Informal carers of cancer patients: What are their unmet psychosocial needs?

Health and Social Care in the Community

Volumn 9, Issue 6, 2001, Pages 464-475

  Soothill, K ^a   Morris, S M ^b   Harman, J C ^b   Francis, B ^b   Thomas, C ^b   McIllmurray, M B ^b  

^a LANCASTER UNIVERSITY   (United Kingdom)

^b LANCASTER UNIVERSITY   (United Kingdom)

Author keywords

Cancer; Family; Informal carers; Psychosocial needs; Supportive care

Indexed keywords

ARTICLE; CAREGIVER; HEALTH CARE PERSONNEL; HEALTH SERVICE; HEALTH SERVICES RESEARCH; HOME CARE; HUMAN; NATIONAL HEALTH SERVICE; NEEDS ASSESSMENT; NEOPLASM; NURSING; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; SOCIAL SUPPORT; UNITED KINGDOM;

CAREGIVERS; GREAT BRITAIN; HEALTH SERVICES NEEDS AND DEMAND; HEALTH SERVICES RESEARCH; HOME HEALTH AIDES; HOME NURSING; HUMANS; NEEDS ASSESSMENT; NEOPLASMS; QUESTIONNAIRES; SOCIAL SUPPORT; STATE MEDICINE;

EID: 0035523757     PISSN: 09660410     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.0966-0410.2001.00326.x     Document Type: Article

References (30)

1. Aaronson N.K., Ahmedzai S., Bergman B. et al. (1993) The European Organisation for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. Journal of the National Cancer Intitute 85, 365-376.
2. Anderson R. & Bury M. (Eds) (1988) Living with Chronic Illness: The Experience of Patients and Their Families. Unwin-Hyman, London.
3. Beaver K., Luker K. & Woods S. (1999) The views of terminally ill people and lay carers on primary care services. International Journal of Palliative Nursing 5 (6), 266-274.
4. Bury M. (1997) Health and Illness in a Changing Society. Routledge, London.
5. Department of Health (1995) A Policy Framework for Commissioning Cancer Services (Calman-Hine Report). The Stationery Office, London.
6. Department of Health (2000) The NHS Cancer Plan: a Plan for Investment, a Plan for Reform. The Stationery Office, London.
7. Fakhoury W.K.H., McCarthy M. & Addington-Hall J.M. (1996) Which informal carers are most satisfied with services for dying cancer patients? European Journal of Public Health 6, 181-187.
8. Finch J. & Groves D. (Eds) (1983) A Labour of Love: Women, Work and Caring. Routledge & Kegan Paul, London.
9. Goldberg D., Bridges K., Duncan-Jones P. & Grayson D. (1988) Detecting anxiety and depression in general medical settings. British Medical Journal 297, 897-899.
10. Harrington V., Lackey N. & Gates M.F. (1996) Needs of caregivers of clinic and hospice patients. Cancer Nursing 19 (2), 118-125.
11. Harrison J., Haddad P. & Maguire P. (1995) The impact of cancer on key relatives: a comparison of relative and patient concerns. European Journal of Cancer Part A 31 (11), 1736-1740.
12. Houts P.S., Rusenas I., Simmonds M.A. & Hufford D.L. (1991) Information needs of families of cancer patients: a literature review and recommendations. Journal of Cancer Education 6 (4), 255-261.
13. Katz C., Boesch G. & Herzog R.E. (1998) Group-therapy of couples after breast cancer diagnosis: experimental pilot study. Anticancer Research 18 (3C), 2267-2269.
14. Keller M. & Henrich G. (1999) Illness-related distress: does it mean the same for men and women? Acta Oncologica 38 (6), 747-755.
15. Kelly M. & Field D. (1996) Medical sociology, chronic illness and the body. Sociology of Health and Illness 18 (2), 241-257.
16. Kissane D.W., Bloch S., Burns W.I., McKenzies D. & Posterinos M. (1994) Psychological morbidity in the families of patients with cancer. Psycho-oncology 3, 47-56.
17. Lindsey J.K. & Jones B. (1998) Choosing among generalized linear models applied to medical data. Statistics in Medicine 17(1), 59-68.
18. Morris S.M. & Thomas C. (2001) The carer's place in the cancer situation: where does the carer stand in the medical setting? European Journal of Cancer Care 10 (2), 87-95.
19. Payne S., Smith S.P. & Dean S. (1999) Identifying the concerns of informal carers in palliative care. Palliative Medicine 13, 37-44.
20. QSR (1998) NUD*IST Qualitative Data Analysis Program, Version 4. Qualitative Solution Research Pty. Ltd, Melbourne, Australia.
21. Rhodes P. & Shaw S. (1999) Informal care and terminal illness. Health and Social Care in the Community 7 (1), 39-50.
22. Rogers A., Karlsen S. & Addington-Hall J. (2000) 'All the services were excellent. It is when the human element comes in that things go wrong': dissatisfaction with hospital care in the last year of life. Journal of Advanced Nursing 31 (4), 768-774.
23. Rose K.E., Webb C. & Waters K. (1997) Coping strategies employed by informal carers of terminally ill cancer patients. Journal of Cancer Nursing 1 (3), 126-133.
24. Soothill K., Morris S.M., Harman J.C., Francis B., Thomas C. & McIllmurray M.B. (2001) The significant unmet needs of cancer patients: probing psychosocial concerns. Supportive care in Cancer http://link.springer.de/DOI10.10007/s005200100278
25. Thomas C. (1993) Deconstructing concepts of care. Sociology 27 (4), 649-669.
26. Thomas C., Morris S.M. & Harman J.C. (2001) Companions through cancer: the care given by informal carers in cancer contexts. Department of Applied Social Science, Lancaster University.
27. Toseland R.W., Blanchard C.G. & McCallion P. (1995) A problem solving intervention for caregivers of cancer patients. Social Science and Medicine 40 (4), 517-528.
28. Twigg J. & Atkin K. (1994) Carers Perceived: Policy and Practice in Informal Care. Open University Press, Buckingham.
29. Wingate A.L. & Lackey N.R. (1989) A description of the needs of noninstitutionalized cancer patients and their primary care givers. Cancer Nursing 12 (4), 216-225.
30. World Health Organization (1998) Report: Life in the 21st Century-A Vision for All. World Health Organisation, Geneva.