Health-care consumerism and access to health care: Educating elders to improve both preventive and end-of-life care

Research in the Sociology of Health Care

Volumn 29, Issue , 2011, Pages 173-193

  Kahana, Eva ^a   Kahana, Boaz ^b   Lovegreen, Loren ^a   Kahana, Jeffrey ^c   Brown, Jane ^a   Kulle, Diana ^a  

^a CASE WESTERN RESERVE UNIVERSITY   (United States)

^b CLEVELAND STATE UNIVERSITY   (United States)

^c CASE WESTERN RESERVE UNIVERSITY   (United States)

Author keywords

Cancer; Elderly health care consumers; End of life care; Patient education; Screening; Self advocacy

Indexed keywords

ADULT; AGED; CANCER PREVENTION; DOCTOR PATIENT RELATION; EMPOWERMENT; HEALTH LITERACY; HUMAN; MEDICAL INFORMATION; TERMINAL CARE;

EID: 84864790732     PISSN: 02754959     EISSN: None     Source Type: Book Series    
DOI: 10.1108/S0275-4959(2011)0000029010     Document Type: Article

References (108)

1. Adelman, R., Greene, M., & Ory, M. (2000). Communication between older patients and their physicians. Clinics in Geriatric Medicine, 16(1), 1-24.
2. Albada, A., Ausems, M., Bensing, J., & van Dulmen, S. (2009). Tailored information about cancer risk and screening: A systematic review. Patient Education and Counseling, 77(2), 155-171.
3. American Association for Homes & Services for the Aged. (2009). Cabinet on future needs of consumers: Who decides? Imagining a different future: Planning now for a new generation of older consumers. Washington, DC: AAHSA.
4. Anderson, R. M., & Funnell, M. M. (2009). Patient empowerment: Myths and misconceptions. Patient Education and Counseling, 79, 277-282.
5. Auerbach, S. M. (2009). The impact on patient health outcomes of interventions targeting the patient-physician relationship. The Patient: Patient Centered Outcomes Research, 2(2), 77-84.
6. Bandura, A. (1977). Self-efficacy: Toward a unifying theory of behavioral change. Psychology Review, 84, 191-215.
7. Berger, N., Savvides, P., Koroukian, S., Kahana, E. F., Deimling, G. T., Rose, J. H., & Miller, R. H. (2006). Cancer in the elderly. Transactions of the American Clinical & Climatological Association, 117, 147-156.
8. De Boer, M. E., Hertogh, C. M. P. M., Droes, R. M., Jonker, C., & Eefsting, J. A. (2010). Advance directives in dementia: Issues of validity and effectiveness. International Psychogeriatrics, 22, 201-208.
9. Breen, N., & Kessler, L. (1996). Trends in cancer screening - United States, 1987 and 1992. Mortality Weekly Report, 45, 57-61.
10. Byers, T. (2009). Targeting cancer prevention and screening practices for older adults. Journal of the American Geriatric Society, 57, 243-245.
11. Carr, D., & Moorman, S. M. (2009). End-of-life treatment preferences among older adults: An assessment of psychosocial influences. Sociological Forum, 24(4), 754-778.
12. Cartwright, J. C., Miller, L., & Volpin, M. (2009). Hospice in assisted living: Promoting good quality care at end of life. The Gerontologist, 49(4), 508-516.
13. Cegala, D. J. (2007). Patient participation, health information, and communication skills training: Implications for cancer patients. In: D. O'Hair, G. L. Kreps&L. Sparks (Eds.), Handbook of communication and cancer care (pp. 375-386). Cresskill, NJ: Hampton Press, Inc.
14. Cegala, D. J., Post, D. M., & McClure, L. (2002). The effects of patient communication skills training on the discourse of older patients during a primary care interview. Journal of the American Geriatrics Society, 49(11), 1505-1511.
15. Champion, V., Rawl, S., & Skinner, C. (2003). Cancer screening. In: C. Given, B. Given, V. Champion, S. Kozachik & D. DeVoss (Eds.), Evidence-based cancer care and prevention: Behavioral interventions (pp. 63-106). New York, NY: Springer.
