Feasibility and acceptability of providing nurse counsellor genetics clinics in primary care

Journal of Advanced Nursing

Volumn 53, Issue 5, 2006, Pages 591-604

  Westwood, Greta ^a,d   Pickering, Ruth M ^b   Latter, Sue ^b   Lucassen, Anneke ^c   Little, Paul ^b   Karen Temple, I ^c  

^a Wessex Clinical Genetics Service   (United Kingdom)

^b UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

^c UNIVERSITY HOSPITAL SOUTHAMPTON NHS FOUNDATION TRUST   (United Kingdom)

^d PRINCESS ANNE HOSPITAL   (United Kingdom)

Author keywords

Costs; Genetic nurse counsellor; Genetics clinics; Patient satisfaction; Pilot study; Primary care; Questionnaire; Research report

Indexed keywords

ADOLESCENT; ADULT; AGED; CHILD; FAMILY HEALTH; FEASIBILITY STUDY; FEMALE; GENERAL PRACTICE; GENETIC COUNSELING; GENETICS; HUMAN; INFANT; MALE; METHODOLOGY; MIDDLE AGED; NEOPLASM; NURSING CARE; PATIENT ATTITUDE; PATIENT REFERRAL; PATIENT SATISFACTION; PILOT STUDY; PRESCHOOL CHILD; PRIMARY HEALTH CARE; PROSPECTIVE STUDY; QUESTIONNAIRE; REVIEW; TRAVEL; UNITED KINGDOM;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; CHILD; CHILD, PRESCHOOL; FAMILY HEALTH; FAMILY PRACTICE; FEASIBILITY STUDIES; FEMALE; GENETIC COUNSELING; GREAT BRITAIN; HUMANS; INFANT; MALE; MIDDLE AGED; NEOPLASMS; NURSING CARE; PATIENT ACCEPTANCE OF HEALTH CARE; PATIENT SATISFACTION; PILOT PROJECTS; PRIMARY HEALTH CARE; PROSPECTIVE STUDIES; QUESTIONNAIRES; REFERRAL AND CONSULTATION; TRAVEL;

EID: 33645130847     PISSN: 03092402     EISSN: 13652648     Source Type: Journal    
DOI: 10.1111/j.1365-2648.2006.03760.x     Document Type: Review

References (34)

