"My Son Is Still Walking": Stages of Receptivity to Discussions of Advance Care Planning Among Parents of Sons With Duchenne Muscular Dystrophy

Seminars in Pediatric Neurology

Volumn 13, Issue 2, 2006, Pages 132-140

  Erby, Lori Hamby ^a   Rushton, Cynda ^b,c,d   Geller, Gail ^a,b,d  

^a JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

^b JOHNS HOPKINS UNIVERSITY   (United States)

^c JOHNS HOPKINS UNIVERSITY SCHOOL OF NURSING   (United States)

^d JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

advance care planning; Duchenne muscular dystrophy; ethics; parent child relationship

Indexed keywords

ADULT; AVOIDANCE BEHAVIOR; CHILD PARENT RELATION; DUCHENNE MUSCULAR DYSTROPHY; EMOTIONALITY; HEALTH CARE PLANNING; HUMAN; INTERPERSONAL COMMUNICATION; INTERVIEW; LIFE EVENT; MEDICAL RESEARCH; MODEL; PARENT COUNSELING; PARENTAL ATTITUDE; PATIENT CARE; PERSONAL EXPERIENCE; REVIEW; TREATMENT OUTCOME;

ADOLESCENT; ADULT; ADVANCE CARE PLANNING; ATTITUDE; CHILD; CHILD, PRESCHOOL; COMMUNICATION; FEMALE; HUMANS; MALE; MIDDLE AGED; MUSCULAR DYSTROPHY, DUCHENNE; NUCLEAR FAMILY; PARENT-CHILD RELATIONS; WALKING;

EID: 33749264062     PISSN: 10719091     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.spen.2006.06.009     Document Type: Review

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