메뉴 건너뛰기




Volumn 67, Issue SUPPL. 1, 2012, Pages

British Thoracic Society guideline for respiratory management of children with neuromuscular weakness

Author keywords

[No Author keywords available]

Indexed keywords

INFLUENZA VACCINE;

EID: 84862743456     PISSN: 00406376     EISSN: 14683296     Source Type: Journal    
DOI: 10.1136/thoraxjnl-2012-201964     Document Type: Review
Times cited : (295)

References (270)
  • 2
    • 0347991960 scopus 로고    scopus 로고
    • Pulmonary complications of chronic neuromuscular diseases and their management
    • DOI 10.1002/mus.10487
    • Perrin C, Unterborn JN, Ambrosio CD, et al. Pulmonary complications of chronic neuromuscular diseases and their management. Muscle Nerve 2004;29:5-27. (Pubitemid 38040552)
    • (2004) Muscle and Nerve , vol.29 , Issue.1 , pp. 5-27
    • Perrin, C.1    Unterborn, J.N.2    D'Ambrosio, C.3    Hill, N.S.4
  • 3
    • 0020565535 scopus 로고
    • Correlation of scoliosis and pulmonary function in Duchenne muscular dystrophy
    • Kurz LT, Mubarak SJ, Schultz P, et al. Correlation of scoliosis and pulmonary function in Duchenne muscular dystrophy. J Pediatr Orthopedics 1983;3:347-53. (Pubitemid 13014506)
    • (1983) Journal of Pediatric Orthopaedics , vol.3 , Issue.3 , pp. 347-353
    • Kurz, L.T.1    Mubarak, S.J.2    Schultz, P.3
  • 4
    • 0019445057 scopus 로고
    • The effects of intermittent positive pressure breathing on patients with respiratory muscle weakness
    • De Troyer A, Deisser P. The effects of intermittent positive pressure breathing on patients with respiratory muscle weakness. Am Rev Respir Dis 1981;124:132-7. (Pubitemid 11044487)
    • (1981) American Review of Respiratory Disease , vol.124 , Issue.2 , pp. 132-137
    • De Troyer, A.1    Deisser, P.2
  • 6
    • 0022967731 scopus 로고
    • Intermittent positive pressure breathing in patients with respiratory muscle weakness. Alterations in total respiratory system compliance
    • McCool FD, Mayewski RF, Shayne DS, et al. Intermittent positive pressure breathing in patients with respiratory muscle weakness. Alterations in total respiratory system compliance. Chest 1986;90:546-52. (Pubitemid 17191568)
    • (1986) Chest , vol.90 , Issue.4 , pp. 546-552
    • McCool, F.D.1    Mayewski, R.F.2    Shayne, D.S.3
  • 7
    • 0021083504 scopus 로고
    • Chest wall stiffness in patients with chronic respiratory muscle weakness
    • Estenne M, Heilporn A, Delhez L, et al. Chest wall stiffness in patients with chronic respiratory muscle weakness. Am Rev Respir Dis 1983;128:1002-7. (Pubitemid 14207095)
    • (1983) American Review of Respiratory Disease , vol.128 , Issue.6 , pp. 1002-1007
    • Estenne, M.1    Heilporn, A.2    Delhez, L.3
  • 9
    • 0023463362 scopus 로고
    • The origins of secretions in the lower respiratory tract
    • Jeffery PK. The origins of secretions in the lower respiratory tract. Eur J Respir Dis Suppl 1987;153:34-42.
    • (1987) Eur J Respir Dis Suppl , vol.153 , pp. 34-42
    • Jeffery, P.K.1
  • 10
    • 0021867226 scopus 로고
    • The development of cough
    • Leith DE. The development of cough. Am Rev Respir Dis 1985;131:S39-42.
    • (1985) Am Rev Respir Dis , vol.131
    • Leith, D.E.1
  • 11
    • 0013916740 scopus 로고
    • The physical parameters of cough: The larynx in a normal single cough
    • Yanagihara N, Von Leden H, Werner-Kukuk E. The physical parameters of cough: the larynx in a normal single cough. Acta Otolaryngol 1966;61:495-510.
    • (1966) Acta Otolaryngol , vol.61 , pp. 495-510
    • Yanagihara, N.1    Von Leden, H.2    Werner-Kukuk, E.3
  • 13
    • 0015181624 scopus 로고
    • Respiratory mechanics in untreated myasthenia gravis with special reference to the respiratory forces
    • Ringqvist I, Ringqvist T. Respiratory mechanics in untreated myasthenia gravis with special reference to the respiratory forces. Acta Med Scand 1971;190:499-508.
    • (1971) Acta Med Scand , vol.190 , pp. 499-508
    • Ringqvist, I.1    Ringqvist, T.2
  • 16
    • 77954027340 scopus 로고    scopus 로고
    • Adiposity is increased among high-functioning, non-ambulatory patients with spinal muscular atrophy
    • Sproule DM, Montes J, Dunaway S, et al. Adiposity is increased among high-functioning, non-ambulatory patients with spinal muscular atrophy. Neuromuscular Disord 2010;20:448-52.
    • (2010) Neuromuscular Disord , vol.20 , pp. 448-452
    • Sproule, D.M.1    Montes, J.2    Dunaway, S.3
  • 18
    • 0029374372 scopus 로고
    • Profiles of neuromuscular diseases. Duchenne muscular dystrophy
    • McDonald CM, Abresch RT, Carter GT, et al. Profiles of neuromuscular diseases. Duchenne muscular dystrophy. Am J Phys Med Rehabil 1995;74(5 Suppl):S70-92.
    • (1995) Am J Phys Med Rehabil , vol.74 , Issue.5 SUPPL.
    • McDonald, C.M.1    Abresch, R.T.2    Carter, G.T.3
  • 24
    • 0029376749 scopus 로고
    • Profiles of neuromuscular diseases. Becker's muscular dystrophy
    • McDonald CM, Abresch RT, Carter GT, et al. Profiles of neuromuscular diseases. Becker's muscular dystrophy. Am J Phys Med Rehabil 1995;74(5 Suppl):S93-103.
    • (1995) Am J Phys Med Rehabil , vol.74 , Issue.5 SUPPL.
    • McDonald, C.M.1    Abresch, R.T.2    Carter, G.T.3
  • 25
    • 71649102954 scopus 로고    scopus 로고
    • Effects of scoliosis on respiratory muscle strength in patients with neuromuscular disorders
    • Inal-Ince D, Savci S, Arikan H, et al. Effects of scoliosis on respiratory muscle strength in patients with neuromuscular disorders. Spine J 2009;9:981-6.
    • (2009) Spine J , vol.9 , pp. 981-986
    • Inal-Ince, D.1    Savci, S.2    Arikan, H.3
  • 26
    • 0028825429 scopus 로고
    • Scoliosis and lung function in spinal muscular atrophy
    • Robinson D, Galasko CS, Delaney C, et al. Scoliosis and lung function in spinal muscular atrophy. Eur Spine J 1995;4:268-73.
    • (1995) Eur Spine J , vol.4 , pp. 268-273
    • Robinson, D.1    Galasko, C.S.2    Delaney, C.3
  • 27
    • 0035152462 scopus 로고    scopus 로고
    • Correlation between progression of spinal deformity and pulmonary function in Duchenne muscular dystrophy
    • DOI 10.1097/00004694-200101000-00022
    • Yamashita T, Kanaya K, Yokogushi K, et al. Correlation between progression of spinal deformity and pulmonary function in Duchenne muscular dystrophy. J Pediatr Orthop 2001;21:113-16. (Pubitemid 32043998)
    • (2001) Journal of Pediatric Orthopaedics , vol.21 , Issue.1 , pp. 113-116
    • Yamashita, T.1    Kanaya, K.2    Yokogushi, K.3    Ishikawa, Y.4    Minami, R.5
  • 29
    • 33750314051 scopus 로고    scopus 로고
    • Sleep disorders in neuromuscular diseases
    • DOI 10.1097/01.mcp.0000245704.92311.1e, PII 0006319820061100000006
    • Dhand UK, Dhand R. Sleep disorders in neuromuscular diseases. Curr Opin Pulm Med 2006;12:402-8. (Pubitemid 44624598)
    • (2006) Current Opinion in Pulmonary Medicine , vol.12 , Issue.6 , pp. 402-408
    • Dhand, U.K.1    Dhand, R.2
  • 30
    • 65649100170 scopus 로고    scopus 로고
    • Assessment of sleep-disordered breathing in pediatric neuromuscular diseases
    • Katz SL. Assessment of sleep-disordered breathing in pediatric neuromuscular diseases. Pediatrics 2009;123:S222-5.
    • (2009) Pediatrics , vol.123
    • Katz, S.L.1
  • 31
    • 0029151229 scopus 로고
    • Inability of clinical history to distinguish primary snoring from obstructive sleep apnea syndrome in children
    • Carroll JL, McColley SA, Marcus CL, et al. Inability of clinical history to distinguish primary snoring from obstructive sleep apnea syndrome in children. Chest 1995;108:610-18.
    • (1995) Chest , vol.108 , pp. 610-618
    • Carroll, J.L.1    McColley, S.A.2    Marcus, C.L.3
  • 32
    • 33644816152 scopus 로고    scopus 로고
    • Sleep-related breathing disorder in Duchenne muscular dystrophy: Disease spectrum in the paediatric population
    • DOI 10.1111/j.1440-1754.2005.00691.x
    • Suresh S, Wales P, Dakin C, et al. Sleep-related breathing disorder in Duchenne muscular dystrophy: disease spectrum in the paediatric population. J Paediatr Child Health 2005;41:500-3. (Pubitemid 43951233)
    • (2005) Journal of Paediatrics and Child Health , vol.41 , Issue.9-10 , pp. 500-503
    • Suresh, S.1    Wales, P.2    Dakin, C.3    Harris, M.-A.4    Cooper, D.M.5
  • 33
    • 0028197440 scopus 로고
    • Obstructive apnoeas in Duchenne muscular dystrophy
    • Khan Y, Heckmatt JZ. Obstructive apnoeas in Duchenne muscular dystrophy. Thorax 1994;49:157-61. (Pubitemid 24115450)
    • (1994) Thorax , vol.49 , Issue.2 , pp. 157-161
    • Khan, Y.1    Heckmatt, J.Z.2
  • 35
    • 0041350329 scopus 로고    scopus 로고
    • Decreased hypocretin-1 (orexin-A) levels in the cerebrospinal fluid of patients with myotonic dystrophy and excessive daytime sleepiness
    • Martinez-Rodriguez JE, Lin L, Iranzo A, et al. Decreased hypocretin-1 (Orexin-A) levels in the cerebrospinal fluid of patients with myotonic dystrophy and excessive daytime sleepiness. Sleep 2003;26:287-90. (Pubitemid 39610675)
    • (2003) Sleep , vol.26 , Issue.3 , pp. 287-290
    • Martinez-Rodriguez, J.E.1    Lin, L.2    Iranzo, A.3    Genis, D.4    Marti, M.J.5    Santamaria, J.6    Mignot, E.7
  • 36
    • 0028127753 scopus 로고
    • Long-term nasal intermittent positive pressure ventilation in advanced Duchenne's muscular dystrophy
    • Vianello A, Bevilacqua M, Salvador V, et al. Long-term nasal intermittent positive pressure ventilation in advanced Duchenne's muscular dystrophy. Chest 1994;105:445-8. (Pubitemid 24066715)
    • (1994) Chest , vol.105 , Issue.2 , pp. 445-448
    • Vianello, A.1    Bevilacqua, M.2    Salvador, V.3    Cardaioli, C.4    Vincenti, E.5
  • 37
    • 0026063587 scopus 로고
    • Respiratory muscle strength and control of ventilation in patients with neuromuscular disease
    • Baydur A. Respiratory muscle strength and control of ventilation in patients with neuromuscular disease. Chest 1991;99:330-8.
    • (1991) Chest , vol.99 , pp. 330-338
    • Baydur, A.1
  • 38
    • 0029127887 scopus 로고
    • Control of breathing in patients with limb girdle dystrophy: A controlled study
    • Gigliotti F, Pizzi A, Duranti R, et al. Control of breathing in patients with limb girdle dystrophy: a controlled study. Thorax 1995;50:962-8.
    • (1995) Thorax , vol.50 , pp. 962-968
    • Gigliotti, F.1    Pizzi, A.2    Duranti, R.3
  • 39
    • 0033746324 scopus 로고    scopus 로고
    • Prevention of pulmonary morbidity for patients with neuromuscular disease
    • Tzeng AC, Bach JR. Prevention of pulmonary morbidity for patients with neuromuscular disease. Chest 2000;118:1390-6.
    • (2000) Chest , vol.118 , pp. 1390-1396
    • Tzeng, A.C.1    Bach, J.R.2
  • 40
    • 78650173786 scopus 로고    scopus 로고
    • Respiratory management of congenital myasthenic syndromes in childhood: Workshop 8th December 2009, UCL Institute of Neurology, London, UK
    • Robb SA, Muntoni F, Simonds AK. Respiratory management of congenital myasthenic syndromes in childhood: Workshop 8th December 2009, UCL Institute of Neurology, London, UK. Neuromuscul Disord 2010;20:833-8.
    • (2010) Neuromuscul Disord , vol.20 , pp. 833-838
    • Robb, S.A.1    Muntoni, F.2    Simonds, A.K.3
  • 41
    • 77249086172 scopus 로고    scopus 로고
    • Respiratory management of acute respiratory failure in neuromuscular diseases
    • Racca F, Del Sorbo L, Mongini T, et al. Respiratory management of acute respiratory failure in neuromuscular diseases. Minerva Anestesiol 2010;76:51-62.
