Advance care planning in chronic obstructive pulmonary disease: Barriers and opportunities

Current Opinion in Pulmonary Medicine

Volumn 17, Issue 2, 2011, Pages 103-109

  Heffner, John E ^a  

^a PROVIDENCE PORTLAND MEDICAL CENTER   (United States)

Author keywords

advance care planning; chronic obstructive pulmonary disease; palliative care

Indexed keywords

ARTICLE; ATTITUDE TO ILLNESS; CHRONIC OBSTRUCTIVE LUNG DISEASE; COMORBIDITY; CONTROLLED STUDY; DEATH; DELAYED DIAGNOSIS; DEPRESSION; DISEASE COURSE; DISEASE EXACERBATION; DYSPNEA; FORCED EXPIRATORY VOLUME; HOME CARE; HUMAN; OXYGEN THERAPY; PALLIATIVE THERAPY; PATIENT CARE; PATIENT CARE PLANNING; PATIENT DECISION MAKING; PATIENT INFORMATION; PRACTICE GUIDELINE; PROGNOSIS; PULMONARY REHABILITATION; QUALITY OF LIFE; TERMINAL DISEASE;

ADVANCE CARE PLANNING; COMMUNICATION BARRIERS; DISEASE PROGRESSION; HUMANS; PALLIATIVE CARE; PHYSICIAN-PATIENT RELATIONS; PROGNOSIS; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; QUALITY IMPROVEMENT; QUALITY OF LIFE;

EID: 79951636614     PISSN: 10705287     EISSN: 15316971     Source Type: Journal    
DOI: 10.1097/MCP.0b013e328341ce80     Document Type: Article

References (56)

