The impacts of distance to hospital on families with a child with a chronic condition

Social Science and Medicine

Volumn 52, Issue 12, 2001, Pages 1777-1791

  Yantzi, Nicole ^a   Rosenberg, Mark W ^a   Burke, Sharon O ^b   Harrison, Margaret B ^b  

^a QUEEN S UNIVERSITY   (Canada)

^b QUEEN S UNIVERSITY   (Canada)

Author keywords

Caregiving; Children; Chronic conditions

Indexed keywords

ADOLESCENT; ARTICLE; CANADA; CAREGIVER; CHILD; CHILD DEVELOPMENT; CHILDHOOD DISEASE; CHRONIC DISEASE; FAMILY HEALTH; FAMILY LIFE; GEOGRAPHY; HOSPITALIZATION; HOUSEHOLD; HUMAN; INFANT; MAJOR CLINICAL STUDY; MOTHER; MULTIVARIATE ANALYSIS; PRACTICE GUIDELINE; QUESTIONNAIRE; SOCIOECONOMICS; STRESS; TRAVEL;

ADOLESCENT; ADULT; CAREGIVERS; CATCHMENT AREA (HEALTH); CHILD; CHILD, PRESCHOOL; CHRONIC DISEASE; COST OF ILLNESS; DISABLED CHILDREN; FAMILY; HEALTH SERVICES ACCESSIBILITY; HOSPITALIZATION; HOSPITALS; HUMANS; INFANT; INFANT, NEWBORN; LOGISTIC MODELS; MIDDLE AGED; MULTIVARIATE ANALYSIS; ONTARIO; QUESTIONNAIRES; STRESS, PSYCHOLOGICAL; TIME FACTORS; TRANSPORTATION OF PATIENTS;

EID: 0035008370     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0277-9536(00)00297-5     Document Type: Article

References (39)

