Barriers to effective cancer pain management: A survey of Australian family caregivers

European Journal of Cancer Care

Volumn 13, Issue 4, 2004, Pages 336-343

  Aranda, S ^a   Yates, P ^b   Edwards, H ^b   Nash, R ^b   Skerman, H ^b   Mccarthy, A ^c  

^a PETER MACCALLUM CANCER CENTRE   (Australia)

^b QUEENSLAND UNIVERSITY OF TECHNOLOGY   (Australia)

^c GRIFFITH UNIVERSITY   (Australia)

Author keywords

Attitudes; Barriers; Beliefs; Cancer pain; Family

Indexed keywords

OPIATE;

ADULT; AGED; AUSTRALIA; CANCER PAIN; CAREGIVER; CONSTIPATION; DISEASE COURSE; DROWSINESS; DRUG EFFICACY; DRUG TOLERANCE; FAMILY; FEMALE; HEALTH SURVEY; HUMAN; MALE; NAUSEA; OPIATE ADDICTION; OUTPATIENT; REVIEW;

ADULT; AGED; AGED, 80 AND OVER; ANALGESICS, OPIOID; ATTITUDE TO HEALTH; AUSTRALIA; CAREGIVERS; DRUG TOLERANCE; FAMILY; FEMALE; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; PAIN; PALLIATIVE CARE;

EID: 4444298128     PISSN: 09615423     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1365-2354.2004.00483.x     Document Type: Review

References (40)

