Context for understanding psychosocial outcomes and behavior among adolescents and young adults with cancer

JNCCN Journal of the National Comprehensive Cancer Network

Volumn 10, Issue 9, 2012, Pages 1151-1156

  Zebrack, Brad ^a   Butler, Melissa ^a  

^a UNIVERSITY OF MICHIGAN   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ALCOHOLISM; ANXIETY DISORDER; BREAST CARCINOMA; CANCER CENTER; CANCER DIAGNOSIS; CANCER PATIENT; CANCER RISK; CANCER SURVIVOR; CANCER THERAPY; CHILDHOOD CANCER; COPING BEHAVIOR; COUNSELING; DEPRESSION; DISTRESS SYNDROME; EMOTION; HAIR LOSS; HEALTH BELIEF; HEALTH CARE PERSONNEL; HEALTH INSURANCE; HODGKIN DISEASE; HUMAN; HUMAN RELATION; LEUKEMIA; LONELINESS; MEDICAL INFORMATION; MELANOMA; PATIENT ATTITUDE; PATIENT EDUCATION; PEER GROUP; POSTTRAUMATIC STRESS DISORDER; PSYCHOSOCIAL CARE; REVIEW; SOCIAL ISOLATION; SOCIAL SUPPORT; SOFT TISSUE SARCOMA; SUBSTANCE ABUSE; SUICIDAL BEHAVIOR; TESTIS CANCER; THYROID CARCINOMA; TOBACCO DEPENDENCE;

EID: 84866541872     PISSN: 15401405     EISSN: 15401413     Source Type: Journal    
DOI: 10.6004/jnccn.2012.0118     Document Type: Review

References (45)

