Unmet needs of families of adults with mental illness and preferences regarding family services

Psychiatric Services

Volumn 59, Issue 6, 2008, Pages 655-662

  Drapalski, Amy L ^a   Marshall, Tina ^c   Seybolt, Diana ^c   Medoff, Deborah ^c   Peer, Jason ^a   Leith, Jaclyn ^c   Dixon, Lisa B ^a,b  

^a VETERANS AFFAIRS MEDICAL CENTER   (United States)

^b UNIVERSITY OF MARYLAND SCHOOL OF MEDICINE   (United States)

^c UNIVERSITY OF MARYLAND BALTIMORE COUNTY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; BIVARIATE ANALYSIS; EDUCATION; FAMILY; FAMILY SERVICE; FEMALE; HEALTH CARE FACILITY; HEALTH CARE PERSONNEL; HEALTH SURVEY; HUMAN; MALE; MEDICAL INFORMATION; MENTAL DISEASE; MENTAL HEALTH; MULTIVARIATE ANALYSIS;

EID: 49749143041     PISSN: 10752730     EISSN: 15579700     Source Type: Journal    
DOI: 10.1176/ps.2008.59.6.655     Document Type: Article

References (42)

1. Hatfield AB: Psychological costs of schizophrenia to the family. Social Work 23:355-359, 1978
2. Hatfield A: What families want of family therapists, in Family Therapy in Schizophrenia. Edited by McFarlane W. New York, Guilford, 1983
3. Johnson D: The needs of the chronically mentally ill: as seen by the consumer, in The Chronically Mentally Ill: Research and Services. Edited by Mirabi M. New York, Spectrum, 1984
4. Lefley HP: Behavior manifestations of mental illness, in Families of the Mentally Ill: Meeting the Challenges: New Directions for Mental Health Services. Edited by Hatfield AB. San Francisco, Jossey-Bass, 1987
5. Lefley H: Family burden and family stigma in major mental illness. American Psychologist 44:556-560, 1989
6. Winefield H, Harvey E: Needs of family caregivers in chronic schizophrenia. Schizophrenia Bulletin 20:557-566, 1994
7. McFarlane WR, Dixon L, Lnkens E, et al: Family psychoeducation and schizophrenia: a review of the literature. Journal of Marital and Family Therapy 29:223-245, 2003
8. Practice Guidelines for the Treatment of Psychiatric Disorders: Compendium 2006. Arlington, Va, American Psychiatric Association, 2006
9. Frances A, Docherty JP, Kahn DA: The Expert Consensus Guidelines Series: treatment of schizophrenia. Journal of Clinical Psychiatry 57:1-88, 1996
10. Lehman AF, Kreyenbnhl J, Buchanan RW, et al: The Schizophrenia Patient Outcomes Research Team (PORT): updated treatment recommendations 2003. Schizophrenia Bulletin 30:193-217, 2004
11. Solomon P, Marshall T, Mannion E, et al: Social workers as consumer and family consultants, in Social Work Practice in Mental Health. Edited by Bentley K. Pacific Grove, Calif, Brookes/Cole, 2002
12. DLxon L, McFarlane WR, Lefley H, et al: Evidence-based practices for services to families of people with psychiatric disabilities. Psychiatric Services 52:903-910, 2001
13. Cook JA, Pickett SA, Cohler BJ: Families of adults with severe mental illness - the next generation of research: introduction. American Journal of Orthopsychiatry 67:172-176, 1997
14. Dixon L, Adams C, Lucksted A: Update on family psychoedncation for schizophrenia. Schizophrenia Bulletin 26:5-20, 2000
15. Hatfield AB, Coursey R, Slaughter J: Family responses to behavior manifestations of mental illness. Innovations and Research 3:41-49, 1994
16. Cook JA, Lefley HP, Pickett SA, et al: Age and family burden among parents of offspring with severe mental illness. American Journal of Orthopsychiatry 64:435-447, 1994
17. Hatfield A: Families of adults with severe mental illness: new directions in research. American Journal of Orthopsychiatry 67: 254-260, 1997
18. Smith GC, Hatfield AB, Miller DC: Planning by older mothers for the future care of offspring with serious mental illness. Psychiatric Services 51:1162-1166, 2000
19. Johnson E: Differences among families coping with serious mental illness: a qualitative analysis. American Journal of Orthopsychiatry 70:126-134, 2000
20. Wintersteen R, Rasmussen K: Fathers of persons with mental illness: a preliminary study of coping capacity and service needs. Community Mental Health Journal 33:401-413, 1997
