The relationship between unmet needs and distress amongst young people with cancer

Supportive Care in Cancer

Volumn 20, Issue 1, 2012, Pages 75-85

  Dyson, Gavin J ^a   Thompson, Kate ^a   Palmer, Susan ^a   Thomas, David M ^a   Schofield, Penelope ^a,b  

^a PETER MACCALLUM CANCER CENTRE   (Australia)

^b UNIVERSITY OF MELBOURNE   (Australia)

Author keywords

Adolescent; Cancer; Distress; Unmet needs; Young adult

Indexed keywords

ANTINEOPLASTIC AGENT;

ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; CANCER CHEMOTHERAPY; CANCER RADIOTHERAPY; CONTROLLED STUDY; CROSS-SECTIONAL STUDY; DAILY LIFE ACTIVITY; DEPRESSION; DISEASE ASSOCIATION; DISTRESS SYNDROME; FEMALE; HEALTH CARE NEED; HUMAN; MAJOR CLINICAL STUDY; MALE; MENTAL HEALTH; MENTAL STRESS; NEEDS ASSESSMENT; NEOPLASM; PREDICTION; PRIORITY JOURNAL; SOCIAL SUPPORT; SYMPTOMATOLOGY;

ADOLESCENT; ADULT; ANXIETY; CROSS-SECTIONAL STUDIES; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; NEOPLASMS; PREVALENCE; PSYCHIATRIC STATUS RATING SCALES; STRESS, PSYCHOLOGICAL; YOUNG ADULT;

EID: 83555172569     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-010-1059-7     Document Type: Article

References (48)

