Why does the provision of home mechanical ventilation vary so widely?

Chronic Respiratory Disease

Volumn 7, Issue 2, 2010, Pages 67-73

  Dybwik, Knut ^a   Tollåli, Terje ^a   Nielsen, Erik Waage ^a,b   Brinchmann, Berit Støre ^c  

^a NORDLAND HOSPITAL   (Norway)

^b UNIVERSITY OF TROMSØ   (Norway)

^c NORD UNIVERSITY   (Norway)

Author keywords

Enthusiasm; Focus groups; Grounded theory; Home mechanical ventilation; Provision

Indexed keywords

ARTICLE; ARTIFICIAL VENTILATION; CLINICAL DECISION MAKING; CULTURAL FACTOR; EUROPE; GEOGRAPHIC DISTRIBUTION; GROUNDED THEORY; HEALTH CARE DELIVERY; HOME MECHANICAL VENTILATION; INTERDISCIPLINARY COMMUNICATION; NORWAY; PHYSICIAN; PREVALENCE; PRIORITY JOURNAL; PROFESSIONAL COMPETENCE; CLINICAL TRIAL; COMPARATIVE STUDY; DEVICES; HEALTH CARE SURVEY; HOME CARE; HUMAN; INCIDENCE; MECHANICAL VENTILATOR; MULTICENTER STUDY; RESPIRATORY TRACT DISEASES; STATISTICS AND NUMERICAL DATA; TRACHEOSTOMY; UTILIZATION;

HEALTH CARE SURVEYS; HOME CARE SERVICES; HUMANS; INCIDENCE; NORWAY; RESPIRATION, ARTIFICIAL; RESPIRATORY TRACT DISEASES; TRACHEOSTOMY; VENTILATORS, MECHANICAL;

EID: 77952578257     PISSN: 14799723     EISSN: 14799731     Source Type: Journal    
DOI: 10.1177/1479972309357497     Document Type: Article

References (23)

1. Lloyd-Owen SJ, Donaldson GC, Ambrosino N., et al. Patterns of home mechanical ventilation use in Europe: results from the Eurovent survey. Eur Resp J 2005 ; 25: 1025-1031. (Pubitemid 40823777)
2. Tollefsen E., Gulsvik A., Bakke P., Fondenes O. Prevalence of home ventilation therapy in Norway. Tidsskr Nor Laegeforen 2009 ; 129: 2094-2097.
3. The Norwegian Council for Quality Improvement and Priority Setting in Health Care: Home Mechanical Ventilation. [document on the internet] [updated 2008 May 26]. [cited 2009 June 25]; Available from: http://www. kvalitetogprioritering.no/binary?id=2956 (accessed 25 June 2008).
4. Laub M., Berg S., Midgren B. Home mechanical ventilation in Sweden-inequalities within a homogenous health care system. Respir Med 2004 ; 98: 38-42. (Pubitemid 38100753)
5. Midgren B., Schedin U., Olofson J. Artificial respiration at home seen in a 5-year perspective. Established treatment, but remarkable differences among the counties. Lakartidningen 2000 ; 97: 5483-5490.
6. Bach JR Ventilator use by muscular dystrophy association patients. Arch Phys Med Rehabil 1992 ; 73: 179-183.
7. Kitzinger J. Qualitative research. Introducing focus groups. BMJ 1995 ; 311: 299-302.
8. Powell RA, Single HM Focus groups. Int J Qual Health Care 1996 ; 8: 499-504. (Pubitemid 126484856)
9. Morgan D., Kreuger RA The focus group kit. London: Sage, 1997.
10. Strauss A., Corbin J. Basics of qualitative research. Grounded Theory procedures and techniques, 2 nd ed. Thousand Oaks, CA: SAGE, 1998.
11. Wisborg T., Brattebo G. Keeping the spirit high: why trauma team training is (sometimes) implemented. Acta Anaesthesiol.Scand. 2008 ; 52: 437-441. (Pubitemid 351207962)
12. Midgren B., Olofson J., Harlid R., Dellborg C., Jacobsen E., Norregaard O. Home mechanical ventilation in Sweden, with reference to Danish experiences. Swedish Society of Chest Medicine. Respir Med 2000 ; 94: 135-138.
13. Fauroux B., Boffa C., Desguerre I., Estournet B., Trang H. Long-term noninvasive mechanical ventilation for children at home: a national survey. Pediatr Pulmonol 2003 ; 35: 119-125. (Pubitemid 36177106)
14. Lindahl B., Sandman PO, Rasmussen BH Meanings of living at home on a ventilator. Nurs Inq 2003 ; 10: 19-27. (Pubitemid 37266784)
15. Norwegian Medical Center for Home Mechanical Ventilation: Information in English.[document on the internet] [updated 2003]. Available from: http://www.helse-bergen.no/avd/hjemmerespiratorbehandling/english/inenglish.htm (accessed 21 June 2008).
16. Gibson B. Long-term ventilation for patients with Duchenne muscular dystrophy: physicians' beliefs and practices. Chest 2001 ; 119: 940-946. (Pubitemid 32201150)
17. Bach JR, Campagnolo DI, Hoeman S. Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support. Am J Phys Med Rehabil 1991 ; 70: 129-135.
18. Ballangrud R., Bogsti WB, Johansson IS Clients' experiences of living at home with a mechanical ventilator. J Adv Nurs 2009 ; 65: 425-434.
19. Brooks D., King A., Tonack M., Simson H., Gould M., Goldstein R. User perspectives on issues that influence the quality of daily life of ventilator-assisted individuals with neuromuscular disorders. Can Respir J 2004 ; 11: 547-554. (Pubitemid 40089891)
20. Dreyer PS Life on a ventilator. Department of Nursing Science, University of Aarhus, Aarhus, 2004.
21. Markstrom A., Sundell K., Lysdahl M., Andersson G., Schedin U., Klang B. Quality-of-life evaluation of patients with neuromuscular and skeletal diseases treated with noninvasive and invasive home mechanical ventilation. Chest 2002 ; 122: 1695-1700. (Pubitemid 35366084)
22. Malterud K. Qualitative research: standards, challenges, and guidelines. Lancet 2001 ; 358: 483-488.
23. Glaser B. Theoretical sensitivity. Mill Valley, CA: The Sociology Press, 1978.