1. Hardin KA, Meyers F, Louie S. Integrating palliative care in severe chronic obstructive lung disease. COPD 2008; 5:207-220.
2. Gardiner C, Gott M, Payne S, et al. Exploring the care needs of patients with advanced COPD: an overview of the literature. Respir Med 2010; 104:159-165.
3. Gershon AS, Wang C,Wilton AS, et al. Trends in chronic obstructive pulmonary disease prevalence, incidence, and mortality inOntario, Canada, 1996 to 2007: a population-based study. Arch Intern Med 2010; 170:560-565.
4. Buist AS, McBurnie MA, Vollmer WM, et al. International variation in the prevalence of COPD (the BOLD Study): a population-based prevalence study. Lancet 2007; 370:741-750. (Pubitemid 47321907)
5. Brown DW, Croft JB, Greenlund KJ, Giles WH. Trends in hospitalization with chronic obstructive pulmonary disease-United States, 1990-2005. COPD 2010; 7:59-62.
6. Xu W, Collet JP, Shapiro S, et al. Negative impacts of unreported COPD exacerbations on health-related quality of life at 1 year. Eur Respir J 2010; 35:1022-1030.
7. Schneider C, Bothner U, Jick SS, Meier CR. Chronic obstructive pulmonary disease and the risk of cardiovascular diseases. Eur JEpidemiol2010;25:253-260.
8. Almagro P, Lopez Garcia F, Cabrera F, et al. Comorbidity and gender-related differences in patients hospitalized for COPD. The ECCO study. Respir Med 2010; 104:253-259.
9. Abernethy AP, Uronis HE, Wheeler JL, Currow DC. Management of dyspnea in patients with chronic obstructive pulmonary disease. Wien Med Wochenshr 2009; 159:583-590.
10. McCormick JR. Pulmonary rehabilitation and palliative care. Semin Respir Crit Care Med 2009; 30:684-699.
11. Varkey B. Opioids for palliation of refractory dyspnea in chronic obstructive pulmonary disease patients. Curr Opin Pulm Med 2010; 16:150-154.
12. Spence A, Hasson F, Waldron M, et al. Professionals delivering palliative care to people with COPD: qualitative study. Palliat Med 2009; 23:126-131.
13. Gott M, Gardiner C, Small N, et al. Barriers to advance care planning in chronic obstructive pulmonary disease. Palliat Med 2009; 23:642-648.
14. Gardiner C, Gott M, Small N, et al. Living with advanced chronic obstructive pulmonary disease: patients concerns regarding death and dying. Palliat Med 2009; 23:691-697.
15. Fried TR, Drickamer M. Garnering support for advance care planning. JAMA 2010; 303:269-270.
16. Gelberg J, McIvor RA. Overcoming gaps in the management of chronic obstructive pulmonary disease in older patients: new insights. Drugs Aging 2010; 27:367-375.
17. Au DH, Udris EM, Fihn SD, et al. Differences in healthcare utilization at the end of life among patients with chronic obstructive pulmonary disease and patients with lung cancer. Arch Intern Med 2006; 166:326-331. (Pubitemid 43244320)
18. Mularski RA, Osborne ML. End-of-life care in the critically ill geriatric population. Crit Care Clin 2003; 19:789-810; viii. (Pubitemid 37323357)
19. Elkington H, White P, Addington-Hall J, et al. The last year of life of COPD: a qualitative study of symptoms and services. Respir Med 2004; 98:439-445. (Pubitemid 38578726)
20. Goodridge D, Lawson J, Duggleby W, et al. Healthcare utilization of patients with chronic obstructive pulmonary disease and lung cancer in the last months of life. Respir Med 2008; 102:885-891.
21. Heffner JE, Fahy B, Hilling L, Barbieri C. Attitudes regarding advance directives among patients in pulmonary rehabilitation. Am J Respir Crit Care Med 1996; 154:1735-1740. (Pubitemid 26424943)
22. Heffner JE, Fahy B, Hilling L, Barbieri C. Outcomes of advance directive education of pulmonary rehabilitation patients. Am J Respir Crit Care Med 1997; 155:1055-1059. (Pubitemid 27133423)
23. Partridge MR, Khatri A, Sutton L, et al. Palliative care services for those with chronic lung disease. Chron Respir Dis 2009; 6:13-17.
24. Mulcahy P, Buetow S, Osman L, et al. GPs attitudes to discussing prognosis in severe COPD: an Auckland (NZ) to London (UK) comparison. Fam Pract 2005; 22:538-540. (Pubitemid 41418774)
25. McNeely PD, Hebert PC, Dales RE, et al. Deciding about mechanical ventilation in end-stage chronic obstructive pulmonary disease: how respirologists perceive their role. CMAJ 1997; 156:177-183. (Pubitemid 27065009)
26. Bastin AJ, Starling L, Ahmed R, et al. High prevalence of undiagnosed and severe chronic obstructive pulmonary disease at first hospital admission with acute exacerbation. Chron Respir Dis 2010 [Epub ahead of print].
27. Lanken PN, Terry PB, Delisser HM, et al. An official American Thoracic Society clinical policy statement: palliative care for patients with respiratory diseases and critical illnesses. Am J Respir Crit Care Med 2008; 177:912-927. (Pubitemid 351600670)
28. Reinke LF, Engelberg RA, Shannon SE, et al. Transitions regarding palliative and end-of-life care in severe chronic obstructive pulmonary disease or advanced cancer: themes identified by patients, families, and clinicians. J Palliat Med 2008; 11:601-609. (Pubitemid 351630199)