1. Australian Bureau of Statistics (2007) National Survey of Mental Health and Wellbeing: summary of results. Australian Bureau of Statistics, Canberra
2. Palmer L, Erickson S, Shaffer T, Koopman C, Amylon M, Steiner H (2000) Themes arising in group therapy for adolescents with cancer and their parents. International Journal of Rehabilitation and Health 5:43-54 (Pubitemid 32266946)
3. Palmer S, Mitchell A, Thompson K, Sexton M (2007) Unmet needs among adolescent cancer patients: a pilot study. Palliat Support Care 5:127-134
4. Thompson K, Palmer S, Dyson G (2009) Adolescents and young adults: issues in transition from active therapy into follow-up care. Eur J Oncol Nurs 13:207-212
5. Wilkinson J (2003) Young people with cancer - how should their care be organized? Eur J Cancer Care (Engl) 12:65-70 (Pubitemid 37255608)
6. Deimling GT, Kahana B, Bowman KF, Schaefer ML (2002) Cancer survivorship and psychological distress in later life. Psychooncology 11:479-494 (Pubitemid 36007919)
7. Sanson-Fisher R, Girgis A, Boyes A, Bonevski B, Burton L, Cook P (2000) The unmet supportive care needs of patients with cancer. Supportive Care Review Group Cancer 88:226-237
8. Shankar S, Robison L, Jenney ME, Rockwood TH, Wu E, Feusner J, Friedman D, Kane RL, Bhatia S (2005) Health-related quality of life in young survivors of childhood cancer using the Minneapolis-Manchester Quality of Life-Youth Form. Pediatrics 115:435-442 (Pubitemid 43193828)
9. Allen R, Newman SP, Souhami RL (1997) Anxiety and depression in adolescent cancer: findings in patients and parents at the time of diagnosis. Eur J Cancer 33:1250-1255 (Pubitemid 27359644)
10. Hedstrom M, Ljungman G, von Essen L (2005) Perceptions of distress among adolescents recently diagnosed with cancer. J Pediatr Hematol Oncol 27:15-22 (Pubitemid 40175956)
11. Zabora J, Brintzenhofeszoc K, Curbow B, Hooker C, Piantadosi S (2001) The prevalence of psychological distress by cancer site. Psychooncology 10:19-28 (Pubitemid 32106774)
12. Jorngarden A, Mattsson E, von Essen L (2007) Health-related quality of life, anxiety and depression among adolescents and young adults with cancer: a prospective longitudinal study. Eur J Cancer 43:1952-1958 (Pubitemid 47287732)
13. von Essen L, Enskar K, Kreuger A, Larsson B, Sjoden PO (2000) Self-esteem, depression and anxiety among Swedish children and adolescents on and off cancer treatment. Acta Paediatr 89:229-236 (Pubitemid 30339598)
14. Hinds PS, Billups CA, Cao X, Gattuso JS, Burghen E, West N, Rubnitz JE, Daw NC (2008) Health-related quality of life in adolescents at the time of diagnosis with osteosarcoma or acute myeloid leukemia. Eur J Oncol Nurs 13:156-163
15. Hedstrom M, Kreuger A, Ljungman G, Nygren P, von Essen L (2006) Accuracy of assessment of distress, anxiety, and depression by physicians and nurses in adolescents recently diagnosed with cancer. Pediatr Blood Cancer 46:773-779 (Pubitemid 43726426)
16. Zebrack B, Bleyer A, Albritton K, Medearis S, Tang J (2006) Assessing the health care needs of adolescent and young adult cancer patients and survivors. Cancer 107:2915-2923 (Pubitemid 44937047)
17. Bonevski B, Sanson-Fisher R, Girgis A, Burton L, Cook P, Boyes A (2000) Evaluation of an instrument to assess the needs of patients with cancer. Supportive Care Review Group Cancer 88:217-225 (Pubitemid 30027699)
18. Bonevski B, Sanson-Fisher R, Hersey P, Paul C, Foot G (2000) Assessing the perceived needs of patients attending an outpatient melanoma clinic. Journal of Psychosocial Oncology 17:101-118 (Pubitemid 30646105)
19. Zebrack B (2009) Information and service needs for young adult cancer survivors. Support Care Cancer 17:349-357
20. Zebrack BJ, Mills J, Weitzman TS (2007) Health and supportive care needs of young adult cancer patients and survivors. J Cancer Surviv 1:137-145
21. American Psychiatric Association (2000) Diagnostic and statistical manual of mental disorders, fourth edition, text revision. American Psychiatric Association, Washington
22. Beck AT, Steer RA, Brown GK (1996) Beck Depression Inventory - second edition: manual. The Psychological Corporation, San Antonio
23. Kumar G, Steer RA, Teitelman KB, Villacis L (2002) Effectiveness of Beck Depression Inventory-II subscales in screening for major depressive disorders in adolescent psychiatric inpatients. Assessment 9:164-170
