-
1
-
-
0025770390
-
Pain in sickle cell disease: Rates and risk factors
-
Pratt OS, Thorington BD, Brambilla DJ, Milner PF, Rosse WF, Vichinsky E, Kinney TR: Pain in sickle cell disease: Rates and risk factors. N Engl J Med 1991, 325:11-16.
-
(1991)
N. Engl. J. Med.
, vol.325
, pp. 11-16
-
-
Pratt, O.S.1
Thorington, B.D.2
Brambilla, D.J.3
Milner, P.F.4
Rosse, W.F.5
Vichinsky, E.6
Kinney, T.R.7
-
2
-
-
0028291736
-
Mortality in sickle cell disease: Life expectancy and risk factors for early death
-
Pratt OS, Brambilla DJ, Milner PF, Rosse WF, Milner PF, Castro O, Steinberg MH, Klug PP: Mortality in sickle cell disease: Life expectancy and risk factors for early death. N Engl J Med 1994, 330:1639-1644.
-
(1994)
N. Engl. J. Med.
, vol.330
, pp. 1639-1644
-
-
Pratt, O.S.1
Brambilla, D.J.2
Milner, P.F.3
Rosse, W.F.4
Milner, P.F.5
Castro, O.6
Steinberg, M.H.7
Klug, P.P.8
-
3
-
-
10444268855
-
Three decades of innovation in the management of sickle cell disease: The road to understanding the sickle cell disease clinical phenotype
-
Bonds DR: Three decades of innovation in the management of sickle cell disease: the road to understanding the sickle cell disease clinical phenotype. Blood Rev 2005, 19: 99-110.
-
(2005)
Blood Rev.
, vol.19
, pp. 99-110
-
-
Bonds, D.R.1
-
4
-
-
0036725552
-
The psychosocial experience of people with sickle cell disease and its impact on quality of life: Qualitative findings from focus groups
-
Thomas VJ, Taylor LM: The psychosocial experience of people with sickle cell disease and its impact on quality of life: Qualitative findings from focus groups. Br J Health Psychol 2002, 7:345-363.
-
(2002)
Br. J. Health Psychol.
, vol.7
, pp. 345-363
-
-
Thomas, V.J.1
Taylor, L.M.2
-
5
-
-
0029810145
-
Pain, quality of life, and coping in sickle cell disease
-
Fuggle P, Shand PA, Gill LJ, Davies SC: Pain, quality of life, and coping in sickle cell disease. Arch Dis Child 1996, 75:199-203.
-
(1996)
Arch. Dis. Child
, vol.75
, pp. 199-203
-
-
Fuggle, P.1
Shand, P.A.2
Gill, L.J.3
Davies, S.C.4
-
6
-
-
0033539326
-
Quality of life in children with sickle cell disease in Amsterdam area
-
Kater AP, Heijboer H, Peters M, Vogels T, Prins MH, Heymans HS: [Quality of life in children with sickle cell disease in Amsterdam area]. Ned Tijdschr Geneeskd 1999, 143:2049-2053.
-
(1999)
Ned. Tijdschr. Geneeskd.
, vol.143
, pp. 2049-2053
-
-
Kater, A.P.1
Heijboer, H.2
Peters, M.3
Vogels, T.4
Prins, M.H.5
Heymans, H.S.6
-
7
-
-
4344645830
-
Quality of life among children with sickle cell disease receiving chronic transfusion therapy
-
Stegenga KA, Ward-Smith P, Hinds PS, Routhieaux JA, Woods GM: Quality of life among children with sickle cell disease receiving chronic transfusion therapy. J Pediatr Oncol Nurs 2004, 21:207-213.
-
(2004)
J. Pediatr. Oncol. Nurs.
, vol.21
, pp. 207-213
-
-
Stegenga, K.A.1
Ward-Smith, P.2
Hinds, P.S.3
Routhieaux, J.A.4
Woods, G.M.5
-
8
-
-
0035753979
-
Use of focus groups for pain and quality of life assessment in adults with sickle cell disease
-
Strickland OL, Jackson G, Gilead M, McGuire DB, Quarles S: Use of focus groups for pain and quality of life assessment in adults with sickle cell disease. J Natl Black Nurses Assoc 2001, 12:36-43.