16. Cicero, A. F. G., Dormi, A., D'Addato, S., Gaddi, A. V., & Borghi, C. (2010). Long-term effect of a dietary education program on postmenopausal cardiovascular risk and metabolic syndrome: The Brisighella Heart Study. Journal of Women's Health, 19(1), 133-137.
17. Clarke, A., & Seymour, J. (2010). 'At the foot of a very long ladder': Discussing the end of life with older people and informal caregivers. Journal of Pain & Symptom Management, 40(6), 857-869.
18. Coleman, T., & Wilson, A. (1996). Anti-smoking advice in general practice consultations: General practitioners' attitudes, reported practice and perceived problems. British Journal of General Practice, 46(403), 87-91.
19. Dannefer, D. (2003). Cumulative advantage/disadvantage and the life course. The Journals of Gerontology, 58B(6), S327-S337.
20. Detering, K. M., Hancock, A. D., & Reade, M. C. (2010). The impact of advance care planning on end-of-life care in elderly patients: Randomized controlled trial. British Medical Journal, 340, 1-9.
21. Elder, J. P., Ayala, G., & Harris, S. (1999). Theories and intervention approaches to health behavior change in primary care. American Journal of Preventive Medicine, 17(4), 275-284.
22. Emanuel, E., & Emanuel, L. (1992). Four models of the physician-patient relationship. JAMA, 267(16), 221-226.
23. Ende, J., Kazis, L., Ash, A., & Moskowitz, M. A. (1989). Measuring patients' desire for autonomy: Decision making and information-seeking preferences among medical patients. Journal of General Internal Medicine, 4(1), 23-30.
24. Engelberg, R. A., Downey, L., Wenrich, M. D., Carline, J. D., Silvestri, G. A., Dotolo, D., & Curtis, J. R. (2010). Measuring the quality of end-of-life care. Journal of Pain and Symptom Management, 39(6), 951-971.
25. Epstein, R. M., Alper, B. S., & Quill, T. E. (2004). Communicating evidence for participatory decision making. JAMA, 291(19), 2359-2366.
26. Epstein, R.M., & Street, R.L. (2007). Patient-centered communication in cancer care: Promoting healing and reducing suffering. Bethesda, MD: National Cancer Institute, NIH Publication No. 07-6225.
27. Etzioni, R., Urban, N., Ramsey, S., McIntosh, M., Schwartz, S., Reid, B., & Hartwell, L. (2003). The case for early detection. Nature Reviews: Cancer, 3, 1-10.
28. Flocke, S. A., Stange, K. C., & Zyzanski, S. J. (1998). The association of attributes of primary care with the delivery of clinical preventive services. Medical Care, 36(8), AS21-AS30.
29. Fried, L. P., Ferrucci, L., Darer, J., Williamson, J. D., & Anderson, G. (2004). Untangling the concepts of disability, frailty, and comorbidity: Implications for improved targeting and care. Journal of Gerontology: Medical Sciences, 59(3), 255-263.
30. George, L. K. (1999). Life-course perspectives on mental health. In: C. S. Aneshensel & J. C. Phelan (Eds.), Handbook of the sociology of mental health (pp. 565-585). New York, NY: Kluwer Academic/Plenum Publishers.
31. Given, C. W. (2003). Evidence-based cancer care and prevention: Behavioral interventions. New York, NY: Springer.
32. Griffin, S. J., Kinmonth, A. L., Veltman, M. W. M., Gillard, S., Grant, J., & Stewart, M. (2004). Effect on health-related outcomes of interventions to alter the interaction between patients and practitioners: A systematic review of trials. Annals of Family Medicine, 2(6), 595-608.
33. Haire-Joshu, D., & Nanney, M. S. (2003). Behavioral interventions for cancer prevention: Dietary and physical activity. Evidence-based cancer care and prevention: Behavioral interventions. New York, NY: Springer.
