie, K.A.1
  • 26
    • 0022479187 scopus 로고
    • Psychosocial adjustment in children and adolescents with sickle cell disease
    • Hurtig A.L., White L.S. Psychosocial adjustment in children and adolescents with sickle cell disease. J Pediatr Psychol 1986, 11:411-427.
    • (1986) J Pediatr Psychol , vol.11 , pp. 411-427
    • Hurtig, A.L.1    White, L.S.2
  • 27
    • 0022628893 scopus 로고
    • Prophylaxis with oral penicillin in children with sickle cell anemia. A randomized trial
    • Gaston M.H., Verter J.I., Woods G., et al. Prophylaxis with oral penicillin in children with sickle cell anemia. A randomized trial. N Engl J Med 1986, 314:1593-1599.
    • (1986) N Engl J Med , vol.314 , pp. 1593-1599
    • Gaston, M.H.1    Verter, J.I.2    Woods, G.3
  • 28
    • 77951712618 scopus 로고    scopus 로고
    • Improved survival of children and adolescents with sickle cell disease
    • Quinn C.T., Rogers Z.R., McCavit T.L., Buchanan G.R. Improved survival of children and adolescents with sickle cell disease. Blood 2010, 115:3447-3452.
    • (2010) Blood , vol.115 , pp. 3447-3452
    • Quinn, C.T.1    Rogers, Z.R.2    McCavit, T.L.3    Buchanan, G.R.4
  • 29
    • 34249029657 scopus 로고    scopus 로고
    • Incidence of invasive pneumococcal disease among individuals with sickle cell disease before and after the introduction of the pneumococcal conjugate vaccine
    • Halasa N.B., Shankar S.M., Talbot T.R., et al. Incidence of invasive pneumococcal disease among individuals with sickle cell disease before and after the introduction of the pneumococcal conjugate vaccine. Clin Infect Dis 2007, 44:1428-1433.
    • (2007) Clin Infect Dis , vol.44 , pp. 1428-1433
    • Halasa, N.B.1    Shankar, S.M.2    Talbot, T.R.3
  • 30
    • 77950622293 scopus 로고    scopus 로고
    • The effect of prolonged administration of hydroxyurea on morbidity and mortality in adult patients with sickle cell syndromes: results of a 17-year, single-center trial (LaSHS)
    • Voskaridou E., Christoulas D., Bilalis A., et al. The effect of prolonged administration of hydroxyurea on morbidity and mortality in adult patients with sickle cell syndromes: results of a 17-year, single-center trial (LaSHS). Blood 2010, 115:2354-2363.
    • (2010) Blood , vol.115 , pp. 2354-2363
    • Voskaridou, E.1    Christoulas, D.2    Bilalis, A.3
  • 31
    • 0035799111 scopus 로고    scopus 로고
    • Survival estimates for patients with homozygous sickle-cell disease in Jamaica: a clinic-based population study
    • Wierenga K.J., Hambleton I.R., Lewis N.A. Survival estimates for patients with homozygous sickle-cell disease in Jamaica: a clinic-based population study. Lancet 2001, 357:680-683.
    • (2001) Lancet , vol.357 , pp. 680-683
    • Wierenga, K.J.1    Hambleton, I.R.2    Lewis, N.A.3
  • 32
    • 84878070930 scopus 로고    scopus 로고
    • World population prospects: the revision. PLACE: the Population Division of the Department of Economic and Social Affairs of the UN Secretariat. Available at:
    • Secretariat U. World population prospects: the 2006 revision. PLACE: the Population Division of the Department of Economic and Social Affairs of the UN Secretariat. Available at: http://www.unorg/esa/population/publications/wpp2006/wpp2006htm.
    • (2006)
    • Secretariat, U.1
  • 33
    • 27344441977 scopus 로고    scopus 로고
    • Health related quality of life in sickle cell patients: the PiSCES project
    • McClish D.K., Penberthy L.T., Bovbjerg V.E., et al. Health related quality of life in sickle cell patients: the PiSCES project. Health Qual Life Outcomes 2005, 3:50.
    • (2005) Health Qual Life Outcomes , vol.3 , pp. 50
    • McClish, D.K.1    Penberthy, L.T.2    Bovbjerg, V.E.3
  • 34
    • 81355132495 scopus 로고    scopus 로고
    • Disability among individuals with sickle cell disease: literature review from a public health perspective
    • Swanson M.E., Grosse S.D., Kulkarni R. Disability among individuals with sickle cell disease: literature review from a public health perspective. Am J Prev Med 2011, 41(6 Suppl 4):S390-S397.
    • (2011) Am J Prev Med , vol.41 , Issue.6 SUPPL. 4
    • Swanson, M.E.1    Grosse, S.D.2    Kulkarni, R.3
  • 35
    • 20044367676 scopus 로고    scopus 로고
    • Predicting clinical severity in sickle cell anaemia
    • Steinberg M.H. Predicting clinical severity in sickle cell anaemia. Br J Haematol 2005, 129:465-481.
    • (2005) Br J Haematol , vol.129 , pp. 465-481
    • Steinberg, M.H.1
  • 36
    • 0034642592 scopus 로고    scopus 로고
    • Prediction of adverse outcomes in children with sickle cell disease
    • Miller S.T., Sleeper L.A., Pegelow C.H., et al. Prediction of adverse outcomes in children with sickle cell disease. N Engl J Med 2000, 342:83-89.
    • (2000) N Engl J Med , vol.342 , pp. 83-89
    • Miller, S.T.1    Sleeper, L.A.2    Pegelow, C.H.3
  • 37
    • 38349193738 scopus 로고    scopus 로고
    • Prediction of adverse outcomes in children with sickle cell anemia: a study of the Dallas Newborn Cohort
    • Quinn C.T., Lee N.J., Shull E.P., Ahmad N., Rogers Z.R., Buchanan G.R. Prediction of adverse outcomes in children with sickle cell anemia: a study of the Dallas Newborn Cohort. Blood 2008, 111:544-548.
    • (2008) Blood , vol.111 , pp. 544-548
    • Quinn, C.T.1    Lee, N.J.2    Shull, E.P.3    Ahmad, N.4    Rogers, Z.R.5    Buchanan, G.R.6


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.