메뉴 건너뛰기




Volumn 35, Issue 1, 2012, Pages 24-44

Parental stress in families of children with a genetic disorder/disability and the resiliency model of family stress, adjustment, and adaptation

Author keywords

disability; family adaptation; genetic disorder; Parental stress; resiliency

Indexed keywords


EID: 84856037092     PISSN: 01460862     EISSN: 1521043X     Source Type: Journal    
DOI: 10.3109/01460862.2012.646479     Document Type: Article
Times cited : (61)

References (49)
  • 2
    • 0034178262 scopus 로고    scopus 로고
    • Sickle hemoglobin (Hb S) allele and sickle cell disease: A HuGE review
    • Ashley-Koch, A., Yang, Q., & Olney, R. S. (2000). Sickle hemoglobin (Hb S) allele and sickle cell disease: A huge review. American Journal of Epidemiology, 151(9), 839-845. (Pubitemid 30461125)
    • (2000) American Journal of Epidemiology , vol.151 , Issue.9 , pp. 839-845
    • Ashley-Koch, A.1    Yang, Q.2    Olney, R.S.3
  • 3
    • 1842457808 scopus 로고    scopus 로고
    • Practice Parameter: Diagnostic assessment of the child with cerebral palsy: Report of the Quality Standards Subcommittee of the American Academy of Neurology and the Practice Committee of the Child Neurology Society
    • Ashwal, S., Russman, B. S., Blasco, P. A., Miller, G., Sandler, A., Shevell, M., & Stevenson, R. (2004). Practice parameter: Diagnostic assessment of the child with cerebral palsy: Report of the Quality Standards Subcommittee of the American Academy of Neurology and the Practice Committee of the Child Neurology Society. Neurology, 62, 851-863. (Pubitemid 38435769)
    • (2004) Neurology , vol.62 , Issue.6 , pp. 851-863
    • Ashwal, S.1    Russman, B.S.2    Blasco, P.A.3    Miller, G.4    Sandler, A.5    Shevell, M.6    Stevenson, R.7
  • 5
    • 51049121154 scopus 로고    scopus 로고
    • Quality of life among adolescents with sickle cell disease: Mediation of pain internalizing symptoms and parenting stress
    • Retrieved August 10, 2010, from
    • Barakat, L. P., Patterson, C. A., Daniel, L. C., & Dampier, C. (2008). Quality of life among adolescents with sickle cell disease: Mediation of pain internalizing symptoms and parenting stress. Health & Quality of Life Outcomes, 6, 1-9. Retrieved August 10, 2010, from http://www.ncbi.nlm.nih.gov/ pmc/articles/PMC2526071/pdf/1477-7525-6-60.pdf
    • (2008) Health & Quality of Life Outcomes , vol.6 , pp. 1-9
    • Barakat, L.P.1    Patterson, C.A.2    Daniel, L.C.3    Dampier, C.4
  • 6
    • 0034951168 scopus 로고    scopus 로고
    • Social information processing and magnetic resonance imaging in children with sickle cell disease
    • DOI 10.1093/jpepsy/26.5.309
    • Boni, L. C., Brown, R. T., Davis, P. C., Hsu, L., & Hopkins, K. (2001). Social information processing and magnetic resonance imaging in children with sickle cell disease. Journal of Pediatric Psychology, 26(5), 309-319. (Pubitemid 32591997)
    • (2001) Journal of Pediatric Psychology , vol.26 , Issue.5 , pp. 309-319
    • Boni, L.C.1    Brown, R.T.2    Davis, P.C.3    Hsu, L.4    Hopkins, K.5
  • 8
    • 68349107932 scopus 로고    scopus 로고
    • A review of the research on solution-focused therapy
    • Corcoran, J. & Pillai, V. (2009). A review of the research on solution-focused therapy. The British Journal of Social Work, 39(2), 234-242.
    • (2009) The British Journal of Social Work , vol.39 , Issue.2 , pp. 234-242
    • Corcoran, J.1    Pillai, V.2
  • 9
    • 77949299655 scopus 로고    scopus 로고
    • Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome
    • Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54(Part 3), 266-280.