34. Hallenbeck, J. (2008). Access to end-of-life care venues. American Journal of Hospice & Palliative Medicine, 25(3), 245-249.
35. Hancock, K., Clayton, J. M., Parker, S. M., Walder, S., Butow, P. N., Carrick, S., & Tattersall, M. H. N. (2007). Discrepant perceptions about end-of-life communication: A systematic review. Journal of Pain & Symptom Management, 34(2), 190-200.
36. Haug, M. R., & Lavin, B. (1983). Consumerism in medicine: Challenging physician authority. Beverly Hills, CA: Sage Publications.
37. Hoffman, R., & Walter, L. (2009). Colorectal cancer screening in the elderly: The need for informed decision-making. Journal of General Internal Medicine, 24(12), 1336-1337.
38. Institute of Medicine.. (2003). Unequal treatment: Confronting racial and ethnic disparities in healthcare. Washington, DC: The National Academies Press.
39. Janz, N., & Becker, M. (1984). The health belief model: A decade later. Health Education Quarterly, 11(1), 1-47.
40. Johnson, R. L., Roter, D., Powe, N. R., & Cooper, L. A. (2004). Patient race/ethnicity and quality of patient-physician communication during medical visits. American Journal of Public Health, 94(12), 2084-2090.
41. Jones, R. G., Trivedi, A. N., & Lyianan, J. Z. (2010). Factors influencing the effectiveness of intervention to reduce racial and ethnic disparities in health care. Social Science & Medicine, 70(210), 337-341.
42. Kagan, S. H. (2008). Ageism in cancer care. Seminars in Oncology Nursing, 24(4), 246-253.
43. Kahana, B., Dan, A., Kahana, E., & Kercher, K. (2004). The personal and social context of planning for end-of-life care. Journal of the American Geriatrics Society, 52, 1163-1167.
44. Kahana, E. (2010, October 22). What the aged can teach us about the final years of life. Keynote speaker, NIH End-of-life Palliative Care SIG. Baltimore, MD.
45. Kahana, E., Cheruvu, V., Kahana, B., Kelley-Moore, J., Sterns, S., Brown, J., & Stange, K. (2010). Cancer screening among the elderly: Age bias and consumer impact. Open Longevity Science, 20-29 10.2174/1876326X01004010020.
46. Kahana, E., & Kahana, B. (1996). Conceptual and empirical advances in understanding aging well through proactive adaptation. In: V. Bengtson (Ed.), Adulthood and aging: Research on continuities and discontinuities (pp. 18-41). New York, NY: Springer Publishing Company.
47. Kahana, E., & Kahana, B. (2001). On being a proactive health care consumer: Making an 'unresponsive' system work for you. Research in the Sociology of Health Care, 19, 21-44.
48. Kahana, E., & Kahana, B. (2003). Patient proactivity enhancing doctor-patient-family communication in cancer prevention and care among the aged. Patient Education and Counseling, 50(1), 67-73.
49. Kahana, E., & Kahana, B. (2007). Health care partnership model of doctor-patient communication in cancer prevention and care among the aged. In: H. O'Hair, G. Kreps & L. Sparks (Eds.), The handbook of communication and cancer care (pp. 37-54). Cresskill, NJ: Hampton Press.
50. Kahana, E., & Kahana, B. (2010). Stress and agentic aging: A targeted cancer adaptation model. In: D. Dannefer&C. Phillipson(Eds.), Handbook of social gerontology (pp. 280-293). Thousand Oaks, CA: Sage.
51. Kahana, E., Kahana, B., Kelley-Moore, J., Adams, S., Hammel, R., Kulle, D., & King, C. (2009). Toward advocacy in cancer care among the old-old: Cautionary personal actions and bold advice to others. Journal of American Geriatric Society, 57(12), S269-S271.
52. Kahana, E., Kahana, B., Wykle, M., & Kulle, D. (2009). Marshalling social support: A 'caregetting' model for persons living with cancer. Journal of Family & Social Work, 12(2), 168-193.