-
(2001)
J. Natl. Black Nurses Assoc.
, vol.12
, pp. 36-43
-
-
Strickland, O.L.1
Jackson, G.2
Gilead, M.3
McGuire, D.B.4
Quarles, S.5
-
9
-
-
0036727446
-
Sickle cell disease: Pain, coping and quality of life in a study of adults in the UK
-
Anie KA, Steptoe A, Bevan D: Sickle cell disease: Pain, coping and quality of life in a study of adults in the UK. Br J Health Psychol 2002, 7:331-344.
-
(2002)
Br. J. Health Psychol.
, vol.7
, pp. 331-344
-
-
Anie, K.A.1
Steptoe, A.2
Bevan, D.3
-
10
-
-
0036725552
-
The psychosocial experience of people with sickle cell disease and its impact on quality of life: Qualitative findings from focus groups
-
Thomas VJ, Taylor LM: The psychosocial experience of people with sickle cell disease and its impact on quality of life: Qualitative findings from focus groups. Br J Health Psychol 202, 7:345-363.
-
(2002)
Br. J. Health Psychol.
, vol.7
, pp. 345-363
-
-
Thomas, V.J.1
Taylor, L.M.2
-
11
-
-
0035145079
-
Quality of life improvement for patients with sickle cell disease
-
Ramsey LT, Woods KF, Callahan LA, Mensay GA, Barbeau P, Gutin B: Quality of life improvement for patients with sickle cell disease. Am J Hematol 2001, 66:155-156.
-
(2001)
Am. J. Hematol.
, vol.66
, pp. 155-156
-
-
Ramsey, L.T.1
Woods, K.F.2
Callahan, L.A.3
Mensay, G.A.4
Barbeau, P.5
Gutin, B.6
-
12
-
-
0033549398
-
Experience of hospital care and treatment seeking for pain from sickle cell disease: Qualitative study
-
Maxwell, K, Streetly A, Bevan D: Experience of hospital care and treatment seeking for pain from sickle cell disease: qualitative study. BMJ 1999, 318:1585-1590.
-
(1999)
BMJ
, vol.318
, pp. 1585-1590
-
-
Maxwell, K.1
Streetly, A.2
Bevan, D.3
-
13
-
-
0041423493
-
Pain management and symptoms of substance dependence among patients with sickle cell disease
-
Elander J, Lusher J, Bevan D, Telfer P: Pain management and symptoms of substance dependence among patients with sickle cell disease. Soc Sci Med 2003, 57:1683-1696.
-
(2003)
Soc. Sci. Med.
, vol.57
, pp. 1683-1696
-
-
Elander, J.1
Lusher, J.2
Bevan, D.3
Telfer, P.4
-
14
-
-
13444252435
-
Understanding pain and improving management of sickle cell disease: The PiSCES Study
-
Smith WR, Bovbjerg VE, Penberthy LT, McClish DK, Levenson JL, Roberts JD, Roseff SD, Aisidu IP: Understanding pain and improving management of sickle cell disease: the PiSCES Study, J Natl Med Assoc 2005, 97:183-192.
-
(2005)
J. Natl. Med. Assoc.
, vol.97
, pp. 183-192
-
-
Smith, W.R.1
Bovbjerg, V.E.2
Penberthy, L.T.3
McClish, D.K.4
Levenson, J.L.5
Roberts, J.D.6
Roseff, S.D.7
Aisidu, I.P.8
-
15
-
-
0029618383
-
Design of the multicenter study of hydroxyrea in sickle cell anemia
-
the Investigators of the Multicenter Study of Hydroyurea
-
Carache S, Terrin ML, Moore RD, Dover GJ, McMahon RP, Barton FB, Waclawiw M, Eckert SV and the Investigators of the Multicenter Study of Hydroyurea. Design of the multicenter study of hydroxyrea in sickle cell anemia. Controlled Clinical Trials 1995, 16: 432-446.
