Reproductive medicine and Turner syndrome: Ethical issues

Fertility and Sterility

Volumn 98, Issue 4, 2012, Pages 792-796

  Wasserman, David ^a   Asch, Adrienne ^a  

^a YESHIVA UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

GROWTH HORMONE;

ARTICLE; BODY HEIGHT; CRYOPRESERVATION; ETHICAL DECISION MAKING; FETAL WELL BEING; HEALTH PRACTITIONER; HEALTH SERVICE; HUMAN; MEDICAL ETHICS; OOCYTE; OVARY; PREGNANCY; PREGNANCY TERMINATION; PRIORITY JOURNAL; RECIPIENT; REPRODUCTION; RISK ASSESSMENT; SHORT STATURE; SOCIAL ATTITUDE; THERAPEUTIC ABORTION; TURNER SYNDROME; WOMEN'S HEALTH;

EID: 84866910333     PISSN: 00150282     EISSN: 15565653     Source Type: Journal    
DOI: 10.1016/j.fertnstert.2012.08.036     Document Type: Review

References (39)

1. M.B. Ranke, and P. Saenger Turner's syndrome Lancet 358 2001 309 314
2. O. Hovatta Pregnancies in women with Turner's syndrome Ann Med 31 1999 106 110
3. R. Abir, B. Fisch, R. Nahum, R. Orvieto, and S. Nitke Ben Rafael Z. Turner's syndrome and fertility: Current status and possible putative prospects Hum Reprod Update 7 2001 603 610
4. N.H. Birkebaek, D. Cruger, J. Hansen, J. Nielsen, and G. Bruun-Petersen Fertility and pregnancy outcome in Danish women with Turner syndrome Clin Genet 61 2002 35 39
5. C.A. Bondy Turner syndrome D.T. Carrell, C.M. Peterson, Reproductive endocrinology and infertility 2010 Springer New York, NY 307 324
6. R.H. Reindollar Turner syndrome: contemporary thoughts and reproductive issues Semin Reprod Med 29 2011 342 352
7. C.H. Gravholt, S. Juul, R.W. Naeraa, and J. Hansen Morbidity in Turner syndrome J Clin Epidemiol 51 1998 147 158
8. T.N. Hadnott, H.N. Gould, A.M. Gharib, and C.A. Bondy Outcomes of spontaneous and assisted pregnancies in Turner syndrome: The U.S. National Institutes of Health experience Fertil Steril 95 2011 2251 2256
9. L. Sylven, C. Magnusson, K. Hagenfeldt, and B. Vonschoultz Life with Turner's syndrome - a psychosocial report from 22 middle-aged women Acta Endocrinol 129 1993 188 194
10. S.J. Cragg, and K.D. Lafreniere Effects of Turner syndrome on women's self-esteem and body image J Dev Phys Disabil 22 2010 433 445
11. E.J. Sutton, A. McInerney-Leo, C.A. Bondy, S.E. Gollust, D. King, and B. Biesecker Turner syndrome: four challenges across the lifespan Am J Med Genet 139A 2005 57 66
12. C.A. Bondy Care of girls and women with Turner syndrome: a guideline of the Turner Syndrome Study Group J Clin Endocrinol Metab 92 2007 10 25
13. B.E. Hjerrild, K.H. Mortensen, and C.H. Gravholt Turner syndrome and clinical treatment Br Med Bull 86 2008 77 93
14. M.F. Karnis, A.E. Zimon, S.I. Lalwani, L.S. Timmreck, S. Klipstein, and R.H. Reindollar Risk of death in pregnancy achieved through oocyte donation in patients with Turner syndrome: a national survey Fertil Steril 80 2003 498 501
15. N. Chevalier, H. Letur, D. Lelannou, J. Ohl, D. Cornet, and C. Chalas-Boissonnas Materno-fetal cardiovascular complications in Turner syndrome after oocyte donation: Insufficient prepregnancy screening and pregnancy follow-up are associate with poor outcome J Clin Endocrinol Metab 96 2011 E260 E267
16. B. Borgstrom, J. Hreinsson, C. Rasmussen, M. Sheikhi, G. Fried, and V. Keros Fertility preservation in girls with Turner syndrome: Prognostic signs of the presence of ovarian follicles J Clin Endocrinol Metab 94 2009 74 80
17. Daily Strength. TS Support Group. Available at: External link http://www.dailystrength.org/c/Turner-Syndrome/support-group. Accessed May 29, 2012.
18. L.L.E. Bolt, and D. Mul Growth hormone in short children: Beyond medicine? Acta Paediatr 90 2001 69 73