1. Rowland JH. Developmental stage and adaptation: adult model. In: Holland JC, Rowland JH, eds. Handbook of Psychooncology. New York, NY: Oxford University Press; 1989:25-43.
2. Zebrack B, Hamilton R, Smith AW. Psychosocial outcomes and service use among young adults with cancer. Semin Oncol 2009;36:468-477.
3. Arnett JJ. Emerging adulthood: a theory of development from the late teens through the twenties. Am Psychol 2000;55:469-480.
4. O'Callaghan C, Barry P, Thompson K. Music's relevance for adolescents and young adults with cancer: a constructivist research approach. Support Care Cancer 2012;20:687-697.
5. Ferrari A, Thomas D, Franklin A, et al. Starting an adolescent and young adult program: some success stories and some obstacles to overcome. J Clin Oncol 2010;28:4850-4857.
6. Zebrack B, Block R, Hayes-Lattin B, et al. Psychosocial service use and unmet need among recently diagnosed adolescent and young adult cancer patients. Cancer, in press.
7. Zebrack B. Information and service needs for young adult cancer patients. Support Care Cancer 2008;16:1353-1360.
8. Zebrack B. Information and service needs for young adult cancer survivors. Support Care Cancer 2009;17:349-357.
9. Zebrack B, Chesler M, Kaplan S. To foster healing among adolescents and young adults with cancer: what helps? What hurts? Support Care Cancer 2010;18:131-135.
10. Dyson GJ, Thompson K, Palmer S, et al. The relationship between unmet needs and distress amongst young people with cancer. Support Care Cancer 2012;20:75-85.
11. Kelly D, Pearce S, Mulhall A. 'Being in the same boat': ethnographic insights into an adolescent cancer unit. Int J Nurs Stud 2004;41:847-857.
12. Palmer S, Mitchell AJ, Thompson K, Sexton M. Unmet needs among adolescent cancer patients: a pilot study. Palliat Support Care 2007;5:127-134.
13. Zebrack B, Isaacson S. Psychosocial care of adolescent and young adult (AYA) cancer patients and survivors. J Clin Oncol 2012;30:1221-1226.
14. Butow PN, Palmer S, Pai A, et al. Review of adherence-related issues in adolescents and young adults with cancer. J Clin Oncol 2010;28:4800-4809.
15. Sawyer SM, Aroni RA. Sticky issue of adherence. J Paediatr Child Health 2003;39:2-5.
16. Bregnballe V, Schiotz PO, Boisen KA, et al. Berriers to adherence in adolescent and young adults with cystic fibrosis: a questionnaire study in young patients and their parents. Patient Prefer Adherence 2011;5:507-515.
17. Sansom-Daly U, Peate M, Wakefield CE, et al. A systematic review of psychological interventions for adolecents and young adults living with chronic illness. Health Psychol 2012;31:380-393.
18. Morgan S, Davies S, Palmer S, Plaster M. Sex, drugs, and rock 'n' roll: caring for adolescents and young adults with cancer. J Clin Oncol 2010;28:4825-4830.
19. Adams SH, Newacheck PW, Park MJ, et al. Health insurance across vulnerable ages: patterns and disparities from adolescence to the early 30s. Pediatrics 2007;119:1033-1039.
20. Bleyer WA, Albritton KH, Ries LA, Barr R. Introduction. In: Bleyer WA, Barr RD, eds. Cancer in Adolescents and Young Adults. Berlin, Germany: Springer; 2007:1-26.
21. D'Agostino NM, Penney A, Zebrack B. Providing developmentally appropriate psychosocial care to adolescent and young adult cancer survivors. Cancer 2011;117(10 Suppl):2329-2334.
22. Wilkinson J. Young people with cancer-how should their care be organized? Eur J Cancer Care (Engl) 2003;12:65-70.
23. Zebrack B, Oeffinger K, Hou P, Kaplan S. Advocacy skills training for young adult cancer survivors: The Young Adult Survivors Conference (YASC) at Camp Mak-a-Dream. Support Care Cancer 2006;14:779-782.
24. Zebrack B, Bleyer A, Albritton K, et al. Assessing the health care needs of young adult cancer patients and survivors. Cancer 2006;107:2915-923.
25. Stava CJ, Lopez A, Vassilopoulou-Sellin R. Health profiles of younger and older breast cancer survivors. Cancer 2006;107:1752-1759.
26. Ganz PA, Schag CC, Heinrich RL. The psychosocial impact of cancer on the elderly: a comparison with younger patients. J Am Geriatr Soc 1985;33:429-435.
27. Mor V, Allen S, Malin M. The psychosocial impact of cancer on older versus younger patients and their families. Cancer 1994;74:2118-2127.
28. Vinokur A, Threatt BA, Vinokur-Kaplan D, Satariano WA. The process of recovery from breast cancer for younger and older patients: changes during the first year. Cancer 1990;65:1242-1254.
29. Costanzo ES, Ryff CD, Singer BH. Psychosocial adjustment among cancer survivors: findings from a national survey of health and wellbeing. Health Psychol 2009;28:147-156.
30. Parker PA, Baile WF, De Moor C, Cohen L. Psychosocial and demographic predictors of quality of life in a large sample of cancer patients. Psychooncology 2003;12:183-193.
31. National Cancer Institute. Closing the gap: research and care imperatives for adolescents and young adults with cancer. Report of the Adolescent and Young Adult Oncology Progress Review Group. Available at: http://www.cancer.gov/ cancertopics/aya/reports. Accessed August 2, 2012.
32. Eiser C, Kuperberg A. Psychological support. In: Bleyer WA, Barr RD, eds. Cancer in Adolescents and Young Adults. Beling, Germany: Springer; 2007:365-373.
33. Palmer S, Thomas, D. Adolescent and Young Adult Cancer Program. A best practice famework for working with 15-25 year old cancer patients treated within the adult health sector. Melbourne, Australia: Peter MacCallum Cancer Centre; 2008.
34. Whiteson M. The Teenage Cancer Trust-advocating a model for teenage cancer services. Eur J Cancer 2003;39:2688-2693.
35. Whelan J. Where should teenagers with cancer be treated? Eur J Cancer 2003;39:2573-2578.
36. Bleyer WA. Cancer in older adolescents and young adults: epidemiology, diagnosis, treatment, survival, and importance of clinical trials. Med Pediatr Oncol 2002;38:1-10.
37. Jones BL. Promoting healthy development among survivors of adolescent cancer. Fam Community Health 2008;31(Suppl 1):S61-70.
38. Shama W, Lucchetta S. Psychosocial issues of the adolescent cancer patient and the development of the Teenage Outreach Program (TOP). J Psychosoc Oncol 2007;25:99-112.
39. Albritton K, Bleyer WA. The management of cancer in the older adolescent. Eur J Cancer 2003;39:2584-2599.
40. Roberts CS, Turney ME, Knowles AM. Psychosocial issues of adolescents with cancer. Soc Work Health Care 1998;27:3-18.
41. Clinton-McHarg T, Carey M, Sanson-Fisher R, et al. Measuring the psychosocial health of adolescent and young adult (AYA) cancer survivors: a critical review. Health Qual Life Outcomes 2010;8:25.
42. Thomas DM, Albritton KH, Ferrari A. Adolescent and young adult oncology: an emerging field. J Clin Oncol 2010;28:4781-4782.
43. Albritton KH, Eden, T. Access to care before and during therapy. In: Bleyer AW, Barr RD, eds. Cancer in Adolescents and Young Adults. Berlin, Germany: Springer; 2007:61-69.
44. Lenhart A, Purcell K, Smith A, Zickuhr K. Social Media and Young Adults: Part 4: the internet as an information and economic appliance in the lives of teens and young adults. Pew Internet and American Life Project. Available at: http://pewinternet.org/Reports/2010/Social-Media-and-Young-Adults/Part-4/ 1-Onlinehealth-information.aspx. Accessed August 2, 2012.
45. Zebrack BJ, Chesler MA, Penn A. Psychosocial support. In: Bleyer WA, Barr RD, eds. Cancer in Adolescents and Young Adults. Berlin, Germany: Springer; 2007.