53. Kahana, E., Lawrence, R. H., Kahana, B., Kercher, K., Wisniewski, A., Stoller, E., & Stange, K. (2002). Long-term impact of preventive proactivity on quality of life of the old-old. Psychosomatic Medicine, 64(3), 382-394.
54. Kaldjian, L. C., Curtis, A. E., Shinkunas, L. A., & Cannon, K. T. (2009). Review article: Goals of care toward the end of life: A structured literature review. American Journal of Hospice & Palliative Medicine, 25(6), 501-511.
55. Kaplan, S. H., Greenfield, S., Gandek, B., Rogers, W. H., & Ware, J. E. (1996). Characteristics of physicians with participatory decision making styles. Annals of Internal Medicine, 124(5), 487-504.
56. Katapodi, M. C., Dodd, M. J., Facione, N. C., Humphreys, J. C., & Lee, K. A. (2010). Why some women have an optimistic or pessimistic bias about their breast cancer risk: Experiences, heuristics, and knowledge of risk factors. Cancer Nursing, 33(1), 64-73.
57. Kinnersley, P., Edwards, E., Hood, K., Ryan, R., Prout, H., Cadbury, N., & Butler, C. (2008). Interventions before consultations to help patients address their information needs by encouraging question asking: systematic review. British Medical Journal, 337, 485-495.
58. Krupat, E., Irish, J. T., Kasten, L. E., Freund, K. M., Burns, R. B., Moskowitz, M., & McKinlay, J. B. (1999). Patient assertiveness and physician decision-making among older breast cancer patients. Social Science & Medicine, 49, 449-457.
59. Larochelle, M. R., Rodriguez, K. L., Arnold, R. M., & Barnato, A. E. (2009). Hospital staff attributions of the causes of physician variation in end-of-life treatment intensity. Palliative Medicine, 23(5), 460-470.
60. Larson, D. G., & Tobin, D. R. (2000). End-of-life conversations: Evolving practice and theory. JAMA, 284(12), 1573-1578.
61. Lee, Y., & Kasper, J. D. (1998). Assessment of medical care by elderly people: General satisfaction and physician quality. Health Sciences Research, 32(6), 741-758.
62. Leopold, N., Cooper, J., & Clancy, C. (1996). Sustained partnership in primary care. Journal of Family Practice, 42(2), 129-137.
63. Lin, G. A., & Dudley, R. A. (2009). Patient centered care: What is the best measuring stick? Annals of Internal Medicine, 169(17), 1551-1553.
64. Lorenz, K. A., Lynn, J., Dy, S. M., Shugarman, L. R., Wilkinson, A., Mularski, R. A., & Shekelle, P. G. (2008). Evidence for improving palliative care at the end of life: A systematic review. Annals of Internal Medicine, 148(2), 147-159.
65. Mandelblatt, J. S., Yabroff, K. R., & Kerner, J. F. (1999). Equitable access to cancer services: A review of barriers to quality care. Cancer, 86(11), 2378-2390.
66. McQuellon, R. P., & Cowan, M. A. (2000). Turning toward death together: Conversation in mortal time. American Journal of Hospice & Palliative Care, 17(5), 312-318.
67. Melnikow, J., Kohatsu, N., & Chan, B. (2000). Put prevention into practice: A controlled evaluation. American Journal of Public Health, 90(10), 1622-1625.
68. Miller, S. C., & Han, B. (2008). End-of-life care in U. S. nursing homes: Nursing homes with special programs and trained staff for hospice or palliative/end-of-life care. Journal of Palliative Medicine, 11(6), 866-877.
69. Moorman, S. M. (2011). Older adults' preferences for independent or delegated end-of-life medical decision making. Journal of Aging & Health, 23(1), 135-157.
70. Morrison, R. S. (2010). Bringing palliative care to scale in our nation's medical schools. Journal of Palliative Medicine, 13(3), 233-234.
71. Murray, E., Lo, B., Pollack, L., Donelan, K., & Lee, K. (2003). Direct-to-consumer advertising: Physician's views of its effects on quality of care and the doctor-patient relationship. Journal of the American Board of Family Practice, 16, 513-524.
