Screening young children for autism spectrum disorders in primary practice

Journal of Autism and Developmental Disorders

Volumn 42, Issue 6, 2012, Pages 1165-1174

  Barton, Marianne L ^a   Dumont Mathieu, Thyde ^a   Fein, Deborah ^a  

^a UNIVERSITY OF CONNECTICUT   (United States)

Author keywords

Autism; Primary care; Screening

Indexed keywords

ARTICLE; AUTISM; CHILD CARE; CHILD DEVELOPMENT; DELAYED DIAGNOSIS; HUMAN; MEDICAL PRACTICE; POPULATION RESEARCH; PREVALENCE; PRIMARY HEALTH CARE; PRIORITY JOURNAL; SCREENING TEST;

CHILD DEVELOPMENT DISORDERS, PERVASIVE; CHILD, PRESCHOOL; EARLY DIAGNOSIS; EARLY MEDICAL INTERVENTION; HUMANS; INFANT; MASS SCREENING; PEDIATRICS; PRIMARY HEALTH CARE;

EID: 84863864683     PISSN: 01623257     EISSN: 15733432     Source Type: Journal    
DOI: 10.1007/s10803-011-1343-5     Document Type: Article

References (70)

1. Allison, C., Baron-Cohen, S., Wheelwright, S., et al. (2008). The Q-CHAT (quantitative checklist for Autism in toddlers): A normally distributed quantitative measure of autistic traits at 18-24 months of age. Preliminary report. Journal of Autism and Developmental Disorders, 38(8), 1414-1425.
2. Autism and Developmental Disabilities Monitoring Network Surveillance Year 2002. (2007). Principal investigators: Centers for disease control, prevention, prevalence of autism spectrum disorders: Autism, developmental disabilities monitoring network, 14 sites, US, 2002. MMWR Surveillance Summary, 56(1), 12-28.
3. Baird, G., Charman, T., Baron-Cohen, S., Cox, A., Swettenham, J., Wheelwright, S., et al. (2000). A screening instrument for autism at 18 months of age. A 6-year follow-up study. Journal of the American Academy of Child and Adolescent Psychiatry, 39(6), 694-702. (Pubitemid 30351219)
4. Baird, G., Simonoff, E., Pickles, A., Chandler, S., Loucas, T., Meldrum, M., et al. (2006). Prevalence of disorders of the autism spectrum in a population cohort of children in South Thames: The special needs and autism project (SNAP). Lancet, 368(9531), 210-215. (Pubitemid 44037796)
5. Baron-Cohen, S., Allen, J., & Gillberg, C. (1992). Can autism be detected at 18 months? The needle, the haystack, and the CHAT. The British Journal of Psychiatry, 161(6), 839-843.
6. Baron-Cohen, S., Wheelwright, S., & Cox, A. (2000). The early identification of autism: The checklist for autism in toddlers (CHAT). Journal of the Royal Society of Medicine, 93, 521-525.
7. Begeer, S., El Bouk, S., Boussaid, W., Terwogt, M., & Koot, H. (2009). Underdiagnosis and referral bias of autism in ethnic minorities. Journal of Autism and Developmental Disorders, 39, 142-148.
8. Ben-Itzchak, E., Lahat, E., Burgin, R., & Zachor, A. (2008). Cognitive, behavioral and intervention outcome in young children with autism. Research in Developmental Disabilities, 29, 447-458. (Pubitemid 351862382)
9. Bhat, A., Galloway, J., & Landa, R. (2010). Social and non-social visual attention patterns and associative learning in infants at risk for autism. Journal of Child Psychology and Psychiatry, 51(9), 989-997.
10. Bryson, S. E., Rogers, S. J., & Fombonne, E. (2003). Autism spectrum disorders: Early detection, intervention, education, and psychopharmacological management. Canadian Journal of Psychiatry-Revue Canadienne De Psychiatrie, 48(8), 506-516. (Pubitemid 37280040)
11. Bryson, S. E., Zwaigenbaum, L., Brian, J., Roberts, W., Szatmati, P., & Rombough, V. (2007). A prospective case series of high-risk infants who developed autism. Journal of Autism and Developmental Disorders, 37(1), 12-24. (Pubitemid 46197891)
12. Chawarska, K., Klin, A., Paul, R., & Volkmar, F. (2007). Autism spectrum disorder in the second year: Stability and change in syndrome expression. Journal of Child Psychology and Psychiatry, 48(2), 128-138. (Pubitemid 46189936)
13. Croen, L., Grether, J., Hoogstrate, J., & Selvin, S. (2002). The changing prevalence of autism in California. Journal of Autism and Developmental Disorders, 32(3), 207-215. (Pubitemid 37486717)
14. Dalbec-Mraz, K., Green, J., Dumont-Mathieu, T., Makin, S., & Fein, D. (2007). Correlates of head circumference growth in infants later diagnosed with autism spectrum disorders. Journal of Child Neurology, 22, 700-713. (Pubitemid 47034375)