    • (2010) Minerva Anestesiol , vol.76 , pp. 51-62
    • Racca, F.1    Del Sorbo, L.2    Mongini, T.3
  • 42
    • 33947136430 scopus 로고    scopus 로고
    • Correlations of Egen Klassifikation and Barthel Index scores with pulmonary function parameters in Duchenne muscular dystrophy
    • Brunherotti MA, Sobreira C, Rodrigues-Junior AL, et al. Correlations of Egen Klassifikation and Barthel Index scores with pulmonary function parameters in Duchenne muscular dystrophy. Heart Lung 2007;36:132-9.
    • (2007) Heart Lung , vol.36 , pp. 132-139
    • Brunherotti, M.A.1    Sobreira, C.2    Rodrigues-Junior, A.L.3
  • 43
    • 78649901713 scopus 로고    scopus 로고
    • Nocturnal hypoventilation: Predictors and outcomes in childhood progressive neuromuscular disease
    • Katz SL, Gaboury I, Keilty K, et al. Nocturnal hypoventilation: predictors and outcomes in childhood progressive neuromuscular disease. Arch Dis Child 2010;95:998-1003.
    • (2010) Arch Dis Child , vol.95 , pp. 998-1003
    • Katz, S.L.1    Gaboury, I.2    Keilty, K.3
  • 47
    • 0023786816 scopus 로고
    • Relation of armspan to height and the prediction of lung function
    • Hibbert ME, Lanigan A, Raven J, et al. Relation of armspan to height and the prediction of lung function. Thorax 1988;43:657-9.
    • (1988) Thorax , vol.43 , pp. 657-659
    • Hibbert, M.E.1    Lanigan, A.2    Raven, J.3
  • 48
    • 0014868099 scopus 로고
    • Methods of predicting vital capacity in patients with thoracic scoliosis
    • Johnson BE, Westgate HD. Methods of predicting vital capacity in patients with thoracic scoliosis. J Bone Joint Surg Am 1970;52:1433-9.
    • (1970) J Bone Joint Surg Am , vol.52 , pp. 1433-1439
    • Johnson, B.E.1    Westgate, H.D.2
  • 49
    • 0018080196 scopus 로고
    • Prediction of spirometric values in patients with scoliosis
    • Linderholm H, Lindgren U. Prediction of spirometric values in patients with scoliosis. Acta Orthop Scand 1978;49:469-74. (Pubitemid 9044590)
    • (1978) Acta Orthopaedica Scandinavica , vol.49 , Issue.5 , pp. 469-474
    • Linderholm, H.1    Lindgren, U.2
  • 50
    • 0032804116 scopus 로고    scopus 로고
    • The nutritional status of disabled children in Nigeria: A cross-sectional survey
    • Tompsett J, Yousafzai AK, Filteau SM. The nutritional status of disabled children in Nigeria: a cross-sectional survey. Eur J Clin Nutr 1999;53:915-19.
    • (1999) Eur J Clin Nutr , vol.53 , pp. 915-919
    • Tompsett, J.1    Yousafzai, A.K.2    Filteau, S.M.3
  • 51
    • 0033762808 scopus 로고    scopus 로고
    • Poor nutrition is a serious problem in children with cerebral palsy in Palawan, the Philippines
    • Socrates C, Grantham-McGregor SM, Harknett SG, et al. Poor nutrition is a serious problem in children with cerebral palsy in Palawan, the Philippines. Int J Rehabil Res 2000;23:177-84.
    • (2000) Int J Rehabil Res , vol.23 , pp. 177-184
    • Socrates, C.1    Grantham-McGregor, S.M.2    Harknett, S.G.3
  • 52
    • 0141891116 scopus 로고    scopus 로고
    • Comparison of armspan, arm length and tibia length as predictors of actual height of disabled and nondisabled children in Dharavi, Mumbai, India
    • DOI 10.1038/sj.ejcn.1601705
    • Yousafzai AK, Filteau SM, Wirz SL, et al. Comparison of armspan, arm length and tibia length as predictors of actual height of disabled and nondisabled children in Dharavi, Mumbai, India. Eur J Clin Nutr 2003;57:1230-4. (Pubitemid 37259387)
    • (2003) European Journal of Clinical Nutrition , vol.57 , Issue.10 , pp. 1230-1234
    • Yousafzai, A.K.1    Filteau, S.M.2    Wirz, S.L.3    Cole, T.J.4
  • 55
    • 27544475347 scopus 로고    scopus 로고
    • Spirometry is affected by intelligence and behavior in Duchenne muscular dystrophy
    • DOI 10.1002/ppul.20278
    • Gauld LM, Boynton A, Betts GA, et al. Spirometry is affected by intelligence and behavior in Duchenne muscular dystrophy. Pediatr Pulmonol 2005;40:408-13. (Pubitemid 41546903)
    • (2005) Pediatric Pulmonology , vol.40 , Issue.5 , pp. 408-413
    • Gauld, L.M.1    Boynton, A.2    Betts, G.A.3    Johnston, H.4
  • 56
    • 33646477262 scopus 로고    scopus 로고
    • Predictors of severe chest infections in pediatric neuromuscular disorders
    • Dohna-Schwake C, Ragette R, Teschler H, et al. Predictors of severe chest infections in pediatric neuromuscular disorders. Neuromuscul Disord 2006;16:325-8.
    • (2006) Neuromuscul Disord , vol.16 , pp. 325-328
    • Dohna-Schwake, C.1    Ragette, R.2    Teschler, H.3
  • 57
    • 0036344202 scopus 로고    scopus 로고
    • Patterns and predictors of sleep disordered breathing in primary myopathies
    • DOI 10.1136/thorax.57.8.724
    • Ragette R, Mellies U, Schwake C, et al. Patterns and predictors of sleep disordered breathing in primary myopathies. Thorax 2002;57:724-8. (Pubitemid 34864531)
    • (2002) Thorax , vol.57 , Issue.8 , pp. 724-728
    • Ragette, R.1    Mellies, U.2    Schwake, C.3    Voit, T.4    Teschler, H.5
  • 58
    • 0037306424 scopus 로고    scopus 로고
    • Daytime predictors of sleep disordered breathing in children and adolescents with neuromuscular disorders
    • DOI 10.1016/S0960-8966(02)00219-5
    • Mellies U, Ragette R, Schwake C, et al. Daytime predictors of sleep disordered breathing in children and adolescents with neuromuscular disorders. Neuromuscul Disord 2003;13:123-8. (Pubitemid 36140006)
    • (2003) Neuromuscular Disorders , vol.13 , Issue.2 , pp. 123-128
    • Mellies, U.1    Ragette, R.2    Schwake, C.3    Boehm, H.4    Voit, T.5    Teschler, H.6
  • 59
    • 33847164577 scopus 로고    scopus 로고
    • Lung function accurately predicts hypercapnia in patients with Duchenne muscular dystrophy
    • DOI 10.1378/chest.06-1265
    • Toussaint M, Steens M, Soudon P. Lung function accurately predicts hypercapnia in patients with Duchenne muscular dystrophy. Chest 2007;131:368-75. (Pubitemid 46280394)
    • (2007) Chest , vol.131 , Issue.2 , pp. 368-375
    • Toussaint, M.1    Steens, M.2    Soudon, P.3
  • 63
    • 0033773574 scopus 로고    scopus 로고
    • Usefulness of sniff nasal pressure in patients with neuromuscular or skeletal disorders
    • Stefanutti D, Benoist MR, Scheinmann P, et al. Usefulness of sniff nasal pressure in patients with neuromuscular or skeletal disorders. Am J Respir Crit Care Med 2000;162:1507-11.
    • (2000) Am J Respir Crit Care Med , vol.162 , pp. 1507-1511
    • Stefanutti, D.1    Benoist, M.R.2    Scheinmann, P.3
  • 66
    • 0030476669 scopus 로고    scopus 로고
    • Criteria for extubation and tracheostomy tube removal for patients with ventilatory failure. A different approach to weaning
    • Bach JR, Saporito LR. Criteria for extubation and tracheostomy tube removal for patients with ventilatory failure. A different approach to weaning. Chest 1996;110:1566-71.
    • (1996) Chest , vol.110 , pp. 1566-1571
    • Bach, J.R.1    Saporito, L.R.2
  • 67
    • 77951805051 scopus 로고    scopus 로고
    • Extubation of patients with neuromuscular weakness: A new management paradigm
    • Bach JR, Goncalves MR, Hamdani I, et al. Extubation of patients with neuromuscular weakness: a new management paradigm. Chest 2010;137:1033-9.
    • (2010) Chest , vol.137 , pp. 1033-1039
    • Bach, J.R.1    Goncalves, M.R.2    Hamdani, I.3
  • 68
    • 0030793790 scopus 로고    scopus 로고
    • Prevention of pulmonary morbidity for patients with Duchenne muscular dystrophy
    • Bach JR, Ishikawa Y, Kim H. Prevention of pulmonary morbidity for patients with Duchenne muscular dystrophy. Chest 1997;112:1024-8. (Pubitemid 27446324)
    • (1997) Chest , vol.112 , Issue.4 , pp. 1024-1028
    • Bach, J.R.1    Ishikawa, Y.2    Kim, H.3
  • 69
    • 34250203194 scopus 로고    scopus 로고
    • Predictors of ineffective cough during a chest infection in patients with stable amyotrophic lateral sclerosis
    • DOI 10.1164/rccm.200612-1841OC
    • Sancho J, Servera E, Díaz J, et al. Predictors of ineffective cough during a chest infection in patients with stable amyotrophic lateral sclerosis. Am J Respir Crit Care Med 2007;175:1266-71. (Pubitemid 46905752)
    • (2007) American Journal of Respiratory and Critical Care Medicine , vol.175 , Issue.12 , pp. 1266-1271
    • Sancho, J.1    Servera, E.2    Diaz, J.3    Marin, J.4
  • 71
    • 17444401360 scopus 로고    scopus 로고
    • Relationship between peak cough flow and spirometry in Duchenne muscular dystrophy
    • DOI 10.1002/ppul.20151
    • Gauld LM, Boynton A. Relationship between peak cough flow and spirometry in Duchenne muscular dystrophy. Pediatr Pulmonology 2005;39:457-60. (Pubitemid 40548289)
    • (2005) Pediatric Pulmonology , vol.39 , Issue.5 , pp. 457-460
    • Gauld, L.M.1    Boynton, A.2
  • 72
    • 45549086044 scopus 로고    scopus 로고
    • Cough peak flows: Standard values for children and adolescents
    • Bianchi C, Baiardi P. Cough peak flows: standard values for children and adolescents. Am J Phys Med Rehabil 2008;87:461-7.
    • (2008) Am J Phys Med Rehabil , vol.87 , pp. 461-467
    • Bianchi, C.1    Baiardi, P.2
  • 73
  • 74
    • 67349146817 scopus 로고    scopus 로고
    • Carbon dioxide monitoring during long-term noninvasive respiratory support in children
    • Paiva R, Krivec U, Aubertin G, et al. Carbon dioxide monitoring during long-term noninvasive respiratory support in children. Intensive Care Med 2009;35:1068-74.
    • (2009) Intensive Care Med , vol.35 , pp. 1068-1074
    • Paiva, R.1    Krivec, U.2    Aubertin, G.3
  • 75
    • 0033958503 scopus 로고    scopus 로고
    • Sleep-disordered breathing in duchenne muscular dystrophy: A preliminary study of the role of portable monitoring
    • DOI 10.1002/(SICI)1099-0496(200002)29:2<135::AID-PPUL8>3.0.CO;2-#
    • Kirk VG, Flemons WW, Adams C, et al. Sleep-disordered breathing in Duchenne muscular dystrophy: a preliminary study of the role of portable monitoring. Pediatr Pulmonol 2000;29:135-40. (Pubitemid 30060965)
    • (2000) Pediatric Pulmonology , vol.29 , Issue.2 , pp. 135-140
    • Kirk, V.G.1    Flemons, W.W.2    Adams, C.3    Rimmer, K.P.4    Montgomery, M.D.5
  • 76
    • 33845589962 scopus 로고    scopus 로고
    • Transcutaneous carbon dioxide monitoring and capnography during pediatric polysomnography
    • Kirk VG, Batuyong ED, Bohn SG. Transcutaneous carbon dioxide monitoring and capnography during pediatric polysomnography. Sleep 2006;29:1601-8. (Pubitemid 44936469)
    • (2006) Sleep , vol.29 , Issue.12 , pp. 1601-1608
    • Kirk, V.G.1    Batuyong, E.D.2    Bohn, S.G.3
  • 78
    • 26944453349 scopus 로고    scopus 로고
    • Randomised controlled trial of non-invasive ventilation (NIV) for nocturnal hypoventilation in neuromuscular and chest wall disease patients with daytime normocapnia
    • DOI 10.1136/thx.2004.037424
    • Ward S, Chatwin M, Heather S, et al. Randomised controlled trial of non-invasive ventilation (NIV) for nocturnal hypoventilation in neuromuscular and chest wall disease patients with daytime normocapnia. Thorax 2005;60:1019-24. (Pubitemid 41705470)
    • (2005) Thorax , vol.60 , Issue.12 , pp. 1019-1024
    • Ward, S.1    Chatwin, M.2    Heather, S.3    Simonds, A.K.4
  • 79
    • 0034968203 scopus 로고    scopus 로고
    • Respiratory monitoring in neuromuscular disease - Capnography as an additional tool?
