Searching for a normal life: Personal accounts of adults with schizophrenia, their parents and well-siblings

American Journal of Community Psychology

Volumn 29, Issue 5, 2001, Pages 725-746

  Stein, Catherine H ^a   Wemmerus, Virginia A ^a  

^a BOWLING GREEN STATE UNIVERSITY   (United States)

Author keywords

Families; Life course perspective; Qualitative research; Schizophrenia

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; AGED; ARTICLE; CAREGIVER; COST OF ILLNESS; EVALUATION; FAMILY HEALTH; FEMALE; HOME CARE; HUMAN; INTERVIEW; LIFE EVENT; LITERATURE; MALE; PSYCHOLOGICAL ASPECT; PSYCHOLOGY; QUALITY OF LIFE; SELF DISCLOSURE; UNITED STATES;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; AGED, 80 AND OVER; ANECDOTES; CAREGIVERS; COST OF ILLNESS; FAMILY HEALTH; FEMALE; HOME NURSING; HUMANS; INTERVIEWS; LIFE CHANGE EVENTS; MALE; OHIO; QUALITY OF LIFE; SCHIZOPHRENIC PSYCHOLOGY; SELF DISCLOSURE;

EID: 0035486805     PISSN: 00910562     EISSN: None     Source Type: Journal    
DOI: 10.1023/A:1010465117848     Document Type: Article

References (57)