-
(1995)
Controlled Clinical Trials
, vol.16
, pp. 432-446
-
-
Carache, S.1
Terrin, M.L.2
Moore, R.D.3
Dover, G.J.4
McMahon, R.P.5
Barton, F.B.6
Waclawiw, M.7
Eckert, S.V.8
-
16
-
-
0016823810
-
"Mini-mental state". A practical guide for grading the cognitive state of patients for the clinician
-
Folstein MF, Folstein SE, McHugh PR: "Mini-mental state". A practical guide for grading the cognitive state of patients for the clinician. J Psychiatr Res 1975, 12(3): 189-98.
-
(1975)
J. Psychiatr. Res.
, vol.12
, Issue.3
, pp. 189-198
-
-
Folstein, M.F.1
Folstein, S.E.2
McHugh, P.R.3
-
17
-
-
0041806795
-
Sullivan Comparison of directly elicited preferences to preferences derived from the SF-36 in adults with asthma
-
Lee TA, Hollingworth W, Sullivan: Comparison of directly elicited preferences to preferences derived from the SF-36 in adults with asthma. MDM 2003, 23:323-334.
-
(2003)
MDM
, vol.23
, pp. 323-334
-
-
Lee, T.A.1
Hollingworth, W.2
-
18
-
-
0036743624
-
Validation of the SF-36 for the assessment of quality of life in adolescents and adults with cystic fibrosis
-
Gee L, Abbott J, Conway SP, Etherington C, Webb, AK: Validation of the SF-36 for the assessment of quality of life in adolescents and adults with cystic fibrosis. J Cystic Fibrosis 2002, 1:137-145.
-
(2002)
J. Cystic Fibrosis
, vol.1
, pp. 137-145
-
-
Gee, L.1
Abbott, J.2
Conway, S.P.3
Etherington, C.4
Webb, A.K.5
-
19
-
-
0030805521
-
Hemodialysis patient-assessed functional health status predicts continued survival, hospitalization and dialysis attendance compliance
-
DeOreo PB: Hemodialysis patient-assessed functional health status predicts continued survival, hospitalization and dialysis attendance compliance. Am J Kidney Disease 1997, 30:204-212.
-
(1997)
Am. J. Kidney Disease
, vol.30
, pp. 204-212
-
-
DeOreo, P.B.1
-
21
-
-
12144287015
-
Health-related quality of life associated with chronic conditions in eight countries: Results from the International Quality of Life Assessment (IQOLA) Project
-
The IQOLA Project Group
-
Alonso J, Ferrer M, Gandek B, Ware JE Jr, Aaronson NK, Mosconi P, Rasmussen NK, Bullinger M, Fukuhara S, Kaasa S, Leplege A and the IQOLA Project Group. Health-related quality of life associated with chronic conditions in eight countries: results from the International Quality of Life Assessment (IQOLA) Project. Qual Life Res 2004, 13:283-298.
-
(2004)
Qual. Life Res.
, vol.13
, pp. 283-298
-
-
Alonso, J.1
Ferrer, M.2
Gandek, B.3
Ware Jr., J.E.4
Aaronson, N.K.5
Mosconi, P.6
Rasmussen, N.K.7
Bullinger, M.8
Fukuhara, S.9
Kaasa, S.10
Leplege, A.11
-
22
-
-
13844255130
-
Comorbidity of chronic diseases: Effects of disease pairs on physical and mental functioning
-
Rijken M, van Kerkhof M, Dekker J, Schellevis FG: Comorbidity of chronic diseases: effects of disease pairs on physical and mental functioning. Qual Life Res 2005, 14: 45-55.
-
(2005)
Qual. Life Res.
, vol.14
, pp. 45-55
-
-
Rijken, M.1
van Kerkhof, M.2
Dekker, J.3
Schellevis, F.G.4
-
23
-
-
0026502852
-
Quality of life in persons with human immunodeficiency virus infection: Measurement by the Medical Outcomes Study Instrument
-
Wachtel T, Piette J, Mor V, Stein M, Fleishman J, Carpenter C: Quality of life in persons with human immunodeficiency virus infection: measurement by the Medical Outcomes Study Instrument. Ann Intern Med 1992, 116:129-137.
-
(1992)
Ann. Intern. Med.