    • DOI 10.1016/S0303-8467(01)00120-2, PII S0303846701001202
    • Kotterba S, Patzold T, Malin JP, et al. Respiratory monitoring in neuromuscular disease - capnography as an additional tool? Clin Neurol Neurosurg 2001;103:87-91. (Pubitemid 32549788)
    • (2001) Clinical Neurology and Neurosurgery , vol.103 , Issue.2 , pp. 87-91
    • Kotterba, S.1    Patzold, T.2    Malin, J.-P.3    Orth, M.4    Rasche, K.5
  • 82
    • 42149129041 scopus 로고    scopus 로고
    • Swallowing difficulties in Duchenne muscular dystrophy: Indications for feeding assessment and outcome of videofluroscopic swallow studies
    • DOI 10.1016/j.ejpn.2007.08.009, PII S1090379807001559
    • Aloysius A, Born P, Kinali M, et al. Swallowing difficulties in Duchenne muscular dystrophy: indications for feeding assessment and outcome of videofluroscopic swallow studies. Eur J Paediatr Neurol 2008;12:239-45. (Pubitemid 351539070)
    • (2008) European Journal of Paediatric Neurology , vol.12 , Issue.3 , pp. 239-245
    • Aloysius, A.1    Born, P.2    Kinali, M.3    Davis, T.4    Pane, M.5    Mercuri, E.6
  • 83
    • 33645063213 scopus 로고    scopus 로고
    • Feeding and speech difficulties in typical congenital nemaline myopathy
    • Bagnall AK, Al-Muhaizea MA, Manzur AY. Feeding and speech difficulties in typical congenital nemaline myopathy. Adv Speech Lang Pathol 2006;8:7-16.
    • (2006) Adv Speech Lang Pathol , vol.8 , pp. 7-16
    • Bagnall, A.K.1    Al-Muhaizea, M.A.2    Manzur, A.Y.3
  • 85
    • 74049127584 scopus 로고    scopus 로고
    • Developing a breath-stacking system to achieve lung volume recruitment
    • Armstrong A. Developing a breath-stacking system to achieve lung volume recruitment. Br J Nurs 2009;18:1166-9.
    • (2009) Br J Nurs , vol.18 , pp. 1166-1169
    • Armstrong, A.1
  • 86
    • 52449130638 scopus 로고    scopus 로고
    • Lung insufflation capacity in neuromuscular disease
    • Bach JR, Mahajan K, Lipa B, et al. Lung insufflation capacity in neuromuscular disease. Am J Phys Med Rehabil 2008;87:720-5.
    • (2008) Am J Phys Med Rehabil , vol.87 , pp. 720-725
    • Bach, J.R.1    Mahajan, K.2    Lipa, B.3
  • 87
    • 76949112331 scopus 로고
    • 'Glossopharyngeal breathing' by paralyzed patients; a preliminary report
    • Dail CW. 'Glossopharyngeal breathing' by paralyzed patients; a preliminary report. Calif Med 1951;75:217-18.
    • (1951) Calif Med , vol.75 , pp. 217-218
    • Dail, C.W.1
  • 88
    • 0000600065 scopus 로고
    • Clinical aspects of glossopharyngeal breathing; report of use by one hundred postpoliomyelitic patients
    • Dail CW, Affeldt JE, Collier CR. Clinical aspects of glossopharyngeal breathing; report of use by one hundred postpoliomyelitic patients. J Am Med Assoc 1955;158:445-9.
    • (1955) J Am Med Assoc , vol.158 , pp. 445-449
    • Dail, C.W.1    Affeldt, J.E.2    Collier, C.R.3
  • 89
    • 0027374459 scopus 로고
    • Mechanical insufflation-exsufflation: Comparison of peak expiratory flows with manually assisted and unassisted coughing techniques
    • Bach JR. Mechanical insufflations-exsufflation. Comparison of peak expiratory flows with manually assisted and unassisted coughing techniques. Chest 1993;104:1553-62. (Pubitemid 23327880)
    • (1993) Chest , vol.104 , Issue.5 , pp. 1553-1562
    • Bach, J.R.1
  • 90
    • 0025966838 scopus 로고
    • Chest development as a component of normal motor development: Implications for pediatric physical therapists
    • Massery M. Chest development as a component of normal motor development: implications for pediatric physical therapists. Pediatr Phys Ther 1991;3:3-8.
    • (1991) Pediatr Phys Ther , vol.3 , pp. 3-8
    • Massery, M.1
  • 92
    • 0034007507 scopus 로고    scopus 로고
    • Spinal muscular atrophy type 1: A noninvasive respiratory management approach
    • Bach JR, Niranjan V, Weaver B. Spinal muscular atrophy type 1: a noninvasive respiratory management approach. Chest 2000;117:1100-5. (Pubitemid 30228371)
    • (2000) Chest , vol.117 , Issue.4 , pp. 1100-1105
    • Bach, J.R.1    Niranjan, V.2    Weaver, B.3
  • 93
    • 0036259705 scopus 로고    scopus 로고
    • Duchenne muscular dystrophy: Prolongation of life by noninvasive ventilation and mechanically assisted coughing
    • DOI 10.1097/00002060-200206000-00003
    • Gomez-Merino E, Bach JR. Duchenne muscular dystrophy: prolongation of life by noninvasive ventilation and mechanically assisted coughing. Am J Phys Med Rehabil 2002;81:411-15. (Pubitemid 34564110)
    • (2002) American Journal of Physical Medicine and Rehabilitation , vol.81 , Issue.6 , pp. 411-415
    • Gomez-Merino, E.1    Bach, J.R.2
  • 94
    • 34247514920 scopus 로고    scopus 로고
    • Long-term survival in Werdnig-Hoffmann disease
    • quiz 46-8
    • Bach JR, Saltstein K, Sinquee D, et al. Long-term survival in Werdnig-Hoffmann disease. Am J Phys Med Rehabil 2007;86:339-45. quiz 46-8.
    • (2007) Am J Phys Med Rehabil , vol.86 , pp. 339-345
    • Bach, J.R.1    Saltstein, K.2    Sinquee, D.3
  • 95
  • 96
    • 79954479111 scopus 로고    scopus 로고
    • Outcome of goal-directed non-invasive ventilation and mechanical insufflation/exsufflation in spinal muscular atrophy type I
    • Chatwin M, Bush A, Simonds AK. Outcome of goal-directed non-invasive ventilation and mechanical insufflation/exsufflation in spinal muscular atrophy type I. Arch Dis Childhood 2011;96:426-32.
    • (2011) Arch Dis Childhood , vol.96 , pp. 426-432
    • Chatwin, M.1    Bush, A.2    Simonds, A.K.3
  • 97
    • 0029961763 scopus 로고    scopus 로고
    • Persistent pulmonary consolidation treated with intrapulmonary percussive ventilation: A preliminary report
    • DOI 10.1002/(SICI)1099-0496(199604)21:4<246::AID-PPUL8>3.0.CO;2-M
    • Birnkrant DJ, Pope JF, Lewarski J, et al. Persistent pulmonary consolidation treated with intrapulmonary percussive ventilation: a preliminary report. Pediatr Pulmonol 1996;21:246-9. (Pubitemid 26134833)
    • (1996) Pediatric Pulmonology , vol.21 , Issue.4 , pp. 246-249
    • Birnkrant, D.J.1    Pope, J.F.2    Lewarski, J.3    Stegmaier, J.4    Besunder, J.B.5
  • 98
    • 2142858762 scopus 로고    scopus 로고
    • Effect of intrapulmonary percussive ventilation on mucus clearance in Duchenne muscular dystrophy patients: A preliminary report
    • Toussaint M, De Win H, Steens M, et al. Effect of intrapulmonary percussive ventilation on mucus clearance in Duchenne muscular dystrophy patients: a preliminary report. Respir Care 2003;48:940-7. (Pubitemid 47372000)
    • (2004) Respiratory Care , vol.48 , Issue.10 , pp. 940-947
    • Toussaint, M.1    De Win, H.2    Steens, M.3    Soudon, P.4
  • 99
    • 20644438644 scopus 로고    scopus 로고
    • Intrapulmonary percussive ventilation vs incentive spirometry for children with neuromuscular disease
    • DOI 10.1001/archpedi.159.6.526
    • Reardon CC, Christiansen D, Barnett ED, et al. Intrapulmonary percussive ventilation vs incentive spirometry for children with neuromuscular disease. Arch Pediatr Adolesc Med 2005;159:526-31. (Pubitemid 40973473)
    • (2005) Archives of Pediatrics and Adolescent Medicine , vol.159 , Issue.6 , pp. 526-531
    • Reardon, C.C.1    Christiansen, D.2    Barnett, E.D.3    Cabral, H.J.4
  • 100
    • 77954412018 scopus 로고    scopus 로고
    • Safety, tolerability, and efficacy of high-frequency chest wall oscillation in pediatric patients with cerebral palsy and neuromuscular diseases: An exploratory randomized controlled trial
    • Yuan N, Kane P, Shelton K, et al. Safety, tolerability, and efficacy of high-frequency chest wall oscillation in pediatric patients with cerebral palsy and neuromuscular diseases: an exploratory randomized controlled trial. J Child Neurol 2010;25:815-21.
    • (2010) J Child Neurol , vol.25 , pp. 815-821
    • Yuan, N.1    Kane, P.2    Shelton, K.3
  • 101
    • 82455167120 scopus 로고    scopus 로고
    • High frequency chest wall oscillation in a non-invasive ventilation dependent patient with spinal muscular atrophy type 1
    • Keating JM, Collins N, Bush A, et al. High frequency chest wall oscillation in a non-invasive ventilation dependent patient with spinal muscular atrophy type 1. Respir Care 2011;56:1840-3.
    • (2011) Respir Care , vol.56 , pp. 1840-1843
    • Keating, J.M.1    Collins, N.2    Bush, A.3
  • 102
    • 0033929580 scopus 로고    scopus 로고
    • Maximum insufflation capacity
    • Kang SW, Bach JR. Maximum insufflation capacity. Chest 2000;118:61-5. (Pubitemid 30485490)
    • (2000) Chest , vol.118 , Issue.1 , pp. 61-65
    • Kang, S.-W.1    Bach, J.R.2
  • 103
    • 18644372365 scopus 로고    scopus 로고
    • Assisted cough and pulmonary compliance in patients with Duchenne muscular dystrophy
    • Kang SW, Kang YS, Moon JH, et al. Assisted cough and pulmonary compliance in patients with Duchenne muscular dystrophy. Yonsei Med J 2005;46:233-8. (Pubitemid 40662976)
    • (2005) Yonsei Medical Journal , vol.46 , Issue.2 , pp. 233-238
    • Kang, S.W.1    Kang, Y.S.2    Moon, J.H.3    Yoo, T.W.4
  • 104
    • 52449110584 scopus 로고    scopus 로고
    • Cough augmentation in Duchenne muscular dystrophy
    • Ishikawa Y, Bach JR, Komaroff E, et al. Cough augmentation in Duchenne muscular dystrophy. Am J Phys Med Rehabil 2008;87:726-30.
    • (2008) Am J Phys Med Rehabil , vol.87 , pp. 726-730
    • Ishikawa, Y.1    Bach, J.R.2    Komaroff, E.3
  • 105
    • 70450189492 scopus 로고    scopus 로고
    • Air stacking and chest compression increase peak cough flow in patients with Duchenne muscular dystrophy
    • In Portuguese
    • Brito MF, Moreira GA, Pradella-Hallinan M, et al. Air stacking and chest compression increase peak cough flow in patients with Duchenne muscular dystrophy. (In Portuguese). J Bras Pneumol 2009;35:973-9.
    • (2009) J Bras Pneumol , vol.35 , pp. 973-979
    • Brito, M.F.1    Moreira, G.A.2    Pradella-Hallinan, M.3
  • 107
    • 68249084727 scopus 로고    scopus 로고
    • Glossopharyngeal pistoning for lung insufflation in children with spinal muscular atrophy type II
    • Nygren-Bonnier M, Markstrom A, Lindholm P, et al. Glossopharyngeal pistoning for lung insufflation in children with spinal muscular atrophy type II. Acta Paediatr 2009;98:1324-8.
    • (2009) Acta Paediatr , vol.98 , pp. 1324-1328
    • Nygren-Bonnier, M.1    Markstrom, A.2    Lindholm, P.3
  • 109
    • 33646202810 scopus 로고    scopus 로고
    • Respiratory muscle strength and cough capacity in patients with Duchenne muscular dystrophy
    • Kang SW, Kang YS, Sohn HS, et al. Respiratory muscle strength and cough capacity in patients with Duchenne muscular dystrophy. Yonsei Med J 2006;47:184-90.
    • (2006) Yonsei Med J , vol.47 , pp. 184-190
    • Kang, S.W.1    Kang, Y.S.2    Sohn, H.S.3
  • 110
    • 65449174878 scopus 로고    scopus 로고
    • Limits of effective cough-augmentation techniques in patients with neuromuscular disease
    • Toussaint M, Boitano LJ, Gathot V, et al. Limits of effective cough-augmentation techniques in patients with neuromuscular disease. Respir Care 2009;54:359-66.
    • (2009) Respir Care , vol.54 , pp. 359-366
    • Toussaint, M.1    Boitano, L.J.2    Gathot, V.3
  • 111
    • 38349059866 scopus 로고    scopus 로고
    • Physiologic benefits of mechanical insufflation-exsufflation in children with neuromuscular diseases
    • Fauroux B, Guillemot N, Aubertin G, et al. Physiologic benefits of mechanical insufflation-exsufflation in children with neuromuscular diseases. Chest 2008;133:161-8.
    • (2008) Chest , vol.133 , pp. 161-168
    • Fauroux, B.1    Guillemot, N.2    Aubertin, G.3
  • 114
    • 62149092640 scopus 로고    scopus 로고
    • The addition of mechanical insufflation/exsufflation shortens airway-clearance sessions in neuromuscular patients with chest infection
    • Chatwin M, Simonds AK. The addition of mechanical insufflation/ exsufflation shortens airway-clearance sessions in neuromuscular patients with chest infection. Respir Care 2009;54:1473-9.