1. Aldous, J. (1996). Family careers: Rethinking the developmental perspective. Thousand Oaks, CA: Sage.
2. Anthony, W. A. (1993). Recovery from mental illness: The guiding vision of the mental health service system in the 1990s. Psychosocial Rehabilitation Journal, 16, 11-24.
3. Banyard, V. L., & Miller, K. E. (1998). The powerful potential of qualitative research for community psychology. American Journal of Community Psychology, 26, 485-505.
4. Bateson, G., Jackson, D. D., Haley, J., & Weakland, J. (1968). Toward a theory of schizophrenia. In D. D. Jackson (Ed.), Communication, family and marriage. Palo Alto, CA: Science and Behavior Books.
5. Bellamy, C., & Mowbray, C. (1998). Supported education as an empowerment intervention for people with mental illness. Journal of Community Psychology, 26, 401-413.
6. Bernheim, K. F. (1989). Psychologists and families of the severely mentally ill: The role of family consultation. American Psychologist, 44 (3), 561-564.
7. Cohler, B. J., Pickett, S. A., & Cook, J. A. (1996). Life course and persistent psychiatric illness: Social timing, cohort, and intervention. In V. L. Bengtson (Ed.), Adulthood and aging: Research on continuities and discontinuities: A tribute to Bernice Neugarten (pp. 69-97). New York: Springer.
8. Cook, J. A., Cohler, B. J., Pickett, S. A., & Beeler, J. A. (1997). Life-course and severe mental illness: Implications for caregiving within the family of later life. Family Relations, 46, 427-436.
9. Denzin, N. K. (1994). The art and politics of interpretation. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (pp. 500-515). Thousand Oaks, CA: Sage.
10. Denzin, N. K., & Lincoln, Y. S. (1994). Introduction: Entering the field of qualitative research. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (pp. 1-18). Thousand Oaks, CA: Sage.
11. Fairweather, G. W. (1980). New directions for mental health services no. 7. The Fairweather Lodge: A twenty-five year retrospective. San Francisco: Jossey-Bass.
12. Galletly, C. A., Clark, C. R., McFarlane, A. C. Weber, D. L. (1999). Effects of clozapine for non-treatment resistant patients with schizophrenia. Psychiatric Services, 50, 101-103.
13. Greene, A. L., & Boxer, A. M. (1982). Daughters and sons as young adults: Restructuring the ties that bind. In N. Datan, A. Greene, & H. Reese (Eds.), Life span development psychology: Intergenerational relations (pp. 125-149). Hillsdale, NJ: Erlbaum.
14. Greenberg, J., Greenley, J., & Benedict, P. (1994). Contributions of persons with serious mental illness to their families. Hospital and Community Psychiatry, 45, 475-480.
15. Hagestad, G. O. (1986). Dimensions of time and family. American Behavioral Scientist, 29, 679-684.
16. Hagestad, G. O. (1990). Social perspectives on the life course. In R. Binstock & L. George (Eds.), Handbook of aging and the social sciences (pp. 151-168). San Diego, CA: Academic Press.
17. Hagestad, G. O. (1996). On-time, off-time, out of time? Reflections on continuity and discontinuity from an illness process. In V. L. Bengtson (Ed.), Adulthood and aging: Research on continuities and discontinuities. A tribute to Bernice Neugarten (pp. 204-227). New York: Springer.
18. Hagestad, G., & Neugarten, B. (1985). Age and the life course. In R. Binstock & E. Shanas (Eds.), Handbook of aging and society (2nd ed., pp. 35-61). New York: Van Nostrand-Reinhold.
19. Hatfield, A. B. (1987). Families as caregivers: A historical perspective. In A. B. Hatfield & H. P. Lefley (Eds.), Families of the mentally ill: Coping and adaptation (pp. 3-29). New York: Guilford Press.
20. Heller, T., Roccoforte, J. A., & Cook, J. A. (1997). Predictors of support group participation among families of persons with mental illness. Family relations: Interdisciplinary Journal of Applied Family Studies, 46, 437-442.
21. Holmes-Eber, P., & Riger, S. (1990). Hospitalization and the composition of mental patients' social networks. Schizophrenia Bulletin, 16, 157-164.
22. Horwitz, A. V., Tessler, R. C., Fisher, G. A., & Gamade, G. M. (1992). The role of adult siblings in providing social support to the severely mentally ill. Journal of Marriage and the Family, 54, 233-241.
23. Hyland, B. (1987). The girl with the crazy brother. New York: Franklin Watts.
24. Jeffries, J. J. (1995) Working with schizophrenia: A clinician's personal experience. Canadian Journal of Psychiatry, 40, S22-S25.
25. Jones, S. L. (1997). Caregiver burden: The experience of parents, children, siblings, and spouses of people with mental illness. Psychiatric Rehabilitation Journal, 20, 84-87.
26. Lefley, H. P. (1996). Family caregiving in mental illness. Thousand Oaks: CA: Sage.
27. Lefley, H. P. (1999). Helping parental caregivers and mental health consumers cope with parental aging and loss. Psychiatric Services, 50, 369-375.
28. Lefley, H. P., & Wasow, M. (1994). Helping families cope with mental illness. Langhorne, PA: Harwood.
29. Loukissa, D. A. (1995). Family burden and chronic mental illness: A review of research studies. Journal of Advanced Nursing, 21, 248-255.
