Normativity unbound: Liminality in palliative care ethics

Theoretical Medicine and Bioethics

Volumn 33, Issue 2, 2012, Pages 107-122

  Braude, Hillel ^a  

^a MCGILL UNIVERSITY   (Canada)

Author keywords

Double effect; Ethics; Liminality; Palliative care; Phronesis; Space; Terminal sedation; Time

Indexed keywords

ARTICLE; CAREGIVER; CONCEPT FORMATION; CONSCIOUS SEDATION; ETHICAL THEORY; ETHICS; HUMAN; MEDICAL ETHICS; METHODOLOGY; MORALITY; PALLIATIVE THERAPY; TERMINAL CARE; TERMINALLY ILL PATIENT;

CAREGIVERS; CONCEPT FORMATION; CONSCIOUS SEDATION; DOUBLE EFFECT PRINCIPLE; ETHICAL THEORY; HUMANS; MORAL OBLIGATIONS; PALLIATIVE CARE; TERMINAL CARE; TERMINALLY ILL; VIRTUES;

EID: 84863608353     PISSN: 13867415     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11017-011-9200-2     Document Type: Article

References (55)

1. Otto, W. F. 1955. The Homeric gods: The spiritual significance of Greek religion (trans: Hadas, M.). London: Thames and Hudson.
2. Clark, D. 1999. 'Total pain', disciplinary power and the body in the work of Cicely Saunders, 1958-1967. Social Science and Medicine 49:727-736. (Pubitemid 29333585)
3. Hamilton, J. 1995. Dr. Balfour mount and the cruel irony of our care for the dying. Canadian Medical Association Journal 153(3):334-336.
4. Kleinman, A. 2008. Catastrophe and caregiving: The failure of medicine as an art. The Lancet 371(9606):22-23.
5. World Health Organization. 2011. Definition of palliative care. http://www.who.int/cancer/palliative/definition/en/. Accessed November 16, 2011.
6. Randall, F., and R. S. Downie. 1999. Palliative care ethics: A companion for all specialties. 2nd ed. Oxford: Oxford University Press.
7. ten Have, H., and D. Clark, eds. 2002. The ethics of palliative care: European perspectives. Buckingham, Philadelphia: Open University Press.
8. Fins, J. J. 2005. A palliative ethics of care: Clinical wisdom at life's end. Sudbury, MA: Jones and Bartlett.
9. Cimino, J. E. 2003. A clinician's understanding of ethics in palliative care. Critical Reviews in Oncology/Hematology 46:7-24.
10. Pellegrino, E. 1998. Emerging ethical issues in palliative care. Journal of Medical Association 279(19):1521-1522. (Pubitemid 28233001)
11. Frank, A. W. 2004. Dignity, dialogue, and care. Journal of Palliative Care 20(3):207-211. (Pubitemid 39297168)
12. van Gennep, A. 1960 [1919]. The rites of passage. London: Routledge and Kegan Paul.
13. Leech, E. 1976. Culture and communication. London, New York, Melbourne: Cambridge University Press.
14. Turner, V. W. 1967. The forest of symbols: Aspects of Ndembu ritual. London: Cornell University Press.
15. Turner, V. W. 1969. The ritual process. Harmondsworth: Penguin.
16. Turner, V. W. 1974. Dramas, fields and metaphors: Symbolic action in human society. New York: Cornell University Press.
17. Turner, V. W. 1977. Variations on a theme of liminality. In Secular ritual, ed. S. F. Moore, and S. G. Myeroff, 36-52. Assen and Amsterdam: Van Gorcum.
18. Turner, V. W. 1982. From ritual to theatre: The human seriousness of play. New York: PAJ.
19. Frankenberg, R. 1986. Sickness as cultural performance: Drama, trajectory, and pilgrimage. Root metaphors and the making social of disease. International Journal of Health Services 16(4):603-626. (Pubitemid 17185167)
20. Little, M., F. C. Jordens, K. Paul, K. Montgomery, and B. Philippson. 1998. Liminality: A major category of the experience of cancer illness. Social Science and Medicine 47(10):1485-1494. (Pubitemid 28482431)
21. Sibbett, C. 2004. Liminality: Living and practicing at the threshold. Paper presented at the 3rd global conference of Making Sense Of: Health, Illness and Disease, St. Catherine's College, Oxford. http://www.inter-disciplinary. net/ptb/mso/hid/hid3/sibbett%20paper.pdf.
22. Frank, A. 1995. The wounded storyteller: Body, illness, and ethics. Chicago: The University of Chicago Press.
23. Froggatt, K. 1997. Rites of passage and the hospice culture. Mortality 2(2):123-136. (Pubitemid 128083373)
24. Wood, D. 2002. Thinking after Heidegger. Cambridge: Polity Press.
25. Pellegrino, E., and D. C. Thomasma. 1993. The virtues in medical practice. Oxford: Oxford University Press.
26. Aristotle. 1962. Nicomachean ethics (trans: Ostwald, M.). Englewood Cliffs, NJ: Prentice Hall.