    • (2009) Respir Care , vol.54 , pp. 1473-1479
    • Chatwin, M.1    Simonds, A.K.2
  • 115
    • 4544261945 scopus 로고    scopus 로고
    • Use of the mechanical in-exsufflator in pediatric patients with neuromuscular disease and impaired cough
    • DOI 10.1378/chest.125.4.1406
    • Miske LJ, Hickey EM, Kolb SM, et al. Use of the mechanical in-exsufflator in pediatric patients with neuromuscular disease and impaired cough. Chest 2004;125:1406-12. (Pubitemid 38501357)
    • (2004) Chest , vol.125 , Issue.4 , pp. 1406-1412
    • Miske, L.J.1    Hickey, E.M.2    Kolb, S.M.3    Weiner, D.J.4    Panitch, H.B.5
  • 116
    • 12744277966 scopus 로고    scopus 로고
    • Mechanical insufflation-exsufflation improves outcomes for neuromuscular disease patients with respiratory tract infections
    • discussion 89-91
    • Vianello A, Corrado A, Arcaro G, et al. Mechanical insufflation- exsufflation improves outcomes for neuromuscular disease patients with respiratory tract infections. Am J Phys Med Rehabil 2005;84:83-8; discussion 89-91.
    • (2005) Am J Phys Med Rehabil , vol.84 , pp. 83-88
    • Vianello, A.1    Corrado, A.2    Arcaro, G.3
  • 117
    • 56149101770 scopus 로고    scopus 로고
    • Pneumothorax associated with mechanical insufflations-exsufflation and related factors
    • Suri P, Burns SP, Bach JR. Pneumothorax associated with mechanical insufflations-exsufflation and related factors. Am J Phys Med Rehabil 2008;87:951-5.
    • (2008) Am J Phys Med Rehabil , vol.87 , pp. 951-955
    • Suri, P.1    Burns, S.P.2    Bach, J.R.3
  • 118
    • 0017146744 scopus 로고
    • Ventilatory muscle strength and endurance training
    • Leith DE, Bradley M. Ventilatory muscle strength and endurance training. J Appl Physiol 1976;41:508-16.
    • (1976) J Appl Physiol , vol.41 , pp. 508-516
    • Leith, D.E.1    Bradley, M.2
  • 119
    • 0032727825 scopus 로고    scopus 로고
    • Respiratory muscle training in neuromuscular disease: Long-term effects on strength and load perception
    • Gozal D, Thiriet P. Respiratory muscle training in neuromuscular disease: long-term effects on strength and load perception. Med Sci Sports Exerc 1999;31:1522-7.
    • (1999) Med Sci Sports Exerc , vol.31 , pp. 1522-1527
    • Gozal, D.1    Thiriet, P.2
  • 122
    • 0036315172 scopus 로고    scopus 로고
    • Dose-dependent effect of individualized respiratory muscle training in children with Duchenne muscular dystrophy
    • DOI 10.1016/S0960-8966(02)00005-6, PII S0960896602000056
    • Topin N, Matecki S, Le Bris S, et al. Dose-dependent effect of individualized respiratory muscle training in children with Duchenne muscular dystrophy. Neuromuscul Disord 2002;12:576-83. (Pubitemid 34756832)
    • (2002) Neuromuscular Disorders , vol.12 , Issue.6 , pp. 576-583
    • Topin, N.1    Matecki, S.2    Le, B.S.3    Rivier, F.4    Echenne, B.5    Prefaut, C.6    Ramonatxo, M.7
  • 123
    • 0028097954 scopus 로고
    • Inspiratory muscle training in patients with Duchenne muscular dystrophy
    • Wanke T, Toifl K, Merkle M, et al. Inspiratory muscle training in patients with Duchenne muscular dystrophy. Chest 1994;105:475-82. (Pubitemid 24066721)
    • (1994) Chest , vol.105 , Issue.2 , pp. 475-482
    • Wanke, T.1    Toifl, K.2    Merkle, M.3    Formanek, D.4    Lahrmann, H.5    Zwick, H.6
  • 124
    • 0034832856 scopus 로고    scopus 로고
    • 2 Years' experience with inspiratory muscle training in patients with neuromuscular disorders
    • DOI 10.1378/chest.120.3.765
    • Koessler W, Wanke T, Winkler G, et al. 2 Years' experience with inspiratory muscle training in patients with neuromuscular disorders. Chest 2001;120:765-9. (Pubitemid 32885447)
    • (2001) Chest , vol.120 , Issue.3 , pp. 765-769
    • Koessler, W.1    Wanke, T.2    Winkler, G.3    Nader, A.4    Toifl, K.5    Kurz, H.6    Zwick, H.7
  • 125
    • 0033860491 scopus 로고    scopus 로고
    • Dose-dependent effects of inspiratory muscle training in neuromuscular disorders
    • DOI 10.1002/1097-4598(200008)23:8<1257::AID-MUS15>3.0.CO;2-M
    • Winkler G, Zifko U, Nader A, et al. Dose-dependent effects of inspiratory muscle training in neuromuscular disorders. Muscle Nerve 2000;23:1257-60. (Pubitemid 30602247)
    • (2000) Muscle and Nerve , vol.23 , Issue.8 , pp. 1257-1260
    • Winkler, G.1    Zifko, U.2    Nader, A.3    Frank, W.4    Zwick, H.5    Toifl, K.6    Wanke, T.7
  • 127
    • 24744452791 scopus 로고    scopus 로고
    • Mechanisms of improvement of respiratory failure in patients with restrictive thoracic disease treated with non-invasive ventilation
    • DOI 10.1136/thx.2004.039388
    • Nickol AH, Hart N, Hopkinson NS, et al. Mechanisms of improvement of respiratory failure in patients with restrictive thoracic disease treated with non-invasive ventilation. Thorax 2005;60:754-60. (Pubitemid 41297895)
    • (2005) Thorax , vol.60 , Issue.9 , pp. 754-760
    • Nickol, A.H.1    Hart, N.2    Hopkinson, N.S.3    Moxham, J.4    Simonds, A.5    Polkey, M.I.6
  • 128
    • 0030056420 scopus 로고    scopus 로고
    • Effects of long-term nocturnal nasal ventilation on spontaneous breathing during sleep in neuromuscular and chest wall disorders
    • DOI 10.1183/09031936.96.09071515
    • Piper AJ, Sullivan CE. Effects of long-term nocturnal nasal ventilation on spontaneous breathing during sleep in neuromuscular and chest wall disorders. Eur Respir J 1996;9:1515-22. (Pubitemid 26233799)
    • (1996) European Respiratory Journal , vol.9 , Issue.7 , pp. 1515-1522
    • Piper, A.J.1    Sullivan, C.E.2
  • 129
    • 0026585379 scopus 로고
    • Efficacy of nocturnal nasal ventilation in patients with restrictive thoracic disease
    • Hill NS, Eveloff SE, Carlisle CC, et al. Efficacy of nocturnal nasal ventilation in patients with restrictive thoracic disease. Am Rev Respir Dis 1992;145:365-71.
    • (1992) Am Rev Respir Dis , vol.145 , pp. 365-371
    • Hill, N.S.1    Eveloff, S.E.2    Carlisle, C.C.3
  • 131
    • 43749104453 scopus 로고    scopus 로고
    • Effect of non-invasive ventilation on respiratory muscle loading and endurance in patients with Duchenne muscular dystrophy
    • DOI 10.1136/thx.2007.084574
    • Toussaint M, Soudon P, Kinnear W. Effect of non-invasive ventilation on respiratory muscle loading and endurance in patients with Duchenne muscular dystrophy. Thorax 2008;63:430-4. (Pubitemid 351692352)
    • (2008) Thorax , vol.63 , Issue.5 , pp. 430-434
    • Toussaint, M.1    Soudon, P.2    Kinnear, W.3
  • 132
    • 9744257754 scopus 로고    scopus 로고
    • Sleep disordered breathing in spinal muscular atrophy
    • DOI 10.1016/j.nmd.2004.09.004, PII S0960896604002433
    • Mellies U, Dohna-Schwake C, Stehling F, et al. Sleep disordered breathing in spinal muscular atrophy. Neuromuscul Disord 2004;14:797-803. (Pubitemid 39582719)
    • (2004) Neuromuscular Disorders , vol.14 , Issue.12 , pp. 797-803
    • Mellies, U.1    Dohna-Schwake, C.2    Stehling, F.3    Voit, T.4
  • 133
    • 0033805558 scopus 로고    scopus 로고
    • Outcome of paediatric domiciliary mask ventilation in neuromuscular and skeletal disease
    • Simonds AK, Ward S, Heather S, et al. Outcome of paediatric domiciliary mask ventilation in neuromuscular and skeletal disease. Eur Respir J 2000;16:476-81.
    • (2000) Eur Respir J , vol.16 , pp. 476-481
    • Simonds, A.K.1    Ward, S.2    Heather, S.3
  • 135
    • 0028291379 scopus 로고
    • Randomised trial of preventive nasal ventilation in Duchenne muscular dystrophy. French Multicentre Cooperative Group on Home Mechanical Ventilation Assistance in Duchenne de Boulogne Muscular Dystrophy
    • Raphael JC, Chevret S, Chastang C, et al. Randomised trial of preventive nasal ventilation in Duchenne muscular dystrophy. French Multicentre Cooperative Group on Home Mechanical Ventilation Assistance in Duchenne de Boulogne Muscular Dystrophy. Lancet 1994;343:1600-4.
    • (1994) Lancet , vol.343 , pp. 1600-1604
    • Raphael, J.C.1    Chevret, S.2    Chastang, C.3
  • 136
    • 38349044468 scopus 로고    scopus 로고
    • Non-invasive ventilation reduces respiratory tract infections in children with neuromuscular disorders
    • Dohna-Schwake C, Podlewski P, Voit T, et al. Non-invasive ventilation reduces respiratory tract infections in children with neuromuscular disorders. Pediatr Pulmonol 2008;43:67-71.
    • (2008) Pediatr Pulmonol , vol.43 , pp. 67-71
    • Dohna-Schwake, C.1    Podlewski, P.2    Voit, T.3
  • 137
    • 0842349451 scopus 로고    scopus 로고
    • Outcome of non-invasive positive pressure ventilation in paediatric neuromuscular disease
    • DOI 10.1136/adc.2002.018655
    • Katz S, Selvadurai H, Keilty K, et al. Outcome of non-invasive positive pressure ventilation in paediatric neuromuscular disease. Arch Dis Child 2004;89:121-4. (Pubitemid 38168969)
    • (2004) Archives of Disease in Childhood , vol.89 , Issue.2 , pp. 121-124
    • Katz, S.1    Selvadurai, H.2    Keilty, K.3    Mitchell, M.4    MacLusky, I.5
  • 138
    • 0141457951 scopus 로고    scopus 로고
    • Prevention of pectus excavatum for children with spinal muscular atrophy type 1
    • DOI 10.1097/01.PHM.0000083669.22483.04
    • Bach JR, Bianchi C. Prevention of pectus excavatum for children with spinal muscular atrophy type 1. Am J Phys Med Rehabil 2003;82:815-19. (Pubitemid 37169124)
    • (2003) American Journal of Physical Medicine and Rehabilitation , vol.82 , Issue.10 , pp. 815-819
    • Bach, J.R.1    Bianchi, C.2
  • 139
    • 33847218222 scopus 로고    scopus 로고
    • Noninvasive ventilation in children with spinal muscular atrophy types 1 and 2
    • Petrone A, Pavone M, Testa MBC, et al. Noninvasive ventilation in children with spinal muscular atrophy types 1 and 2. Am J Phys Med Rehabil 2007;86:216-21.
    • (2007) Am J Phys Med Rehabil , vol.86 , pp. 216-221
    • Petrone, A.1    Pavone, M.2    Testa, M.B.C.3
  • 140
    • 0031759227 scopus 로고    scopus 로고
    • Impact of nasal ventilation on survival in hypercapnic Duchenne muscular dystrophy
    • Simonds AK, Muntoni F, Heather S, et al. Impact of nasal ventilation on survival in hypercapnic Duchenne muscular dystrophy. Thorax 1998;53:949-52. (Pubitemid 28494334)
    • (1998) Thorax , vol.53 , Issue.11 , pp. 949-952
    • Simonds, A.K.1    Muntoni, F.2    Heather, S.3    Fielding, S.4
  • 141
    • 0036895043 scopus 로고    scopus 로고
    • Survival in Duchenne muscular dystrophy: Improvements in life expectancy since 1967 and the impact of home nocturnal ventilation
    • DOI 10.1016/S0960-8966(02)00140-2, PII S0960896602001402
    • Eagle M, Baudouin SV, Chandler C, et al. Survival in Duchenne muscular dystrophy: improvements in life expectancy since 1967 and the impact of home nocturnal ventilation. Neuromuscul Disord 2002;12:926-9. (Pubitemid 35408673)
    • (2002) Neuromuscular Disorders , vol.12 , Issue.10 , pp. 926-929
    • Eagle, M.1    Baudouin, S.V.2    Chandler, C.3    Giddings, D.R.4    Bullock, R.5    Bushby, K.6
  • 142
    • 0347480491 scopus 로고    scopus 로고
    • The Duchenne muscular dystrophy population in Denmark, 1977-2001: Prevalence, incidence and survival in relation to the introduction of ventilator use
    • DOI 10.1016/S0960-8966(03)00162-7
    • Jeppesen J, Green A, Steffensen BF, et al. The Duchenne muscular dystrophy population in Denmark, 1977-2001: prevalence, incidence and survival in relation to the introduction of ventilator use. Neuromuscul Disord 2003;13:804-12. (Pubitemid 37532730)
    • (2003) Neuromuscular Disorders , vol.13 , Issue.10 , pp. 804-812
    • Jeppesen, J.1    Green, A.2    Steffensen, B.F.3    Rahbek, J.4
  • 143
    • 33751294514 scopus 로고    scopus 로고
    • Diurnal ventilation via mouthpiece: Survival in end-stage Duchenne patients
    • DOI 10.1183/09031936.06.00004906
    • Toussaint M, Steens M, Wasteels G, et al. Diurnal ventilation via mouthpiece: survival in end-stage Duchenne patients. Eur Respir J 2006;28:549-55. (Pubitemid 44794669)
    • (2006) European Respiratory Journal , vol.28 , Issue.3 , pp. 549-555
    • Toussaint, M.1    Steens, M.2    Wasteels, G.3    Soudon, P.4
  • 144
    • 53449094096 scopus 로고    scopus 로고
    • A comparison of invasive versus noninvasive full-time mechanical ventilation in Duchenne muscular dystrophy
    • Soudon P, Steens M, Toussaint M. A comparison of invasive versus noninvasive full-time mechanical ventilation in Duchenne muscular dystrophy. Chronic Respir Dis 2008;5:87-93.