1. Association for the Care of Children's Health (1982). Preparing your child for repeated or extended hospitalization. Washington, DC: Association for the Care of Children's Health.
2. Avison W., Turner R., Noh S., Nixon-speechley K. The impact of caregiving. Comparisons of different family contexts and experiences Zarit S., Pearlin L., Schaie K. Caregiving systems formal and informal helpers. 1993;75-105 Lawrence Erlbaum, Hillsdale, NJ.
3. Bouma R., Schweitzer R. The impact of chronic childhood illness on family stress. A comparison between autism and cystic fibrosis Journal of Clinical Psychology. 46:1990;722-730.
4. Braithwaite V. Understanding stress in informal caregiving. Is burden a problem of the individual or of society Research on Aging. 18:1996;139-174.
5. Braithwaite V. Caregiving burden. Making the concept scientifically useful and policy relevant Research on Aging. 14:1992;3-27.
6. Burke S.O., Costello E.A., Handley-Derry M. Maternal stress and repeated hospitalizations of children who are physically disabled. Children's Health Care. 18:1989;82-90.
7. Burke S.O., Kauffmann E., Costello E.A., Dillon M.C. Hazardous secrets and reluctantly taking charge. Parenting a child with repeated hospitalizations Image: Journal of Nursing Scholarship. 23:1991;39-45.
8. Burke S.O., Harrison M., Kauffman E., Wiskin N. Assessment of stressors in families with a child who has a chronic condition. MCN: The Journal of Maternal Child Nursing. 24:1999;98-106.
9. Burke, S. O., Harrison, M., Kauffmann, E., & Wong, C. (2000a). Coping, stress and function effects from stress-point intervention in families with repeatedly hospitalized children, under peer review.
10. Burke, S. O., Harrison, M., Kauffmann, E., & Wong, C. (2000b). Effects of stress-point intervention on families with repeatedly hospitalized children, under peer review.
11. Cadman D., Boyle M., Offord D., Szatmari P., Rae-Grant N., Crawford J., Bayles J. Chronic illness and functional limitation in Ontario children. Findings of the Ontario child health study Canadian Medical Association Journal. 135:1986;761-767.
12. Canadian Institute of Child Health (1994). The health of canada's children: A CICH profile. Ottawa, Ont.: Canadian Institute of Child Health.
13. Cummings K.M., Becker M.H., Maile M.C. Bringing the models together. An empirical approach to combining variables used to explain health actions Journal of Behavioral Medicine. 3(2):1980;123-145.
14. Dwyer J., Miller M. Differences in characteristics of the caregiving network by area of residence. Implications for primary caregiver stress and burden Family Relations. 39:1990;27-37.
15. Hagerstrand T. Space, time and human conditions. Karlqvist A., Lunquist L., Snickars F. Dynamic allocation of urban space. 1975;3-14 Lexington Books, Lexington, MA.
16. Hagerstrand T. The domain of human geography. Chorley R.J. Directions in geography. 1973;65-87 Barnes & Noble, New York, NY.
17. Harrison, M. B., Ross, S., Lay, C., Burke, S. O., Kauffman, E. & Wong, C. (2000). Financial burden and the hospitalization of children with chronic illness. Canadian Health Economics Research Institute, in press.
18. Hastings Centre (1987). Familial and social obligations to seriously ill and disabled children. Hastings Center Report, 17, 25-30.
19. Hodgson T., Meiners M. Cost-of-illness methodology. A guide to current practices and procedures Millbank Memorial Fund Quarterly/Health and Society. 60(3):1982;429-462.
20. Holroyd J. A review of criterion validation research on the questionnaire on resources and stress for families with chronically ill or handicapped member. Journal of Clinical Psychology. 44:1988;335-354.
21. Holroyd J. Manual for the questionnaire on resources and stress for families with chronologically ill or handicapped members. 1987;Clinical Psychology, Brandon UT.
22. Holroyd J., Guthrie D. Family stress with chronic childhood illness. Cystic fibrosis, neuromuscular disease, and renal disease Journal of Clinical Psychology. 42:1986;552-561.
23. Houts P., Lipton A., Harvey H., Martin B., Simmonds M., Dixon R., Longo S., Andrews T., Gordman R., Meloy J., Hoffman S. Nonmedical costs to patients and their families associated with outpatient chemotherapy. Cancer. 53:1984;2388-2392.
24. Jones, R. (1997). Personal interview. September 23, 1997.
25. Lansky S., Cairns N., Clark G., Lowman J., Miller L., Trueworthy R. Childhood cancer nonmedical costs of illness. Cancer. 43:1979;403-408.
26. Lazarus R., Delongis A., Folkman S., Gruen R. Stress and adaptational outcomes. The problem of confounded measures American Psychologist. 40:1985;770-779.
27. Lende E. The effect of preparation on children's response to tonsillectomy and adenoidectomy surgery. Dissertation Abstracts International. 32:1971;3642B.
28. Massie R. The constant shadow. Reflections on the life of a chronically ill child Hobbs N., Perrin J. Issues in the care of children with chronic illness. 1985;13-23 Jossey-Bass, San Francisco, CA.
29. Melnyk K. Barriers. A critical review of recent literature Nursing Research. 37(4):1988;196-201.
30. Montgomery R., Gonyea J., Hooyman R. Caregiving and the experience of subjective and objective burden. Family Relations. 34:1985;19-26.
31. National Advisory Council on Aging (1996). Best practices in respite services for children age and disability. National Advisory Council on Aging.
32. Newacheck P., Taylor W. Childhood chronic illness. Prevalence, severity, and impact American Journal of Public Health. 82(3):1992;364-371.
33. Perrin J. Preface. Hobbs N., Perrin J. Issues in the care of children with chronic illness. 1985;9-11 Jossey-Bass, San Francisco, CA.
34. Poulshcok S., Deimling G. Families caring for elders in residence. Issues in the measurement of burden Journal of Gerontology. 39:1984;230-239.
35. Roberts, C. (1979). The relationship of family functioning to the habilitation of children born with myelodysplasia. Unpublished Doctoral Dissertation, Wayne State University, Detroit, MI.
36. Sabbeth B. Understanding the impact of chronic childhood illness on families. Pediatric Clinics of North America. 31(1):1984;47-57.
37. Salkever D. Parental opportunity costs and other economic costs of children's disabling conditions. Hobbs N., Perrin J. Issues in the care of children with chronic illness. 1985;864-879 Jossey-Bass, San Francisco, CA.
38. Thorne S. Negotiating health care. The social context of chronic illness:1993;Sage Publications Inc. Newbury Park, CA.
39. Wells D.W., Schwebel A.I. Chronically ill children and their mothers. Predictors of resilience and vulnerability to hospitalization and surgical stress Developmental and Behavioral Pediatrics. 8:1987;83-89.