    • (2010) Journal of Intellectual Disability Research , vol.54 , Issue.PART 3 , pp. 266-280
    • Dabrowska, A.1    Pisula, E.2
  • 10
    • 3042850666 scopus 로고    scopus 로고
    • Primary care supports for children with chronic health conditions: Identifying and predicting unmet family needs
    • DOI 10.1093/jpepsy/jsh039
    • Farmer, J. E., Marien, W. E., Clark, M. J., Sherman, A., & Selva, T. J. (2004). Primary care supports for children with chronic health conditions: Identifying and predicting unmet family needs. Journal of Pediatric Psychology, 29(5), 355-367. (Pubitemid 38856427)
    • (2004) Journal of Pediatric Psychology , vol.29 , Issue.5 , pp. 355-367
    • Farmer, J.E.1    Marien, W.E.2    Clark, M.J.3    Sherman, A.4    Selva, T.J.5
  • 11
    • 0036779724 scopus 로고    scopus 로고
    • The value of combining qualitative and quantitative approaches in nursing research by means of method triangulation
    • Foss, C., & Ellefsen, B. (2002). The value of combining qualitative and quantitative approaches in nursing research by means of method triangulation. Journal of Advanced Nursing, 40(2), 242-248.
    • (2002) Journal of Advanced Nursing , vol.40 , Issue.2 , pp. 242-248
    • Foss, C.1    Ellefsen, B.2
  • 13
    • 33846921789 scopus 로고    scopus 로고
    • Autism spectrum disorders: developmental disconnection syndromes
    • DOI 10.1016/j.conb.2007.01.009, PII S0959438807000116
    • Geschwind, D. H., & Levitt, P. (2007). Autism spectrum disorders: Developmental disconnection syndromes. Current Opinion in Neurobiology, 17, 103-111. (Pubitemid 46237744)
    • (2007) Current Opinion in Neurobiology , vol.17 , Issue.1 , pp. 103-111
    • Geschwind, D.H.1    Levitt, P.2
  • 14
    • 58149343788 scopus 로고    scopus 로고
    • Maternal parenting stress and its correlates in families with a young child with cerebral palsy
    • Glenn, S., Cunningham, C., Poole, H., Reeves, D., & Weindling, M. (2009). Maternal parenting stress and its correlates in families with a young child with cerebral palsy. Child: Care, Health & Development, 35(1), 71-78.
    • (2009) Child: Care, Health & Development , vol.35 , Issue.1 , pp. 71-78
    • Glenn, S.1    Cunningham, C.2    Poole, H.3    Reeves, D.4    Weindling, M.5
  • 16
    • 78149287970 scopus 로고    scopus 로고
    • Parenting challenges in families of children with autism: A pilot study
    • Hall, H. R., & Graff, J. C. (2010). Parenting challenges in families of children with autism: A pilot study. Issues in Comprehensive Pediatric Nursing, 33(4), 187-204.
    • (2010) Issues in Comprehensive Pediatric Nursing , vol.33 , Issue.4 , pp. 187-204
    • Hall, H.R.1    Graff, J.C.2
  • 17
    • 79952206158 scopus 로고    scopus 로고
    • The relationships among adaptive behaviors of children with autism, family support, parenting stress, and coping
    • Hall, H. R., & Graff, J. C. (2011). The relationships among adaptive behaviors of children with autism, family support, parenting stress, and coping. Issues in Comprehensive Pediatric Nursing, 34(1), 4-25.
