Preserving the right to future children: An ethical case analysis

American Journal of Bioethics

Volumn 12, Issue 6, 2012, Pages 38-43

  Quinn, Gwendolyn P ^a,e   Stearsman, Daniel K ^b   Campo Engelstein, Lisa ^c   Murphy, Devin ^d  

^a H LEE MOFFITT CANCER CENTER AND RESEARCH INSTITUTE   (United States)

^b UNIVERSITY OF SOUTH FLORIDA   (United States)

^c ALBANY MEDICAL COLLEGE   (United States)

^d MILLER CHILDREN S HOSPITAL   (United States)

^e UNIVERSITY OF SOUTH FLORIDA   (United States)

Author keywords

Decision making; Ethics; Fertility preservation; Pediatric

Indexed keywords

ARTICLE; BENEFICENCE; BONE MARROW TRANSPLANTATION; CASE REPORT; CRYOPRESERVATION; DECISION MAKING; ETHICS; FEMALE; FEMALE INFERTILITY; HUMAN; MOTHER; NUCLEAR FAMILY; OVARY; PERSONAL AUTONOMY; PRESCHOOL CHILD; REPRODUCTIVE RIGHTS; SICKLE CELL ANEMIA; SOCIAL JUSTICE;

ANEMIA, SICKLE CELL; BENEFICENCE; BONE MARROW TRANSPLANTATION; CHILD, PRESCHOOL; CRYOPRESERVATION; DECISION MAKING; ETHICAL ANALYSIS; FEMALE; HUMANS; INFERTILITY, FEMALE; MOTHERS; NUCLEAR FAMILY; OVARY; PERSONAL AUTONOMY; PRINCIPLE-BASED ETHICS; REPRODUCTIVE RIGHTS; SOCIAL JUSTICE;

EID: 84865639642     PISSN: 15265161     EISSN: 15360075     Source Type: Journal    
DOI: 10.1080/15265161.2012.673688     Document Type: Article

References (49)