15. Dancel, G., Wilson, L., Troyb, E., Verbalis, A., & Fein, D. (2008). Ethnic and linguistic differences on the M-CHAT. Paper presented at the meetings of the International Neuropsychological Society, Waikoloa, HI.
16. Dawson, G., Rogers, S., Munson, J., Smith, M., Winter, J., Greenson, J., et al. (2009). Randomized, controlled trial of an intervention for toddlers with autism: The heart start Denver model. Pediatrics, 25(1), e17-e23.
17. DeGiacomo, A., & Fombonne, E. (1998). Parental recognition of developmental abnormalities in autism. European Child and Adolescent Psychiatry, 7(3), 131-136. (Pubitemid 28494057)
18. Dietz, C., Swinkels, S., van Daalen, E., van Engeland, H., & Buitelaar, J. (2006). Screening for autistic spectrum disorder in children aged 14-15 months: Population screening with the early screening of autistic traits questionnaire (ESAT). Design and general findings. Journal of Autism and Developmental Disorders, 36, 713-722. (Pubitemid 44284975)
19. Dosreis, S., & Weiner, C. L. (2006). Autism spectrum disorder screening and management practices among general pediatric providers. Journal of Developmental and Behavioral Pediatrics, 27(2), S88-S94. (Pubitemid 44620289)
20. Duby, J. C., Lipkin, P. H., Macias, M. M., Wegner, L. M., Duncan, P., Hagan, J. F., et al. (2006). Identifying infants and young children with developmental disorders in the medical home: An algorithm for developmental surveillance and screening. Pediatrics, 118(1), 405-420. (Pubitemid 46071187)
21. Earls, M., & Hay, S. (2006). Setting the stage for success, Implementation of developmental and behavioral screening and surveillance in primary care practice-the North Carolina assuring better child health and development (ABCD) project. Pediatrics, 118(1), 183-188.
22. Filipek, P. A., Accardo, P. J., Baranek, G. T., Cook, E. H. J., Dawson, G., Gorden, B., et al. (1999). The screening and diagnosis of autistic spectrum disorders. Journal of Autism and Developmental Disorders, 29(6), 439-484. (Pubitemid 30013543)
23. Fombonne, E. (2006). Past and future perspectives on autism epidemiology. In S. L. Molden & J. L. R. Rubenstein (Eds.), Understanding autism: From basic neuroscience to treatment (pp. 25-48). Boca Raton, FL: Taylor & Francis.
24. Goldstein, S., Naglieri, J., & Ozonoff, S. (2009). Assessment of autism spectrum disorders. New York: Guilford.
25. Gray, K., & Tonge, B. (2005). Screening for autism in infants and preschool children with developmental delay. Australian and New Zealand Journal of Psychiatry, 39(5), 378-386. (Pubitemid 40740311)
26. Gray, K., Tonge, B., Sweeney, D., & Einfeld, S. (2008). Screening for autism in young children with developmental delay: An evaluation of the developmental behavior checklist - Early screen. Journal of Autism and Developmental Disorders, 38, 1003-1010.
27. Gupta, V. B., Hyman, S. L., Johnson, C. P., Bryant, J., Byers, B., Kallen, R., et al. (2007). Identifying children with autism early? Pediatrics, 119, 152-153. (Pubitemid 46397856)
28. Harrison, M. J., O'Hare, A. E., Campbell, H., Adamson, A., & McNeillage, J. (2006). Prevalance of autism spectrum disorders in Lotham, Scotland: An estimate using the capture-recapture technique. Archives of Disease in Childhood, 91(1), 16-19. (Pubitemid 43059165)
29. Herlihy, L., Green, J., Hardy, S., Knoch, K., Dumont-Mathieu, T., Barton, M., et al. (2011). Ethnic disparities in screening but not rate of diagnosis of autism spectrum disorder in a population-based sample of toddlers. Boston: Presented at International Neuropsychological Society.
30. Howlin, P., & Asgharian, A. (1999). The diagnosis of autism and Asperger's Disorder: Findings from a survey of 770 families. Developmental Medicine and Child Neurology, 41(12), 834-839.
31. Inada, N., Koyama, T., Inokuchi, E., Kuroda, M., & Kamio, Y. (2011). Reliability and validity of the Japanese version of the Modified Checklist for Autism in Toddlers. Research in Autism Spectrum Disorders, 5(1), 330-336.
32. Johnson, C. P., & Myers, S. M. (2007). American academy of pediatrics, council on children with disabilities. Identification and evaluation of children with autism spectrum disorders. Pediatrics, 150(5), 1183-1215. (Pubitemid 350085561)