24. Poole H, Bramwell R, Murphy P (2009) The utility of the Beck Depression Inventory Fast Screen (BDI-FS) in a pain clinic population. Eur J Pain 13:865-869
25. Goertzel L, Goertzel T (1991) Health locus of control, self-concept, and anxiety in pediatric cancer patients. Psychol Rep 68:531-540
26. Spielberger CD, Gorsuch RL, Lushene R, Vagg PR, Jacobs GA (1983) State-Trait Anxiety Inventory for Adults - sampler set; manual, test, scoring key. Mind Garden, California
27. Krischer MM, Xu P (2008) Determinants of psychological functioning in patients undergoing radiotherapy: a descriptive study. J Psychosoc Oncol 26:1-13
28. Servitzoglou M, Papadatou D, Tsiantis I, Vasilatou-Kosmidis H (2008) Psychosocial functioning of young adolescent and adult survivors of childhood cancer. Support Care Cancer 16:29-36 (Pubitemid 350243761)
29. McElduff P, Boyes A, Zucca A, Girgis A (2004) Supportive Care Needs Survey: a guide to administration, scoring and analysis. University of Newcastle, Newcastle
30. Cossich T, Schofield P, McLachlan SA (2004) Validation of the cancer needs questionnaire (CNQ) short-form version in an ambulatory cancer setting. Qual Life Res 13:1225-1233 (Pubitemid 39149606)
31. Krefetz DG, Steer RA, Jermyn RT, Condoluci DV (2004) Screening HIV-infected patients with chronic pain for anxiety and mood disorders with the Beck Anxiety and Depression Inventory-Fast Screens for medical settings. J Clin Psychol Med Settings 11:283-289 (Pubitemid 39406786)
32. Tabachnick B, Fidell L (2001) Using multivariate statistics. Allyn & Bacon, Boston
33. Aranda S, Schofield P, Weih L, Yates P, Milne D, Faulkner R, Voudouris N (2005) Mapping the quality of life and unmet needs of urban women with metastatic breast cancer. Eur J Cancer Care (Engl) 14:211-222 (Pubitemid 40853709)
34. Lintz K, Moynihan C, Steginga S, Norman A, Eeles R, Huddart R, Dearnaley D, Watson M (2003) Prostate cancer patients' support and psychological care needs: survey from a non-surgical oncology clinic. Psychooncology 12:769-783 (Pubitemid 38040029)
35. Minstrell M, Winzenberg T, Rankin N, Hughes C, Walker J (2008) Supportive care of rural women with breast cancer in Tasmania, Australia: changing needs over time. Psychooncology 17:58-65 (Pubitemid 351166278)
36. Herzog CE (2005) Overview of sarcomas in the adolescent and young adult population. J Pediatr Hematol Oncol 27:215-218 (Pubitemid 40604844)
37. Palmer S, Thomas D (2008) A practice framework for working with 15-25 year-old cancer patients treated within the adult health sector. onTrac@PeterMac: Victorian Adolescent & Young Adult Cancer Service, Melbourne
38. Chen ML, Chang HK (2004) Physical symptom profiles of depressed and nondepressed patients with cancer. Palliat Med 18:712-718
39. Sateia MJ, Lang BJ (2008) Sleep and cancer: recent developments. Curr Oncol Rep 10:309-318
40. Zaza C, Baine N (2002) Cancer pain and psychosocial factors: a critical review of the literature. J Pain Symptom Manage 24:526-542 (Pubitemid 36120428)
41. Zebrack BJ, Zeltzer LK, Whitton J, Mertens AC, Odom L, Berkow R, Robison LL (2002) Psychological outcomes in long-term survivors of childhood leukemia, Hodgkin's disease, and non-Hodgkin's lymphoma: a report from the Childhood Cancer Survivor Study. Pediatrics 110:42-52 (Pubitemid 34742639)
42. Deshields TL, Tait RC, Manwaring J, Trinkaus KM, Naughton M, Hawkins J, Jeffe DB (2010) The Cancer Pain Inventory: preliminary development and validation. Psychooncology 19:684-692
43. Ryan H, Schofield P, Cockburn J, Butow P, Tattersall M, Turner J, Girgis A, Bandaranayake D, Bowman D (2005) How to recognize and manage psychological distress in cancer patients. Eur J Cancer Care (Engl) 14:7-15 (Pubitemid 40314382)
44. Caplette-Gingras A, Savard J (2008) Depression in women with metastatic breast cancer: a review of the literature. Palliat Support Care 6:377-387
45. Reiche EM, Nunes SO, Morimoto HK (2004) Stress, depression, the immune system, and cancer. Lancet Oncol 5:617-625 (Pubitemid 39303129)
46. Brown KW, Levy AR, Rosberger Z, Edgar L (2003) Psychological distress and cancer survival: a follow-up 10 years after diagnosis. Psychosom Med 65:636-643 (Pubitemid 36900260)
47. Satin JR, Linden W, Phillips MJ (2009) Depression as a predictor of disease progression and mortality in cancer patients: a meta-analysis. Cancer 115:5349-5361
48. Soliman H, Ferrari A, Thomas D (2009) Sarcoma in the young adult population: an international view. Semin Oncol 36:227-236