    • (2008) Chronic Respir Dis , vol.5 , pp. 87-93
    • Soudon, P.1    Steens, M.2    Toussaint, M.3
  • 145
    • 0029129272 scopus 로고
    • Evaluation of carbon dioxide rebreathing during pressure support ventilation with airway management system (BiPAP) devices
    • Lofaso F, Brochard L, Touchard D, et al. Evaluation of carbon dioxide rebreathing during pressure support ventilation with airway management system (BiPAP) devices. Chest 1995;108:772-8.
    • (1995) Chest , vol.108 , pp. 772-778
    • Lofaso, F.1    Brochard, L.2    Touchard, D.3
  • 146
    • 49649106991 scopus 로고    scopus 로고
    • Performance of ventilators for noninvasive positive-pressure ventilation in children
    • Fauroux B, Leroux K, Desmarais G, et al. Performance of ventilators for noninvasive positive-pressure ventilation in children. Eur Respir J 2008;31:1300-7.
    • (2008) Eur Respir J , vol.31 , pp. 1300-1307
    • Fauroux, B.1    Leroux, K.2    Desmarais, G.3
  • 147
    • 55549139068 scopus 로고    scopus 로고
    • Randomised trial of inpatient versus outpatient initiation of home mechanical ventilation in patients with nocturnal hypoventilation
    • Chatwin M, Nickol AH, Morrell MJ, et al. Randomised trial of inpatient versus outpatient initiation of home mechanical ventilation in patients with nocturnal hypoventilation. Respir Med 2008;102:1528-35.
    • (2008) Respir Med , vol.102 , pp. 1528-1535
    • Chatwin, M.1    Nickol, A.H.2    Morrell, M.J.3
  • 148
    • 0038341698 scopus 로고    scopus 로고
    • Air leaks during mechanical ventilation as a cause of persistent hypercapnia in neuromuscular disorders
    • Gonzalez J, Sharshar T, Hart N, et al. Air leaks during mechanical ventilation as a cause of persistent hypercapnia in neuromuscular disorders. Intensive Care Med 2003;29:596-602. (Pubitemid 36526633)
    • (2003) Intensive Care Medicine , vol.29 , Issue.4 , pp. 596-602
    • Gonzalez, J.1    Sharshar, T.2    Hart, N.3    Chadda, K.4    Raphael, J.C.5    Lofaso, F.6
  • 150
    • 58249092525 scopus 로고    scopus 로고
    • Automatic air-leak compensation in neuromuscular patients: A feasibility study
    • Orlikowski D, Mroue G, Prigent H, et al. Automatic air-leak compensation in neuromuscular patients: a feasibility study. Respir Med 2009;103:173-9.
    • (2009) Respir Med , vol.103 , pp. 173-179
    • Orlikowski, D.1    Mroue, G.2    Prigent, H.3
  • 152
    • 0037108621 scopus 로고    scopus 로고
    • Mid-face hypoplasia after long-term nasal ventilation
    • Villa MP, Pagani J, Ambrosio R, et al. Mid-face hypoplasia after long-term nasal ventilation. Am J Respir Crit Care Med 2002;166:1142-3.
    • (2002) Am J Respir Crit Care Med , vol.166 , pp. 1142-1143
    • Villa, M.P.1    Pagani, J.2    Ambrosio, R.3
  • 153
    • 0037390796 scopus 로고    scopus 로고
    • Tracheobronchomalacia and tracheal hemorrhage in patients with Duchenne muscular dystrophy receiving long-term ventilation with uncuffed tracheostomies
    • DOI 10.1378/chest.123.4.1307
    • Baydur A, Kanel G. Tracheobronchomalacia and tracheal hemorrhage in patients with Duchenne muscular dystrophy receiving long-term ventilation with uncuffed tracheostomies. Chest 2003;123:1307-11. (Pubitemid 36444397)
    • (2003) Chest , vol.123 , Issue.4 , pp. 1307-1311
    • Baydur, A.1    Kanel, G.2
  • 154
    • 28044447000 scopus 로고    scopus 로고
    • Tracheobronchial haemorrhage in patients with neuromuscular disorders
    • DOI 10.1016/j.rmed.2005.05.022, PII S0954611105002465
    • Iodice FG, Salzano M, Marri M, et al. Tracheobronchial haemorrhage in patients with neuromuscular disorders. Respir Med 2005;99:1613-15. (Pubitemid 41683945)
    • (2005) Respiratory Medicine , vol.99 , Issue.12 , pp. 1613-1615
    • Iodice, F.G.1    Salzano, M.2    Marri, M.3    Gragnoli, S.4    Lauri, A.5
  • 156
    • 0027380080 scopus 로고
    • A comparison of long-term ventilatory support alternatives from the perspective of the patient and care giver
    • Bach JR. A comparison of long-term ventilatory support alternatives from the perspective of the patient and care giver. Chest 1993;104:1702-6. (Pubitemid 23360095)
    • (1993) Chest , vol.104 , Issue.6 , pp. 1702-1706
    • Bach, J.R.1
  • 157
    • 0036433371 scopus 로고    scopus 로고
    • Quality-of-life evaluation of patients with neuromuscular and skeletal diseases treated with noninvasive and invasive home mechanical ventilation
    • DOI 10.1378/chest.122.5.1695
    • Markstrom A, Sundell K, Lysdahl M, et al. Quality-of-life evaluation of patients with neuromuscular and skeletal diseases treated with noninvasive and invasive home mechanical ventilation. Chest 2002;122:1695-700. (Pubitemid 35366084)
    • (2002) Chest , vol.122 , Issue.5 , pp. 1695-1700
    • Markstrom, A.1    Sundell, K.2    Lysdahl, M.3    Andersson, G.4    Schedin, U.5    Klang, B.6
  • 158
    • 0026620872 scopus 로고
    • Sleep-disordered breathing in patients with Duchenne muscular dystrophy using negative pressure ventilators
    • Hill NS, Redline S, Carskadon MA, et al. Sleep-disordered breathing in patients with Duchenne muscular dystrophy using negative pressure ventilators. Chest 1992;102:1656-62. (Pubitemid 23001203)
    • (1992) Chest , vol.102 , Issue.6 , pp. 1656-1662
    • Hill, N.S.1    Redline, S.2    Carskadon, M.A.3    Curran, F.J.4    Millman, R.P.5
  • 159
    • 0024791765 scopus 로고
    • Oxygen treatment of sleep hypoxaemia in Duchenne muscular dystrophy
    • Smith PE, Edwards RH, Calverley PM. Oxygen treatment of sleep hypoxaemia in Duchenne muscular dystrophy. Thorax 1989;44:997-1001. (Pubitemid 20020720)
    • (1989) Thorax , vol.44 , Issue.12 , pp. 997-1001
    • Smith, P.E.M.1    Edwards, R.H.T.2    Calverley, P.M.A.3
  • 160
    • 0028377299 scopus 로고
    • Use of BiPAP by nasal mask in the treatment of respiratory insufficiency in pediatric patients: Preliminary investigation
    • Padman R, Lawless S, Von Nessen S. Use of BiPAP by nasal mask in the treatment of respiratory insufficiency in pediatric patients: preliminary investigation. Pediatr Pulmonol 1994;17:119-23.
    • (1994) Pediatr Pulmonol , vol.17 , pp. 119-123
    • Padman, R.1    Lawless, S.2    Von Nessen, S.3
  • 161
    • 0032418064 scopus 로고    scopus 로고
    • Noninvasive management of pediatric neuromuscular ventilatory failure
    • DOI 10.1097/00003246-199812000-00042
    • Niranjan V, Bach JR. Noninvasive management of pediatric neuromuscular ventilatory failure. Crit Care Med 1998;26:2061-5. (Pubitemid 29016691)
    • (1998) Critical Care Medicine , vol.26 , Issue.12 , pp. 2061-2065
    • Niranjan, V.1    Bach, J.R.2
  • 162
    • 0034070838 scopus 로고    scopus 로고
    • Non-invasive ventilatory approach to treatment of acute respiratory failure in neuromuscular disorders. A comparison with endotracheal intubation
    • Vianello A, Bevilacqua M, Arcaro G, et al. Non-invasive ventilatory approach to treatment of acute respiratory failure in neuromuscular disorders. A comparison with endotracheal intubation. Intensive Care Med 2000;26:384-90. (Pubitemid 30301518)
    • (2000) Intensive Care Medicine , vol.26 , Issue.4 , pp. 384-390
    • Vianello, A.1    Bevilacqua, M.2    Arcaro, G.3    Gallan, F.4    Serra, E.5
  • 163
    • 33750989851 scopus 로고    scopus 로고
    • Noninvasive ventilation in childhood acute neuromuscular respiratory failure: A pilot study
    • DOI 10.1159/000090777
    • Piastra M, Antonelli M, Caresta E, et al. Noninvasive ventilation in childhood acute neuromuscular respiratory failure: a pilot study. Respiration 2006;73:791-8. (Pubitemid 44795926)
    • (2006) Respiration , vol.73 , Issue.6 , pp. 791-798
    • Piastra, M.1    Antonelli, M.2    Caresta, E.3    Chiaretti, A.4    Polidori, G.5    Conti, G.6
  • 165
    • 0034080695 scopus 로고    scopus 로고
    • Noninvasive ventilation to facilitate extubation in a pediatric intensive care unit
    • DOI 10.1046/j.1525-1489.2000.00099.x
    • Pope JF, Birnkrant DJ. Noninvasive ventilation to facilitate extubation in a pediatric intensive care unit. J Intensive Care Med 2000;15:99-103. (Pubitemid 30164129)
    • (2000) Journal of Intensive Care Medicine , vol.15 , Issue.2 , pp. 99-103
    • Pope, J.F.1    Birnkrant, D.J.2
  • 166
    • 0030876929 scopus 로고    scopus 로고
    • Myoglobinuria, malignant hyperthermia, neuroleptic malignant syndrome and serotonin syndrome
    • DOI 10.1016/S0733-8619(05)70338-8
    • Bertorini TE. Myoglobinuria, malignant hyperthermia, neuroleptic malignant syndrome and serotonin syndrome. Neurol Clin 1997;15:649-71. (Pubitemid 27349707)
    • (1997) Neurologic Clinics , vol.15 , Issue.3 , pp. 649-671
    • Bertorini, T.E.1
  • 167
    • 0024365761 scopus 로고
    • Complications during anaesthesia in patients with Duchenne's muscular dystrophy (a retrospective study)
    • Larsen UT, Juhl B, Hein-Sorensen O, et al. Complications during anaesthesia in patients with Duchenne's muscular dystrophy (a retrospective study). Can J Anaesth 1989;36:418-22. (Pubitemid 19184311)
    • (1989) Canadian Journal of Anaesthesia , vol.36 , Issue.4 , pp. 418-422
    • Larsen, U.T.1    Juhl, B.2    Hein-Sorensen, O.3    Olivarius, B.F.4
  • 168
    • 33645213150 scopus 로고    scopus 로고
    • Muscular dystrophy, anesthesia and the safety of inhalational agents revisited; again
    • Yemen TA, McClain C. Muscular dystrophy, anesthesia and the safety of inhalational agents revisited; again. Paediatr Anaesth 2006;16:105-8.
    • (2006) Paediatr Anaesth , vol.16 , pp. 105-108
    • Yemen, T.A.1    McClain, C.2
  • 169
    • 0018138410 scopus 로고
    • Cardiac arrest during induction of anesthesia in Duchenne muscular dystrophy
    • Seay AR, Ziter FA, Thompson JA. Cardiac arrest during induction of anesthesia in Duchenne muscular dystrophy. J Pediatr 1978;93:88-90. (Pubitemid 8354019)
    • (1978) Journal of Pediatrics , vol.93 , Issue.1 , pp. 88-90
    • Seay, A.R.1    Ziter, F.A.2    Thompson, J.A.3
  • 170
    • 1642461676 scopus 로고    scopus 로고
    • A Review of Intrathecal and Epidural Analgesia after Spinal Surgery in Children
    • Tobias JD. A review of intrathecal and epidural analgesia after spinal surgery in children. Anesth Analg 2004;98:956-65, table of contents. (Pubitemid 38405402)
    • (2004) Anesthesia and Analgesia , vol.98 , Issue.4 , pp. 956-965
    • Tobias, J.D.1
  • 172
    • 0020202070 scopus 로고
    • Evaluation of pulmonary function in muscular dystrophy patients requiring spinal surgery
    • Jenkins JG, Bohn D, Edmonds JF, et al. Evaluation of pulmonary function in muscular dystrophy patients requiring spinal surgery. Crit Care Med 1982;10:645-9.