29. Han MK, Agusti A, Calverley PM, et al. COPD phenotypes: the future of COPD. Am J Respir Crit Care Med 2010 [Epub ahead of print].
30. Thomas JM, OLeary JR, Fried TR. Understanding their options: determinants of hospice discussion for older persons with advanced illness. J Gen Intern Med 2009; 24:923-928.
31. Puhan MA, Garcia-Aymerich J, Frey M, et al. Expansion of the prognostic assessment of patients with chronic obstructive pulmonary disease: the updated BODE index and the ADO index. Lancet 2009; 374:704-711.
32. Roche N, Rabbat A, Zureik M, Huchon G. Chronic obstructive pulmonary disease exacerbations in emergency departments: predictors of outcome. Curr Opin Pulm Med 2010; 16:112-117.
33. The SUPPORT Principal Investigators. A controlled trial to improve care for seriously ill hospitalized patients. The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). JAMA 1995; 274:1591-1598.
34. Roberts CM, Seiger A, Buckingham RJ, Stone RA. Clinician perceived good practice in end-of-life care for patients with COPD. Palliat Med 2008; 22:855-858.
35. Stapleton RD, Nielsen EL, Engelberg RA, et al. Association of depression and life-sustaining treatment preferences in patients with COPD. Chest 2005; 127:328-334. (Pubitemid 41724593)
36. Fried TR, Bradley EH, OLeary J. Prognosis communication in serious illness: perceptions of older patients, caregivers, and clinicians. J Am Geriatr Soc 2003; 51:1398-1403. (Pubitemid 37259868)
37. Heffner JE. Role of pulmonary rehabilitation in palliative care. Respir Care 2000; 45:1365-1371; discussion 1371-1375.
38. Hynninen MJ, Bjerke N, Pallesen S, et al. A randomized controlled trial of cognitive behavioral therapy for anxiety and depression in COPD. Respir Med [Epub ahead of print].
39. Katz PP, Julian LJ, Omachi TA, et al. The impact of disability on depression among individuals with COPD. Chest 2010; 137:838-845.
40. Blinderman CD, Homel P, Billings JA, et al. Symptom distress and quality of life in patients with advanced chronic obstructive pulmonary disease. J Pain Symptom Manage 2009; 38:115-123.
41. Simpson AC, Rocker GM. Advanced chronic obstructive pulmonary disease: impact on informal caregivers. J Palliat Care 2008; 24:49-54.
42. Lindqvist G, Hallberg LR. Feelings of guilt due to self-inflicted disease: a grounded theory of suffering from chronic obstructive pulmonary disease (COPD). J Health Psychol 2010; 15:456-466.
43. Omachi TA, Katz PP, Yelin EH, et al. The COPD Helplessness Index: a new tool to measure factors affecting patient self-management. Chest 2010; 137:823-830.
44. Gysels M, Higginson IJ. Access to services for patients with chronic obstructive pulmonary disease: the invisibility of breathlessness. J Pain Symptom Manage 2008; 36:451-460.
45. Dodd JW, Getov SV, Jones PW. Cognitive function in COPD. Eur Respir J 2010; 35:913-922.
46. Selecky PA, Eliasson CA, Hall RI, et al. Palliative and end-of-life care for patients with cardiopulmonary diseases: American College of Chest Physicians position statement. Chest 2005; 128:3599-3610. (Pubitemid 41698699)
47. Sachs S, Weinberg RL. Pulmonary rehabilitation for dyspnea in the palliativecare setting. Curr Opin Support Palliat Care 2009; 3:112-119.
48. Hanania NA, Mannino DM, Yawn BP, et al. Predicting risk of airflow obstruction in primary care: validation of the lung function questionnaire (LFQ). Respir Med 2010 [Epub ahead of print].
49. Back AL, Arnold RM, Quill TE. Hope for the best, and prepare for the worst. Ann Intern Med 2003; 138:439-443. (Pubitemid 36262662)
50. White DB, Braddock CHr, Bereknyei S, Curtis JR. Toward shared decision making at the end of life in intensive care units: opportunities for improvement. Arch Intern Med 2007; 167:461-467. (Pubitemid 46425658)
51. Hickman SE, Nelson CA, Perrin NA, et al. A comparison of methods to communicate treatment preferences in nursing facilities: traditional practices versus the physician orders for life-sustaining treatment program. J Am Geriatr Soc 2010; 58:1241-1248.
52. ODonnell DE, Hernandez P, Kaplan A, et al. Canadian Thoracic Society recommendations for management of chronic obstructive pulmonary disease - 2008 update - highlights for primary care. Can Respir J 2008; (Suppl A):1A-8A. (Pubitemid 351566057)
53. Curtis JR. Palliative and end-of-life care for patients with severe COPD. Eur Respir J 2008; 32:796-803.
54. Fried TR, OLeary JR. Using the experiences of bereaved caregivers to inform patient- and caregiver-centered advance care planning. J Gen Intern Med 2008; 23:1602-1607.
55. Gysels M, Higginson IJ. The experience of breathlessness: the social course of chronic obstructive pulmonary disease. J Pain Symptom Manage 2010; 39:555-563.
56. Habraken JM, Pols J, Bindels PJ, Willems DL. The silence of patients with end-stage COPD: a qualitative study. Br J Gen Pract 2008; 58:844-849.