    • (2011) Issues in Comprehensive Pediatric Nursing , vol.34 , Issue.1 , pp. 4-25
    • Hall, H.R.1    Graff, J.C.2
  • 18
    • 0036056928 scopus 로고    scopus 로고
    • Factors related to positive perceptions in mothers of children with intellectual disabilities
    • DOI 10.1046/j.1468-3148.2002.00104.x
    • Hastings, R. P., Allen, R., McDermott, K., & Still, D. (2002). Factors related to positive perceptions in parents of children with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15(3), 269-275. (Pubitemid 36725531)
    • (2002) Journal of Applied Research in Intellectual Disabilities , vol.15 , Issue.3 , pp. 269-275
    • Hastings, R.P.1    Allen, R.2    McDermott, K.3    Still, D.4
  • 19
    • 7444228631 scopus 로고    scopus 로고
    • Practitioner review: Stress intervention for parents of children with intellectual disabilities
    • DOI 10.1111/j.1469-7610.2004.00357.x
    • Hastings, R. P., & Beck, A. (2004). Practitioner review: Stress intervention for parents for children with intellectual disabilities. Journal of Child Psychology and Psychiatry, 45(8), 1338-1349. (Pubitemid 39445602)
    • (2004) Journal of Child Psychology and Psychiatry and Allied Disciplines , vol.45 , Issue.8 , pp. 1338-1349
    • Hastings, R.P.1    Beck, A.2
  • 20
    • 0035375893 scopus 로고    scopus 로고
    • Stress in UK Families Conducting Intensive Home-Based Behavioral Intervention for Their Young Child with Autism
    • DOI 10.1023/A:1010799320795
    • Hastings, R. P., & Johnson, E. (2001). Stress in the UK families conducting intensive home-based behavioral intervention for their young child with autism. Journal of Autism and Developmental Disorders, 31(3), 327-336. (Pubitemid 37516752)
    • (2001) Journal of Autism and Developmental Disorders , vol.31 , Issue.3 , pp. 327-336
    • Hastings, R.P.1    Johnson, E.2
  • 21
    • 0025975863 scopus 로고
    • Deformities of the hip in adults who have sickle-cell disease and had avascular necrosis in childhood. A natural history of fifty-two patients
    • Hernigou, P., Galacteros, F., Bachir, D., & Goutallier, D. (1991). Deformities of the hip in adults who have sickle-cell disease and had avascular necrosis in childhood. A natural history of fifty-two patients. The Journal of Bone Joint Surgery, 73(1), 81-92.
    • (1991) The Journal of Bone Joint Surgery , vol.73 , Issue.1 , pp. 81-92
    • Hernigou, P.1    Galacteros, F.2    Bachir, D.3    Goutallier, D.4
  • 22
    • 27844518793 scopus 로고    scopus 로고
    • Three approaches to qualitative content analysis
    • DOI 10.1177/1049732305276687
    • Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277-1288. (Pubitemid 41645161)
    • (2005) Qualitative Health Research , vol.15 , Issue.9 , pp. 1277-1288
    • Hsieh, H.-F.1    Shannon, S.E.2
  • 23
    • 33750592879 scopus 로고    scopus 로고
    • Family adaptation, coping and resources: Parents of children with developmental disabilities and behaviour problems
    • Jones, J., & Passey, J. (2004). Family adaptation, coping and resources: Parents of children with developmental disabilities and behaviour problems. Journal on Developmental Disabilities, 11(1), 31-46.
    • (2004) Journal on Developmental Disabilities , vol.11 , Issue.1 , pp. 31-46
    • Jones, J.1    Passey, J.2
  • 24
    • 1242320035 scopus 로고    scopus 로고
    • Re-injecting spontaneity and balance in family life: Parents' perspective on recreation in families that include children with developmental disability
    • DOI 10.1111/j.1365-2788.2004.00502.x
    • Mactavish, J. B., & Schleien, S. J. (2004). Re-injecting spontaneity and balance in family life: Parents' perspectives on recreation in families that include children with developmental disability. Journal of Intellectual Disability Research, 48(Part 2), 123-141. (Pubitemid 38219591)
    • (2004) Journal of Intellectual Disability Research , vol.48 , Issue.2 , pp. 123-141
    • Mactavish, J.B.1    Schleien, S.J.2
  • 25
    • 0001783833 scopus 로고
    • Families coping with illness: The resiliency model of family stress, adjustment, and adaptation
    • C.B. Danielson, B. Hamel-Bissell, & P. Winstead-Fry (Eds.) St. Louis, MO: C.V. Mosby
    • McCubbin, M. A., & McCubbin, H. I. (1993). Families coping with illness: The Resiliency Model of Family Stress, Adjustment, and Adaptation. In C.B. Danielson, B. Hamel-Bissell, & P. Winstead-Fry (Eds.), Families, health, and illness: Perspectives on coping and intervention (pp. 21-63). St. Louis, MO: C.V. Mosby.
    • (1993) Families, Health, and Illness: Perspectives on Coping and Intervention , pp. 21-63
    • McCubbin, M.A.1    McCubbin, H.I.2
  • 26
    • 65949101666 scopus 로고    scopus 로고
    • Community management of intellectual disabilities in Pakistan: A mixed methods study
    • Mirza, I., Tareen, A., Davidson, L. L., & Rahman, A. (2009). Community management of intellectual disabilities in Pakistan: A mixed methods study. Journal of Intellectual Disability Research, 53(Part 6), 559-570.