    • (1982) Crit Care Med , vol.10 , pp. 645-649
    • Jenkins, J.G.1    Bohn, D.2    Edmonds, J.F.3
  • 173
    • 0020385155 scopus 로고
    • Preoperative pulmonary assessment in pediatric neuromuscular disease
    • Silva WJ, Rucker RW, Ewald BA. Preoperative pulmonary assessment in pediatric neuromuscular disease. Anesthesiol Rev 1982;9:35-42. (Pubitemid 13253918)
    • (1982) Anesthesiology Review , vol.9 , Issue.9 , pp. 35-42
    • Silva, W.J.1    Rucker, R.W.2    Ewald, B.A.3
  • 174
    • 27544498815 scopus 로고    scopus 로고
    • Preoperative predictors of prolonged postoperative mechanical ventilation in children following scoliosis repair
    • DOI 10.1002/ppul.20291
    • Yuan N, Skaggs DL, Dorey F, et al. Preoperative predictors of prolonged postoperative mechanical ventilation in children following scoliosis repair. Pediatr Pulmonol 2005;40:414-19. (Pubitemid 41546904)
    • (2005) Pediatric Pulmonology , vol.40 , Issue.5 , pp. 414-419
    • Yuan, N.1    Skaggs, D.L.2    Dorey, F.3    Keens, T.G.4
  • 175
    • 55249085632 scopus 로고    scopus 로고
    • Incidence and risk factors of prolonged mechanical ventilation in neuromuscular scoliosis surgery
    • Udink ten Cate FE, van Royen BJ, van Heerde M, et al. Incidence and risk factors of prolonged mechanical ventilation in neuromuscular scoliosis surgery. J Pediatr Orthop B 2008;17:203-6.
    • (2008) J Pediatr Orthop B , vol.17 , pp. 203-206
    • Udink Ten Cate, F.E.1    Van Royen, B.J.2    Van Heerde, M.3
  • 176
    • 77949304874 scopus 로고    scopus 로고
    • Preoperative inspiratory muscle training for patients with severe scoliosis and high-risk pulmonary dysfunction in duchenne muscular dystrophy
    • Takaso M, Nakazawa T, Imura T, et al. Preoperative inspiratory muscle training for patients with severe scoliosis and high-risk pulmonary dysfunction in duchenne muscular dystrophy. Eur J Orthop Surg Traumatol 2010;20:113-21.
    • (2010) Eur J Orthop Surg Traumatol , vol.20 , pp. 113-121
    • Takaso, M.1    Nakazawa, T.2    Imura, T.3
  • 177
    • 0242572130 scopus 로고    scopus 로고
    • Spinal fusion in patients with Duchenne's muscular dystrophy and a low forced vital capacity
    • DOI 10.1007/s00586-003-0545-8
    • Marsh A, Edge G, Lehovsky J. Spinal fusion in patients with Duchenne's muscular dystrophy and a low forced vital capacity. Eur Spine J 2003;12:507-12. (Pubitemid 37409950)
    • (2003) European Spine Journal , vol.12 , Issue.5 , pp. 507-512
    • Marsh, A.1    Edge, G.2    Lehovsky, J.3
  • 178
    • 10044294744 scopus 로고    scopus 로고
    • The prognostic value of pre-operative predicted forced vital capacity in corrective spinal surgery for Duchenne's muscular dystrophy
    • DOI 10.1111/j.1365-2044.2004.03940.x
    • Harper CM, Ambler G, Edge G. The prognostic value of pre-operative predicted forced vital capacity in corrective spinal surgery for Duchenne's muscular dystrophy. Anaesthesia 2004;59:1160-2. (Pubitemid 39600153)
    • (2004) Anaesthesia , vol.59 , Issue.12 , pp. 1160-1162
    • Harper, C.M.1    Ambler, G.2    Edge, G.3
  • 179
    • 33749536954 scopus 로고    scopus 로고
    • Correction of neuromuscular scoliosis in patients with preexisting respiratory failure
    • DOI 10.1097/01.brs.0000239215.87174.8f, PII 0000763220061001000013
    • Gill I, Eagle M, Mehta JS, et al. Correction of neuromuscular scoliosis in patients with preexisting respiratory failure. Spine 2006;31:2478-83. (Pubitemid 44527031)
    • (2006) Spine , vol.31 , Issue.21 , pp. 2478-2483
    • Gill, I.1    Eagle, M.2    Mehta, J.S.3    Gibson, M.J.4    Bushby, K.5    Bullock, R.6
  • 180
    • 4143113552 scopus 로고    scopus 로고
    • Preoperative polysomnograms and infant pulmonary function tests do not predict prolonged postoperative mechanical ventilation in children following scoliosis repair
    • DOI 10.1002/ppul.20021
    • Yuan N, Skaggs DL, Davidson Ward SL, et al. Preoperative polysomnograms and infant pulmonary function tests do not predict prolonged postoperative mechanical ventilation in children following scoliosis repair. Pediatr Pulmonol 2004;38:256-60. (Pubitemid 39095686)
    • (2004) Pediatric Pulmonology , vol.38 , Issue.3 , pp. 256-260
    • Yuan, N.1    Skaggs, D.L.2    Davidson, W.S.L.3    Platzker, A.C.G.4    Keens, T.G.5
  • 181
    • 78650953244 scopus 로고    scopus 로고
    • Growth and adolescent idiopathic scoliosis: When and how much?
    • DiMeglio A, Canavese F, Charles YP. Growth and adolescent idiopathic scoliosis: when and how much? J Pediatr Orthop 2011;31(1 Suppl):S28-36.
    • (2011) J Pediatr Orthop , vol.31 , Issue.1 SUPPL.
    • DiMeglio, A.1    Canavese, F.2    Charles, Y.P.3
  • 182
    • 12144252501 scopus 로고    scopus 로고
    • The short term effects of an exercise programme as an adjunct to an orthosis in neuromuscular scoliosis
    • Bayar B, Uygur F, Bayar K, et al. The short-term effects of an exercise programme as an adjunct to an orthosis in neuromuscular scoliosis. Prosthet Orthot Int 2004;28:273-7. (Pubitemid 40103699)
    • (2004) Prosthetics and Orthotics International , vol.28 , Issue.3 , pp. 273-277
    • Bayar, B.1    Uygur, F.2    Bayar, K.3    Bek, N.4    Yakut, Y.5
  • 183
    • 84964132859 scopus 로고
    • Spinal bracing and respiratory function in Duchenne muscular dystrophy
    • Miller G, O'Connor J. Spinal bracing and respiratory function in Duchenne muscular dystrophy. Clin Pediatr (Phila) 1985;24:94.
    • (1985) Clin Pediatr (Phila) , vol.24 , pp. 94
    • Miller, G.1    O'Connor, J.2
  • 185
    • 0034753468 scopus 로고    scopus 로고
    • Lung function measurements in young children with spinal muscle atrophy; a cross sectional survey on the effect of position and bracing
    • DOI 10.1136/adc.84.6.521
    • Tangsrud SE, Carlsen KC, Lund-Petersen I, et al. Lung function measurements in young children with spinal muscle atrophy; a cross sectional survey on the effect of position and bracing. Arch Dis Child 2001;84:521-4. (Pubitemid 33027597)
    • (2001) Archives of Disease in Childhood , vol.84 , Issue.6 , pp. 521-524
    • Tangsrud, S.E.1    Lodrup, C.K.C.2    Lund-Petersen, I.3    Carlsen, K.-H.4
  • 188
  • 189
    • 0023185002 scopus 로고
    • Scoliosis management in Duchenne muscular dystrophy: Prospective study of modified Jewett hyperextension brace
    • Colbert AP, Craig C. Scoliosis management in Duchenne muscular dystrophy: prospective study of modified Jewett hyperextension brace. Arch Phys Med Rehab 1987;68:302-4. (Pubitemid 17080693)
    • (1987) Archives of Physical Medicine and Rehabilitation , vol.68 , Issue.5 , pp. 302-304
    • Colbert, A.P.1    Craig, C.2
  • 190
    • 4444291534 scopus 로고    scopus 로고
    • Pulmonary function and scoliosis in children with spinal muscular atrophy types II and III
    • Chng SY, Wong YQ, Hui JH, et al. Pulmonary function and scoliosis in children with spinal muscular atrophy types II and III. J Paediatrics Child Health 2003;39:673-6.
    • (2003) J Paediatrics Child Health , vol.39 , pp. 673-676
    • Chng, S.Y.1    Wong, Y.Q.2    Hui, J.H.3
  • 191
    • 0026602548 scopus 로고
    • Spinal fusion in Duchenne muscular dystrophy: A multidisciplinary approach
    • Shapiro F, Sethna N, Colan S, et al. Spinal fusion in Duchenne muscular dystrophy: a multidisciplinary approach. Muscle Nerve 1992;15:604-14.
    • (1992) Muscle Nerve , vol.15 , pp. 604-614
    • Shapiro, F.1    Sethna, N.2    Colan, S.3
  • 192
    • 33847073275 scopus 로고    scopus 로고
    • Posterior spinal fusion for scoliosis in duchenne muscular dystrophy diminishes the rate of respiratory decline
    • Velasco MV, Colin AA, Zurakowski D, et al. Posterior spinal fusion for scoliosis in duchenne muscular dystrophy diminishes the rate of respiratory decline. Spine 2007;32:459-65.
    • (2007) Spine , vol.32 , pp. 459-465
    • Velasco, M.V.1    Colin, A.A.2    Zurakowski, D.3
  • 193
    • 0026019834 scopus 로고
    • The effect of spine fusion on respiratory function in Duchenne muscular dystrophy
    • Miller RG, Chalmers AC, Dao H, et al. The effect of spine fusion on respiratory function in Duchenne muscular dystrophy. Neurology 1991;41:38-40.
    • (1991) Neurology , vol.41 , pp. 38-40
    • Miller, R.G.1    Chalmers, A.C.2    Dao, H.3
  • 194
    • 0026559925 scopus 로고
    • Spinal stabilisation in Duchenne muscular dystrophy
    • Galasko CS, Delaney C, Morris P. Spinal stabilisation in Duchenne muscular dystrophy. J Bone Joint Surg Br 1992;74(2):210-14.
    • (1992) J Bone Joint Surg Br , vol.74 , Issue.2 , pp. 210-214
    • Galasko, C.S.1    Delaney, C.2    Morris, P.3
  • 195
    • 0028847290 scopus 로고
    • Effect of spinal surgery on lung function in Duchenne muscular dystrophy
    • Kennedy JD, Staples AJ, Brook PD, et al. Effect of spinal surgery on lung function in Duchenne muscular dystrophy. Thorax 1995;50:1173-8.
    • (1995) Thorax , vol.50 , pp. 1173-1178
    • Kennedy, J.D.1    Staples, A.J.2    Brook, P.D.3
  • 198
    • 0024370943 scopus 로고
    • Surgical and functional results of spine fusion in spinal muscular atrophy
    • Brown JC, Zeller JL, Swank SM, et al. Surgical and functional results of spine fusion in spinal muscular atrophy. Spine 1989;14:763-70. (Pubitemid 19184941)
    • (1989) Spine , vol.14 , Issue.7 , pp. 763-770
    • Brown, J.C.1    Zeller, J.L.2    Swank, S.M.3    Furumasu, J.4    Warath, S.L.5
  • 199
    • 77955975378 scopus 로고    scopus 로고
    • Surgical management of severe scoliosis with high risk pulmonary dysfunction in Duchenne muscular dystrophy: Patient function, quality of life and satisfaction
    • Takaso M, Nakazawa T, Imura T, et al. Surgical management of severe scoliosis with high risk pulmonary dysfunction in Duchenne muscular dystrophy: patient function, quality of life and satisfaction. Int Orthop 2010;34:695-702.
    • (2010) Int Orthop , vol.34 , pp. 695-702
    • Takaso, M.1    Nakazawa, T.2    Imura, T.3
  • 200
    • 55649121614 scopus 로고    scopus 로고
    • Early laparoscopic fundoplication and gastrostomy in infants with spinal muscular atrophy type I
    • Durkin ET, Schroth MK, Helin M, et al. Early laparoscopic fundoplication and gastrostomy in infants with spinal muscular atrophy type I. J Pediatr Surg 2008;43:2031-7.
    • (2008) J Pediatr Surg , vol.43 , pp. 2031-2037
    • Durkin, E.T.1    Schroth, M.K.2    Helin, M.3
  • 201
    • 78649759799 scopus 로고    scopus 로고
    • Should fundoplication be added at the time of gastrostomy placement in patients who are neurologically impaired?
    • Kawahara H, Mitani Y, Nose K, et al. Should fundoplication be added at the time of gastrostomy placement in patients who are neurologically impaired? J Pediatr Surg 2010;45:2373-6.
    • (2010) J Pediatr Surg , vol.45 , pp. 2373-2376
    • Kawahara, H.1    Mitani, Y.2    Nose, K.3
  • 202
    • 77955874974 scopus 로고    scopus 로고
    • Is prophylactic fundoplication necessary in neurologically impaired children?
    • Viswanath N, Wong D, Channappa D, et al. Is prophylactic fundoplication necessary in neurologically impaired children? Eur J Pediatr Surg 2010;20:226-9.
    • (2010) Eur J Pediatr Surg , vol.20 , pp. 226-229
    • Viswanath, N.1    Wong, D.2    Channappa, D.3
  • 203
    • 0032077081 scopus 로고    scopus 로고
    • Treatment of type I spinal muscular atrophy with noninvasive ventilation and gastrostomy feeding
    • DOI 10.1016/S0887-8994(97)00227-0, PII S0887899497002270
    • Birnkrant DJ, Pope JF, Martin JE, et al. Treatment of type I spinal muscular atrophy with noninvasive ventilation and gastrostomy feeding. Pediatr Neurol 1998;18:407-10. (Pubitemid 28308707)
    • (1998) Pediatric Neurology , vol.18 , Issue.5 , pp. 407-410
    • Birnkrant, D.J.1    Pope, J.F.2    Martin, J.E.3    Repucci, A.H.4    Eiben, R.M.5
  • 204
    • 73949158466 scopus 로고    scopus 로고
    • Open gastrostomy for noninvasive ventilation users with neuromuscular disease
    • Bach JR, Gonzalez M, Sharma A, et al. Open gastrostomy for noninvasive ventilation users with neuromuscular disease. Am J Phys Med Rehabil 2010;89:1-6.