27. Battin, M. P. 2010. The irony of supporting physician-assisted suicide: A personal account. Medicine, Health Care and Philosophy 13:403-411.
28. Toulmin, S. 2001. Return to reason. Cambridge, MA: Harvard University Press.
29. Clark, D. 2002. Between hope and acceptance: The medicalisation of dying. British Medical Journal 324:905-907. (Pubitemid 34303947)
30. Graham, F., and D. Clark. 2005. The syringe driver and the subcutaneous route in palliative care: The inventor, the history and the implications. Journal of Pain and Symptom Management 29(1):32-40. (Pubitemid 40126223)
31. Brennan, F. 2007. Palliative care as an international human right. Journal of Pain Symptom Management 33(5):494-499. (Pubitemid 46669893)
32. Gwyther, L., F. Brennan, and R. Harding. 2009. Advancing palliative care as a human right. Journal of Pain and Symptom Management 38(5):767-774.
33. Roy, D. R. 2005. Palliative care without borders. Journal of Palliative Care 21(3):131-132.
34. Levinas, E. 1978. Otherwise than being or beyond essence (trans: Lingis, A.). Dordrecht and Boston: Kluwer.
35. Clarke, V., and L. F. Holtslander. 2010. Finding a balanced approach: Incorporating medicine wheel teachings in the care of aboriginal people at the end of life. Journal of Palliative Care 26(1):34-36.
36. McGrath, P. 2010. The living model: An Australian model for aboriginal palliative care service delivery with international implications. Journal of Palliative Care 26(1):59-64.
37. McCullough, L. M. 2010. La frontera: Responsibly managing borders and boundaries in clinical ethics. Journal of Medicine and Philosophy 35:106.
38. Frank, A. W. 2004. The renewal of generosity: Illness, medicine, and how to live. Chicago: University of Chicago Press.
39. Zahavi, D. 2010. Inner (time-) consciousness. In On time: New contributions to the Husserlian phenomenology of time, ed. D. Lohmar and I. Yamaguchi, 319-339. New York: Springer.
40. Enck, R. E. 1991. Drug-induced terminal sedation for symptom control. American Journal of Hospice and Palliative Care 8:3-5.
41. Broeckaert, B., and J. M. N. Olarte. 2002. Sedation in palliative care: Facts and concepts. In The ethics of palliative care: European perspectives, ed. H. ten Have and D. Clark, 166-180. Philadelphia: Open University Press.
42. Krakauer, E. L., R. T. Penson, R. D. Truog, L. A. King, B. A. Chabner, and T. J. Lynch Jr. 2000. Sedation for intractable distress of a dying patient: Acute palliative care and the principle of double effect. The Oncologist 5:53-62. (Pubitemid 30127545)
43. Sulmasy, D., and E. Pellegrino. 1999. The rule of double effect: Clearing up the double talk. Archives of Internal Medicine 159:545-550. (Pubitemid 29133878)
44. Mangan, J. 1949. An historical analysis of the principle of double effect. Theological Studies 10:41-61.
45. Boyle, J. 1991. Who is entitled to double effect? The Journal of Medicine and Philosophy 16:475-494.
46. Paul, J. II. 1995. The gospel of life. New York: Random House.
47. Hawryluck, L. A., and W. R. C. Harvey. 2000. Analgesia, virtue, and the principle of double effect. Journal of Palliative Care 16:S24-S30.
48. Foot, P. 1978. Virtues and vices and other essays in moral philosophy. Berkeley and Los Angeles: The University of California Press.
49. Quill, T. E., R. Dresser, and D. W. Brock. 1997. The rule of double effect: A critique of its role in endof-life decision making. New England Journal of Medicine 337:1768-1771. (Pubitemid 27527778)
50. Jansen, L. A. 2010. Disambiguating clinical intentions: The ethics of palliative sedation. Journal of Medicine and Philosophy 35:19-31.
51. Jansen, L. A. 2003. The moral irrelevance of proximity to death. Journal of Clinical Ethics 14(1-2):49-58. (Pubitemid 39456445)
52. Carruthers, M. 2008. The book of memory: A study of memory in medieval culture. Cambridge University Press: Cambridge.
53. Levinas, E. 1987. Time and the other. Pittsburgh, PA: Duquesne University Press.
54. Carnavale, F. 2007. The birth of tragedy in pediatrics: A phronetic conception of bioethics. Nursing Ethics 14(5):571-581.
55. Miller, F. G., R. D. Truog, and D. W. Brock. 2010. Moral fictions and medical ethics. Bioethics 24(9):453-460.