1. Altman D. Machin D. Bryant T. Gardner M. 2000 Statistics with confidence 2nd edn BMJ Publishing Group London
2. Berkenstadt M. Shiloh S. Barkai G. Katznelson M.B. Goldman B. 1999 Perceived personal control (PPC): a new concept in measuring outcome of genetic counseling American Journal of Medical Genetics 82 53 59
3. Bernhardt B.A. Biesecker B.B. Mastromarino C.L. 2000 Goals, benefits, and outcomes of genetic counseling: client and genetic counselor assessment American Journal of Medical Genetics 94 189 197
4. Biesecker B.B. 2001 Goals of genetic counseling Clinical Genetics 60 323 330
5. Bottorff J.L. Ratner P.A. Balneaves L.G. Richardson C.G. McCullum M. Hack T. Chalmers K. Buxton J. 2002 Women's Interest in Genetic Testing for Breast Cancer Risk: The Influence of Sociodemographics and Knowledge Cancer Epidemiology Biomarkers Prevention 11 89 95
6. Bowling A. Bond M. 2001 A national evaluation of specialists' clinics in primary care settings British Journal of General Practice 51 264 269
7. Brain K. Gray J. Norman P. Parsons E. Clarke A. Rogers C. Mansel R. Harper P. 2000 Why do women attend familial breast cancer clinics Journal of Medical Genetics 37 197 202
8. Chapman J.L. Zechel A. Carter Y.H. Abbott S. 2004 Systematic review of recent innovations in service provision to improve access to primary care British Journal of General Practice 54 374 381
9. Clarke A. Parsons E. Williams A. 1996 Outcomes and process in genetic counselling Clinical Genetics 50 462 469
10. Cook S.S. Kase R. Middelton L. Monsen R.B. 2003 Portfolio evaluation for professional competence: credentialing in genetics for nurses Journal of Professional Nursing 19 85 90
11. Department of Health 1999 Making a Difference Department of Health London
12. Department of Health 2003 Our Inheritance, Our Future-Realising the Potential of Genetics in the NHS Department of Health London
13. Department of Health 2004 National Standards, Local Actions. Health and Social Care Standards and Planning Framework 2005/06 2007/08 Department of Health London
14. Donnai D. Elles R. 2001 Integrated regional genetic services: current and future provision British Medical Journal 322 1048 1052
15. Elwyn G. Gray J. Iredale R. 2000 Tensions in implementing the new genetics. General practitioners in south Wales are unconvinced of their role in genetics services British Medical Journal 321 240 241
16. Emery J. Hayflick S. 2001 The challenge of integrating genetic medicine into primary care British Medical Journal 322 1027 1030
17. Emery J. Watson E. Rose P. Andermann A. 1999 A systematic review of the literature exploring the role of primary care in genetic services Family Practice 16 426 445
18. Holloway S. Porteous M. Cetnarskyj R. Anderson E. Rush R. Fry A. Gorman D. Steel M. Campbell H. 2004 Patient satisfaction with two different models of cancer genetic services in south-east Scotland British Journal of Cancer 90 582 589
19. Katsichti L. Hadzipetros-Bardanis M. Bartsocas C.S. 1999 Education and certification of genetic counselors Genetic Counseling 10 171 176
20. Kinnersley P. Anderson E. Parry K. Clement J. Archard L. Turton P. Stainthorpe A. Fraser A. Butler C.C. Rogers C. 2000 Randomised controlled trial of nurse practitioner versus general practitioner care for patients requesting ''same day'' consultations in primary care British Medical Journal 320 1043 1048
21. Kirk M. Iredale R. Longley M. 1998 The current and future role of genetics services in primary care: the opinions of General Practitioners in Wales Journal of Medical Genetics 35 s68
22. Kumar S. Gantley M. 1999 Tensions between policy makers and general practitioners in implementing new genetics: grounded theory interview study British Medical Journal 319 1410 1413
23. Lacy N.L. Paulman A. Reuter M.D. Lovejoy B. 2004 Why we don't come: patient perceptions on no-shows Annals of Family Medicine 2 541 545
24. Lucassen A. Watson E. Harcourt J. Rose P. O'Grady J. 2001 Guidelines for referral to a regional genetics service: GPs respond by referring more appropriate cases Family Practice 18 135 140
25. Powell J. 2002 Systematic review of outreach clinics in primary care in the UK Journal of Health Services Research and Policy 7 177 183
26. Shickle D. Hapgood R. Qureshi N. 2002 The genetics liaison nurse role as a means of educating and supporting primary care professionals Family Practice 19 193 196
27. Shiloh S. Avdor O. Goodman R.M. 1990 Satisfaction with genetic counseling: dimensions and measurement American Journal of Medical Genetics 37 522 529
28. Skirton H. Barnes C. Curtis G. Walford-Moore J. 1997 The role and practice of the genetic nurse: report of the AGNC Working Party Journal of Medical Genetics 34 141 147
29. Skirton H. Kerzin-Storrar L. Patch C. Barnes C. Guilbert P. Dolling C. Kershaw A. Baines E. Stirling D. 2003 Genetic counsellors: a registration system to assure competence in practice in the United kingdom Community Genetics 6 182 183
30. Skirton H. Parsons E. Ewings P. 2005 Development of an audit tool for genetic services American Journal of Medical Genetics 136 122 127
31. The Automobile Association 2005 AA Motoring Costs Automobile Association London q6
32. Thompson S. Wordsworth S. 2001 An Annotated Cost Questionnaire for Completion by Patients HERU Discussion Paper Health Economics Research Unit, University of Aberdeen
33. Watson E.K. Shickle D. Qureshi N. Emery J. Austoker J. 1999 The 'new genetics' and primary care: GPs' views on their role and their educational needs Family Practice 16 420 425
34. Wilson B.J. Torrance N. Mollison J. Wordsworth S. Gray J.R. Haites N.E. Grant A. Campbell M.K. Miedyzbrodzka Z. Clarke A. Watson M.S. Douglas A. 2005 Improving the referral process for familial breast cancer genetic counselling: findings of three randomised controlled trials of two interventions Health Technology Assessment 9 1 140