The Role of Personal Loss in the Caregiving Experiences of Well Siblings of Adults With Serious Mental Illness

Journal of Clinical Psychology

Volumn 68, Issue 10, 2012, Pages 1075-1088

  Leith, Jaclyn E ^a   Stein, Catherine H ^a  

^a BOWLING GREEN STATE UNIVERSITY   (United States)

Author keywords

Coping; Meaning; Serious mental illness; Siblings, personal loss

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ARTICLE; CAREGIVER; FEMALE; GRIEF; HUMAN; INFORMATION PROCESSING; MALE; MENTAL DISEASE; MIDDLE AGED; NURSING; PSYCHOLOGICAL ASPECT; SELF HELP; SEVERITY OF ILLNESS INDEX; SIBLING; UNITED STATES;

ADAPTATION, PSYCHOLOGICAL; ADULT; CAREGIVERS; DATA COLLECTION; FEMALE; GRIEF; HUMANS; MALE; MENTAL DISORDERS; MIDDLE AGED; SELF-HELP GROUPS; SEVERITY OF ILLNESS INDEX; SIBLINGS; UNITED STATES;

EID: 84866143424     PISSN: 00219762     EISSN: 10974679     Source Type: Journal    
DOI: 10.1002/jclp.21881     Document Type: Article

References (62)

1. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed., text revision). Washington, DC: American Psychiatric Association.
2. Aschbrenner, K., Greenberg, J., Allen, S., & Seltzer, M. M. (2010). Subjective burden and personal gains among older parents of adults with serious mental illness. Psychiatric Services, 61(6), 605-611. doi:10.1176/appi.ps.61.6.605
3. Bedford, V. H. (1989). A comparison of thematic apperceptions of sibling affiliation, conflict, and separation at two periods of adulthood. International Journal of Aging and Human Development, 28, 53-66. doi:10.2190/L5XM-HNGJ-4YTT-8KUT
4. Blasko, L. S. (2007). Coping resources and emotional neglect among individuals with a sibling with a mental illness. Dissertation Abstracts International: Section B: The Sciences and Engineering, 69, 664.
5. Boehmer, S., Luszczynksa, A., & Schwarzer, R. (2007). Coping and quality of life after tumor surgery: Personal and social resources promote different domains of quality of life. Anxiety, Stress, and Coping, 20, 61-75. doi:10.1080/10615800701195439
6. Carver, C. S., Scheier, M. F., & Weintraub, J. K. (1989). Assessing coping strategies: A theoretically based approach. Journal of Personality and Social Psychology, 56, 267-283. doi:10.1037//0022-3514.56.2.267
7. Dirksen, S. R. (1995). Search for meaning in long-term cancer survivors. Journal of Advanced Nursing, 21, 628-633. doi:10.1046/j.1365-2648.1995.21040628.x
8. Dixon, L. (1997). The next generation of research: Views of a sibling-psychiatrist researcher. American Journal of Orthopsychiatry, 67, 242-248. doi:10.1037/h0080227
9. Dixon, L. B., Lucksted, A., Medoff, D. R., Burland, J., Stewart, B., Lehman, A. F., Murray-Swank, A. (2011). Outcomes of a randomized study of a peer-taught family-to-family education program for mental illness. Psychiatric Services, 62(6), 591-597. doi:10.1176/appi.ps.62.6.591
10. Drapalski, A. L., Marshall, T., Seybolt, D., Medoff, D., Peer, J., Leith, J., & Dixon, L. B. (2008). The unmet needs of families of adults with mental illness and preferences regarding family services. Psychiatric Services, 59, 655-662. doi:10.1176/appi.ps.59.6.655
11. Dyck, D. G., Short, R., & Vitaliano, P. P. (1999). Predictors of burden and infectious illness in schizophrenia caregivers. Psychosomatic Medicine, 61, 411-419.
12. Earl, T. R. (2005). How important is race and ethnicity? Examining caregiving practices of siblings caring for a brother or sister diagnosed with a severe mental illness. Dissertation Abstracts International, Section B: The Sciences and Engineering, 67.
13. Friedrich, R. M., Lively, R. N., & Rubenstein, L. M. (2008). Siblings' coping strategies and mental health services: A national study of siblings of persons with schizophrenia. Psychiatric Services, 59, 261-267. doi:10.1176/appi.ps.59.3.261
14. Gillies, J., & Neimeyer, R. A. (2006). Loss, grief, and the search for significance: Toward a model of meaning reconstruction in bereavement. Journal of Constructivist Psychology, 19, 31-65. doi:10.1080/10720530500311182
15. Gluhoski, V. L., & Wortman, C. B. (1996). The impact of trauma on world view. Journal of Social and Clinical Psychology, 15, 417-429. doi:10.1521/jscp.1996.15.4.417
16. Greenberg, J. S., Kim, H. W., & Greenley, J. R. (1997). Factors associated with subjective burden in siblings of adults with severe mental illness. American Journal of Orthopsychiatry, 67, 231-241. doi:10.1037/h0080226
17. Greenberg, J. S., Seltzer, M. M., & Judge, K. (2000). Another side of the family's experience: Learning and growing through the process of coping with mental illness. The Journal of the California Alliance for the Mentally, 11, 8-10
18. Greenberg, J. S., Seltzer, M. M., Orsmond, G. I., Krauss, M.W. (1999). Siblings of adults with mental illness or mental retardation: Current involvement and expectation of future caregiving. Psychiatric Services, 50, 1214-1219.
19. Han, Y. L. (1995). Adult siblings of persons with serious mental illnesses: The effects of competent coping, family climate, and the sibling relationship on participation in care-giving. Dissertation Abstracts International, 56, 6462.
20. Hatfield, A. B., & Lefley, H. P. (2005) Future involvement of siblings in the lives of persons with mental illness. Community Mental Health Journal, 41, 327-338. doi:10.1007/s10597-005-5005-y
21. Horwitz, A. V. (1993). Siblings as caregivers for the seriously mentally ill. The Milbank Quarterly, 71, 323-339. doi:10.2307/3350402
22. Horwitz, A. V., Tessler, R. C., Fisher, G. A., & Gamache, G. M. (1992). The role of adult siblings in providing social support to the severely mentally ill. Journal of Marriage and the Family, 54, 233-241.
23. Jewell, T. (2006). Impact of mental illness on well siblings: A sea of confusion. The Journal of the California Alliance for the Mentally Ill. Retrieved from http://www.namigc.org/content/fact_sheets/familyinfo/web-%20siblings0304.htm
24. Jewell, T. C. (1997). Parental influence on sibling caregiving for the severely mentally ill. Dissertation Abstracts International: Section B: The Sciences and Engineering
25. Jewell, T. C. (1999). Adult siblings of people with serious mental illness: The relationship between self-and-sibling-care beliefs and psychological adjustment. Dissertation Abstracts International: Section B: The Sciences and Engineering, 60, 5776.
26. Jewell, T. C., & Stein, C. H. (2002). Parental influence on sibling caregiving for people with severe mental illness. Community Mental Health Journal, 38(1), 17-33. doi:10.1023/A:1013903813940
27. Jones, D. W. (2004). Families and serious mental illness: Working with loss and ambivalence. British Journal of Social Work, 34(7), 961-979. doi:10.1093/bjsw/bch123
28. Karp, D., & Tanarugsachock, V. (2000). Mental illness, caregiving, and emotional management. Qualitative Health Research, 10(1), 6-26. doi:10.1177/104973200129118219
29. Lefley, H. P. (1989). Family burden and family stigma in major mental illness. American Psychologist, 44, 556-560. doi:10.1037//0003-066X.44.3.556
30. Lefley, H. P., & Hatfield A. B., (1999). Helping parental caregivers and mental health consumers cope with parental aging and loss. Psychiatric Services, 50(3), 369-375.
31. Lohrer, S., Lukens, E., & Thorning, H. (2006). The costs of caring: Instrumental caregiving involvement among adult siblings of persons with mental illness. Community Mental Health Journal, 3, 1573-1589.
