Evaluation of a nurse-led haemophilia counselling service

British Journal of Nursing

Volumn 21, Issue 14, 2012, Pages 864-870

  O'Shea, Eadaoin ^a   Coughlan, Michael ^b   Corrigan, Helen ^b   McKee, Gabrielle ^b  

^a ST JAMES S HOSPITAL   (Ireland)

^b TRINITY COLLEGE DUBLIN   (Ireland)

Author keywords

Client satisfaction; Genetic counselling; Haemophilia carrier testing; Nurse led clinic; Patient education

Indexed keywords

EID: 84865312363     PISSN: 09660461     EISSN: None     Source Type: Journal    
DOI: 10.12968/bjon.2012.21.14.864     Document Type: Review

References (28)

1. Ahmed S, Green J, Hewison J (2005) Antenatal Thalassaemia carrier testing: Women's perceptions of 'information' and 'consent'. J Med Screen 12(2): 69-77 (Pubitemid 40835137)
2. Brain K, Norman P, Gray J, Rogers C, Mansel R and Harper P (2002) A randomized trial of specialist genetic assessment: psychological impact on women at different levels of familial breast cancer risk. Br J Cancer 86(2): 233-38 (Pubitemid 34185151)
3. Davey A, Rostant K, Harrop K, Goldblatt J, and O'Leary P (2005) Evaluating genetic counselling: Client expectations, psychological adjustment and satisfaction with service.J Genet Couns 14(3): 197-206. (Pubitemid 40909688)
4. DeMarco T, Peshkin B, Mars B, Tercyak K (2004) Patient satisfaction with cancer genetic counseling: a psychometric analysis of the Genetic Counseling Satisfaction Scale. J Genet Couns 13(4): 293-304 (Pubitemid 38998454)
5. Grogan A, Timmins F (2010) Patients' perceptions of informational and psychological support received from a nurse specialist in a hepatitis C treatment clinic. J Clin Nurs 19(19-20): 2869-78
6. Hacker MR, Primeaux J, Manco-Johnson J (2006) A patient satisfaction survey for haemophilia treatment centres. Haemophilia 12(2): 163-8
7. Haemophilia Alliance (2005) Background. http://tinyurl.com/czrolqy (accessed 18July 2012)
8. Holloway S, Porteous M, Cetnarskyj R et al (2004) Client satisfaction with two different models of cancer genetic services in south-east Scotland. Br J Cancer 90(3): 582-9 (Pubitemid 38297194)
9. James AH (2005) More than menorrhagia: A review of the obstetric and gynaecological manifestations ofbleeding disorders. Haemophilia 11(4): 295-307 (Pubitemid 41030828)
10. Kadir RA, Sabin CA, Goldman E, Pollard D, Economides DL, Lee CA (2000) Reproductive choices of women in families with haemophilia. Haemophilia 6(1): 33-40 (Pubitemid 30113899)
11. Kasper C, Buzin C (2008) Genetics of Haemophilia A and B: An introduction for clinicians 2009. Southland Publications, Pasadena Ca.
12. Lee CA, Chi C, Pavord SR et al (2006) The obstetric and gynaecological management of women with inherited bleeding disorders-review with guidelines produced by a taskforce of UK Haemophilia Centre Doctors' Organization. Haemophilia 12(4): 301-36
13. Ludman CA, Pasi KJ, Bolton-Maggs P et al (2005) A framework for genetic service provision for haemophilia and other inherited bleeding disorders. Haemophilia 11(2): 145-63 (Pubitemid 40468063)
14. Miller R (1999) Counselling about diagnosis and inheritance of genetic bleeding disorders: haemophilia A and B. Haemophilia 5(2): 77-83 (Pubitemid 29182524)
15. Miller R (2002) Genetic counselling for haemophilia. Treatment of Hemophilia 25.Monograph World Federation of Haemophilia. http://tinyurl.com/ cduq7gp (accessed 19July2012)
16. Montague S, Watson R, Herbert R (2005) Physiology for Nursing Practice. 3rd edn. Elsevier, Edinburgh.
17. Payne K, Nicholls S, McAllister M, MacLeod R, Donnai D and Davies L (2008) Outcome measurement in clinical genetics services: A systematic review ofvalidated measures. Value Health 11(3): 497-508 (Pubitemid 351712973)
18. Pilnick A, Dingwall R (2001) Research directions in genetic counselling: a review of the literature. Patient Educ Couns 44(2): 95-105 (Pubitemid 32677953)
19. Polit DF, Beck CT (2010) Nursing Research: Appraising Evidence for Nursing Practice. 7th edn. Wolters Kluwer|Lippincott Williams and Wilkins: Philadelphia.
20. Roshanai AH, Rosenquist R, Lampic C, Nordin K (2009) Does enhanced information at genetic counseling improve counselees' knowledge, risk perception, satisfaction and negotiation of information to at risk relatives?-a randomised study. Acta Oncol 48(7): 999-1009
21. Shiloh S, Avdor O, Goodman M (1990) Satisfaction with genetic counselling: Dimensions and Measurement. Am J Med Genet 37(4): 522-9 (Pubitemid 20380837)
22. Sorenson JR, Jennings-Grant T, Newman J (2003) Communicatingabout carrier testing within haemophilia A families. Am J Med Genet C Semin Med Genet 119C(1): 3-10 (Pubitemid 37064095)
23. Street AM, Ljung R, Lavery S (2008) Management of carriers and babies with haemophilia. Haemophilia 14(suppl. 3): 181-7 (Pubitemid 351722400)
24. Thomas S, Herbert D, Street A, Barnes C, Boal J, Komesaroff P (2007) Attitudes towards and beliefs about genetic testing in the haemophilia community: a qualitative study Haemophilia 13(5): 633-641 (Pubitemid 47338008)
25. Tercyak KP, Demarco TA, Mars BD, Peshkin BN (2004) Women's satisfaction with genetic counseling for hereditary breast-ovarian cancer: psychological aspects. Am J Med Genet A 131(1): 36-41 (Pubitemid 39434792)
26. Varekamp I, Suurmeijer T, Broker-Vriends A, Resendaal FR (1992) Haemophilia and the use of genetic counselling and carrier testing within family networks. Birth Defects Orig Artic Ser 28(1): 139-48
27. Wang C, Gonzalez R, Merajver SD (2004) Assessment of genetic testing and related counseling services: current research and future directions. Soc Sci Med 58(7): 1427-42 (Pubitemid 38169343)
28. Westwood G, Pickering RM, Latter S, Lucassen A, Little P, Temple IK (2006) Feasibility and acceptability of providing nurse counsellor genetics clinics in primary care. J Adv Nurs 53(5): 591-604 (Pubitemid 43437807)