1. Ambrosini, G., A. Andrisani, E. Porcu, et al. 2006. Oocytes cryopreservation: State of art. Reproductive Toxicology. 22: 250-262.
2. American Society for Reproductive Medicine. 2005. The Ethics Committee of the American Society for Reproductive Medicine: Fertility preservation and reproduction in cancer patients. Available at: http://www.sart.org/uploadedFiles/ASRM Content/ News and Publications/Ethics Committee Reports and Statements/FertilityPreservation.pdf (accessed December 13, 2011).
3. Basco, D., L. Campo-Engelstein, and S. Rodriguez. 2010. Insuring against infertility: Expanding state infertility mandates to include fertility preservation technology for cancer patients. Journal of Law, Medicine & Ethics. 38: 832-839.
4. Beauchamp, T. L., and J. F. Childress. 1979. Principles of biomedical ethics. New York: Oxford University Press.
5. Beauchamp, T. L., and J. F. Childress. 2009. Principles of biomedical ethics, 6th ed. New York: Oxford University Press.
6. Campo-Engelstein, L. 2010a. Consistency in insurance coverage for iatrogenic conditionsresulting from cancer treatment including fertility preservation. Journal of Clinical Oncology. 28: 1284-1286.
7. Campo-Engelstein, L. 2010b. For the sake of consistency and fairness: Why insurance companies should cover fertility preservation treatment for iatrogenic infertility. Cancer Treatment and Research. 156: 381-388.
8. Cohen, C. B. 2008. Some perils of "waiting to be born": Fertility preservation in girls facing certain treatments for cancer. American Journal of Bioethics. 8: 30-35.
9. Chambers, G. M., E. A. Sullivan, O. Ishihara, et al. 2009. The economic impact of assisted reproductive technology: a review of selected developed countries. Fertility & Sterility. 91(6): 2281-2294.
10. Cohen, C. B. 2009. Ethical issues regarding fertility preservation in adolescents and children. Pediatric Blood & Cancer. 53: 249-253.
11. Coller Barry, S. 2006. The physician-scientist, the state, and the oath: Thoughts for our times. Journal of Clinical Investigation. 116: 2567-2570.
12. Crockin, S. L. 2005. Legal issues related to parenthood after cancer. Journal of the National Cancer Institute Monographs. 34: 111-113.
13. Davis, D. S. 1997. Genetic dilemmas and the child's right to an open future. Rutgers Law Journal. 28: 561-570.
14. Dudzinski, D. M. 2004. Ethical issues in fertility preservation for adolescent cancer survivors: Oocyte and ovarian tissue cryopreservation. Journal of Pediatric and Adolescent Gynecology. 17: 97-102
15. Eagly, A. H., and S. J. Karau. 2002. Role congruity theory of prejudice toward female leaders. Psychological Review 109: 573-598.
16. Ethics Committee of the American Society for Reproductive Medicine. 2005. Fertility preservation and reproduction in cancer patients. Fertility & Sterility. 83: 622-628.
17. Feinberg, J. 1992. The child's right to an open future. Freedom and fulfillment: Philosophical essays. Princeton, NJ: Princeton University Press.
18. Fertile Hope. 2010. Sharing hope program for women. Egg & embryo freezing. Available at: http://www.fertilehope.org (accessed October 31, 2010).
19. Fertile Hope. 2011. Financial assistance. Available at: http://www.fertilehope.org/financial-assistance/index.cfm (accessed August 2, 2011).
20. Fleetwood, A., and L. Campo-Engelstein. 2010. The impact of infertility: Why ART should be a higher priority for women in the global South. Cancer Treatment and Research. 156: 237-248.
21. Gardino, S., A. E. Russell, and T. K. Woodruff. 2010. Adoption after cancer: adoption agency attitudes and perspectives on the potential to parent post-cancer. Cancer Treatment and Research 156: 153-170.
22. Gardino, S., S. Rodriguez, and L. Campo-Engelstein. 2011. Infertility, cancer, and changing gender norms. Journal of Cancer Survivorship. 5: 152-157.
23. Goldstein, J. 2010. Baby's babies 'saved': Op preserves 2-yearold's ovary.Available at:http://www.nypost.com/p/news/local/brooklyn/baby babies saved whqwCfyF3Mb1xuWfauVa8N (accessed October 28, 2010).
24. Greil, A. 1991. Not yet pregnant: Infertility couples in contemporary America. New Brunswick, NJ: Rutgers University Press.
25. Isachenko, V., I. Lapidus, E. Isachenko, et al. 2009. Human ovarian tissue vitrification versus conventional freezing: Morphological, endocrinological, and molecular biological evaluation. Reproduction. 138: 319-327.
26. Jadoul, P., M. M. Dolmans, and J. Donnez. 2010. Fertility preservation in girls during childhood: It is feasible, efficient and safe and to whom should it be proposed. Human Reproduction Update. 93: 1-14.
27. Jennings, P. K. 2010. God had something else in mind: family, religion, and infertility. Journal of Contemporary Ethnography. 39: 15-37.
28. Lee, S. J., L. R. Schover, A. H. Partiridge, et al. 2006. American Society of Clinical Oncology recommendations on fertility preservation in cancer patients. Journal of Clinical Oncology 24: 2917-2931.
29. Lee, M. C., J. Gray, S. H. Han, et al. 2010. Fertility and reproductive considerations in premenopausal patients with breast cancer. Cancer Control. 17: 162-172.
30. Levi, R. B., and D. Drotar. 1999. Health-related quality of life in childhood cancer: Discrepancy in parent-child reports. International Journal of Cancer Supplement 83: 58-64.
31. Levine, J., A. Canada, and C. Stern. 2010. Fertility preservation in adolescents and young adults with cancer. Journal of Clinical Oncology. 22: 1-11.
32. Luster, T., and L. Okagaki. 1993. Multiple influences on parenting: Ecological and life-course-Perspectives. In Parenting: An ecological perspective, ed. T. Luster and L. Okagaki, 227-250. Hillsdale, NJ: Lawrence Erlbaum Associates.
33. Mayerhofer, K., J. Ott, K. Nouri, et al. 2010. Laparoscopic ovarian tissue harvesting for cryopreservation: an effective and safe procedure for fertility preservation. European Journal of Obstetrics & Gynecology and Reproductive Biology. 152: 68-72.
34. Nathan, P. C., M. L. Greenberg, K. K. Ness, et al. 2008. Medical care in long-term survivors ofchildhood cancer: A report from the childhood cancer survivor study. Journal of Clinical Oncology. 27: 4401-4409.
35. Noyes, N., E. Porcu, and A. Borini. 2009. Over 900 oocyte cryopreservation babies born with no apparent increase in congenital anomalies. Reproductive BioMedicine Online. 18: 769-776.
36. Oktay, K. 2001. Ovarian tissue cryopreservation and transplantation: Preliminary findings and implications for cancer patients. Human Reproduction Update. 7: 526-534.
37. Patrizio, P., andA. L.Caplan. 2010. Ethical issues surrounding fertility preservation in cancer patients. Clinical Obstetrics and Gynecology. 53: 717-726.
38. Poirot, C., and B. Schubert. 2011. Fertility preservation in prepubertal children. Bulletin of Cancer 98: 489-499.
39. Quinn, G. P., S. T. Vadaparampil, P. B. Jacobsen, et al. 2010a. Frozen hope: Fertility preservation for women with cancer. Journal of Midwifery & Women's Health. 55: 175-180.
40. Quinn, G. P., S. T. Vadaparampil, K. M. Lowrey, S. Eidsonand, O. Bukulmez. 2010b. State laws and regulations addressing thirdparty reimbursement for infertility treatment: Implications for cancer survivors. Fertility & Sterility. 15: 1-7.
41. Ries, L.A., D. Harkins, M. Krapcho, et al. 2008. SEER cancer statistics review, 1975-2008. Bethesda, MD: National Cancer Institute.
42. Shin, D., K. C. Lo, and L. I. Lipshultz. 2005. Treatment options for the infertile male with cancer. Journal of the National Cancer Institute Monographs 34: 48-50.
43. Silber, S. 2009. Fresh ovarian tissue and whole ovary transplantation. Seminars in Reproductive Medicine. 27: 479-485.
44. Spar, D., and A. Harrington. 2009. Building a better baby business. Minnesota Journal of Law, Science, and Technology. 10: 41.
45. Sigel, I. E., A. V. McGillicuddy-DeLisi, and J. J. Goodnow, eds. 1992. Parental belief systems: The psychological consequences for children, 2nd ed. Hillsdale, NJ: Lawrence Erlbaum Associates.
46. Upchurch, D., L. Lillard, and C. Panis. 2002. Nonmarital childbearing: Influences of education, marriage, and fertility. Demography. 39: 311-329.
47. United Nations. 1948. The Universal Declaration of Human Rights, Article 16(1). Available at: http://www.un.org/en/ documents/udhr/index.shtml (accessed January. 7, 2010).
48. Veatch, R.M. 2007. Howmany principles for bioethics? In Principles of health care ethics, 43-50. Chichester, UK: JohnWiley & Sons, Ltd.
49. Zoloth, L., L. Backhus, and T. Woodruff. 2008. Waiting to be born: The ethical implications of the generation of "NUBORN" and "NUAGE" mice from pre-pubertal ovarian tissue. American Journal of Bioethics. 8: 21-29.