    • (2010) Am J Phys Med Rehabil , vol.89 , pp. 1-6
    • Bach, J.R.1    Gonzalez, M.2    Sharma, A.3
  • 205
    • 33751435603 scopus 로고    scopus 로고
    • Enterostomy tube placement in children with spinal muscular atrophy type 1
    • DOI 10.1016/j.jpeds.2006.08.048, PII S0022347606008043
    • Sy K, Mahant S, Taback N, et al. Enterostomy tube placement in children with spinal muscular atrophy type 1. J Pediatr 2006;149:837-9. (Pubitemid 44816345)
    • (2006) Journal of Pediatrics , vol.149 , Issue.6 , pp. 837-839
    • Sy, K.1    Mahant, S.2    Taback, N.3    Vajsar, J.4    Chait, P.G.5    Friedman, J.N.6
  • 206
    • 16544395401 scopus 로고    scopus 로고
    • Viral respiratory infections in children with technology dependence and neuromuscular disorders
    • DOI 10.1097/01.inf.0000144670.78558.c7
    • Panitch HB. Viral respiratory infections in children with technology dependence and neuromuscular disorders. Pediatr Infect Dis J 2004;23(11 Suppl):S222-7. (Pubitemid 44146417)
    • (2004) Pediatric Infectious Disease Journal , vol.23 , Issue.11 SUPPL.
    • Panitch, H.B.1
  • 210
    • 84921703316 scopus 로고    scopus 로고
    • Treatment for swallowing difficulties (dysphagia) in chronic muscle disease
    • CD004303
    • Hill M, Hughes T, Milford C. Treatment for swallowing difficulties (dysphagia) in chronic muscle disease. Cochrane Database Syst Rev 2004;(2):CD004303.
    • (2004) Cochrane Database Syst Rev , Issue.2
    • Hill, M.1    Hughes, T.2    Milford, C.3
  • 211
    • 34447124947 scopus 로고    scopus 로고
    • Laparoscopic Nissen fundoplication during gastrostomy tube placement and noninvasive ventilation may improve survival in type I and severe type II spinal muscular atrophy
    • Yuan N, Wang CH, Trela A, et al. Laparoscopic Nissen fundoplication during gastrostomy tube placement and noninvasive ventilation may improve survival in type I and severe type II spinal muscular atrophy. J Child Neurol 2007;22:727-31.
    • (2007) J Child Neurol , vol.22 , pp. 727-731
    • Yuan, N.1    Wang, C.H.2    Trela, A.3
  • 212
    • 34248373341 scopus 로고    scopus 로고
    • Gastrostomy placement in paediatric patients with neuromuscular disorders: Indications and outcome
    • DOI 10.1111/j.1469-8749.2007.00367.x
    • Ramelli GP, Aloysius A, King C, et al. Gastrostomy placement in paediatric patients with neuromuscular disorders: indications and outcome. Dev Med Child Neurol 2007;49:367-71. (Pubitemid 46730689)
    • (2007) Developmental Medicine and Child Neurology , vol.49 , Issue.5 , pp. 367-371
    • Ramelli, G.P.1    Aloysius, A.2    King, C.3    Davis, T.4    Muntoni, F.5
  • 214
    • 75949124376 scopus 로고    scopus 로고
    • Efficacy and tolerance of gastrostomy feeding in Duchenne muscular dystrophy
    • Martigne L, Seguy D, Pellegrini N, et al. Efficacy and tolerance of gastrostomy feeding in Duchenne muscular dystrophy. Clin Nutr 2010;29:60-4.
    • (2010) Clin Nutr , vol.29 , pp. 60-64
    • Martigne, L.1    Seguy, D.2    Pellegrini, N.3
  • 216
    • 59649115078 scopus 로고    scopus 로고
    • Pre-existing disease is associated with a significantly higher risk of death in severe respiratory syncytial virus infection
    • Thorburn K. Pre-existing disease is associated with a significantly higher risk of death in severe respiratory syncytial virus infection. Arch Dis Child 2009;94:99-103.
    • (2009) Arch Dis Child , vol.94 , pp. 99-103
    • Thorburn, K.1
  • 218
    • 78650836617 scopus 로고    scopus 로고
    • Transition to adult services for children and young people with palliative care needs: A systematic review
    • Doug M, Adi Y, Williams J, et al. Transition to adult services for children and young people with palliative care needs: a systematic review. Arch Dis Child 2011;96:78-84.
    • (2011) Arch Dis Child , vol.96 , pp. 78-84
    • Doug, M.1    Adi, Y.2    Williams, J.3
  • 219
    • 31944440366 scopus 로고    scopus 로고
    • Service provision for adults with long-term disability: A review of services for adults with chronic neuromuscular conditions in the United Kingdom
    • DOI 10.1016/j.nmd.2005.11.011, PII S096089660500324X
    • Hill ME, Phillips MF. Service provision for adults with long-term disability: a review of services for adults with chronic neuromuscular conditions in the United Kingdom. Neuromuscul Disord 2006;16:107-12. (Pubitemid 43190742)
    • (2006) Neuromuscular Disorders , vol.16 , Issue.2 , pp. 107-112
    • Hill, M.E.1    Phillips, M.F.2
  • 220
    • 78650832443 scopus 로고    scopus 로고
    • Investing in primary care as the bridge for transitional care
    • Craig F, Rajapakse CD, McNamara K, et al. Investing in primary care as the bridge for transitional care. Arch Dis Child 2011;96:1-2.
    • (2011) Arch Dis Child , vol.96 , pp. 1-2
    • Craig, F.1    Rajapakse, C.D.2    McNamara, K.3
  • 221
    • 33845442767 scopus 로고    scopus 로고
    • New challenges in the management of prolonged survivors of pediatric neuromuscular diseases: A pulmonologist's perspective
    • DOI 10.1002/ppul.20515
    • Birnkrant DJ. New challenges in the management of prolonged survivors of pediatric neuromuscular diseases: a pulmonologist's perspective. Pediatr Pulmonol 2006;41:1113-17. (Pubitemid 44893862)
    • (2006) Pediatric Pulmonology , vol.41 , Issue.12 , pp. 1113-1117
    • Birnkrant, D.J.1
  • 222
    • 12344314856 scopus 로고    scopus 로고
    • Adult life with Duchenne muscular dystrophy: Observations among an emerging and unforeseen patient population
    • DOI 10.1080/13638490400010191
    • Rahbek J, Werge B, Madsen A, et al. Adult life with Duchenne muscular dystrophy: observations among an emerging and unforeseen patient population. Pediatr Rehabil 2005;8:17-28. (Pubitemid 40127948)
    • (2005) Pediatric Rehabilitation , vol.8 , Issue.1 , pp. 17-28
    • Rahbek, J.1    Werge, B.2    Madsen, A.3    Marquardt, J.4    Steffensen, B.F.5    Jeppesen, J.6
  • 223
    • 70049107729 scopus 로고    scopus 로고
    • Transition to adult services for young people with disabilities: Current evidence to guide future research
    • Stewart D. Transition to adult services for young people with disabilities: current evidence to guide future research. Dev Med Child Neurol 2009;51(Suppl 4):169-73.
    • (2009) Dev Med Child Neurol , vol.51 , Issue.SUPPL. 4 , pp. 169-173
    • Stewart, D.1
  • 225
    • 84863324519 scopus 로고    scopus 로고
    • A pilot study to evaluate current practices of transition of young adults from paediatric to adult neuromuscular (NM) clinics
    • Rotimi F, Childs AM, Potrata B. A pilot study to evaluate current practices of transition of young adults from paediatric to adult neuromuscular (NM) clinics. Eur J Neurol 2010;17:532.
    • (2010) Eur J Neurol , vol.17 , pp. 532
    • Rotimi, F.1    Childs, A.M.2    Potrata, B.3
  • 226
    • 0042524580 scopus 로고    scopus 로고
    • Reliability of 4 outcome measures in pediatric spinal muscular atrophy
    • DOI 10.1001/archneur.60.8.1130
    • Iannaccone ST, Hynan LS. Reliability of 4 outcome measures in pediatric spinal muscular atrophy. Arch Neurol 2003;60:1130-6. (Pubitemid 36975803)
    • (2003) Archives of Neurology , vol.60 , Issue.8 , pp. 1130-1136
    • Iannaccone, S.T.1    Hynan, L.S.2
  • 227
    • 77957989520 scopus 로고    scopus 로고
    • Health-related quality of life in boys with duchenne muscular dystrophy: Agreement between parents and their sons
    • Bray P, Bundy AC, Ryan MM, et al. Health-related quality of life in boys with duchenne muscular dystrophy: agreement between parents and their sons. J Child Neurol 2010;25:1188-94.
    • (2010) J Child Neurol , vol.25 , pp. 1188-1194
    • Bray, P.1    Bundy, A.C.2    Ryan, M.M.3
  • 228
    • 70449525150 scopus 로고    scopus 로고
    • The PedsQL in pediatric patients with spinal muscular atrophy: Feasibility, reliability, and validity of the pediatric quality of life Inventory generic core scales and neuromuscular Module
    • Iannaccone ST, Hynan LS, Morton A, et al. The PedsQL in pediatric patients with spinal muscular atrophy: feasibility, reliability, and validity of the pediatric quality of life Inventory generic core scales and neuromuscular Module. Neuromuscul Disord 2009;19:805-12.
    • (2009) Neuromuscul Disord , vol.19 , pp. 805-812
    • Iannaccone, S.T.1    Hynan, L.S.2    Morton, A.3
  • 229
    • 0025835096 scopus 로고
    • Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support
    • Bach JR, Campagnolo DI, Hoeman S. Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support. Am J Phys Med Rehabil 1991;70:129-35.
    • (1991) Am J Phys Med Rehabil , vol.70 , pp. 129-135
    • Bach, J.R.1    Campagnolo, D.I.2    Hoeman, S.3
  • 230
    • 0026514327 scopus 로고
    • Ventilator use by muscular dystrophy association patients
    • Bach JR. Ventilator use by muscular dystrophy association patients. Arch Phys Med Rehabil 1992;73:179-83.
    • (1992) Arch Phys Med Rehabil , vol.73 , pp. 179-183
    • Bach, J.R.1
  • 232
    • 0141859888 scopus 로고    scopus 로고
    • Spinal muscular atrophy-type 1
    • Hardart MK, Truog D. Spinal muscular atrophy-type 1. Arch Dis Child 2003;88:848-50.
    • (2003) Arch Dis Child , vol.88 , pp. 848-850
    • Hardart, M.K.1    Truog, D.2
  • 233
    • 0033846817 scopus 로고    scopus 로고
    • Long-term ventilator support in patients with Werdnig-Hoffmann disease
    • Sakakihara Y, Kubota M, Kim S, et al. Long-term ventilator support in patients with Werdnig-Hoffmann disease. Pediatr Int 2000;42:359-63.
    • (2000) Pediatr Int , vol.42 , pp. 359-363
    • Sakakihara, Y.1    Kubota, M.2    Kim, S.3
  • 235
    • 47049118101 scopus 로고    scopus 로고
    • Parental Stress and Quality of Life in Children With Neuromuscular Disease
    • DOI 10.1016/j.pediatrneurol.2008.04.011, PII S0887899408002403
    • Mah JK, Thannhauser JE, Kolski H, et al. Parental stress and quality of life in children with neuromuscular disease. Pediatr Neurol 2008;39:102-7. (Pubitemid 351970667)
    • (2008) Pediatric Neurology , vol.39 , Issue.2 , pp. 102-107
    • Mah, J.K.1    Thannhauser, J.E.2    Kolski, H.3    Dewey, D.4
  • 236
    • 11844262096 scopus 로고    scopus 로고
    • User perspectives on issues that influence the quality of daily life of ventilator-assisted individuals with neuromuscular disorders
    • Brooks D, King A, Tonack M, et al. User perspectives on issues that influence the quality of daily life of ventilator-assisted individuals with neuromuscular disorders. Can Respir J 2004;11:547-54. (Pubitemid 40089891)
    • (2004) Canadian Respiratory Journal , vol.11 , Issue.8 , pp. 547-554
    • Brooks, D.1    King, A.2    Tonack, M.3    Simson, H.4    Gould, M.5    Goldstein, R.6
  • 238
    • 72049132888 scopus 로고    scopus 로고
    • Self-perception of quality of life by adolescents with neuromuscular diseases
    • Vuillerot C, Hodgkinson I, Bissery A, et al. Self-perception of quality of life by adolescents with neuromuscular diseases. J Adolesc Health 2010;46:70-6.
    • (2010) J Adolesc Health , vol.46 , pp. 70-76
    • Vuillerot, C.1    Hodgkinson, I.2    Bissery, A.3
  • 239
    • 75149150742 scopus 로고    scopus 로고
    • Living and ageing with spinal muscular atrophy type 2: Observations among an unexplored patient population
    • Jeppesen J, Madsen A, Marquardt J, et al. Living and ageing with spinal muscular atrophy type 2: observations among an unexplored patient population. Dev Neurorehabil 2010;13:10-18.
    • (2010) Dev Neurorehabil , vol.13 , pp. 10-18
    • Jeppesen, J.1    Madsen, A.2    Marquardt, J.3
  • 240
    • 34347335503 scopus 로고    scopus 로고
    • Living with muscular dystrophy: Health related quality of life consequences for children and adults
    • Grootenhuis MA, de Boone J, van der Kooi AJ. Living with muscular dystrophy: health related quality of life consequences for children and adults. Health Qual Life Outcomes 2007;5:31.