    • (2009) Journal of Intellectual Disability Research , vol.53 , Issue.PART 6 , pp. 559-570
    • Mirza, I.1    Tareen, A.2    Davidson, L.L.3    Rahman, A.4
  • 27
    • 84856047074 scopus 로고    scopus 로고
    • Families of children with disabilities: A review of literature and recommendations for interventions
    • Neely-Barnes, S. L. & Dia, D. A. (2008). Families of children with disabilities: A review of literature and recommendations for interventions. Journal of Early and Intensive Behavior Intervention, 5(3), 93-107.
    • (2008) Journal of Early and Intensive Behavior Intervention , vol.5 , Issue.3 , pp. 93-107
    • Neely-Barnes, S.L.1    Dia, D.A.2
  • 32
    • 51249103041 scopus 로고    scopus 로고
    • A model of stress in families of children with developmental disabilities: Clinical and research applications
    • Retrieved August 20, 2008, from
    • Perry, A. (2004). A model of stress in families of children with developmental disabilities: Clinical and research applications. Journal on Developmental Disabilities, 11(1), 1-16. Retrieved August 20, 2008, from www.oadd.org/publications/journal/issues/vol11no1/download/perry.pdf
    • (2004) Journal on Developmental Disabilities , vol.11 , Issue.1 , pp. 1-16
    • Perry, A.1
  • 33
    • 84995328320 scopus 로고    scopus 로고
    • [Computer software]. Retrieved May 15, 2007, from
    • QSR International Pty Ltd. (2006). NVivo7. [Computer software]. Retrieved May 15, 2007, from http://www.qsrinternational.com.
    • (2006) NVivo7
  • 34
    • 68849128219 scopus 로고    scopus 로고
    • The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning
    • Rao, P. A., & Beidel, D. C., (2009). The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning. Behavior Modification, 33(4), 437-451.
    • (2009) Behavior Modification , vol.33 , Issue.4 , pp. 437-451
    • Rao, P.A.1    Beidel, D.C.2
  • 36
    • 0036845889 scopus 로고    scopus 로고
    • Cognitive approaches to stress and coping
    • DOI 10.1097/00001504-200211000-00012
    • Roesch, S. C., Weiner, B., & Vaughn, A. A. (2002). Cognitive approaches to stress and coping. Current Opinion in Psychiatry, 15(6), 627-632. (Pubitemid 35305814)
    • (2002) Current Opinion in Psychiatry , vol.15 , Issue.6 , pp. 627-632
    • Roesch, S.C.1    Weiner, B.2    Vaughn, A.A.3
  • 38
    • 73949145604 scopus 로고    scopus 로고
    • Course of behavior problems of children with cerebral palsy: The role of parental stress and support
    • Sipal, R. F., Schuengel, C., Voorman, J. M., Van Eck, M., & Becher, J. G. (2010). Course of behavior problems of children with cerebral palsy: The role of parental stress and support. Child: Care, Health, and Development, 36(1), 74-84.
    • (2010) Child: Care, Health, and Development , vol.36 , Issue.1 , pp. 74-84
    • Sipal, R.F.1    Schuengel, C.2    Voorman, J.M.3    Van Eck, M.4    Becher, J.G.5
  • 39
    • 0037491236 scopus 로고    scopus 로고
    • Explaining the parental stress of fathers and mothers caring for a child with intellectual disability: A Double ABCX model
    • DOI 10.1046/j.1365-2788.2003.00492.x
    • Solevita, T., Italiana, N., & Leinonen, E. (2003). Explaining the parental stress of fathers and mothers caring for a child with intellectual disability. A Double ABCX model. Journal of Intellectual Disability Research, 47(4-5), 300-312. (Pubitemid 36763842)
    • (2003) Journal of Intellectual Disability Research , vol.47 , Issue.4-5 , pp. 300-312
    • Saloviita, T.1    Italinna, M.2    Leinonen, E.3
  • 40
    • 0031959939 scopus 로고    scopus 로고
    • The positive impact of children with an intellectual disability on the family
    • Stainton, T., & Besser, H. (1998). The positive impact of children with an intellectual disability on the family. Journal of Intellectual & Developmental Disability, 23(1), 57-70. (Pubitemid 28156165)
    • (1998) Journal of Intellectual and Developmental Disability , vol.23 , Issue.1 , pp. 57-70
    • Stainton, T.1    Besser, H.2
  • 41
    • 4143125051 scopus 로고    scopus 로고
    • Major issues and controversies in the use of mixed methods in the social and behavioral sciences
    • A. Tashakkori & C. E. Teddlie (Eds.) Thousand Oaks, CA: Sage
    • Teddlie, C., & Tashakkori, A. (2003). Major issues and controversies in the use of mixed methods in the social and behavioral sciences. In A. Tashakkori & C. E. Teddlie (Eds.), Handbook of mixed methods in the social and behavioral sciences (pp. 3-50). Thousand Oaks, CA: Sage.