1. Aranda S. (1999) A pain assessment approach to nursing the person with complex pain. In: Palliative Care Nursing: A Guide to Practice (eds Aranda S. & O'Connor M.), pp. 177-195. Ausmed, Melbourne.
2. Aranda S. & Hayman-White K. (2001) Home caregivers of the person with advanced cancer: an Australian perspective. Cancer Nursing 24, 300-307.
3. Berry P.E. & Ward S.E. (1995) Barriers to pain management in hospice: a study of family caregivers. Hospice Journal 10, 19-33.
4. Chen M. (1999) Validation of the structure of the perceived meanings of cancer pain inventory. Journal of Advanced Nursing 30, 344-351.
5. Cleeland C.S., Gonin R., Hatfield A.K., Edmonson J.H., Blum R.H., Stewart J.A. & Pandya K.J. (1994) Pain and its treatment in outpatients with metastatic cancer. New England Journal of Medicine 330, 592-596.
6. Elliott B.A., Elliott T.E., Murray D.M., Braun B.L. & Johnson K.M. (1996) Patients and family members: the role of knowledge and attitudes in cancer pain. Journal of Pain and Symptom Management 12, 209-220.
7. Ersek M., Kraybill B.M. & Pen A.D. (1999) Factors hindering patients' use of medications for cancer pain. Cancer Practice 7, 226-232.
8. Ferrell B.R. (1995) The impact of pain on quality of life. A decade of research. Nursing Clinics of North America 30, 609-624.
9. Ferrell B.R. & Dean G. (1995) The meaning of cancer pain. Seminars in Oncology Nursing 11, 17-22.
10. Ferrell B.R., Taylor E.J., Grant M., Fowler M. & Corbisiero R.M. (1993) Pain management at home: struggle, comfort, and mission. Cancer Nursing 16, 169-178.
11. Frank A.W. (1995) The Wounded Storyteller: Body, Illness and Ethics. University of Chicago Press, Chicago.
12. Given B.A., Given C.W. & Kozachik S. (2001) Family support in advanced cancer. CA: a Cancer Journal for Clinicians 51, 213-231.
13. Kelly B., Burnett P., Pelusi D., Badger S., Varghese F. & Robertson M. (2002) Terminally ill cancer patients' wish to hasten death. Palliative Medicine 16, 339-345.
14. Kissane D., Street A. & Nitschke P. (1998) Seven deaths in Darwin: case studies under the Rights of the Terminally Ill Act, Northern Territory, Australia. Lancet 352, 1097-1102.
15. Kleinman A. (1988) The Illness Narratives: Suffering, Healing and the Human Condition. Basic Books, New York.
16. Kuuppelomaki M. (2000) Attitudes of cancer patients, their family members and health professionals toward active euthanasia. European Journal of Cancer 9, 16-21.
17. Lancee W.J., Vachon M.L.S., Ghadirian P., Adair W., Conway B. & Dryer D. (1994) The impact of pain and impaired role performance on distress in persons with cancer. Canadian Journal of Psychiatry 39 (December), 617-622.
18. Levin R. (1999) Cancer and the self: how illness constellates meaning. In: Health Studies: a Critical and Cross-Cultural Reader (ed. Samson C.). Blackwell, Oxford.
19. Lin C. (2000) Barriers to the analgesic management of cancer pain: a comparison of attitudes of Taiwanese patients and their family caregivers. Pain 88, 7-14.
20. Lin C. (2001) Congruity of cancer pain perceptions between Taiwanese patients and family caregivers: relationship to patients' concerns about reporting pain and using analgesics. Journal of Pain and Symptom Management 21, 18-26.
21. Lin C., Wang P., Lai Y., Lin C., Tsai S. & Chen T.T. (2000) Identifying attitudinal barriers to family management of cancer pain in palliative care in Taiwan. Palliative Medicine 14, 463-470.
22. Miaskowski C., Kragness L. et al. (1997a) Differences in mood states, health status, and caregivers of oncology outpatients with and without cancer-related pain. Journal of Pain and Symptom Management 13, 138-147.
23. Miaskowski C., Zimmer E.F. et al. (1997b) Differences in patients' and family caregivers' perceptions of the pain experience influence patient and caregiver outcomes. Pain 72, 217-226.
24. O'Brien S., Dalton J.A. et al. (1996) The knowledge and attitudes of experienced oncology nurses regarding the management of cancer-related pain. Oncology Nursing Forum 23, 515-521.
25. Orr R.D. (2001) Pain management rather than assisted suicide: the ethical high ground. Pain Medicine 2, 131-137.
26. Pargeon K.L. & Hailey B.J. (1999) Barriers to effective cancer pain management: a review of the literature. Journal of Pain and Symptom Management 18, 358-368.
27. Potter V.T., Wiseman E., Dunn S.M. & Boyle F.M. (2003) Patient barriers to optimal cancer pain control. Psycho-Oncology 12, 153-160.
28. Redinbaugh E.M., Baum A., DeMoss C., Fello M. & Arnold R. (2002) Factors associated with the accuracy of family caregiver estimates of patient pain. Journal of Pain and Symptom Management 23, 31-38.
29. Taylor E.J., Ferrell B.R., Grant M. & Cheyney L. (1993) Managing cancer pain at home: the decisions and ethical conflicts of patients, family caregivers, and homecare nurses. Oncology Nursing Forum 20, 919-927.
30. Thomason T.E., McCune J.S., Bernard S.A., Winer E.P., Tremont S. & Lindley C.M. (1998) Cancer pain survey: patient-centered issues in control. Journal of Pain and Symptom Management 15, 275-284.
31. Ward S.E., Berry P.E. & Misiewicz H. (1996) Concerns about analgesics among patients and family caregivers in a hospice setting. Research in Nursing and Health 19, 205-211.
32. Ward S. & Gatwood J. (1994) Concerns about reporting pain and using analgesics: a comparison of persons with and without cancer pain. Cancer Nursing 17, 200-206.
33. Ward S.E., Goldberg N., Miller-McCauley V., Mueller C., Nolan A., Pawlik-Plank D., Robbins A., Stormoen D. & Weissman D.E. (1993) Patient-related barriers to management of cancer pain. Pain 52, 319-324.
34. Ward S.E. & Hernandez L. (1994) Patient-related barriers to management of cancer pain in Puerto Rico. Pain 58, 233-238.
35. WHO (1996) Cancer Pain Relief, 2nd edn, with a guide to opioid availability. WHO, Geneva.
36. Woodruff R. (1993) Palliative Medicine. Asperula, Melbourne.
37. Woodruff R. (1996) Cancer Pain. Asperula, Melbourne.
38. Yates P., Edwards H., Nash R., Walsh A., Fentiman B.J., Skerman H. & Najman J.M. (2002) Barriers to effective pain management: a survey of cancer patients in Australian hospitals. Journal of Pain and Symptom Management 23, 393-405.
39. Yates P., Aranda S., Edwards H., Nash R., Skerman H. & McCarthy A. (2004) Family caregivers' experiences and involvement with cancer pain management. Journal of Palliative Care (in press).
40. Yeager K.A., Miaskowski C., Dibble S.L. & Wallhagen M. (1995) Differences in pain knowledge and perception of the pain experience between outpatients with cancer and their family caregivers. Oncology Nursing Forum 22, 1235-1241.