21. Guarnaccia PJ, Parra P: Ethnicity, social status, and families' experiences of caring for a mentally ill family member. Community Mental Health Journal 32:243-260, 1996
22. Horwitz A, Reinhard S: Ethnic differences in caregiving duties and burdens among parents and siblings of persons with severe mental illnesses. Journal of Health and Social Behavior 36:138-150, 1995
23. Phelan JC, Bromet EJ, Link BG: Psychiatric illness and family stigma. Schizophrenia Bulletin 24:115-126, 1998
24. Wahl O, Harman CR: Family views of stigma. Schizophrenia Bulletin 15:131-139, 1989
25. Thompson R, Weisberg S: Families as educational consumers: what do they want? What do they receive? Health and Social Work 15:221-227, 1990
26. Gonzales S, Steinglass P, Reiss D: Putting the illness in its place: discussion group for families with chronic medical illnesses. Family Processes 28:69-87, 1989
27. Linszen DH, Dingemans P, Van der Does JW, et al: Treatment, expressed emotion, and relapse in recent onset schizophrenic disorders. Psychological Medicine 26:333-342, 1996
28. Nugter A, Dingemans P, Van der Does JW, et al: Family treatment, expressed emotion and relapse in recent onset schizophrenia. Psychiatry Research 72:23-31, 1997
29. Solomon PJ, Draine J, Mannion E, et al: Impact of brief family psychoeducation on selfefficacy. Schizophrenia Bulletin 22:41-50, 1996
30. Rund BR, Moe L, Sollien T, et al: The psychosis project: outcome and cost-effectiveness of a psychoeducational treatment program for schizophrenic adolescents. Acta Psychiatrica Scandinavica 89:211-218, 1994
31. James JM, Bolstein R: The effect of monetary incentives and follow-up mailings on the response rate and response quality in mail surveys. Public Opinion Quarterly 54:346-361, 1990
32. Greenberg JS, Kim HW, Greenly JR: Factors associated with subjective burden in siblings of adults with severe mental illness. American Journal of Orthopsychiatry 67: 231-241, 1997
33. Marshall T, Solomon P: Confidentiality intervention: effects on provider-consumer-family collaboration. Research on Social Work Practice 14:3-13, 2004
34. Looper K, Fielding A, Latimer E, et al: Improving access to family support organizations: a member survey of the AMI-Quebec Alliance for the Mentally Ill. Psychiatric Services 49:1491-1492, 1998
35. Perlick D, Wolff N, Miklowitz DJ, et al: Development of an integrated model of family burden. Journal of Mental Health Policy and Economics 6(suppl):37, 2003
36. Szmukler GI, Burgess P, Herman H, et al: Caring for relatives with serious mental illness - the development of the Experience of Caregiving Inventory. Social Psychiatry and Psychiatric Epidemiology 31:134-148, 1996
37. Glynn SM, Cohen AN, Dixon LB, et al: The potential impact of the recovery movement on family interventions for schizophrenia: opportunities and obstacles. Schizophrenia Bulletin 32:451-463, 2006
38. McFarlane WR, Luckens E, Link B, et al: Multiple-family groups and psychoedncation in the treatment of schizophrenia. Archives of General Psychiatry 52:679-687, 1995
39. Hatfield AB, Lefley HP: Helping elderly caregivers plan for the future care of a relative with mental illness. Psychiatric Rehabilitation Journal 24:103-107, 2000
40. Lefley HP, Hatfield AB: Helping parental caregivers and mental health consumers cope with parental aging and loss. Psychiatric Services 50:369-375, 1999
41. Leighniger RD, Speier AH, Mayeux D: How representative is NAMI? Demographic comparisons of a national NAMI sample with members and non-members of Louisiana mental health support groups. Psychiatric Rehabilitation Journal 19:71-73, 1996
42. Murray-Swank A, Glynn S, Cohen A, et al: Family contact, experience of family relationships, and views about family involvement in treatment among VA consumers with serious mental illness. Journal of Rehabilitation, Research, and Development 44: 801-812, 2007