33. Kleinman J, Robins D, Ventola P, Pandey, J., Boorstein, H., Esser. E. et al. (2008). The modified checklist for autism in toddlers, a follow-up study investigating the early detection of autism spectrum disorders. Journal of Autism and Developmental Disorders, 38(5), 827-839. (Pubitemid 351601311)
34. Landa, R., & Garrett-Meyer, E. (2006). Development in infants with autism spectrum disorders. A prospective study. Journal of Child of Psychology and Psychiatry, 47(6), 629-638. (Pubitemid 43744794)
35. Liptak, G., Benzoni, L., Mruzek, D., Nolan, K., Thingvoll, M., Wade, C., et al. (2008). Disparities in diagnosis and access to heath care for children with autism: Data from the national survey of children's health. Journal of Developmental and Behavioral Pediatrics, 29, 152-160.
36. Lord, C., Shulman, C., & DiLavore, P. (2004). Regression and word loss in autistic spectrum disorders. Journal of Child Psychology and Psychiatry, 45(5), 936-955. (Pubitemid 38961493)
37. Mandell, J., Listerud, J., Levy, S., & Pinto-Martin, J. (2002). Race differences in the age at diagnosis among Medicaid eligible children with autism. Journal of the American Academy of Child and Adolescent Psychiatry, 41(12), 1447-1453. (Pubitemid 44698521)
38. Miller, J., Gabrielson, T., Villalobos, M., Alleman, R., Wahmhoff, N., Carbone, P., et al. (2011). The each child study: Systematic screening for autism spectrum disorders in a pediatric setting. Journal of Pediatrics, 127, 700-770.
39. Molden, S. O., & Rubenstein, J. L. R. (Eds.). (2006). Understanding autism: From basic neuroscience to treatment. Boca Raton, FL: Taylor & Francis.
40. McGovern, C. W., & Sigman, M. (2005). Continuity and change from early childhood to adolescence in autism. Journal of Child Psychology and Psychiatry, 46(4), 401-408. (Pubitemid 40514960)
41. Norris, M., & Lecavalier, L. (2010). Screening accuracy of level 2 autism spectrum disorder rating scales: A review of selected instruments. Autism, 14(4), 263-284.
42. Oliver, K., Robins, D., & Hazzard, A. (2009). The Influence of culture on caregiver response when completing the modified checklist for autism in toddlers (M-CHAT). Chicago: Presented International Meeting for Autism Research.
43. Pandey, J., Verbalis, A., Robins, D., Boorstein, H., Klin, A., Babitz, T., et al. (2008). Screening for autism in older and younger toddlers with the modified checklist for autism in toddlers. Autism. The International Journal of Research and Practice, 12(5), 513-535.
44. Perera, H., Wijewardena, C., & Aluthwelage, R. (2009). Screening of 18-24-month-old children for autism in a semi-urban community in Sri Lanka. Journal of Tropical Pediatrics. Advance access, 28 April 2009.
45. Pierce, K., Carter, C., Weinfeld, M., Desmond, J., Hazin, R., Bjork, R., & Gallager, N. (2011). Detecting, studying and treating autism early: The one year well-baby check-up approach. Journal of Pediatrics. Online access 29 April 2011.
46. Pinto-Martin, J. A., Dunkle, M., Earls, M., et al. (2005). Developmental stages of developmental screening. Steps to implementation of a successful program. American Journal of Public Health, 95(11), 1928-1932. (Pubitemid 41572363)
47. Reznick, S., Baranek, G., Reavis, S., Watson, L., & Craigs, E. (2007). A parent report instrument for identifying one-year-olds at risk for an eventual diagnosis of autism: The first year inventory. Journal of Autism and Developmental Disorders, 37(9), 1691-1753.
48. Robins, D. L., Fein D, Barton, M. L., & Green, J. (2001). The modified checklist for autism in toddlers: An initial study investigating the early detection of autism and pervasive developmental disorders. Journal of Autism and Developmental Disorders, 31(2), 131-144. (Pubitemid 37490159)
49. Robins, D. (2008). Screening for autism spectrum disorders in primary care settings. Autism, 12(5), 537-556.
50. Rogers, S., & LiBalla, D. (1990). Age of symptom onset in young children with pervasive developmental disorders. Journal of the American Academy of Child and Adolescent Psychiatry, 29(6), 863-872.
51. Rogers, S., & Vismara, L. (2008). Evidence-based comprehensive treatment or early autism. Journal of Clinical Child and Adolescent Psychology, 37(1), 8-38.