19. D.E. Sandberg, W.M. Bukowski, C.M. Fung, and R.B. Noll Height and social adjustment: Are extremes a cause for concern and action? Pediatrics 114 2004 744 750
20. L.D. Voss, and D.E. Sandberg The psychological burden of short stature: Evidence against Eur J Endocrinol 151 2004 S29 S33
21. L.D. Voss Is short stature a problem? The psychological view Eur J Endocrinol 155 2006 S39 S45
22. D.B. Allen, and N. Fost hGH for short stature: Ethical issues raised by expanded access J Pediatr 144 2004 648 652
23. L.R. Churchill Bias, opportunity and justice in growth hormone therapy B. Stabler, L.E. Underwood, Growth, stature and adaptation 1994 University of North Carolina at Chapel Hill Press Chapel Hill, NC 195 202
24. G. Khastgir, J.W.W. Studd, S.W. Fox, J. Jones, J. Alaghband-Zadeh, and J.W.M. Chow A longitudinal study of the effect of subcutaneous estrogen replacement on bone in young women with Turner's syndrome J Bone Miner Res 18 2003 925 932
25. Turner Syndrome Society. Available at: www.turnersyndrome.org/resources/ healthcare/growth-related issues. Accessed June 2, 2012.
26. Turner Syndrome Society. Available at: www.turnersyndrome.org/resources/ healthcare/ovarian-hormone-replacement-estrogen. Accessed June 2, 2012.
27. S.E. Oberfield Growth hormone use in normal, short children - a plea for reason N Engl J Med 340 1999 557 559
28. J.C. Carel, E. Ecosse, I. Bastie-Sigeac, S. Cabrol, M. Tauber, and J. Leger Quality of life determinants in young women with Turner's syndrome after growth hormone treatment: Results of the StaTur population-based cohort study J Clin Endocrinol Metab 90 2005 1992 1997
29. T.N. Hadnott, and C.A. Bondy Risks of pregnancy for women with Turner syndrome Expert Rev Obstet Gynecol 6 2011 217 227
30. N.M. Lau, J.Y.J. Huang, S. MacDonald, S. Elizur, Y. Gidoni, and H. Holzer Feasibility of fertility preservation in young females with Turner syndrome Reprod Biomed Online 18 2009 290 295
31. Y.S. Gidoni, J. Takefman, H.E.G. Holzer, S.E. Elizur, W.Y. Son, and R.C. Chian Cryopreservation of a mother's oocytes for possible future use by her daughter with Turner syndrome: case report Fertil Steril 90 2008 E9 E12
32. G.P. Quinn, D.K. Stearsman, L. Campo-Engelstein, and D. Murphy Preserving the right to future children: An ethical case analysis Am J Bioeth 12 2012 38 43
33. S. Hall, L. Abramsky, and T.M. Marteau Health professionals' reports of information given to parents following the prenatal diagnosis of sex chromosome anomalies and outcomes of pregnancies: A pilot study Prenat Diagn 23 2003 535 538
34. N. Baena, C. De Vigan, E. Cariati, M. Clementi, C. Stoll, and M.R. Caballin Turner syndrome: Evaluation of prenatal diagnosis in 19 European Registries Am J Med Genet 129A 2004 16 20
35. J.L. Brun, F. Gangbo, Z.Q. Wen, K. Galant, L. Taine, and B. Maugey-Laulom Prenatal diagnosis and management of sex chromosome aneuploidy: A report on 98 cases Prenat Diagn 24 2004 213 218
36. M. Sagi, V. Meiner, N. Reshef, J. Dagan, and J. Zlotogora Prenatal diagnosis of sex chromosome aneuploidy: Possible reasons for high rates of pregnancy termination Prenat Diagn 21 2001 461 465
37. M. Gabor, P. Csaba, T.P. Erno, B. Artur, and P. Zoltan Factors influencing parental decision making in prenatal diagnosis of sex chromosome aneuploidy Obstet Gynecol 104 2004 94 101
38. N.P. Iyer, D.F. Tucker, S.H. Roberts, M. Moselhi, M. Morgan, and J.W. Matthes Outcome of fetuses with Turner syndrome: A 10-year congenital anomaly register based study J Matern Fetal Neonatal Med 25 2012 68 73
39. K.C. Jeon, L.S. Chen, and P. Goodson Decision to abort after a prenatal diagnosis of sex chromosome abnormality: a systematic review of the literature Genet Med 14 2012 27 38