32. Lohrer, S., Lukens, E., & Thorning, H. (2007). Economic expenditures associated with instrumental caregiving roles of adult siblings of persons with severe mental illness. Community Mental Health Journal, 43(2), 129-151. doi:10.1007/s10597-005-9026-3
33. Lukens, E. P., & Thorning, H. (2011). "Siblings in families with mental illness." In J. Caspi (Ed.), Sibling development: Implications for mental health practitioners (pp. 195-219). New York, NY: Springer.
34. Lukens, E. P., Thorning, H., & Lohrer, S. P. (2002). How siblings of those with severe mental illness perceive services and support. Journal of Psychiatric Practice, 8, 354-364. doi:10.1097/00131746-200211000-00005
35. Lukens, E. P., Thorning, H., & Lohrer, S. P. (2004). Sibling perspectives on severe mental illness: Reflections on self and family. American Journal of Orthopsychiatry, 74, 489-501. doi:10.1037/0002-9432.74.4.489
36. Marsh, D. T. (1998). Serious mental illness and the family: The practitioner's guide. Hoboken, NJ: John Wiley & Sons, Inc.
37. Marsh, D. T., & Dickens, R. M. (1997). Troubled journey: Coming to terms with the mental illness of a sibling or parent. New York, NY: Penguin.
38. Marsh, D. T., Lefley, H. P., Evans-Rhodes, D., Ansell, V. I., Doerzbacher, B. M. (1996). The family experience of mental illness: Evidence for resilience. Psychiatric Rehabilitation Journal, 20, 3-12.
39. Murray-Swank, A., Glynn, S., Cohen, A. N., Sherman, M., Medoff, D. P., Fang, L. J., Dixon, L. B. (2007). Family contact, experience of family relationships, and views about family involvement in treatment among VA consumers with serious mental illness. Journal of Rehabilitation Research and Development, 44(6), 801-812. doi:10.1682/JRRD.2006.08.0092
40. Park, C. L. (2008). Testing the meaning making model of coping with loss. Journal of Social and Clinical Psychology, 27(9), 970-994. doi:10.1521/jscp.2008.27.9.970
41. Park, C. L. (2010). Making sense of the meaning literature: An integrative review of meaning making and its effects on adjustment to stressful life events. Psychological Bulletin, 136(2), 257-301. doi:10.1037/a0018301
42. Park, C. L., Edmondson, D., Fenster, J. R., & Blank, T. O. (2008). Meaning making and psychological adjustment following cancer: The mediating roles of growth, life meaning, and restored just-world beliefs. Journal of Consulting and Clinical Psychology, 76(5), 863-875. doi:10.1037/a0013348
43. Pearlin, L. I., Mullen, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30, 583-591. doi:10.1093/geront/30.5.583
44. Roesch, S. C., Adams, L., Hines, A., Palmores, A., Vyas, P., Tran, C., Vaughn, A. A. (2005). Coping with prostate cancer: A meta-analytic review. Journal of Behavioral Medicine, 28, 281-293. doi:10.1007/s10865-005-4664-z
45. Ryan, K. A. (1993). Mothers of adult children with schizophrenia: An ethnographic study. Schizophrenia Research, 11, 21-31. doi:10.1016/0920-9964(93)90034-G
46. Sartorius, N., Leff, J., Lopez-Ibor, J., Maj, M., & Okasha, A. (2005) Families and mental disorders: From burden to empowerment. Chichester, England: John Wiley & Sons, Inc.
47. Saunders, J. C. (1999). Family functioning in families providing care for a family member with schizophrenia. Issues in Mental Health Nursing, 20(2), 95-113. doi:10.1080/016128499248691
48. Seltzer, M. M., Greenberg, J. S., Krauss, M. W., Gordon, R. M., & Judge, K. (1997). Siblings of adults with mental retardation or mental illness: Effects on lifestyle and psychological well-being. Family Relations, 46, 395-405. doi:10.2307/585099
49. Seltzer, M. M., Greenberg, J. S., Krauss, M. W., & Hong, J. (1997). Predictors and outcomes of the end of co-resident caregiving in aging families of adults with mental retardation or mental illness. Family Relations, 46, 13-22. doi:10.2307/585602
50. Smith, M. J., Greenberg, J. S., & Seltzer, M. (2007). Siblings of adults with schizophrenia: Expectations about future caregiving roles. American Journal of Orthopsychiatry, 77(1), 29-37. doi:10.1037/0002-9432.77.1.29
51. Stanton, A.L., Danoff-Burg, S., & Muggins, M.E. (2002) The first year after breast cancer diagnosis: Hope and coping strategies as predictors of adjustment. Psycho-Oncology, 11, 93-102. doi: 10.1002/pon.574
52. Stanton, A. L., Kirk, S. B., Cameron, C. L., & Danoff-Burg, S. (2000). Coping through emotional approach: Scale construction and validation. Journal of Personality and Social Psychology, 78(6); 1150-1169. doi:10.1037/0022-3514.78.6.1150.
53. Stein, C. H. (2005). Aspirations, ability, and support: Consumer's perceptions of attending college. Community Mental Health Journal, 41(4), 451-468. doi:10.1007/s10597-005-5080-0
54. Stein, C.H., Aguirre, R., & Hunt, M.G. (2012). Social networks and personal loss among young adults with mental illness and their parents: A family perspective. Manuscript submitted for publication.
55. Stein, C. H., Dworsky, D. O., Phillips, R. E., & Hunt, M. G. (2005). Measuring personal loss among adults coping with serious mental illness. Community Mental Health Journal, 41(2), 129-139. doi:10.1007/s10597-005-2648-7
56. Stein, C.H. & Wemmerus, V.A. (2001). Searching for a normal life: Personal accounts of adults with schizophrenia, their parents and well-siblings. American Journal of Community Psychology, 29(5), 725-746. doi:10.1023/A:1010465117848
57. Talbott, J. A. (2004). Deinstitutionalization: Avoiding the disasters of the past. Psychiatric Services, 55, 1112-1115. doi:10.1007/s10597-005-2648-7
58. Taylor, L., Faraone, S. V., & Tsuang, M. T. (2002). Family, twin, and adoption studies of bipolar disease. Current Psychiatry Reports, 4(2), 130-133. doi:10.1007/s11920-002-0046-1
59. Tsuang, M. T., Gilbertson, M. W., & Faraone, S. V. (1991). The genetics of schizophrenia. Current knowledge and future directions. Schizophrenia Research, 4(2), 157-171. doi:10.1016/0920-9964(91)90031-L
60. Tsuang, M. T., & VanderMey, R. (1980). Genes and the mind: Inheritance of mental illness. New York, NY: Oxford University Press.
61. William, C. C., & Mfoafo-M'Carthy, M. (2006). Care: giving, receiving and meaning in the context of mental illness. Psychiatry, 69(1), 26-46.
62. Winefield, H. R., & Harvey, E. J. (1994). Needs of family caregivers in chronic schizophrenia. Schizophrenia Bulletin, 20, 557-566.