    • (2007) Health Qual Life Outcomes , vol.5 , pp. 31
    • Grootenhuis, M.A.1    De Boone, J.2    Van Der Kooi, A.J.3
  • 242
    • 34247522015 scopus 로고    scopus 로고
    • Medical considerations of long-term survival of Werdnig-Hoffmann disease
    • DOI 10.1097/PHM.0b013e31804b1d66, PII 0000206020070500000004
    • Bach JR. Medical considerations of long-term survival of Werdnig-Hoffmann disease. Am J Phys Med Rehabil 2007;86:349-55. (Pubitemid 46652191)
    • (2007) American Journal of Physical Medicine and Rehabilitation , vol.86 , Issue.5 , pp. 349-355
    • Bach, J.R.1
  • 243
    • 25644436438 scopus 로고    scopus 로고
    • Quality of life in patients with muscular dystrophy and their next of kin
    • DOI 10.1097/00004356-200506000-00002
    • Bostrom K, Ahlstrom G. Quality of life in patients with muscular dystrophy and their next of kin. Int J Rehabil Res 2005;28:103-9. (Pubitemid 43193765)
    • (2005) International Journal of Rehabilitation Research , vol.28 , Issue.2 , pp. 103-109
    • Bostrom, K.1    Ahlstrom, G.2
  • 244
    • 0033822818 scopus 로고    scopus 로고
    • Long-term tracheostomy ventilation in neuromuscular diseases: Patient acceptance and quality of life
    • Narayanaswami P, Bertorini TE, Pourmand R, et al. Long-term tracheostomy ventilation in neuromuscular diseases: patient acceptance and quality of life. Neurorehabil Neural Repair 2000;14:135-9.
    • (2000) Neurorehabil Neural Repair , vol.14 , pp. 135-139
    • Narayanaswami, P.1    Bertorini, T.E.2    Pourmand, R.3
  • 245
    • 77954035326 scopus 로고    scopus 로고
    • Sleep and well-being in young men with neuromuscular disorders receiving non-invasive ventilation and their carers
    • Read J, Simonds A, Kinali M, et al. Sleep and well-being in young men with neuromuscular disorders receiving non-invasive ventilation and their carers. Neuromuscul Disord 2010;20:458-63.
    • (2010) Neuromuscul Disord , vol.20 , pp. 458-463
    • Read, J.1    Simonds, A.2    Kinali, M.3
  • 246
    • 36348954970 scopus 로고    scopus 로고
    • Physician attitudes towards ventilatory support for spinal muscular atrophy type 1 in Australasia
    • DOI 10.1111/j.1440-1754.2007.01197.x
    • Geevasinga N, Ryan MM. Physician attitudes towards ventilatory support for spinal muscular atrophy type 1 in Australasia. J Paediatrics Child Health 2007;43:790-4. (Pubitemid 350150840)
    • (2007) Journal of Paediatrics and Child Health , vol.43 , Issue.12 , pp. 790-794
    • Geevasinga, N.1    Ryan, M.M.2
  • 247
    • 18844474412 scopus 로고    scopus 로고
    • Respiratory support in spinal muscular atrophy type I: A survey of physician practices and attitudes
    • Hardart MK, Burns JP, Truog RD. Respiratory support in spinal muscular atrophy type I: a survey of physician practices and attitudes. Pediatrics 2002;110:e24.
    • (2002) Pediatrics , vol.110
    • Hardart, M.K.1    Burns, J.P.2    Truog, R.D.3
  • 248
    • 77952578257 scopus 로고    scopus 로고
    • Why does the provision of home mechanical ventilation vary so widely?
    • Dybwik K, Tollali T, Nielsen EW, et al. Why does the provision of home mechanical ventilation vary so widely? Chronic Respir Dis 2010;7:67-73.
    • (2010) Chronic Respir Dis , vol.7 , pp. 67-73
    • Dybwik, K.1    Tollali, T.2    Nielsen, E.W.3
  • 249
    • 0035092299 scopus 로고    scopus 로고
    • Long-term ventilation for patients with Duchenne muscular dystrophy: Physicians' beliefs and practices
    • DOI 10.1378/chest.119.3.940
    • Gibson B. Long-term ventilation for patients with Duchenne muscular dystrophy: physicians' beliefs and practices. Chest 2001;119:940-6. (Pubitemid 32201150)
    • (2001) Chest , vol.119 , Issue.3 , pp. 940-946
    • Gibson, B.1
  • 250
    • 0024561619 scopus 로고
    • Patient and family participation in the management of respiratory failure in Duchenne's muscular dystrophy
    • Gilgoff I, Prentice W, Baydur A. Patient and family participation in the management of respiratory failure in Duchenne's muscular dystrophy. Chest 1989;95:519-24. (Pubitemid 19094436)
    • (1989) Chest , vol.95 , Issue.3 , pp. 519-524
    • Gilgoff, I.1    Prentice, W.2    Baydur, A.3
  • 252
    • 0025104613 scopus 로고
    • Ventilator dependency: Decision-making, daily functioning and quality of life for patients with Duchenne muscular dystrophy
    • Miller JR, Colbert AP, Osberg JS. Ventilator dependency: decision-making, daily functioning and quality of life for patients with Duchenne muscular dystrophy. Dev Med Child Neurol 1990;32:1078-86. (Pubitemid 20368164)
    • (1990) Developmental Medicine and Child Neurology , vol.32 , Issue.12 , pp. 1078-1086
    • Miller, J.R.1    Colbert, A.P.2    Osberg, J.S.3
  • 253
    • 0842306289 scopus 로고    scopus 로고
    • Outcome of children with neuromuscular disease admitted to paediatric intensive care
    • DOI 10.1136/adc.2002.019562
    • Yates K, Festa M, Gillis J, et al. Outcome of children with neuromuscular disease admitted to paediatric intensive care. Arch Dis Childhood 2004;89:170-5. (Pubitemid 38168979)
    • (2004) Archives of Disease in Childhood , vol.89 , Issue.2 , pp. 170-175
    • Yates, K.1    Festa, M.2    Gillis, J.3    Waters, K.4    North, K.5
  • 254
    • 77955372486 scopus 로고    scopus 로고
    • The effect of caregiving on women in families with Duchenne/Becker muscular dystrophy
    • Kenneson A, Bobo JK. The effect of caregiving on women in families with Duchenne/Becker muscular dystrophy. Health Soc Care Community 2010;18:520-8.
    • (2010) Health Soc Care Community , vol.18 , pp. 520-528
    • Kenneson, A.1    Bobo, J.K.2
  • 255
    • 0026512215 scopus 로고
    • The role of parent stress and coping and family functioning in parent and child adjustment to Duchenne muscular dystrophy
    • Thompson RJ Jr, Zeman JL, Fanurik D, et al. The role of parent stress and coping and family functioning in parent and child adjustment to Duchenne muscular dystrophy. J Clin Psychol 1992;48:11-19.
    • (1992) J Clin Psychol , vol.48 , pp. 11-19
    • Thompson Jr., R.J.1    Zeman, J.L.2    Fanurik, D.3
  • 256
    • 3142574829 scopus 로고    scopus 로고
    • Depression in parents of children with duchenne muscular dystrophy
    • DOI 10.1016/j.pediatrneurol.2004.01.011, PII S0887899404000967
    • Abi Daoud MS, Dooley JM, Gordon KE. Depression in parents of children with Duchenne muscular dystrophy. Pediatr Neurol 2004;31:16-19. (Pubitemid 38902844)
    • (2004) Pediatric Neurology , vol.31 , Issue.1 , pp. 16-19
    • Abi, D.M.S.1    Dooley, J.M.2    Gordon, K.E.3
  • 257
    • 33749264062 scopus 로고    scopus 로고
    • 'My Son Is Still Walking': Stages of Receptivity to Discussions of Advance Care Planning Among Parents of Sons With Duchenne Muscular Dystrophy
    • DOI 10.1016/j.spen.2006.06.009, PII S1071909106000994, Update in Hereditary Childhood Neuromuscular Diseases
    • Erby LH, Rushton C, Geller G. 'My son is still walking': stages of receptivity to discussions of advance care planning among parents of sons with Duchenne muscular dystrophy. Semin Pediatr Neurol 2006;13:132-40. (Pubitemid 44486828)
    • (2006) Seminars in Pediatric Neurology , vol.13 , Issue.2 , pp. 132-140
    • Erby, L.H.1    Rushton, C.2    Geller, G.3
  • 258
    • 77955787947 scopus 로고    scopus 로고
    • Mothers' depression and health-related quality of life in neuromuscular diseases: Role of functional independence level of the children
    • Yilmaz O, Yildirim SA, Oksuz C, et al. Mothers' depression and health-related quality of life in neuromuscular diseases: role of functional independence level of the children. Pediatrics Int 2010;52:648-52.
    • (2010) Pediatrics Int , vol.52 , pp. 648-652
    • Yilmaz, O.1    Yildirim, S.A.2    Oksuz, C.3
  • 259
    • 77952347707 scopus 로고    scopus 로고
    • Social comparison within self-help groups: Views of parents of children with Duchenne muscular dystrophy
    • Hodges L, Dibb B. Social comparison within self-help groups: views of parents of children with Duchenne muscular dystrophy. J Health Psychol 2010;15:483-92.
    • (2010) J Health Psychol , vol.15 , pp. 483-492
    • Hodges, L.1    Dibb, B.2
  • 260
    • 0036193190 scopus 로고    scopus 로고
    • Abdominal pressure during laparoscopy: Effects of fentanyl
    • DOI 10.1093/bja/88.3.384
    • Drummond GB, Duncan MK. Abdominal pressure during laparoscopy: effects of fentanyl. Br J Anaesth 2002;88:384-8. (Pubitemid 34213585)
    • (2002) British Journal of Anaesthesia , vol.88 , Issue.3 , pp. 384-388
    • Drummond, G.B.1    Duncan, M.K.2
  • 261
    • 79958797327 scopus 로고    scopus 로고
    • Hospice provision and usage amongst young people with neuromuscular disease in the United Kingdom
    • Fraser LK, Aldridge J, Manning S, et al. Hospice provision and usage amongst young people with neuromuscular disease in the United Kingdom. Eur J Paediatr Neurol 2011;15:326-30.
    • (2011) Eur J Paediatr Neurol , vol.15 , pp. 326-330
    • Fraser, L.K.1    Aldridge, J.2    Manning, S.3
  • 262
    • 0036358705 scopus 로고    scopus 로고
    • Assessment of pain and health-related quality of life in slowly progressive neuromuscular disease
    • Abresch RT, Carter GT, Jensen MP, et al. Assessment of pain and health-related quality of life in slowly progressive neuromuscular disease. Am J Hosp Palliat Med 2002;19:39-48.
    • (2002) Am J Hosp Palliat Med , vol.19 , pp. 39-48
    • Abresch, R.T.1    Carter, G.T.2    Jensen, M.P.3
  • 263
    • 47149118326 scopus 로고    scopus 로고
    • Pain and activity limitations in children with Duchenne or Becker muscular dystrophy
    • DOI 10.1111/j.1469-8749.2008.03005.x
    • Zebracki K, Drotar D. Pain and activity limitations in children with Duchenne or Becker muscular dystrophy. Dev Med Child Neurol 2008;50:546-52. (Pubitemid 351973640)
    • (2008) Developmental Medicine and Child Neurology , vol.50 , Issue.7 , pp. 546-552
    • Zebracki, K.1    Drotar, D.2
  • 266
    • 58149231401 scopus 로고    scopus 로고
    • How I wish to be remembered: The use of an advance care planning document in adolescent and young adult populations
    • Wiener L, Ballard E, Brennan T, et al. How I wish to be remembered: the use of an advance care planning document in adolescent and young adult populations. J Palliat Med 2008;11:1309-13.
    • (2008) J Palliat Med , vol.11 , pp. 1309-1313
    • Wiener, L.1    Ballard, E.2    Brennan, T.3
  • 267
    • 0024330733 scopus 로고
    • Long-term ventilatory support in spinal muscular atrophy
    • DOI 10.1016/S0022-3476(89)80740-1
    • Gilgoff IS, Kahlstrom E, MacLaughlin E, et al. Long-term ventilatory support in spinal muscular atrophy. J Pediatr 1989;115:904-9. (Pubitemid 20007075)
    • (1989) Journal of Pediatrics , vol.115 , Issue.6 , pp. 904-909
    • Gilgoff, I.S.1    Kahlstrom, E.2    MacLaughlin, E.3    Keens, T.G.4
  • 268
    • 77954962221 scopus 로고    scopus 로고
    • Joseph's wishes: Ethical decision-making in Duchenne muscular dystrophy
    • Penner L, Cantor RM, Siegel L. Joseph's wishes: ethical decision-making in Duchenne muscular dystrophy. Mt Sinai J Med 2010;77:394-7.
    • (2010) Mt Sinai J Med , vol.77 , pp. 394-397
    • Penner, L.1    Cantor, R.M.2    Siegel, L.3
  • 269
    • 0038545193 scopus 로고    scopus 로고
    • Mapping the journey: Family carers' perceptions of issues related to end-stage care of individuals with muscular dystrophy or motor neurone disease
    • Dawson S, Kristjanson LJ. Mapping the journey: family carers' perceptions of issues related to end-stage care of individuals with muscular dystrophy or motor neurone disease. J Palliat Care 2003;19:36-42. (Pubitemid 37140480)
    • (2003) Journal of Palliative Care , vol.19 , Issue.1 , pp. 36-42
    • Dawson, S.1    Kristjanson, L.J.2
  • 270
    • 0033016576 scopus 로고    scopus 로고
    • The role of palliative care in advanced muscular dystrophy and spinal muscular atrophy
    • DOI 10.1046/j.1440-1754.1999.00351.x
    • Parker D, Maddocks I, Stern LM. The role of palliative care in advanced muscular dystrophy and spinal muscular atrophy. J Paediatr Child Health 1999;35:245-50. (Pubitemid 29282271)
    • (1999) Journal of Paediatrics and Child Health , vol.35 , Issue.3 , pp. 245-250
    • Parker, D.1    Maddocks, I.2    Stern, L.M.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.