30. MacGregor, P. (1994). Grief: The unrecognized parental response to mental illness in a child. Social Work, 39, 160-166.
31. Marsh, D. T. (1992). Life-span perspectives. In D. T. Marsh (Ed.), Families and mental illness: New directions in professional practice (pp. 61-78). New York: Praeger.
32. Marsh, D., & Johnson, D. (1997). The family experience of mental illness: Implications for intervention. Professional Psychology: Research and Practice, 28, 229-237.
33. Martin, J., & Boyd, C. (1990). Burden of mental illness on the family: A critical review. Archives of Psychiatric Nursing, 4, 99-107.
34. Maton, K. I., Hrabowski, F. A., & Grelf, G. L. (1998). Preparing the way: A qualitative study of high achieving African American males and the role of the family. American Journal of Community Psychology, 26, 639-668.
35. Miklowitz, D. (1995). The evolution of family-based psychopathology. In R. H. Mikesell (Ed.), Integrating family therapy: Handbook of family psychology and systems theory. (pp. 183-197). Washington, DC: American Psychological Association.
36. Miles, M. B., & Huberman, A. M. (1984). Qualitative data analysis. Thousand Oaks: Sage.
37. Miller, F. D., Ward, J., & Michale Barone, D. (1990). A preliminary study of unresolved grief in families of seriously mentally ill patients. Hospital and Community Psychiatry, 41, 1321-1325.
38. Nelson, G., Hall, G. B., & Walsh-Bowers, R. (1998). The relationship between housing characteristics, emotional well-being and the personal empowerment of psychiatric consumers/survivors. Community Mental Health Journal, 34, 57-69.
39. Pickett, S. A., Cook, J. A., & Cohler, B. J. (1994). Caregiving burden experiences: Parents of offspring with severe mental illness: The impact of off-timedness. Journal of Applied Social Sciences, 18, 199-207.
40. Rappaport, J. (1990). Research methods and the empowerment social agenda. In P. Tolan, C. Keys, F. Chertock, & L. Jason (Eds.), Researching community psychology. Washington, DC: American Psychological Association Press.
41. Rappaport, J. (1994). Narrative studies, personal stories, and identity transformation in the mutual help context. In T. J. Powell (Ed.), Understanding the self help organization: Frameworks and findings. Thousand Oaks, CA: Sage.
42. Rappaport, J. (1995). Empowerment meets narrative: Listening to stories and creating settings. American Journal of Community Psychology, 23, 795-807.
43. Rappaport, J., Chinsky, J. M., & Cowen, E. I. (1971). Innovations in helping chronic patients: College students in a mental institution. New York: Academic Press
44. Rappaport J., Seidman, E., Toro, P., McFadden, L. S., Reischl, T. M., Roberts, L. J., Salem, D. A., Stein, C. H., & Zimmerman, M. A. (1985). Collaborative research with a mutual help organization. Social Policy, 15, 12-24.
45. Ryff, C. D., Schmutte P.S., & Lee, Y.H. (1996). How children turn out: Implications for parental self-evaluation. In C. D. Ryff & M. M. Seltzer, (Eds.) The parental experience in midlife (pp. 383-422). Chicago: University of Chicago Press.
46. Seidman, E. (1988). Back to the future, community psychology: Unfolding a theory of social intervention. American Journal of Community Psychology, 16, 3-24.
47. Seltzer, M. M., Greenberg, J., Krauss, M., & Hong, J. (1997). Predictors and outcomes of the end of co-resident caregiving in aging families of adults with mental retardation or mental illness. Family Relations, 46, 13-22.
48. Solomon, P., & Draine, J. (1996). Examination of grief among family members of individuals with serious and persistent mental illness. Psychiatric Quarterly, 67, 221-234.
49. Spaniol, L., & Zipple, A. M. (1994). Coping strategies for families of people who have a mental illness. In H. P. Lefley & M. Wasow (Eds.), Helping families cope with mental illness (pp. 131-145). Baltimore: Harwood Academic.
50. Stein, L. I., Barry, K. L., Van Dien, G., Hollingsworth, E., & Sweeney, J. K. (1999). Work and social support: A comparison of consumers who have achieved stability in ACT and club-house programs. Community Mental Health Journal, 35, 193-204.
51. Stroul, B. (1989). Community support systems for persons with long-term mental illness: A conceptual framework. Psychosocial Rehabilitation Journal, 12, 9-26.
52. Taylor, S. J., & Bodgan, R. (1998). Introduction to qualitative research methods: A guide and resource. New York: Wiley.
53. Torrey, E. F. (1988). Surviving schizophrenia: A family manual. New York: Harper & Row.
54. Trickett, E. J. (1996). A future for community psychology: The contexts of diversity and the diversity of contexts. American Journal of Community Psychology, 24, 209-234.
55. Volavka, J. (1985). Late-onset schizophrenia: A review. Comprehensive Psychiatry, 26, 148-156.
56. Ward, R. A., & Spitze, G. (1992). Consequences of parent-adult child co-residence. Journal of Family Issues, 13, 553-572.
57. Weiss, R. S. (1994). Learning from strangers: The art and method of qualitative interview studies. New York: Free Press.