Discussing an uncertain future: End-of-life care conversations in chronic obstructive pulmonary disease. A systematic literature review and narrative synthesis

Thorax

Volumn 67, Issue 9, 2012, Pages 777-780

  Momen, Natalie ^a   Hadfield, Peter ^b   Kuhn, Isla ^c   Smith, Elizabeth ^a   Barclay, Stephen ^a  

^a UNIVERSITY OF CAMBRIDGE   (United Kingdom)

^b North Street Medical Practice ^*  (United Kingdom)

^c UNIVERSITY OF CAMBRIDGE   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ATTITUDE TO DEATH; CHRONIC OBSTRUCTIVE LUNG DISEASE; CONVERSATION; DOCTOR PATIENT RELATION; HEALTH PERSONNEL ATTITUDE; HUMAN; NARRATIVE; PATIENT ATTITUDE; PATIENT PREFERENCE; PRIORITY JOURNAL; REVIEW; SYSTEMATIC REVIEW; TERMINAL CARE;

EID: 84865281666     PISSN: 00406376     EISSN: 14683296     Source Type: Journal    
DOI: 10.1136/thoraxjnl-2012-201835     Document Type: Article

References (36)

1. National Institute for Health and Clinical Excellence. Chronic Obstructive Pulmonary Disease: Management of Chronic Obstructive Pulmonary Disease in Adults in Primary and Secondary Care. London: National Institute for Health and Clinical Excellence, 2010.
2. Murray CJ, Lopez AD. Alternative projections of mortality and disability by cause 1990-2020: Global Burden of Disease Study. Lancet 1997;349:1498-504.
3. Department of Health. End of Life Care Strategy - Promoting High Quality Care for All Adults at the End of Life. London: Department of Health, 2008.
4. Murray SA, Pinnock H, Sheikh A. Palliative care for people with COPD: we need to meet the challenge. Prim Care Respir J 2006;15:362-4.
5. McGarvey LP, John M, Anderson JA, et al. Ascertainment of cause-specific mortality in COPD: operations of the TORCH Clinical Endpoint Committee. Thorax 2007;62:411-15.
6. Celli BR, Cote CG, Marin JM, et al. The body-mass index, airflow obstruction, dyspnea, and exercise capacity index in chronic obstructive pulmonary disease. N Engl J Med 2004;350:1005-12.
7. Murray SA, Boyd K, Sheikh A. Palliative care in chronic illness. BMJ 2005;330:611-12.
8. Lanken PN, Terry PB, Delisser HM, et al. An official American Thoracic Society clinical policy statement: palliative care for patients with respiratory diseases and critical illnesses. Am J Respir Crit Care Med 2008;177:912-27.
9. National Institute for Health and Clinical Excellence. Quality Standard for Chronic Obstructive Pulmonary Disease. London: National Institute for Health and Clinical Excellence, 2011.
10. Smith R. A good death. An important aim for health services and for us all. BMJ 2000;320:129-30.
11. Gardiner C, Gott M, Small N, et al. Living with advanced chronic obstructive pulmonary disease: patients concerns regarding death and dying. Palliat Med 2009;23:691-7.
12. Gott M, Gardiner C, Small N, et al. Barriers to advance care planning in chronic obstructive pulmonary disease. Palliat Med 2009;23:642-8.
13. Elkington H, White P, Higgs R, et al. GPs' views of discussions of prognosis in severe COPD. Fam Pract 2001;18:440-4.
14. The Royal College of Physicians of London, , British Thoracic Society and British Lung Foundation. Report 5 of the National Chronic Obstructive Pulmonary Disease Audit 2008: Survey of COPD Care within UK General Practices. London: Royal College of Physicians, 2008.
15. Thorns A, Cawley D. Palliative care in people with chronic obstructive pulmonary disease. BMJ 2011;342:d106.
16. Au DH, Udris MU, Engelberg RA, et al. A randomized trial to improve communication about end-of-life care among patients with COPD. Chest 2012;141:726-35.
17. Janssen DJ, Spruit MA, Schols JM, et al. A call for high-quality advance care planning in outpatients with severe COPD or chronic heart failure. Chest 2011;139:1081-8.
18. Robinson T. Living with severe hypoxic COPD: the patients' experience. Nurs Times 2005;101:38-42.
19. Curtis JR, Wenrich MD, Carline JD, et al. Patients' perspectives on physician skill in end-of-life care: differences between patients with COPD, cancer, and AIDS. Chest 2002;122:356-62.
20. Gore JM, Brophy CJ, Greenstone MA. How well do we care for patients with end stage chronic obstructive pulmonary disease (COPD)? A comparison of palliative care and quality of life in COPD and lung cancer. Thorax 2000;55:1000-6.
21. Jones I, Kirby A, Ormiston P, et al. The needs of patients dying of chronic obstructive pulmonary disease in the community. Fam Pract 2004;21:310-13.
22. Gysels M, Higginson IJ. The experience of breathlessness: the social course of chronic obstructive pulmonary disease. J Pain Symptom Manage 2010;39:555-63.
23. Gaber KA, Barnett M, Planchant Y, et al. Attitudes of 100 patients with chronic obstructive pulmonary disease to artificial ventilation and cardiopulmonary resuscitation. Palliat Med 2004;18:626-9.
24. Mulcahy P, Buetow S, Osman L, et al. GPs' attitudes to discussing prognosis in severe COPD: an Auckland (NZ) to London (UK) comparison. Fam Pract 2005;22:538-40.
25. Sullivan KE, Hebert PC, Logan J, et al. What do physicians tell patients with end-stage COPD about intubation and mechanical ventilation? Chest 1996;109:258-64.
26. Crawford A. Respiratory practitioners' experience of end-of-life discussions in COPD. Br J Nurs 2010;19:1164-9.
27. Pinnock H, Kendall M, Murray SA, et al. Living and dying with severe chronic obstructive pulmonary disease: multi-perspective longitudinal qualitative study. BMJ 2011;342:d142.
28. Halliwell J, Mulcahy P, Buetow S, et al. GP discussion of prognosis with patients with severe chronic obstructive pulmonary disease: a qualitative study. Br J Gen Pract 2004;54:904-8.
29. Heffner JE. Advance care planning in chronic obstructive pulmonary disease: barriers and opportunities. Curr Opin Pulm Med 2011;17:103-9.
30. Pfeifer M. End-of-life decision-making: special considerations in the COPD patient. MedGenMed 1999;3. http://www.medscape.com/viewarticle/408735.
31. [formerly published in Medscape Pulm Med ejournal 1998;2(5)].
32. Curtis JR. Palliative and end-of-life care for patients with severe COPD. Eur Respir J 2008;32:796-803.
33. Barclay S, Case-Upton S. Knowing patients' preferences for place of death: how possible or desirable? Br J Gen Pract 2009;59:642-3.
34. White P, White S, Edmonds P, et al. Palliative care or end-of-life care in advanced chronic obstructive pulmonary disease: a prospective community survey. Br J Gen Pract 2011;61:e362-70.
35. Hoffman J, Wenger N, Davis R, et al. Patient preferences for communication with physicians about end-of-life decisions. Ann Intern Med 1997;127:1-12.
36. Back AL, Arnold RM, Quill TE. Hope for the best, and prepare for the worst. Ann Intern Med 2003;138:439-43.