    • (2003) Handbook of Mixed Methods in the Social and Behavioral Sciences , pp. 3-50
    • Teddlie, C.1    Tashakkori, A.2
  • 42
    • 2342585403 scopus 로고    scopus 로고
    • The relationship between behaviours exhibited by children with autism and maternal stress
    • DOI 10.1080/13668250410001662892
    • Tomanik, S., Harris, G. E., & Hawkins, J. (2004). The relationship between behaviours exhibited by children with autism and maternal distress. Journal of Intellectual & Developmental Disability, 29(1), 16-26. (Pubitemid 38581314)
    • (2004) Journal of Intellectual and Developmental Disability , vol.29 , Issue.1 , pp. 16-26
    • Tomanik, S.1    Harris, G.E.2    Hawkins, J.3
  • 43
    • 33646364805 scopus 로고    scopus 로고
    • Steve de Shazer and the future of solution-focused therapy
    • DOI 10.1111/j.1752-0606.2006.tb01595.x
    • Trepper, T. S., Dolan, Y., McCollum, E. E. & Nelson, T. (2006). Steve de Shazer and the future of solution focused therapy. Journal of Marital and Family Therapy, 32(2), 133-139. (Pubitemid 43667390)
    • (2006) Journal of Marital and Family Therapy , vol.32 , Issue.2 , pp. 133-139
    • Trepper, T.S.1    Dolan, Y.2    McCollum, E.E.3    Nelson, T.4
  • 44
    • 76649145410 scopus 로고    scopus 로고
    • Accentuate the positive to mitigate the negative: Mother psychological coping resources and family adjustment in childhood disability
    • Trute, B., Benzies, K.M., Worthington, C., Reddon, J.R., & Moore, M. (2010). Accentuate the positive to mitigate the negative: Mother psychological coping resources and family adjustment in childhood disability. Journal of Intellectual and Developmental Disability, 35(1), 36-43.
    • (2010) Journal of Intellectual and Developmental Disability , vol.35 , Issue.1 , pp. 36-43
    • Trute, B.1    Benzies, K.M.2    Worthington, C.3    Reddon, J.R.4    Moore, M.5
  • 45
    • 33947130691 scopus 로고    scopus 로고
    • Parental appraisal of the family impact of childhood developmental disability: Times of sadness and times of joy
    • DOI 10.1080/13668250601146753, PII 772842012
    • Trute, B., Hiebert-Murphy, D., & Levine, K. (2007). Parental appraisal of the family impact of childhood developmental disability: Times of sadness and times of joy. Journal of Intellectual and Developmental Disability, 32(1), 1-9. (Pubitemid 46399028)
    • (2007) Journal of Intellectual and Developmental Disability , vol.32 , Issue.1 , pp. 1-9
    • Trute, B.1    Hiebert-Murphy, D.2    Levine, K.3
  • 46
    • 4644285329 scopus 로고    scopus 로고
    • Molecular genetics of autism spectrum disorder
    • DOI 10.1038/sj.mp.4001505
    • Veenstra-VanderWeele, J., & Cook, E. H. (2004). Molecular genetics of autism spectrum disorder. Molecular Psychiatry, 9, 819-832. (Pubitemid 39273532)
    • (2004) Molecular Psychiatry , vol.9 , Issue.9 , pp. 819-832
    • Veenstra-VanderWeele, J.1    Cook Jr., E.H.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.