52. Seif Eldin, A., Habib, D., & Noufal, A. L. (2008). Use of M-CHAT for a multinational screening of young children with autism in the Arab countries. International Review of Psychiatry, 20, 281-289. (Pubitemid 351882972)
53. Shattuck, P., Durkin, M., Maenner, M., et al. (2009). Timing of identification among children with an autism spectrum disorder: Findings from a population-based surveillance study. Journal of the American Academy of Child and Adolescent Psychiatry, 5, 463-464.
54. Sices, L., Feudtner, C., McLaughlin, J., Drotar, D., & Williams, M. (2003). How do primary care physicians manage children with possible developmental delays? A national survey with an experimental design. Pediatrics, 113, 274-282.
55. Siegel, B. (2004). Pervasive developmental disorders screening test-II (PDDST-II). San Antonio, TX: Harcourt Assessment.
56. Stone, W. L., Coonrod, E. E., Turner, L. M., & Pozdol, S. L. (2004). Psychometric properties of the STAT for early autism screening. Journal of Autism and Developmental Disorders, 34(6), 691-701. (Pubitemid 40036954)
57. Ventola, P., Kleinman, J., Pandey, J., Wilson, L., Esser, E., & Boorstein, H. (2007). Differentiating between autism spectrum disorders and other developmental disabilities in children who failed a screening instrument for ASD. Journal of Autism and Developmental Disorders, 37(3), 425-436. (Pubitemid 46355982)
58. Volkmar, F. R., Lord, C., Bailey, A., Schultz, R., & Klin, A. (2004). Autism and pervasive developmental disorders. Journal of Child Psychology and Psychiatry, 45(1), 135-170. (Pubitemid 38196258)
59. Volkmar, F., Chawarska, K., & Klin, A. (2005). Autism in infancy and early childhood. Annual Review of Psychology, 56, 315-336. (Pubitemid 40300788)
60. Watson, L., Baranek, G., Crais, E., Reznicj, J., Dykstra, J., & Perryman, T. (2007). The first year inventory: Retrospective parent responses to a questionnaire designed to identify one-year-olds at risk for autism. Journal of Autism and Developmental Disorders, 37, 46-61.
61. Wetherby, A., Brosnan-Maddox, S., Peace, V., & Newton, L. (2008). Validation of the infant-toddler checklist as a broadband screener for autism spectrum disorders from 9-24 months of age. Autism, 12(5), 487-511.
62. Wetherby, A. (2010). Identifying children with autism spectrum disorder through general population screening. In Paper presented at the 9th annual international meeting for autism research. Philadelphia, PA, May 2010.
63. Werner, E., Dawson, G., Munson, J., & Osterling, J. (2005). Variation in early developmental course in autism and its relation with behavioral outcome at 3-4 years of age. Journal of Autism and Developmental Disorders, 35(3), 337-350. (Pubitemid 41125972)
64. Williams, J. G., Higgins, J. P. T., & Brayne, C. E. G. (2006). Systematic review of prevalence studies of autism spectrum disorders. Archives of Disease in Childhood, 91(1), 8-15. (Pubitemid 43059164)
65. Williams, J., & Brayne, C. (2006). Screening for autism spectrum disorders: What is the evidence? Autism, 10(1), 11-35.
66. Wong, V., Hui, L., Lee, W., Leung, L., Ho, P., Lau, W., Fung, C., & Chung, B. (2004). A modified screening tool for autism (checklist for autism in toddlers [CHAT-23]) for Chinese children. Pediatrics, 114, e166-e176.
67. Woods, J. J., & Wetherby, A. M. (2003). Early identification of and intervention for infants and toddlers who are at risk for autism spectrum disorder. Language Speech and Hearing Services in Schools, 34(3), 180-193. (Pubitemid 36931287)
68. Yeargin-Alsop, M., Rice, C., Karapurkar, T., Doernberg, N., Boyle, C., & Murphy, C. (2003). Prevalence of autism in a US metropolitan area. Journal of the American Medical Association, 289(1), 49-55. (Pubitemid 36026277)
69. Zwaigenbaum, L., Bryson, S., Lord, C., Rogers, S., Carter, A., Carver, L., et al. (2009). Clinical assessment and management of toddlers with suspected autism spectrum disorder: Insights from studies of high risk infants. Pediatrics, 123, 1383-1391.
70. Zwaigenbaum, L., Bryson, S., Rogers, T., Roberts, W., Brian, J., & Szatmari, P. (2005). Behavioral manifestations of autism in the first year of life. International Journal of Developmental Neuroscience, 23, 143-152. (Pubitemid 40313548)