, vol.116
, pp. 129-137
-
-
Wachtel, T.1
Piette, J.2
Mor, V.3
Stein, M.4
Fleishman, J.5
Carpenter, C.6
-
24
-
-
0031916529
-
The responsiveness of disease-specific and generic health measures to changes in the severity of asthma among adults
-
Ware JE Jr, Kemp JP, Buchner DA, Singer AE, Nolop KB, Goss TF: The responsiveness of disease-specific and generic health measures to changes in the severity of asthma among adults. Qual Life Res 1998, 7:235-244.
-
(1998)
Qual. Life Res.
, vol.7
, pp. 235-244
-
-
Ware Jr., J.E.1
Kemp, J.P.2
Buchner, D.A.3
Singer, A.E.4
Nolop, K.B.5
Goss, T.F.6
-
25
-
-
27844503053
-
The SF-36 Health Survey as a generic outcome measure in clinical trials of patients with osteoarthritis and rheumatoid arthritis: Tests of data quality, scaling assumptions and score reliability
-
Kosinski M, Keller SD, Hatoum HT, Kong SX, Ware JE Jr: The SF-36 Health Survey as a generic outcome measure in clinical trials of patients with osteoarthritis and rheumatoid arthritis: tests of data quality, scaling assumptions and score reliability. Med Care 1999, 37:MS10-22.
-
(1999)
Med. Care
, vol.37
-
-
Kosinski, M.1
Keller, S.D.2
Hatoum, H.T.3
Kong, S.X.4
Ware Jr., J.E.5
-
27
-
-
0031939973
-
Health related quality of life in chronic disorders: A comparison across studies using the SF-36
-
Schlenk EA, Erlen JA, Dunbar-Jacob J, McDowell J, Engberg S, Serinka SM, Rohay JM, Bernier MH. Health related quality of life in chronic disorders: a comparison across studies using the SF-36. Qual Life Res 1998, 7: 57-65.
-
(1998)
Qual. Life Res.
, vol.7
, pp. 57-65
-
-
Schlenk, E.A.1
Erlen, J.A.2
Dunbar-Jacob, J.3
McDowell, J.4
Engberg, S.5
Serinka, S.M.6
Rohay, J.M.7
Bernier, M.H.8
-
28
-
-
0032984825
-
Integrating response shift into health-related quality of life research: A theoretical model
-
Sprangers MAG, Schwarts CE. Integrating response shift into health-related quality of life research: a theoretical model. Soc Sci and Med 1999, 48: 1507-1515.
-
(1999)
Soc. Sci. and Med.
, vol.48
, pp. 1507-1515
-
-
Sprangers, M.A.G.1
Schwarts, C.E.2
-
29
-
-
4344703446
-
Towards a theoretical model of quality-of-life appraisal: Implications of findings from studies of response shift
-
Rapkin BD, Schwartz CR. Towards a theoretical model of quality-of-life appraisal: Implications of findings from studies of response shift. HQLO 2004, 2: 14.
-
(2004)
HQLO
, vol.2
, pp. 14
-
-
Rapkin, B.D.1
Schwartz, C.R.2
-
30
-
-
13844272552
-
Ignorance of hedonic adaptation for hemodialyis: A study using ecological momentary assessment
-
Riis J, Loewenstien G, Baron J, Fepson C, Fagerlin A, Ubel PA. Ignorance of hedonic adaptation for hemodialyis: A study using ecological momentary assessment. J Exp Psychol: Gen 2005, 134: 3-9.
-
(2005)
J. Exp. Psychol: Gen.
, vol.134
, pp. 3-9
-
-
Riis, J.1
Loewenstien, G.2
Baron, J.3
Fepson, C.4
Fagerlin, A.5
Ubel, P.A.6
-
31
-
-
0003507529
-
Understanding happiness: A theory of subjective well being
-
Melboune, Vicotira Australia: Longman Cheshire
-
Heady B, Wearing A. Understanding happiness: A theory of subjective well being. Melboune, Vicotira Australia: Longman Cheshire. 1992.
-
(1992)
-
-
Heady, B.1
Wearing, A.2
|