72. National Cancer Institute (NCI). (NCI). Experts recommend steps to increase colorectal cancer screening In Primary Care. NCI Cancer Bulletin, 7(3), 1-2.
73. Nolan, M. T., & Mock, V. (2004). A conceptual framework for end-of-life care: A reconsideration of factors influencing the integrity of the human person. Journal of Professional Nursing, 20(6), 351-360.
74. Ouellette, A. R. (2006). Disability and the end of life. Oregon Law Review, 85(123). Retrieved from http://ssrn.com/abstract=1084920
75. O'Connor, A. M., Stacey, D., Barry, M. J., Col, N. F., Eden, K. B., Entwistle, V., & Rovner, D. R. (2007). Do patient decision aids meet effectiveness criteria of the international patient decision aid standards collaboration? A systematic review and meta-analysis. Medical Decision Making, 27, 554-574.
76. Pate, R. R., Pratt, M., Blair, S. N., Haskell, W. L., Macera, C. A., Bouchard, S., & Wilmore, J. H. (1995). Physical activity and public health: A recommendation from the Centers for Disease Control and Prevention and the American College of Sports Medicine. JAMA, 273.
77. Pearlin, L. I. (1989). The sociological study of stress. Journal of Health & Social Behavior, 30, 241-256.
78. Perkins, H. S. (2007). Controlling death: The false promise of advance directives. Annals of Internal Medicine, 147, 51-57.
79. Pham, H. H., Schrag, D., Hargraves, J. L., & Bach, P. B. (2005). Delivery of preventive services to older adults by primary care physicians. JAMA, 294(4), 473-481.
80. Reyna, C., Goodwin, E. J., & Ferrari, J. R. (2007). Older adult stereotypes among care providers in residential care facilities. Journal of Gerontological Nursing, 33(2), 50-57.
81. Rimer, B., Briss, P., Zeller, P., Chan, E., & Woolf, S. (2004). Informed decision making: What is its role in cancer screening? Cancer Supplement, 101(5), 1214-1228.
82. Roter, D. (1977). Patient participation in the patient-provider interaction: the effects of patient question asking on the quality of interaction, satisfaction and compliance. Health Education Monographs, 5(4), 281-315.
83. Schillinger, D., Bindman, A., Wang, F., Stewart, A., & Piette, J. (2004). Functional health literacy and the quality of physician-patient communication among diabetes patients. Patient Education and Counseling, 52(3), 315-323.
84. Singer, P. A., Martin, D. K., & Kelner, M. (1999). Quality end-of-life care: Patient's perspectives. Journal of the American Medical Association, 281, 163-168.
85. Sleath, B., Roter, D., Chewning, B., & Svarstad, B. (1999). Asking questions about medication: Analysis of physician-patient interactions and physician perceptions. Medical Care, 37(11), 1169-1173.
86. Spalding, M., & Sebesta, S. (2008). Geriatric screening and preventive care. American Family Physician, 15, 208-215.
87. Sparks, L. (2007). Cancer care and the aging patient: Complexities of age related communication barriers. In: H. O'Hair, G. Kreps & L. Sparks (Eds.), The handbook of communication and cancer care (pp. 227-244). Cresskill, NJ: Hampton Press.
88. Steinhauser, K., Christakis, N., Clipp, E., McNeilly, M., McIntyre, L., & Tulsky, J. (2000). Factors considered important at the end of life by patients, family, physicians, and other care providers. Journal of the American Medical Association, 284(19), 2476-2482.
89. Steinhauser, K. E., Alexander, S. C., Byock, I. R., George, L. K., & Tulsky, J. A. (2009). Seriously ill patients' discussions of preparation and life completion: An intervention to assist with transition at the end of life. Palliative and Supportive Care, 7, 393-404.
