Exploring parent-sibling communication in families of children with sickle cell disease

Comprehensive Child and Adolescent Nursing

Volumn 33, Issue 2, 2010, Pages 101-123

  Graff, J Carolyn ^a   Hankins, Jane S ^b   Hardy, Belinda T ^a   Hall, Heather R ^c   Roberts, Ruth J ^b   Neely Barnes, Susan L ^d  

^a UNIVERSITY OF TENNESSEE HEALTH SCIENCE CENTER   (United States)

^b ST JUDE CHILDREN S RESEARCH HOSPITAL   (United States)

^c UNIVERSITY OF SOUTH ALABAMA   (United States)

^d UNIVERSITY OF TENNESSEE   (United States)

Author keywords

African American families; Family communication; Parent sibling communication; Siblings; Sickle cell disease

Indexed keywords

EID: 77951008853     PISSN: 01460862     EISSN: 1521043X     Source Type: Journal    
DOI: 10.3109/01460861003663987     Document Type: Article

References (28)

1. Ashley-Koch, A., Yang, Q., & Olney, R.S. (2000). Sickle hemoglobin (HbS) allele and sickle cell disease: A HuGE review. American Journal of Epidemiology, 151, 839-845. (Pubitemid 30461125)
2. Barakat, L.P., Patterson, C.A., Tarazi, R.A., & Ely, E. (2007). Disease-related parenting stress in two sickle cell disease caregiver samples: Preschool and adolescent. Families, Systems, & Health, 25, 147-161. (Pubitemid 47445316)
3. Barnes, A.S. (1989). The Black middle class family. Bristol, IN: Wyndham Hall.
4. Boyd-Franklin, N. (1989). Five key factors in the treatment of Black families. In S.W. Saba, B.M. Karrer, & K.V. Hardy (Eds.), Minorities in family therapy (pp. 53-69). New York, NY: Haworth. (Pubitemid 20112133)
5. Denzin, N.K., & Lincoln, Y.S. (2005). Handbook of qualitative research (3rd ed.). Thousand Oaks, CA: Sage.
6. Fanos, J.H., Davis, J., & Puck, J.M. (2001). Sib understanding of genetics and attitudes towards carrier testing for x-linked severe combined immunodeficiency. American Journal of Medical Genetics, 98, 46-56. (Pubitemid 32041850)
7. Fitzpatrick, M.A., & Caughlin, J.P. (2002). Interpersonal communication in family relationships. In M.L. Knapp & J.A. Daly (Eds.), Handbook of interpersonal communication (3rd ed., pp. 726-777). Thousand Oaks, CA: Sage.
8. Giallo, R. & Gavidia-Payne, S. (2006). Child, parent and family factors as predictors of adjustment for siblings of children with a disability. Journal of Intellectual Disability Research, 50, 937-948. (Pubitemid 44697919)
9. Gold, J.I., Treadwell, M., Weissman, L., Vichinsky, E. (2008). An expanded Transactional Stress and Coping Model for siblings of children with sickle cell disease: Family functioning and sibling coping, self-efficacy and perceived social support. Child: Care, health and development, 34, 491-502. (Pubitemid 351818804)
10. Hill, R. (1972). The strengths of Black families. New York, NY: Emerson-Hall.
11. Hines, P.M., & Boyd-Franklin, N. (1982). African American families. In M. McGoldrick, J. Giordano, & Garcia-Preto, N. (Eds.), Ethnicity and family therapy (pp. 87-100). New York, NY: Guilford.
12. Horsely, H. & Patterson, T. (2006). The effects of a parent guidance intervention on communication among adolescents who have experienced the sudden death of a sibling. The American Journal of Family Therapy, 34, 119-137.
13. Kane, C.M. (2000). African American family dynamics as perceived by family members. Journal of Black Studies, 30, 691-702.
14. Krueger, R.A., & Casey, M.A. (2000). Focus groups: A practical guide for applied research (3rd ed.). Thousand Oaks, CA: Sage.
15. Lerner, N.B., Platania, B.L., LaBella, S. (2009). Newborn sickle cell screening in a region of Western New York State. The Journal of Pediatrics, 154(1), 121-125.
16. Lewis, D. (1972). The Black family: Socialization and sex roles. Phylon, 2, 221-237.
17. Miller, S.T., Macklin, E.A., Pegelow, C.H., Kinney, T.R., Sleeper, L.A., Bello, J.A., et al. (2001). Silent infarction as a risk for over stroke in children with sickle cell anemia: A report from the Cooperative Study of Sickle Cell Disease. Journal of Pediatrics, 139(3), 385-390. (Pubitemid 32889515)
18. Morgan, D.L. (1997). Focus groups as qualitative research (2nd ed.). Thousand Oaks, CA: Sage.
19. National Heart, Lung, and Blood Institute. (2002). The management of sickle cell disease. (NIH Publication No. 02-2117). Bethesda, MD: Author. Retrieved November 14, 2009 from http://www.nhlbi.nih.gov/health/prof/blood/ sickle/sc-mngt.pdf
20. Pearson, H.A., Spencer, R.P., & Cornelius, E.A. (1969). Functional asplenia in sickle-cell anemia. New England Journal of Medicine, 281, 923-926.
21. Pit-ten Cate, I. M. & Loots, G. M. P. (2000). Experiences of siblings of children with physical disabilities: An empirical investigation. Disability and Rehabilitation, 22, 399-408.
22. QSR International. (2007). NVivo7. [Computer software]. Retrieved from http:// www.qsrinternational.com/default.aspx
23. Schatz, J., Brown, R.T., Pascual, J.M., Hsu, L., DeBaun, M.R. (2001). Poor school and cognitive functioning with silent cerebral infarcts and sickle cell disease. Neurology, 56, 1109-1111. (Pubitemid 32336325)
24. Serjeant, G.R., & Serjeant, B.E. (2001). The spleen. In: G.R. Serjeant, B.E. Serjeant (Eds.), Sickle Cell Disease (pp. 149-169). New York, NY: Oxford University Press, 2001.
25. Smith, J.A. (1996). Evolving issues for qualitative psychology. In J.T.E. Richardson (Ed.). Handbook of qualitative research methods for psychology and the social sciences. (pp. 189-201). Malden, MA: BPS Blackwell.
26. Stewart, P. (2007). Who is kin? Family definition and African American families. Journal of Human Behavior in the Social Environment, 15, 163-181.
27. Vichinsky, E., & Lubin, B.H. (1987). Suggested guidelines for the treatment of children with sickle cell anemia. Hematology/Oncology Clinics of North America, 1(3), 483-501. (Pubitemid 18087562)
28. Wilson, W.J. (1987). The truly disadvantaged: The inner city underclass and public policy. Chicago, IL: University of Chicago.