90. Stewart, M. A. (1995). Effective physician-patient communication and health outcomes: A review. Canadian Medical Association, 152(9), 1423-1433.
91. Street, R. L., Makoul, G., Arora, N. K., & Epstein, R. M. (2009). How does communication heal? Pathways linking clinician-patient communication to health outcomes. Patient Education Counseling, 74, 295-301.
92. Struve, D. (2009). Video modeling for training older adults to use new technologies. ACM TransactionsonAccessible Computing, 2(1), 1-24.
93. Sudore, R. L., & Fried, T. R. (2010). Redefining the "planning" in advance care planning: Preparing for end-of-life decision making. Annals of Internal Medicine, 153(4), 256-262.
94. Swan, M. (2009). Emerging patient-driven health care models: An examination of health social networks, consumer personalized medicine, and quantified self-tracking. International Journal of Environmental Research and Public Health, 6, 492-525.
95. Thompson, T. L., Robinson, J. D., & Beisecker, A. E. (2004). The older patient-physician interaction. In: J. F. Nussbaum & J. Coupland (Eds.), Handbook of communication and aging research (pp. 451-478). Mahwah, NJ: Lawrence Erlbaum Associates.
96. Toiviainen, H. K., Vuorenkoski, L., & Hemminki, E. (2004). Physicians' opinions on patients' requests for specific treatments and examinations. Health Expectations, 8, 43-53.
97. Tulsky, J. A. (2005). Beyond advance directives: Importance of communication skills at the end of life. JAMA, 294(3), 359-366.
98. US Preventive Services Task Force (USPSTF). (USPSTF). Screening for breast cancer: US preventive services task force recommendation statement. Annals of Internal Medicine, 151(10), 716-726.
99. Venetis, M., Robinson, J., Turkiewicz, K., & Allen, M. (2009). An evidence base for patientcentered cancer care: A meta analysis of studies of observed communication between cancer specialists and their patients. Patient Education and Counseling, 77(3), 379-383.
100. Verbrugge, L. M., & Jette, A. M. (1994). The disablement process. Social Science & Medicine, 38(1), 1-14.
101. Waitzkin, H. (1984). Doctor-patient communication: Clinical implications of social scientific research. Journal of the American Medical Association, 252, 2441-2446.
102. Walker, J. M., & Carayon, P. (2009). From tasks to processes: The case for changing health information technology to improve health care. Health Affairs, 28(2), 467-477.
103. Walter, L. C., & Covinsky, K. (2001). Cancer screening in elderly patients. Journal of the American Medical Association, 285(21), 2750-2778.
104. Walter, L. C., Lindquist, K., Nugent, S., Schult, T., Lee, S. J., Casadei, M. A., & Partin, M. R. (2009). Impact of age and comorbidity on colorectal cancer screening among older veterans. Annals of Internal Medicine, 150(7), 465-473.
105. Watson, J., & Foster, R. (2003). The attending nurse caring model: Integrating theory, evidence, and advanced caring - Hhealing therapeutics for transforming professional practice. Journal of Clinical Nursing, 12, 360-365.
106. Williams, B. A., Lindquist, K., Sudore, R. L., Covinsky, K. E., & Walter, L. C. (2008). Screening mammography in older women: Effect of wealth and prognosis. Archives of Internal Medicine, 168(5), 514-520.
107. Winzelberg, G. S., Hanson, L. C., & Tulsky, J. A. (2005). Beyond autonomy: Diversifying endof- life decision-making approaches to serve patients and families. Journal of the American Geriatrics Society, 53(6), 1046-1050.
108. Wykle, D. M., Whitehouse, P. J., & Morris, D. L. (2005). Successful aging through the life span. New York, NY: Springer.